Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for November 2021

Left thigh pain

Reduced from 20mg now down to 6mg, mostly fine but left thigh extremely painful making walking virtually impossible. My question is has anyone else had similar...

Reduced from 20mg now down to 6mg, mostly fine but left thigh extremely painful ...

TheGreatPretender

•3 years ago

15 Replies

Sorry me again

My hips are killing me five days now. I’m struggling to work out if it’s a flare. Iv reduced from 13.5 to 12.5 8 days ago. It fill like Iv been kicked by a...

My hips are killing me five days now. I’m struggling to work out if it’s a flar...

Uglow

•3 years ago

40 Replies

Terrible timing - 2 hour power cut this morning when I had 3 fruit cakes in the oven!

.....but on the positive side, I had my first Shingrix Shingles jab this afternoon. Of course, my GP records have no mention that I’m on Tocilizumab injections...

.....but on the positive side, I had my first Shingrix Shingles jab this afterno...

Suzita76

•3 years ago

15 Replies

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Consultant

Hi please can anyone help. I have PMR and GCA diagnosed July 2020, started on 40mg prednisolone. Was encouraged to get down quickly (approximately 6 weeks)...

Hi please can anyone help. I have PMR and GCA diagnosed July 2020, started on 40...

Bibberty

•3 years ago

15 Replies

Any ideas to help with pain ??

Hi I’m 2 weeks into a really nasty painful relapse ! Steroids 30 mg not doing much and painkillers seem to be doing less. Any suggestions gratefully received ....

Hi I’m 2 weeks into a really nasty painful relapse ! Steroids 30 mg not doing mu...

Sidneydog1

•3 years ago

11 Replies

Thyroid problems, levothyroxine and prednisolone ...

This is a question that crops up from time to time and this Fast Quiz popped up from Medscape recently and again today - I thought others would be interested,...

This is a question that crops up from time to time and this Fast Quiz popped up ...

PMRpro

Ambassador•3 years ago

53 Replies

Can pred cause muscle spasms?

On high doses of pred I had spasms at the bottom of my feet. They went away when the dose came down. I’m back up to 40 mg and the spasms are even worse this...

On high doses of pred I had spasms at the bottom of my feet. They went away when...

nallufl24

•3 years ago

22 Replies

A pain in the vein!

Had a lovely day in Exeter with friends but while we were shopping I got some pain in the veins of my wrist and lower arm. Didn’t last long and didn’t return...

Had a lovely day in Exeter with friends but while we were shopping I got some pa...

Hidden

•3 years ago

4 Replies

Update to post re cardiac issues

I thought I would write a separate post rather than try to reply individually. First of all, thank you for your responses - it was good to have your support....

I thought I would write a separate post rather than try to reply individually. F...

Janann25

•3 years ago

6 Replies

Birdie

Definitely off-piste, but how did this little kingfisher get to represent me? Very nice, but nothing to do with me, so far as I know!

Definitely off-piste, but how did this little kingfisher get to represent me? Ve...

Sharitone

•3 years ago

21 Replies

Private consultations

Hi, does anyone know if it is possible to see either Prof Dasgupta or Dr. Sarah Mackie for a private appointment, and if so, how do l go about it please? I’ve...

Hi, does anyone know if it is possible to see either Prof Dasgupta or Dr. Sarah ...

Alwynk

•3 years ago

66 Replies

Cataract surgery success

Hello everyone! Just popping in to say I had the Pred-induced cataract removed from my right eye last week 👁 and it went really well. Brilliant in fact! 🤩 My...

Hello everyone! Just popping in to say I had the Pred-induced cataract removed f...

xdbx

•3 years ago

24 Replies

Cardiac issues

Last Wednesday I experienced chest tightness accompanied by BP of 220/102 So I rang 111 and was then taken to A&E where it wasn’t clear whether I had...

Last Wednesday I experienced chest tightness accompanied by BP of 220/102 So I...

Janann25

•3 years ago

23 Replies

Cod Liver Oil

Does anyone know if it is ok to have cod liver oil to build up my adrenalines. I have read it is a good idea. Advice appreciated.

Does anyone know if it is ok to have cod liver oil to build up my adrenalines. I...

Crommie

•3 years ago

2 Replies

Pain doesn't kill, but.........!!!

it is dambed difficult to live with.😏 I have upped my pred (7mg instead of 4 mg). I have PMR and Seronegative Polyarthritis (it's inflammatory). I will stay...

it is dambed difficult to live with.😏 I have upped my pred (7mg instead of 4 mg...

Constance13

•3 years ago

75 Replies

Update on my PMR journey.

Hi everyone. I’m still struggling with various side effects of prednisolone, but still largely pain free from PMR at the moment. Down from 30mg to 20mg now. My...

Hi everyone. I’m still struggling with various side effects of prednisolone, but...

Daisymaud

•3 years ago

29 Replies

Tocilizumab cessation.

