Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for June 2019

A couple of suggestions regarding surviving the heat...

Tepid showers, not cold showers, will bring down your body temperature, but not to the point where it kicks on your internal furnace. If you get too cool,...

Tepid showers, not cold showers, will bring down your body temperature, but not...

GOOD_GRIEF

•5 years ago

14 Replies

PMR in the heat...

...is no fun. Poopadoop's post about the cooling scarves is a great idea. They are, apparently, quite easy to make yourself if you are so inclined:...

...is no fun. Poopadoop's post about the cooling scarves is a great idea. They...

HeronNS

•5 years ago

1 Reply

Now the taper to 7mg

Have been waiting to get past our trip to UK and our interviews for naturalisation before tapering again. I took 7mg on Thursday am, knowing I'd not really...

Have been waiting to get past our trip to UK and our interviews for naturalisati...

IdasMum

•5 years ago

8 Replies

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CBD Oil - My Experience

So having been diagnosed with GCA/PMR/Fibro/Osteo Arthritis and Inflammatory Arthritis it is often difficult to determine what is causing any given discomfort...

So having been diagnosed with GCA/PMR/Fibro/Osteo Arthritis and Inflammatory Ar...

lesley2015

•5 years ago

29 Replies

Clicking knee

Can anyone advise me on my clicking knee, not all the time and not too painful. Could this be due to being on prednisolone for a year tapering down now to...

Can anyone advise me on my clicking knee, not all the time and not too painful. ...

HamishPMR

•5 years ago

8 Replies

Stomach irritation most of time.

Summer in America leaves most patients with docs on vacation and appointments more difficult. Ironically, the ER is for acute situations. The chronic ones...

Summer in America leaves most patients with docs on vacation and appointments mo...

Aleish

•5 years ago

39 Replies

Local group

Hi everyone! I’m new to this - it’s the first time I’ve posted anything anywhere! I am 77 and was diagnosed with PMR in September 2018. Can’t remember what my...

Hi everyone! I’m new to this - it’s the first time I’ve posted anything anywhere...

Whatgrange

•5 years ago

12 Replies

Persistent neck pain NOT pmr.

Hi. I have PMR 2.3 years and on 1 mg prednisone which I manage with some paracetamol and Oil tablets. My neck has been very sore for quite some time and an...

Hi. I have PMR 2.3 years and on 1 mg prednisone which I manage with some paracet...

Kaaswinkel72

•5 years ago

19 Replies

Steroid Injection

Hi Again Have managed at last to have a dexa scan this coming week. Have been feeling dizzy and unwell since being prescribed omeprazole a couple of weeks...

Hi Again Have managed at last to have a dexa scan this coming week. Have been ...

Marjorie237

•5 years ago

23 Replies

Diabetes 2 and Prednisolone

Hi, I have familial diabetes. When I started taking Pred for PR my hbac1 went extremely high. However I was put on a very large dose, this was last December....

Hi, I have familial diabetes. When I started taking Pred for PR my hbac1 went ex...

Wayfair

•5 years ago

8 Replies

heAdache

knawing heAdache. i have pmr since three years i am down to one mgm but the last few r have had a headache. maybe i am too low on the prednisone. i hate to...

knawing heAdache. i have pmr since three years i am down to one mgm but the la...

piping9

•5 years ago

8 Replies

Polymyalgia and Type II Diabetes

Hello everyone! I was diagnosed with PMR in November 2012 and until March 2014 was on 20mg Prednisolone reducing to 1mg. Since 2014 I have been clear of PMR....

Hello everyone! I was diagnosed with PMR in November 2012 and until March 2014 w...

Hidden

•5 years ago

15 Replies

Red face

Is a red face a common side effect of prednisone? I have always had a nice complexion and now my face just looks red all the time. It also seems more...

Is a red face a common side effect of prednisone? I have always had a nice comp...

Navion

•5 years ago

28 Replies

Adrenals

I was talking to someone the other day and they said they used Adrenal Rebuilders. Can that work for us? They suggested Adrenal rebuild by Dr.Wilson which is...

I was talking to someone the other day and they said they used Adrenal Rebuilder...

Baileyw06

•5 years ago

45 Replies

Venting , first post . PMR

I’m new. So happy to find this forum. I have been dealing with PMR for 13 months. At least it is something that will leave my body eventually. Thought it was...

I’m new. So happy to find this forum. I have been dealing with PMR for 13 months...

Chopin002

•5 years ago

26 Replies

Taking Pred at the 2am.

Thanks to several suggestions I have taken 10 mg in the 2 am for the first time and have no pain in my arms! Now I assume I have to take my split dose of the...

Thanks to several suggestions I have taken 10 mg in the 2 am for the first time ...

km5yx7

•5 years ago

5 Replies

Bruceaddy123

Hello I havent written before but I have had pmr for two & half years and on 5mg for 9 months , but now I am experiencing weak legs in my knees and thighs &...

Hello I havent written before but I have had pmr for two & half years and on 5mg...

Bruceaddy124

•5 years ago

15 Replies

How can l get some sleep?

Hi l have just gone down to 20mgs of pred from 221/2 and having bad insomnia. I have tried all sorts of sleep aids but no good.. l am at my wits end.😵.l...

