Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,293 members • 38,017 posts

All posts for November 2016

New PMR sufferer needing help.. please....

Hi there guys, I am a new member, and happy to say I'm not a fellow sufferer, but the wife of a fellow-sufferer. My hubby, on the advice of our doctor, and...

Hi there guys, I am a new member, and happy to say I'm not a fellow sufferer, bu...

Heather-gwynne

•7 years ago

12 Replies

Still in shock

Hi Guys I have just joined after being taken ill ten days ago. Went to A and E feeling horrendous with temp, awful headache in the absence of an infection....

Hi Guys I have just joined after being taken ill ten days ago. Went to A and E f...

Elaine-W

•7 years ago

24 Replies

Causes of PMR?

I ran into an old friend yesterday and was surprised to hear that he also has had RMR. He told me about another mutual friend of ours in the same boat. My two...

I ran into an old friend yesterday and was surprised to hear that he also has ha...

Steve2002

•7 years ago

27 Replies

Want to take advantage of all our features? Just log in!

Flare up !!

Hi all , haven't posted in ages. Tapered off pred about 2 months now and apart from some aches doing well. Past week I'm very achy especially around elbows...

Hi all , haven't posted in ages. Tapered off pred about 2 months now and apart ...

bumpermac

•7 years ago

5 Replies

How often do you do bloodwork?

In Atlanta, GA, US, - have had since diagnosed in April of 2016 with PMR: CRP (C-REACTIVE PROTEIN) 3/16: 1.2 and 10/104: 2.2 ESR: 3/16: 10 4/25:7 10/04: 14...

In Atlanta, GA, US, - have had since diagnosed in April of 2016 with PMR: CRP (C...

sweiss72

•7 years ago

14 Replies

Azathioprine

I started off on 40 mg in April with GCA and currently just on 10. Have had a couple of flares going back up to previous dosage. About 5 weeks ago not feeling...

I started off on 40 mg in April with GCA and currently just on 10. Have had a co...

Susanmod

•7 years ago

5 Replies

PMR and the cold

Just wondering if the cold can affect PMR symptoms--I am down to 4mgs of prednisolone after a year with PMR -- but feeling a bit achy this morning?

Just wondering if the cold can affect PMR symptoms--I am down to 4mgs of prednis...

ailsa57

•7 years ago

3 Replies

Reducing prednisolone dose

I was diagnosed with PMR and GCA in May this year. Miraculous results from taking 50mg prednisolone but my rheumatologist and GP both want me reduce the dose...

I was diagnosed with PMR and GCA in May this year. Miraculous results from takin...

Chrismag

•7 years ago

11 Replies

Flare up question

How big of an increase in prednisone should I try after a flare up of PMR symptoms? Should I increase 1 mg/day? How soon can I expect relief of symptoms? I...

How big of an increase in prednisone should I try after a flare up of PMR sympto...

JSRichter

•7 years ago

20 Replies

Prednisolone issues!

Hi - this forum has been recommended as a good source of help & support... I was diagnosed with PMR in March this year having been diagnosed with Fibromyalgia...

Hi - this forum has been recommended as a good source of help & support... I was...

Nonemmett

•7 years ago

17 Replies

Calcium and vitamin D

A few weeks ago I read a post from someone on here think it might have been PMR pro re the above causing bladder irritation but I can't find it and can't...

A few weeks ago I read a post from someone on here think it might have been PMR ...

kingharold11

•7 years ago

7 Replies

Advice on symptoms on slow taper please.

Dear fountain of knowledge , I read this everyday and feel I am a newbie only had PMR for 3 years now . Have had 3 flare ups and am down to 4 mgs . I feel very...

Dear fountain of knowledge , I read this everyday and feel I am a newbie only ha...

Wispa123

•7 years ago

2 Replies

PMR Blood levels

Hi I'm David from New Zealand. I have PMR and my doctor uses a blood count number to tell if my pmr is getting better or not. Last time it was 5 and he said...

Hi I'm David from New Zealand. I have PMR and my doctor uses a blood count numb...

grunter546

•7 years ago

25 Replies

Tapering and what do I do now?

I have been using the dead slow method to go from 12.5 to 11 these past couple of weeks. The second time I took 11 was on Wednesday. Today at 12.5 I think the...

I have been using the dead slow method to go from 12.5 to 11 these past couple o...

bunnymom

•7 years ago

15 Replies

Questioning Symptoms

I was diagnosed with PMRGCA in May of 2016. As I started prednisone, I noticed what I call a mask pressure feeling around my eyes. Six months later, it hasn't...

I was diagnosed with PMRGCA in May of 2016. As I started prednisone, I noticed w...

Mgeorge

•7 years ago

19 Replies

Introduction suffering from gca

Hi I am new to the site,was diagnosed in August with temporal arteritis started on prednisalone 70 mg at first terrible side effects feeling like my legs were...

Hi I am new to the site,was diagnosed in August with temporal arteritis started ...

