Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for May 2015

Swollowing

Hi guys. Has anyone had swallowing problems with their PMR before treatment started. I did and it started to return as the pred is reduced! Ta for listening, cc

Hi guys. Has anyone had swallowing problems with their PMR before treatment star...

Carrollee

•9 years ago

8 Replies

Weight...

I've been of 15mg of predisolone for 3 weeks after PMR diagnosis. My stomach is already bigger! Can this be the steroids already? Or have I just put on weight....

I've been of 15mg of predisolone for 3 weeks after PMR diagnosis. My stomach is ...

Jennykk

•9 years ago

12 Replies

~Any unexplained lung discomfort with PMR?

Hi to my trusty network helpers. Winter is here in NZ (officially today) although had cold snap last 2 weeks. Day time temps not as bad as yours in UK but...

Hi to my trusty network helpers. Winter is here in NZ (officially today) althoug...

Megams

•9 years ago

14 Replies

Want to take advantage of all our features? Just log in!

I need expert's advice

Iam 32 n 5.7" iam very thin n my body weight is jus 55 kilograms I need to gain weight please help me

Iam 32 n 5.7" iam very thin n my body weight is jus 55 kilograms I need to gain ...

shobs

•9 years ago

4 Replies

Newly joined

shobs

•9 years ago

2 Replies

Should GCA sufferers take the shingles vaccine?

http://consumer.healthday.com/senior-citizen-information-31/misc-aging-news-10/study-ties-shingles-virus-to-dangerous-blood-vessel-disease-in-elderly-696591.htm

http://consumer.healthday.com/senior-citizen-information-31/misc-aging-news-10/s...

Asbeck

•9 years ago

4 Replies

feeling of woolly head and wobbly legs after taking 40mg steriods

Is it usual to feel so odd after taking my morning medications. Some days are worse than others but most days I feel very wobbly and as if my head does not...

Is it usual to feel so odd after taking my morning medications. Some days are w...

jaida70

•9 years ago

6 Replies

Thank you

Thank you all for your helpful replies. 30028 and Beringer, nice to know you are in California, and I will be contacting you. However I am really sick at the...

Thank you all for your helpful replies. 30028 and Beringer, nice to know you are...

DeliaGray

•9 years ago

4 Replies

Hi All

I'm new to all this, I was diagnosed with PMR in April 2015, It was caused by an allergic reaction to a vaccination I had done in January! Since April I have...

I'm new to all this, I was diagnosed with PMR in April 2015, It was caused by an...

Lorraine21

•9 years ago

18 Replies

Rectal bleed

I know that Prednisolone has many and varied side effects, but last night I had a very sudden rectal bleed, was very frightening. Phoned 111 they sent out...

I know that Prednisolone has many and varied side effects, but last night I had ...

Lin-63

•9 years ago

7 Replies

Prednisone dose error

Meant to say that I am now on 17 mg. done slowly from 20 mg.

DeliaGray

•9 years ago

Be the first to reply

Drug named Tocilizumab or also Actemra

Has anyone had any experience with these drugs.? I have written several times before, and now have a new Rheumatologist in San Francisco who is wonderful She...

Has anyone had any experience with these drugs.? I have written several times be...

DeliaGray

•9 years ago

6 Replies

Urgent advice please

Been into hospital since my last post and been examined by three different Doctors. Regarding my breathlessness they could'nt decide whether this is heart...

Been into hospital since my last post and been examined by three different Docto...

Classicmichael

•10 years ago

13 Replies

Turmeric & Blood Thinners

I posted this on the patient.co.uk forum also, but I thought I would share it here too. Since being diagnosed with PMR Sept, 2014, I've tried to follow an...

I posted this on the patient.co.uk forum also, but I thought I would share it he...

SweetSue

•10 years ago

1 Reply

Find a Doctor that works you & PMR!

Having been on 15mg pred for 6 wks since March 2015 was reduced to 12.5 mg and pain in hips came back with fury. I couldn't wait for Rhuematologist...

Having been on 15mg pred for 6 wks since March 2015 was reduced to 12.5 mg and ...

jane57

•10 years ago

5 Replies

Long flight help !

Heading off to Bulgaria on Monday , flight about 4 hrs long . Suffering with chronic ischial tuberosity pain in my bottom so v painful to sit for too long ....

Heading off to Bulgaria on Monday , flight about 4 hrs long . Suffering with chr...

bumpermac

•10 years ago

3 Replies

Given up

Hi everyone, all you kind people that have supported me. Been away from the computer, had an awful virus for about three weeks. The situation with my NHS...

Hi everyone, all you kind people that have supported me. Been away from the comp...