Hi l have just gone down to 20mgs of pred from 221/2 and having bad insomnia. I...

Ryliefew123dogcat

•5 years ago

18 Replies

Help! Slept through. No Pred.. Pain and stiffnes!

Slept through last night. (A rare thing)... Didn't have pred... Pain and stiffness in shoulders/arms bad this morning... I'm cross with myself as I'm two...

Slept through last night. (A rare thing)... Didn't have pred... Pain and stiffne...

Oumaof2

•5 years ago

21 Replies

Welcome your observations and advice

After 2 days on 6.5 (from 7 for a month), I have woken with pain in new places. On 7 I had been virtually pain free. Today I have pain in outside of upper...

After 2 days on 6.5 (from 7 for a month), I have woken with pain in new places. ...

Legsy0714

•5 years ago

21 Replies

Auntie Bleary-eyeds , Bleary words of wisdom, for coping with the heat on holiday and summer sun with PMR , Fibro and any Chronic Illness.

Well , folks how was your day? Do you feel as limp as the lettuce in a British Rail Salad? Are you struggling day and night with the added burden of Heat...

Well , folks how was your day? Do you feel as limp as the lettuce in a British ...

Blearyeyed

•5 years ago

40 Replies

Question: who ARE you? Answer: I don't know. Steroid User......I guess.

People don't recognize me. I've spent most of the last 16 months on 20 or more mg of pred.-I look very very different. Due to a recent flare, I am back up to...

People don't recognize me. I've spent most of the last 16 months on 20 or more m...

Blurry62

•5 years ago

54 Replies

Tapering

I have been on prednisone 15mg since June 2 was taking Pred in split dose 10 Mg in the am and then 5 mg with dinner. This has been the last week of school and...

I have been on prednisone 15mg since June 2 was taking Pred in split dose 10 Mg ...

Musiclady18

•5 years ago

7 Replies

Dexa Scan Results

Low bone density. (Osteopenia) with lowest Tscore of -1.9 at APspine. Tscores at Femoral Neck and Total Hip are -0.7 and -0.1. GP explained it all and...

Low bone density. (Osteopenia) with lowest Tscore of -1.9 at APspine. Tscores at...

Suffererc

•5 years ago

13 Replies

Pred head or insomnia to blame

After starting pred in Oct 18 my already dodgy sleep pattern deteriorated to raging insomnia. I thought I was managing with 3 or 4 hours sleep a night and the...

After starting pred in Oct 18 my already dodgy sleep pattern deteriorated to rag...

Yellowbluebell

•5 years ago

75 Replies

Osteoporosis versus having all my teeth out!!!!!!! Advice sought on annual injections.

Well it is a decision I have to make before my Rheumy appointment next month. As suspected, due to advanced gum disease, I will need to have all my remaining...

Well it is a decision I have to make before my Rheumy appointment next month. As...

Marilyn1959

•5 years ago

8 Replies

Temporal Arteritis Or Sinusitis? CT scan and response to Pred.

Hi all, I’m new here. I am a 35 year old female and I’m struggling with something - not sure what move to make next and hoping someone can have some insight...

Hi all, I’m new here. I am a 35 year old female and I’m struggling with somethin...

SNF10

•5 years ago

10 Replies

Go for a wander in the mountains

I just found this link in my online local newpaper and thought some of you might like to get outside somewhere you never expected to manage again. These are...

I just found this link in my online local newpaper and thought some of you might...

PMRpro

Ambassador•5 years ago

36 Replies

Recall of medication from "B & S Healthcare" in the UK

https://www.gov.uk/drug-device-alerts/fmd-alert-class-2-mdr-123-05-19?cachebust=1561646198#Product-table This has just been posted in the Lupus Forum: "A...

https://www.gov.uk/drug-device-alerts/fmd-alert-class-2-mdr-123-05-19?cachebust=...

PMRpro

Ambassador•5 years ago

1 Reply

Warm Minorcan Sea

Just thought I'd share this.

Oxford8

•5 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2019

A couple of suggestions regarding surviving the heat...

PMR in the heat...

Now the taper to 7mg

CBD Oil - My Experience

Clicking knee

Stomach irritation most of time.

Local group

Persistent neck pain NOT pmr.

Steroid Injection

Diabetes 2 and Prednisolone

heAdache

Polymyalgia and Type II Diabetes

Red face

Adrenals

Venting , first post . PMR

Taking Pred at the 2am.

Bruceaddy123

How can l get some sleep?

Help! Slept through. No Pred.. Pain and stiffnes!

Welcome your observations and advice

Auntie Bleary-eyeds , Bleary words of wisdom, for coping with the heat on holiday and summer sun with PMR , Fibro and any Chronic Illness.

Question: who ARE you? Answer: I don't know. Steroid User......I guess.

Tapering

Dexa Scan Results

Pred head or insomnia to blame

Osteoporosis versus having all my teeth out!!!!!!! Advice sought on annual injections.

Temporal Arteritis Or Sinusitis? CT scan and response to Pred.

Go for a wander in the mountains

Recall of medication from "B & S Healthcare" in the UK

Warm Minorcan Sea

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