Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,314 members • 38,051 posts

All posts for July 2018

The Lighter Side: BBC’s 'Meet the Author' - ‘Uncle’ MB Meets his Literary Match. Or does he…? ;-)

So, the Scene is set and a Lifetime's Ambition fulfilled... After my recent talks to PMRGCA local groups, I receive a phone call out-of-the-blue from a BBC...

So, the Scene is set and a Lifetime's Ambition fulfilled... After my recent talk...

markbenjamin57

•6 years ago

79 Replies

Advice needed re medial branch block injections

Went to pain management clinic at hospital on Friday. This was a referral from Rheumy, who wants a quicker reduction of pred. 15mgs June 2017, now trying to...

Went to pain management clinic at hospital on Friday. This was a referral from R...

Marilyn1959

•6 years ago

20 Replies

New to site, 'treat as ' PMR rheumatology diagnosis July...struggling already

Great site and amazing resource. I've learned so much in recent weeks about PMR. Short background, female 68, been waiting over 12 months for rheumatology...

Great site and amazing resource. I've learned so much in recent weeks about PMR....

Hidden

•6 years ago

16 Replies

Want to take advantage of all our features? Just log in!

several years down the line

I have been a follower of this site for a few years. I had PMR several years ago and was discharged by the consultant at the local hospital last year having...

I have been a follower of this site for a few years. I had PMR several years ago...

kingharold11

•6 years ago

5 Replies

It helps

Since joining this group, it has made such a difference knowing that I am not the only person who has this long drawn out problem, which we expected to be...

Since joining this group, it has made such a difference knowing that I am not th...

Mipsie

•6 years ago

20 Replies

Reducing Pred below 5mg

Hi I've been on Pred since having mild PMR leading to not at all mild GCA in 2015. I've had no flares, but got stuck at 6.5mg for about 18 months due to a lot...

Hi I've been on Pred since having mild PMR leading to not at all mild GCA in 201...

Myosotis

•6 years ago

9 Replies

Cataracts

Has anyone suddenly got cataracts on both eyes? Is it caused by prednisone or PMR?

Has anyone suddenly got cataracts on both eyes? Is it caused by prednisone or PM...

ayoung

•6 years ago

28 Replies

Not so cocky anymore

Well, I confess I was feeling pretty full of myself. Learned so much from the wise ones on this forum and used DSNS from the start in early 2017. Religiously...

Well, I confess I was feeling pretty full of myself. Learned so much from the wi...

Littlesky

•6 years ago

11 Replies

Thanks

Well don't know how to start and finish this rant. Here goes. ... I have excelled myself over 6 years with this impossible illness. Been down and up then...

Well don't know how to start and finish this rant. Here goes. ... I have exce...

morrison

•6 years ago

33 Replies

The Lighter Side: STRESS and Auto-Immune Illness (e.g. PMR / GCA). Today on BBC Radio 4’s ‘The Infinite Monkey Cage’. Food for Thought..? ;

Greetings All I, like a few of You Lot here in the UK, listened to BBC Radio 4’s ‘Infinite Monkey Cage' programme today - all about the Immune System and its...

Greetings All I, like a few of You Lot here in the UK, listened to BBC Radio 4’s...

markbenjamin57

•6 years ago

38 Replies

Vertebral fractures in Canada after Prolia discontinuation

This problem (early vertebral or pelvic fractures after discontinuation of Prolia) seems to be the dirty little problem that Amgen was aware of well before...

This problem (early vertebral or pelvic fractures after discontinuation of Proli...

Hidden

•6 years ago

9 Replies

Mind over matter... a 2 edged sword

There’s nothing in this post you don’t all already know, and PMRPro and DorsetLady et al haven’t read, written and preached scores of time already. Both last...

There’s nothing in this post you don’t all already know, and PMRPro and DorsetLa...

Mai45

•6 years ago

50 Replies

Sodium calculator

Recently there was publicity about a heart health calculator, and today I discovered a few other similar calculators. Further to my recent yammering on about...

Recently there was publicity about a heart health calculator, and today I discov...

HeronNS

•6 years ago

41 Replies

The Infinite Monkey Cage - The Immune System

Very interesting and amusing,a mixture of science and humour .. just been listening https://www.bbc.co.uk/programmes/b0bcglvt

Very interesting and amusing,a mixture of science and humour .. just been liste...

Slowdown

•6 years ago

14 Replies

Cbd oil

Has anyone tried it and had a positive experience? Currently on 17.5 mtx and now down to 7.5mg a day of pred.. but still so stiff! Bw Anne

Has anyone tried it and had a positive experience? Currently on 17.5 mtx and now...

Anne-NRAS

•6 years ago

5 Replies

GCA update

Just a quick update and a huge thank you to all who have supported and encouraged me during my recent trials and tribulations. I spoke to the Rheumy again this...

Just a quick update and a huge thank you to all who have supported and encourage...

