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PMRGCAuk

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Tapering steroids posts

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How much should I increase Pred?

I've had PMR since 2016, it's been a rough ride but I've been on 0.50 mg Pred since March of this year. About a week ago I got pain in my knees and shoulders...

I've had PMR since 2016, it's been a rough ride but I've been on 0.50 mg Pred si...

kulina

•7 days ago

25 Replies

Is it ok to mix gastric-resistant and uncoated Pred tablets?

I’m in the process of reducing the dose of pred from 15mg down to 12.5 over 4 weeks and have been given 2.5mg gastric-resistant tablets in addition to the...

I’m in the process of reducing the dose of pred from 15mg down to 12.5 over 4 we...

Preposterous

•7 days ago

7 Replies

Tapering Pred from 2mg....to 1.5 or 1mg~?

To complete the picture, I do take an injection of Actemra weekly. My GCA started in 2019 and getting this low is a first. My dosage was increased last fall...

To complete the picture, I do take an injection of Actemra weekly. My GCA start...

Grammy80

•1 month ago

36 Replies

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Symptoms (?) at lower levels

Diagnosed with PMR in Jan. '23 and put at 20mg prednisone. Have now tapered slowly down to 3mg without much problem. Every time I start a taper of .5mg I do...

Diagnosed with PMR in Jan. '23 and put at 20mg prednisone. Have now tapered slo...

musclesinflamed

•2 months ago

36 Replies

Tapering advice please

Hi, has anyone tried alternating Pred doses? I am currently tapering from 6mg to 5mg but felt rubbish on four consecutive days of 5mg so have gone back up to...

Hi, has anyone tried alternating Pred doses? I am currently tapering from 6mg to...

Hedgehogfriend

•3 months ago

23 Replies

best way to reduce Prednisolone

I have tried to come off Prednisolone for PMR for the last 8 years by slow reduction. However, my diagnosis has recently been changed to MS and advised to...

I have tried to come off Prednisolone for PMR for the last 8 years by slow reduc...

Linnetbird

•3 months ago

27 Replies

Stress--patience--tapering going well...

I've been reading the forum almost daily but haven't posted, so I thought I'd update. After getting down to 1 mg after four years, in the fall of 2023, I had...

I've been reading the forum almost daily but haven't posted, so I thought I'd up...

Grammy80

•3 months ago

9 Replies

Rapid reduction

My sister was diagnosed with PMR at the age of 68 in April 2022 when Atrial fibrillation was also confirmed. She has reduced her dose to 1mg at present with...

My sister was diagnosed with PMR at the age of 68 in April 2022 when Atrial fibr...

fitzida

•3 months ago

15 Replies

Use of NSAIDs in lieu of steroids

Prompted to post for the first time by Bobbykins ( couple of days prior) suggesting onset of PMR was triggered by flu vaccine. I am fairly convinced that mine...

Prompted to post for the first time by Bobbykins ( couple of days prior) suggest...

Daveydog

•4 months ago

17 Replies

Blearyeyed

I’m now on 2.5 mgs for a couple of months I suppose. Lowered from alternating 3 mgs with 2.5 each day. I’ve noticed that in the last couple of days My sight...

I’m now on 2.5 mgs for a couple of months I suppose. Lowered from alternating 3 ...

Bedwell

•5 months ago

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"Flare"

My first post here ... went ~ 6 weeks with symptoms before my diagnosis of PMR on November 6. Started on 40mg prednisone (after an 80mg shot!), and I...

My first post here ... went ~ 6 weeks with symptoms before my diagnosis of PMR o...

Trinka13

•5 months ago

5 Replies

Flare up

Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with...

Over the last year I was in hospital for 6 months Arterial leg ulcer treated wi...

Jocelyn344

•6 months ago

3 Replies

Reduce from 2 mg

After 9 years on pred i have been down to 2mg for 6 months and would like to go to 1 1/2 but dont know how to do slow reduction at such a small #. Can i cut 1...

After 9 years on pred i have been down to 2mg for 6 months and would like to go ...

izzyart

•6 months ago

3 Replies

films

hi I am on 2mg steroids been on for a month it second time round I got to 2 mg as soon as I go down to 1 mg I get the pain in my muscles in shoulders and neck...

hi I am on 2mg steroids been on for a month it second time round I got to 2 mg a...

Movies5178

•8 months ago

13 Replies

Tapering - have I got it wrong?

Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48...

Hi. I am a new member and this is my first post. Diagnosed with PMR in March 202...

EnyaBlue

•8 months ago

62 Replies

GCA symptoms normal CRP

I have arrived at a place I never thought I would - 1mg Pred reduced from 60mg in early 2020 when I was diagnosed with GCA. It’s taken me a long time to reduce...

I have arrived at a place I never thought I would - 1mg Pred reduced from 60mg i...

Phoenix51

•8 months ago

13 Replies

Tapering much harder the second time around.

Been on pred since Nov 2015 for PMR. Few issues with flares and reached 4.25mg in 2021 when to ER for hypoxemia/ asthma exacerbationafter flu shot 2 weeks...