Tinaberkhauer

•7 years ago

9 Replies

I'm new here and would love some advice.

I'm a 52 year old female. I was diagnosed with PMR 2 months ago and started on 15mg of pred which was increased to 20 mg a week later as although the initial...

I'm a 52 year old female. I was diagnosed with PMR 2 months ago and started on 1...

MelHammond

•7 years ago

6 Replies

Dr SL Mackie Rheumatology Otley

When I was newly diagnosed the experienced people on this sitee recommended this Rheumatologist in my area. Apparently she has a special interest in PMR and...

When I was newly diagnosed the experienced people on this sitee recommended this...

SheffieldJane

•7 years ago

9 Replies

Does anyone have any ideas about eye pain?

i am on Benapali plus 15mg prednisolone. Could I still get GCA even if my markers are low? I have been having pains in my eyes and it was my glaucoma so an...

i am on Benapali plus 15mg prednisolone. Could I still get GCA even if my marker...

Bailybiscuit

•7 years ago

9 Replies

Chronic Illness total reimbursement. (In France)

This may mean nothing to those who live in the UK and pay nothing for their healthcare. I received a letter yesterday saying I'd been granted 100%...

This may mean nothing to those who live in the UK and pay nothing for their heal...

IdasMum

•7 years ago

27 Replies

Blunted orgasmic response.

I have Google searched this before writing here. Not easy to write about which is why my search came up with results from men taking anabolic steroids and...

I have Google searched this before writing here. Not easy to write about which ...

IdasMum

•7 years ago

7 Replies

Alternatives in medication

Hi I'm an icelandic woman and was diagnosed probably having pmr a year ago. Then it was so bad that I could hardly walk. I was prescribed prendisolone 50 mgr...

Hi I'm an icelandic woman and was diagnosed probably having pmr a year ago. The...

vatnajokull

•7 years ago

17 Replies

Long term PMR

Hello, I'm a long term sufferer of PMR (just coming up to 14 years), with 6 relapses so far! Having read an excellent book "Polymyalgia Rheumatica and Giant...

Hello, I'm a long term sufferer of PMR (just coming up to 14 years), with 6 rela...

podo

•7 years ago

12 Replies

I'm so disappointed

I've been on Leflunomide for16 days and I've been feeling really well.A couple of days ago I reduced my pred to 6 mgs ( I have been on 7 mgs for about 8 weeks...

I've been on Leflunomide for16 days and I've been feeling really well.A couple o...

zebsky

•7 years ago

33 Replies

Backward steps!

Hi Last time I posted had been without pred for 8 weeks after 3 years of dead slow reduction and was hoping some morning aches were not the onset of a flare....

Hi Last time I posted had been without pred for 8 weeks after 3 years of dead s...

Wells77

•7 years ago

13 Replies

Average dose 18months into PMR/GCA

HI All Just a query, I am 18 months into PMR/GCA and having another flare. I have been put up to 20mgs for a week -then 15 for a week then all being well back...

HI All Just a query, I am 18 months into PMR/GCA and having another flare. I hav...

lesley2015

•7 years ago

20 Replies

A Miraculous Life

I've just read the most extraordinary and inspirational blog. Thought those of us who moan about our PMR could take heart from this young woman's incredible...

I've just read the most extraordinary and inspirational blog. Thought those of ...

HeronNS

•7 years ago

3 Replies

Losing strength in hands and wrists.

Much more aware of this, this time around and have been forgetting. My hands and wrists are not feeling strong and I am currently in pain. I think I have...

Much more aware of this, this time around and have been forgetting. My hands an...

IdasMum

•7 years ago

8 Replies

Could this be PMR???

Hi. I am just enquiring to see if I am barking up the right tree. I am 52, female and for the last 3 weeks have had terrible searing pain in my lower back,...

Hi. I am just enquiring to see if I am barking up the right tree. I am 52, femal...

Sofes

•7 years ago

15 Replies

Legs!!!!

I was diagnosed with PMR in march this year besides swears (glows!! ) woods and sweats! Which I find embarrassing And so uncomfortable another thing is my...

I was diagnosed with PMR in march this year besides swears (glows!! ) woods and ...

isabella2015

•7 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2016

New PMR sufferer needing help.. please....

Still in shock

Causes of PMR?

Flare up !!

How often do you do bloodwork?

Azathioprine

PMR and the cold

Reducing prednisolone dose

Flare up question

Prednisolone issues!

Calcium and vitamin D

Advice on symptoms on slow taper please.

PMR Blood levels

Tapering and what do I do now?

Questioning Symptoms

Introduction suffering from gca

I'm new here and would love some advice.

Dr SL Mackie Rheumatology Otley

Does anyone have any ideas about eye pain?

Chronic Illness total reimbursement. (In France)

Blunted orgasmic response.

Alternatives in medication

Long term PMR

I'm so disappointed

Backward steps!

Average dose 18months into PMR/GCA

A Miraculous Life

Losing strength in hands and wrists.

Could this be PMR???

Legs!!!!

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