I posted recently concerning the fear and dread the withdrawal of this excellent treatment causes myself and fellow sufferers of GCA/PMR. To further update I...

I posted recently concerning the fear and dread the withdrawal of this excellent...

AncientMariner

•3 years ago

5 Replies

Absolutely down

I know, fir all that know me I am usually OK, hence I don't write often. I started this journey with PMR andbGCA in 2015, big journey till now, house move,...

I know, fir all that know me I am usually OK, hence I don't write often. I st...

morrison

•3 years ago

8 Replies

Any positive results from taking Methotrexate?

Does anyone have any positive results from taking Methotrexate? I am on 6 tablets 2.5 mg once a week. Plus I am taking 5 mg twice a day of Prednisone. I was...

Does anyone have any positive results from taking Methotrexate? I am on 6 tablet...

Chris0808

•3 years ago

29 Replies

Muffled ears

Tested positive end of august. Suddenly a month ago My ears were all muffled. Thought it was wax and arranged for a clearing of wax. No wax !!! Cranial...

Tested positive end of august. Suddenly a month ago My ears were all muffled. Th...

Bedwell

•3 years ago

20 Replies

Sleep

Anyone else just can’t wake up! Soooo tired bit haven’t done anything different.

Anyone else just can’t wake up! Soooo tired bit haven’t done anything different....

Uglow

•3 years ago

19 Replies

AFIB and PREDNISOLONE ANXIETY

Hi everyone, my gp suspects that i have GCA and wants me to go on 40mg of prednisolone straight away, he has also referred me to see a eye doctor on tuesday...

Hi everyone, my gp suspects that i have GCA and wants me to go on 40mg of pred...

tillyrose

•3 years ago

9 Replies

Important to remember this site does not replace your clinician's advice - PLEASE READ.

A really important reminder to everyone that this site is for sharing experiences and helping each other out with PMR and GCA related queries. Nothing on this...

A really important reminder to everyone that this site is for sharing experience...

Fran_Benson

Partner•3 years ago

Article on achieving a better relationship with your doctor

It’s a long article, but useful in these days of elusive and snatched appointments I thought....

It’s a long article, but useful in these days of elusive and snatched appointmen...

SheffieldJane

•3 years ago

16 Replies

Storm Arwen Off Piste

Well the back garden needs a make-over. Needless to say, I took this from inside as the wind is still blowing. Apologies for posting 🤔 off-piste.

Well the back garden needs a make-over. Needless to say, I took this from insid...

jinasc

•3 years ago

58 Replies

A question....regarding improper initial shock dose of Prednisone

When I woke and the sight in my left eye was gone, I called an ambulance thinking maybe I'd had a stroke. In the ER, due to my high SedRate and CRP and called...

When I woke and the sight in my left eye was gone, I called an ambulance thinkin...

Grammy80

•3 years ago

34 Replies

Stopping Tocilizumab

My Ophthalmologist has now mentioned ending my "allocation" of Tocilizumab whereby I will be maintained on 15 mg of Hydrocortisone and 20 mg of Methotrexate. I...

My Ophthalmologist has now mentioned ending my "allocation" of Tocilizumab where...

AncientMariner

•3 years ago

42 Replies

Timing of split doses- early morning waking up

I’m currently on 7mg having reduced from the initial 15mg over a couple of years. I read on this site about the practice of splitting the dose and this has...

I’m currently on 7mg having reduced from the initial 15mg over a couple of years...

Jackie_boy

•3 years ago

25 Replies

Low kidney function

Just had bloodwork done & kidney function (GFR) is low, does anyone else have this problem since having PMR

Just had bloodwork done & kidney function (GFR) is low, does anyone else have th...

Summerrental

•3 years ago

21 Replies

‘Cold calf’

A few days ago one side of my left calf started feeling cold. For a few weeks I’ve had a stretching type feeling behind both knees. I’m on 5mg pred and was on...

A few days ago one side of my left calf started feeling cold. For a few weeks I’...

Rancho

•3 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2021

Left thigh pain

Sorry me again

Terrible timing - 2 hour power cut this morning when I had 3 fruit cakes in the oven!

Consultant

Any ideas to help with pain ??

Thyroid problems, levothyroxine and prednisolone ...

Can pred cause muscle spasms?

A pain in the vein!

Update to post re cardiac issues

Birdie

Private consultations

Cataract surgery success

Cardiac issues

Cod Liver Oil

Pain doesn't kill, but.........!!!

Update on my PMR journey.

Tocilizumab cessation.

Absolutely down

Any positive results from taking Methotrexate?

Muffled ears

Sleep

AFIB and PREDNISOLONE ANXIETY

Important to remember this site does not replace your clinician's advice - PLEASE READ.

Article on achieving a better relationship with your doctor

Storm Arwen Off Piste

A question....regarding improper initial shock dose of Prednisone

Stopping Tocilizumab

Timing of split doses- early morning waking up

Low kidney function

‘Cold calf’

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