Been on pred since Nov 2015 for PMR. Few issues with flares and reached 4.25mg i...

Karenjaninaz

•1 year ago

4 Replies

Synacthen Test Results and Endocrinologist’s Advice.

I had a Synacthen Test last week and got the results yesterday. I am on 5 mgs of Pred and have been for a long time. I fully expected to fail the Adrenal...

I had a Synacthen Test last week and got the results yesterday. I am on 5 mgs of...

SheffieldJane

•1 year ago

106 Replies

Trying to figure what happened.

I tapered to 8mgm and felt quite well at the end of that taper DSNS Then started 7.5 mgm . That day was OK and the following day I resumed the 8mgm for the...

I tapered to 8mgm and felt quite well at the end of that taper DSNS Then starte...

Karenjaninaz

•1 year ago

3 Replies

Would dose timing help this?

I’ve been on pred since 11/2015 - a long time. Was down to 4.5 when hospitalized with asthma. The heavy steroid doses set my taper back. I haven’t had any...

I’ve been on pred since 11/2015 - a long time. Was down to 4.5 when hospitalized...

Karenjaninaz

•1 year ago

4 Replies

Can't get below 8mg PMR

No matter what I try tapering wise I cannot get my Prednisolone below 8mg, even dropping to 7mg gives me a lot of pain and stiffness.

No matter what I try tapering wise I cannot get my Prednisolone below 8mg, even ...

ah7690

•1 year ago

22 Replies

Back at 10mg what to do now?

Was on 2mg went on holiday and had a flare. Increased to 7 for 8 days, dropped to 2.25 for 5 days, then 2.5 for 3 days, then 7.5 proved to not be enough.Had a...

Was on 2mg went on holiday and had a flare. Increased to 7 for 8 days, dropped ...

Mazxstitch

•1 year ago

9 Replies

ROD HUGHES advice to me

I have taken the recommendation from several of you to have a private consultation with Professor Hughes. I am no longer under the NHS care of any...

I have taken the recommendation from several of you to have a private consultati...

Bennijax

•1 year ago

10 Replies

Split Prednisone or one dose daily?

Many with PMR seem to have extreme fatigue when tapering prednisone. I’m curious if anyone who was splitting their daily dose went to once per day in an...

Many with PMR seem to have extreme fatigue when tapering prednisone. I’m curio...

Macadoo

•1 year ago

6 Replies

flareup and shaking

Hi Has anyone experienced a flareup and shaking when coming down pred?

Hi Has anyone experienced a flareup and shaking when coming down pred? ...

eyeBRing

•1 year ago

4 Replies

Fine tremors all over!

hi everyone just wondering I have been reducing my prednisone from 10mgs which I feel fine on, now down to 6:5mgs (started yesterday) dropping by half of 1mg...

hi everyone just wondering I have been reducing my prednisone from 10mgs which I...

Heidiypi1

•1 year ago

7 Replies

How long to stay on previous level after a flare when tapering?

Struggling to have my body play nice with my Dr’s Prednisone schedule: 20mg/2 weeks 15mg/1 week 10mg/1 week Then reduce by 1 mg/month First 2 weeks (...

Struggling to have my body play nice with my Dr’s Prednisone schedule: 20mg/2 w...

Caniwi

•1 year ago

12 Replies

I am better!

Dear Dorset Lady, I developed PMR at New Year 2020. I was put on 15 mg Pred and I have 'stuck to the script' since then. I was warned that I was border line...

Dear Dorset Lady, I developed PMR at New Year 2020. I was put on 15 mg Pred an...

Silver-Babe

•1 year ago

22 Replies

DSNS tapering preds

I'm trying to find more info on DSNS but can't for the life of me find anything on how to do it? I can see posts on people who have tried it or doing it but...

I'm trying to find more info on DSNS but can't for the life of me find anything ...

Ruthie64

•1 year ago

25 Replies

Can't seem to get below 4.5mg!

I made it to 5mg Pred nine months ago, having taken nine months from diagnosis when I started on 15mg and very quickly got to 10mg following GP's plan. I found...

I made it to 5mg Pred nine months ago, having taken nine months from diagnosis w...

AyJayBass

•2 years ago

13 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Tapering steroids posts

How much should I increase Pred?

Is it ok to mix gastric-resistant and uncoated Pred tablets?

Tapering Pred from 2mg....to 1.5 or 1mg~?

Symptoms (?) at lower levels

Tapering advice please

best way to reduce Prednisolone

Stress--patience--tapering going well...

Rapid reduction

Use of NSAIDs in lieu of steroids

Blearyeyed

"Flare"

Flare up

Reduce from 2 mg

films

Tapering - have I got it wrong?

GCA symptoms normal CRP

Tapering much harder the second time around.

Synacthen Test Results and Endocrinologist’s Advice.

Trying to figure what happened.

Would dose timing help this?

Can't get below 8mg PMR

Back at 10mg what to do now?

ROD HUGHES advice to me

Split Prednisone or one dose daily?

flareup and shaking

Fine tremors all over!

How long to stay on previous level after a flare when tapering?

I am better!

DSNS tapering preds

Can't seem to get below 4.5mg!

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