Mike1964

•6 years ago

16 Replies

Alternative treatment

Kyrotherapy has caught my attention over the last week. Has anybody experienced it? Our elite sports people are starting to use it in Adelaide, South...

Kyrotherapy has caught my attention over the last week. Has anybody experienced...

shazstep

•6 years ago

12 Replies

“… but anyone looking at you, wouldn’t know you were ill.”

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/30/but-anyone-looking-at-you-wouldnt-know-you-were-ill/ Warning; Surprisingly......

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/30/but-...

Hidden

•6 years ago

73 Replies

Light at the end of the tunnel?

Hi all. I'm 64, was diagnosed with PMR 2 years ago and have tapered down from 15mg Pred to 8.5mg. I had a blood test recently and my GP also referred me to the...

Hi all. I'm 64, was diagnosed with PMR 2 years ago and have tapered down from 15...

Amstel

•6 years ago

8 Replies

Bean & Seen Doc. Today!

Good experience today. The usual build up of anx! Fight or flight! Went better than expected.

Good experience today. The usual build up of anx! Fight or flight! Went better ...

Hidden

•6 years ago

7 Replies

American Sayings

The light's on but nobody's home. He's not playing with a full deck. One card short of a deck.

The light's on but nobody's home. He's not playing with a full deck. One card sh...

SueQ1944

•6 years ago

4 Replies

Heat and reduced mobility

Hi, is anyone else finding they feel weaker and are struggling more walking and lifting in this recent hot weatger?

Hi, is anyone else finding they feel weaker and are struggling more walking and ...

Purplegirl70

•6 years ago

29 Replies

Earache should I be concerned.

I have had pmr for at least three and a half years and having been at 2 mg for months I am now trying to get to 1.5. However my neck is now feeling sore and...

I have had pmr for at least three and a half years and having been at 2 mg for m...

MayH

•6 years ago

8 Replies

Adjusting Prednisolone

I am reading lots of posts, re tapering and adjusting Pred.and it is sounding like you can just decide for yourself, or does it have to be ok'd by your GP.i...

I am reading lots of posts, re tapering and adjusting Pred.and it is sounding li...

Jeannie29

•6 years ago

30 Replies

Mipsie

It seems that there is still a lot to be found out about pmr. I have several acquaintances who have never had a relapse. I wonder if some people’s adrenal...

It seems that there is still a lot to be found out about pmr. I have several acq...

Mipsie

•6 years ago

4 Replies

Advice please

Do you think its possible for blood test to fail to spot flare up of PMR. Diagnosed 12 months ago and have reduced by 1mg monthly. Felt really poorly after...

Do you think its possible for blood test to fail to spot flare up of PMR. Diagno...

Tulabula

•6 years ago

11 Replies

PMR

Does taking a lower dose of prednisone and living with more pain extend the length of the illness?

Does taking a lower dose of prednisone and living with more pain extend the leng...

elide

•6 years ago

11 Replies

Work after PMR

Hi everyone am new to this site have had symptom of PMR since March this year but diagnosed beginning of July by which time I could hardly walk Can anyone...

Hi everyone am new to this site have had symptom of PMR since March this year bu...

Anitao2

•6 years ago

21 Replies

Wonderful discovery

Hi Everyone At least I think it is a wonderful discovery. I have been suffering awfully the last few days with really bad back pain. I have many things wrong...

Hi Everyone At least I think it is a wonderful discovery. I have been suffering ...

Linny3

•6 years ago

8 Replies

Expression picked up recently on this forum. More please!

Swim in your own lane. Blowing up a hoolie. We grow inward and lose our reason for being. .............

Swim in your own lane. Blowing up a hoolie. We grow inward and lose our reason f...

Constance13

•6 years ago

69 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

The Lighter Side: BBC’s 'Meet the Author' - ‘Uncle’ MB Meets his Literary Match. Or does he…? ;-)

Advice needed re medial branch block injections

New to site, 'treat as ' PMR rheumatology diagnosis July...struggling already

several years down the line

It helps

Reducing Pred below 5mg

Cataracts

Not so cocky anymore

Thanks

The Lighter Side: STRESS and Auto-Immune Illness (e.g. PMR / GCA). Today on BBC Radio 4’s ‘The Infinite Monkey Cage’. Food for Thought..? ;

Vertebral fractures in Canada after Prolia discontinuation

Mind over matter... a 2 edged sword

Sodium calculator

The Infinite Monkey Cage - The Immune System

Cbd oil

GCA update

Alternative treatment

“… but anyone looking at you, wouldn’t know you were ill.”

Light at the end of the tunnel?

Bean & Seen Doc. Today!

American Sayings

Heat and reduced mobility

Earache should I be concerned.

Adjusting Prednisolone

Mipsie

Advice please

PMR

Work after PMR

Wonderful discovery

Expression picked up recently on this forum. More please!

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