Old_Bedfordian

•10 years ago

6 Replies

GCA and sense of smell

Since dropping to 10 mg this week I have had a strange phantom smell like something smouldering. Should I be worried do you think? I am also getting periods...

Since dropping to 10 mg this week I have had a strange phantom smell like someth...

Rjw2014

•10 years ago

2 Replies

GCA and deafness

Hi guys. How's things? Can you help? I keep getting a stiff throbbing jaw (left side) when I eat. It just feels numbish the rest of the time. No headache but...

Hi guys. How's things? Can you help? I keep getting a stiff throbbing jaw (left...

Carrollee

•10 years ago

11 Replies

Help with tapering pred

Newly Diagnosed with PMR March 2015 and put on 15mg of Pred along with Vit C & D. Also suggested Alandronic Acid which I haven't started as I intend to...

Newly Diagnosed with PMR March 2015 and put on 15mg of Pred along with Vit C & ...

jane57

•10 years ago

15 Replies

Odd Cramping in little finger with PMR

Hi anyone else get odd pains/symptoms with their PMR. Over the last few days I have started to get a cramping feeling in the base joint of my little fingers....

Hi anyone else get odd pains/symptoms with their PMR. Over the last few days I ...

Mintymow

•10 years ago

7 Replies

Hereditary

Hi folks Would anyone know if PMR or GCA is hereditary. I have GCA and my daughter, who has a low thyroid feels very listless and everything is an effort for...

Hi folks Would anyone know if PMR or GCA is hereditary. I have GCA and my daugh...

notnice

•10 years ago

27 Replies

Best steroid side effect ever

I got stung by a bee yesterday and guess what? No red lump. I'm on 8mgs Pred and methotrexate and I think they cured me. Today it's itchy and still nothing to...

I got stung by a bee yesterday and guess what? No red lump. I'm on 8mgs Pred an...

Hidden

•10 years ago

1 Reply

Does anyone know of a private doctor please?

Does anyone know of a doctor that could help with thyroid issues, but mainly adrenal issues please apart from Dr P? I really need help trying to get off the...

Does anyone know of a doctor that could help with thyroid issues, but mainly ad...

TJM3

•10 years ago

9 Replies

Temporal Arteritis

Hi, Very new to all this and totally befuddled by it all. Four weeks ago I was sent urgently to hospital. I was seen by a rheumatologist who immediately put me...

Hi, Very new to all this and totally befuddled by it all. Four weeks ago I was s...

Lin-63

•10 years ago

10 Replies

Learning by trial & error

I am so pleased I joined this forum after reading about it in Kate Gilbert’s book. I read the posts daily and follow everyone’s journey with interest and...

I am so pleased I joined this forum after reading about it in Kate Gilbert’s boo...

magmapearl3

•10 years ago

9 Replies

Would you raise your steroids?

I have been decreasing my steroids and as usual got to 14mg and have flared up.My Dr says I can go up to 15mg again which I have done but after 1 day my...

I have been decreasing my steroids and as usual got to 14mg and have flared up...

Bailybiscuit

•10 years ago

13 Replies

Pred for pmr and gca

I have now been diagnosed with both pmr and gca. Consultant has put me on 40mg pred for one week, then week on 30 then four weeks on 20mg. I will then have...

I have now been diagnosed with both pmr and gca. Consultant has put me on 40mg p...

Soosie56

•10 years ago

6 Replies

Reducing steroids

I was diagnosed with PMR a few weeks ago. Was started at 15 mg pred and all the supplements. Had a follow up with the rheumatologist after three weeks and...

I was diagnosed with PMR a few weeks ago. Was started at 15 mg pred and all the ...

Hidden

•10 years ago

9 Replies

Still confused only less so!

Hi A later blood test shows remarkable similarity to the last one ESR/CRP same values however the GP pointed out that my haemoglobin levels are borderline and...

Hi A later blood test shows remarkable similarity to the last one ESR/CRP same ...

violetsnowdrop

•10 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2015

Swollowing

Weight...

~Any unexplained lung discomfort with PMR?

I need expert's advice

Newly joined

Should GCA sufferers take the shingles vaccine?

feeling of woolly head and wobbly legs after taking 40mg steriods

Thank you

Hi All

Rectal bleed

Prednisone dose error

Drug named Tocilizumab or also Actemra

Urgent advice please

Turmeric & Blood Thinners

Find a Doctor that works you & PMR!

Long flight help !

Given up

GCA and sense of smell

GCA and deafness

Help with tapering pred

Odd Cramping in little finger with PMR

Hereditary

Best steroid side effect ever

Does anyone know of a private doctor please?

Temporal Arteritis

Learning by trial & error

Would you raise your steroids?

Pred for pmr and gca

Reducing steroids

Still confused only less so!

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive