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Useful patient leaflet from European Soc of Endocrinology on adrenal insufficiency

I think the content of this is probably very similar to the Pituitary Foundation leaflet, a link to which was posted recently....

I think the content of this is probably very similar to the Pituitary Foundation...

Polywotsit

PMRGCAuk team member•12 days ago

25 Replies

Tablet sizes

I have been studying the tapering advice posts to prepare for my next review following a successful step from 15 to 12.5. What I would like to know is how do...

I have been studying the tapering advice posts to prepare for my next review fol...

somerby

•1 month ago

12 Replies

Tapering, GP and Rheumatologist

Both my gp and the rheumatologist I last saw at NNUH want me to speed up my tapering. They both want me to reduce my Prednisolone dose by 1mg every four......

Both my gp and the rheumatologist I last saw at NNUH want me to speed up my tape...

Palgeo

•1 month ago

5 Replies

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End of pred effects

I'll tell the full story another time! But for now I have just finished pred for suspected PMR/GCA/and actual arterial retinal vasospasm which started some 4...

I'll tell the full story another time! But for now I have just finished pred fo...

Barcelona1962

•2 months ago

9 Replies

Odd flare symptoms while tapering steroids for GCA?

I wonder whether anyone has experienced these symptoms while tapering Prednisone? Over the last 6 months I have slowly managed to reduce my dose to 2.5mg. The...

I wonder whether anyone has experienced these symptoms while tapering Prednisone...

Handloomweaver

•2 months ago

7 Replies

I am on 0.5mg pred and feel much better-why is my ESR 48?

I began pred in May 23 2023 and have had no pain symptoms since then. I am now down to 0.5mg pred. My latest CRP shows " less than 0.5mg/dl" as it has...

I began pred in May 23 2023 and have had no pain symptoms since then. I am now d...

kangaroojohn

•4 months ago

10 Replies

Dorset lady

Hi Dorset lady, could you send me your tapering plans please.vangelis 8

vangelis8

•4 months ago

3 Replies

when to start tapering

hi I started on 15mg pred following a new diagnosis of PMR 6 weeks ago. I had an almost miraculous response after 2 doses and I could suddenly walk normally,...

hi I started on 15mg pred following a new diagnosis of PMR 6 weeks ago. I had a...

Secondgen

•6 months ago

9 Replies

Looking for typical Prednisone reduction schedule new on Actemra

Haven't been around much lately. This has probably been the worst, six months of my seven years with pmr and final recent eye surgery for double vision 7.8...

Haven't been around much lately. This has probably been the worst, six months of...

JanetGarrettN

•6 months ago

18 Replies

Adrenal glands and reflexology

I’ve just had an amazing experience at a reflexology appointment (on a holiday with my Mum). At the end of the session the therapist asked to look something...

I’ve just had an amazing experience at a reflexology appointment (on a holiday w...

CupOfEarlGrey

•6 months ago

11 Replies

Now negative for Covid, is it okay to go back to last Prep dose immediately (7 days Sick Day Rule of 10mg extra)and when to restart taper?

I had Covid last week so followed Sick Day Rule of upping my 10mg Pred dose to 20mg (took 2nd 10mg in evening for 7 days). Tested negative today and feel much...

I had Covid last week so followed Sick Day Rule of upping my 10mg Pred dose to 2...

Preposterous

•8 months ago

5 Replies

Does ESR and Serum Ferritin Normal indicate PMR improving?

Hi Everyone, Thank you all so much for all the wisdom you've shared. I have already greatly benefited from all your advice. Please can I have your thoughts...

Hi Everyone, Thank you all so much for all the wisdom you've shared. I have al...

Positive__

•8 months ago

7 Replies

struggling with pain in stomach from Prednisone

Hello all, I have continued to struggle with pains in my feet and ankles since my last posts several months ago. Since then the stress- my favorite friend -...

Hello all, I have continued to struggle with pains in my feet and ankles since ...

bluegirl7

•8 months ago

11 Replies

Getting a cold/sore throat just as tapering about to start- would you advise delaying the taper till cold is better?

I’ve now successfully tapered from initial 15mg Pred dose to 12.5mg over 5 weeks using DLady slow taper, then from 12.5 to 10mg, and just about to start next...

I’ve now successfully tapered from initial 15mg Pred dose to 12.5mg over 5 weeks...

Preposterous

•8 months ago

8 Replies

Tapering on low dose

I’ve been on 1.5 mgs for 4 weeks ( started on 15 mgs 3 years ago)… tried to reduce by a quarter yesterday.. cutting a 2.5 pill in half. Woke this morning with...

I’ve been on 1.5 mgs for 4 weeks ( started on 15 mgs 3 years ago)… tried to redu...

Bedwell

•8 months ago

13 Replies

How much should I increase Pred?

I've had PMR since 2016, it's been a rough ride but I've been on 0.50 mg Pred since March of this year. About a week ago I got pain in my knees and shoulders...

I've had PMR since 2016, it's been a rough ride but I've been on 0.50 mg Pred si...

kulina

•10 months ago

25 Replies

Is it ok to mix gastric-resistant and uncoated Pred tablets?

I’m in the process of reducing the dose of pred from 15mg down to 12.5 over 4 weeks and have been given 2.5mg gastric-resistant tablets in addition to the...

I’m in the process of reducing the dose of pred from 15mg down to 12.5 over 4 we...

Preposterous

•10 months ago

7 Replies

Tapering Pred from 2mg....to 1.5 or 1mg~?

To complete the picture, I do take an injection of Actemra weekly. My GCA started in 2019 and getting this low is a first. My dosage was increased last fall...

To complete the picture, I do take an injection of Actemra weekly. My GCA start...

Grammy80

•11 months ago

36 Replies

Symptoms (?) at lower levels

Diagnosed with PMR in Jan. '23 and put at 20mg prednisone. Have now tapered slowly down to 3mg without much problem. Every time I start a taper of .5mg I do...

Diagnosed with PMR in Jan. '23 and put at 20mg prednisone. Have now tapered slo...

musclesinflamed

•1 year ago

36 Replies

Tapering advice please

Hi, has anyone tried alternating Pred doses? I am currently tapering from 6mg to 5mg but felt rubbish on four consecutive days of 5mg so have gone back up to...

Hi, has anyone tried alternating Pred doses? I am currently tapering from 6mg to...

Hedgehogfriend

•1 year ago

23 Replies

best way to reduce Prednisolone

I have tried to come off Prednisolone for PMR for the last 8 years by slow reduction. However, my diagnosis has recently been changed to MS and advised to...

I have tried to come off Prednisolone for PMR for the last 8 years by slow reduc...

Linnetbird

•1 year ago

27 Replies

Stress--patience--tapering going well...

I've been reading the forum almost daily but haven't posted, so I thought I'd update. After getting down to 1 mg after four years, in the fall of 2023, I had...

I've been reading the forum almost daily but haven't posted, so I thought I'd up...

Grammy80

•1 year ago

9 Replies

Rapid reduction

My sister was diagnosed with PMR at the age of 68 in April 2022 when Atrial fibrillation was also confirmed. She has reduced her dose to 1mg at present with...

My sister was diagnosed with PMR at the age of 68 in April 2022 when Atrial fibr...

fitzida

•1 year ago

15 Replies

Use of NSAIDs in lieu of steroids

Prompted to post for the first time by Bobbykins ( couple of days prior) suggesting onset of PMR was triggered by flu vaccine. I am fairly convinced that mine...

Prompted to post for the first time by Bobbykins ( couple of days prior) suggest...

Daveydog

•1 year ago

17 Replies

Blearyeyed

I’m now on 2.5 mgs for a couple of months I suppose. Lowered from alternating 3 mgs with 2.5 each day. I’ve noticed that in the last couple of days My sight...

I’m now on 2.5 mgs for a couple of months I suppose. Lowered from alternating 3 ...

Bedwell

•1 year ago

Be the first to reply

"Flare"

My first post here ... went ~ 6 weeks with symptoms before my diagnosis of PMR on November 6. Started on 40mg prednisone (after an 80mg shot!), and I...

My first post here ... went ~ 6 weeks with symptoms before my diagnosis of PMR o...

Trinka13

•1 year ago

5 Replies

Flare up

Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with...

Over the last year I was in hospital for 6 months Arterial leg ulcer treated wi...

Jocelyn344

•1 year ago

3 Replies

Reduce from 2 mg

After 9 years on pred i have been down to 2mg for 6 months and would like to go to 1 1/2 but dont know how to do slow reduction at such a small #. Can i cut 1...

After 9 years on pred i have been down to 2mg for 6 months and would like to go ...

izzyart

•1 year ago

3 Replies

films

hi I am on 2mg steroids been on for a month it second time round I got to 2 mg as soon as I go down to 1 mg I get the pain in my muscles in shoulders and neck...

hi I am on 2mg steroids been on for a month it second time round I got to 2 mg a...

Movies5178

•1 year ago

13 Replies

Tapering - have I got it wrong?

Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48...

Hi. I am a new member and this is my first post. Diagnosed with PMR in March 202...

EnyaBlue

•1 year ago

62 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Tapering steroids posts

Useful patient leaflet from European Soc of Endocrinology on adrenal insufficiency

Tablet sizes

Tapering, GP and Rheumatologist

End of pred effects

Odd flare symptoms while tapering steroids for GCA?

I am on 0.5mg pred and feel much better-why is my ESR 48?

Dorset lady

when to start tapering

Looking for typical Prednisone reduction schedule new on Actemra

Adrenal glands and reflexology

Now negative for Covid, is it okay to go back to last Prep dose immediately (7 days Sick Day Rule of 10mg extra)and when to restart taper?

Does ESR and Serum Ferritin Normal indicate PMR improving?

struggling with pain in stomach from Prednisone

Getting a cold/sore throat just as tapering about to start- would you advise delaying the taper till cold is better?

Tapering on low dose

How much should I increase Pred?

Is it ok to mix gastric-resistant and uncoated Pred tablets?

Tapering Pred from 2mg....to 1.5 or 1mg~?

Symptoms (?) at lower levels

Tapering advice please

best way to reduce Prednisolone

Stress--patience--tapering going well...

Rapid reduction

Use of NSAIDs in lieu of steroids

Blearyeyed

"Flare"

Flare up

Reduce from 2 mg

films

Tapering - have I got it wrong?

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