Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for October 2024

back on pred

I tried to do what GP and Rheumatologist Instructed and reduced pred over 2 year period stopping at end of August and had a few niggles until I eventually...

I tried to do what GP and Rheumatologist Instructed and reduced pred over 2 ye...

Harry8388

•22 days ago

6 Replies

Gca undiagnosed

Hi not posted on here for a while. I've been on prednisolone for just a year and now down to 1 mg of prednisolone. However starting to get a little head pain...

Hi not posted on here for a while. I've been on prednisolone for just a year and...

Helliwelli12

•22 days ago

10 Replies

Shoulder Shakes on 5.0 mg Prednisolone

Hi lovely people. I’m up in middle of the night ( Australian time) due to my shoulder shaking. When I was in hospital ( 15 months ago ) with acute steroid...

Hi lovely people. I’m up in middle of the night ( Australian time) due to my sho...

Leafsong66

•22 days ago

4 Replies

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What to do?

It's me again and iam so sorry for whining.The 15 mg isn't helping either.If I upped my prednisone 12 days ago can I drop to 10 mg.Its making my sugars...

It's me again and iam so sorry for whining.The 15 mg isn't helping either.If I u...

Hunter134

•22 days ago

7 Replies

Seemingly stuck at 7/7.5 mg prednisolone

Hello dear parient advisors.I am currently in my 4th year of PMR and have been slow tapering between 7/7.5 mg prednisolone for about 5 weeks (following a flare...

Hello dear parient advisors.I am currently in my 4th year of PMR and have been s...

waltztherapy

•23 days ago

16 Replies

New Rheumy questions my 5 year old PMR diagnosis

I'm starting with a new NHS rheumatologist, saw her for the first visit last week. On the same day I saw a new gerontologist, an 'Elderly Medicine'...

I'm starting with a new NHS rheumatologist, saw her for the first visit last wee...

Bennijax

•23 days ago

9 Replies

Taper Plan DSNS

I hear people refer to the DSNS taper plan all the time on the forum. Can someone please direct me to where I can find a copy. I probably should know how to do...

I hear people refer to the DSNS taper plan all the time on the forum. Can someon...

Specialised

•23 days ago

4 Replies

adcal vs D3K2mk7

What are the thoughts of those in the know about the idea of taking vitamin D plus K2 instead of Adcal. I’m concerned that calcium might be building up in my...

What are the thoughts of those in the know about the idea of taking vitamin D pl...

Racer2024

•23 days ago

12 Replies

Old timer with PMR - Alarming exhaustion and aching not experienced since diagnosis 7 years ago

Have been on a very low dose of Pred (2mg) for nearly 2 years. If I go any lower I tend to have minor ‘flares’ - not much. Had bad cold and cough 2 weeks...

Have been on a very low dose of Pred (2mg) for nearly 2 years. If I go any low...

MaritimeMags

•23 days ago

11 Replies

Today and Tomorrow

It's never that easy to say how you feel. When asked how you are the answers not real. They really don't want the full drawn out truth. To lay it all out is...

It's never that easy to say how you feel. When asked how you are the answers no...

cycli

•23 days ago

17 Replies

Steroid dependent??

Hi all I just had a telephone review with my new GP on another matter - and she asked me where I’m at with pred tapering. I said I’m just getting to 6 for the...

Hi all I just had a telephone review with my new GP on another matter - and she...

Nextoneplease

•23 days ago

27 Replies

Totally shocked.

My reumy s office just called me.Hes on holidays and was told to go to my family dr who knows nothing about pmr.I just remembered that when I first got pmr I...

My reumy s office just called me.Hes on holidays and was told to go to my family...

Hunter134

•24 days ago

9 Replies

Adrenal Insufficiency -- PMR vs GCA

Hi all, I went through PMR about 10 years ago, which lasted about 6 years -- and now I'm in the process of going through GCA (about 26 months into it). I...

Hi all, I went through PMR about 10 years ago, which lasted about 6 years -- an...

montebello

•24 days ago

6 Replies

Newly diagnosed PMR - Prednisolone dose

Hi Sorry for the long post, but hoping I can call on some more experienced members for advice. I am at the end of week 3 of a 15mg dose of Prednisolone for...

Hi Sorry for the long post, but hoping I can call on some more experienced memb...

Ownpostcode

•24 days ago

38 Replies

Bulging vein/ artery in my right arm

I have PMR/GCA and have been recently diagnosed with Long Covid and have joined a clinic to manage it. I have noticed a painless blue /purple lump on the back...

I have PMR/GCA and have been recently diagnosed with Long Covid and have joined ...

SheffieldJane

•24 days ago

22 Replies

Change in symptoms

I'm in my 5th year of PMR. Lots of ups and down like most. Classic symptom-pain in shoulder girdle, biceps, hips, knees, front and back of legs etc. Stated...

I'm in my 5th year of PMR. Lots of ups and down like most. Classic symptom-pain ...

PEC2

•24 days ago

44 Replies

Struggling to taper

Hi All, (A quick recap) I was diagnosed with PMR in Feb 2024. Initially GCA was considered due to an incomplete response to 15mg pred and I was put on 50mg....

Hi All, (A quick recap) I was diagnosed with PMR in Feb 2024. Initially GCA w...

Specialised

•24 days ago

6 Replies

RSV injection and Methotrexate

Is it the same advice as for Covid booster please? Stop the MTX just before and just after the RSV Jab?

Is it the same advice as for Covid booster please? Stop the MTX just before and...

Golf-1

•24 days ago

5 Replies

depression, tiredness and pred

hi. I was diagnosed a year ago and started on Pred at 15mg. Now down to 4.5mg. Felt great on 15! Now seem to have more anxiety and profoundly tired. I work...

hi. I was diagnosed a year ago and started on Pred at 15mg. Now down to 4.5mg....

Hb22

•24 days ago

7 Replies

knee replacement operation

I am having a knee replacement operation next week and was wondering if I should increase by dosage rate or just keep things as they are ? I am down to 6 mg...

I am having a knee replacement operation next week and was wondering if I shoul...

Lassie2

•24 days ago

3 Replies

Adrenal fatigue?

I thought I had a tummy bug but beginning to wonder if it adrenal fatigue. I’m just drinking water since Monday except when I take meds. I’ve been trying to...

I thought I had a tummy bug but beginning to wonder if it adrenal fatigue. I’m ...

Gardening2811

•24 days ago

8 Replies

Adrenal Crisis

I have just read, on this forum, about someone intending to do a really quick end to prednisone. they were, quite rightly, warned against this because of the...

I have just read, on this forum, about someone intending to do a really quick en...

Louisa1840

•24 days ago

4 Replies

aaaarrrrgggg…You are so right! (Regarding cutting Pred dose in half)

I’ve been dealing with this PMR business for so long, it just felt like an ok idea to just get off the pred. Thank you for giving me cause to reevaluate my...

I’ve been dealing with this PMR business for so long, it just felt like an ok id...

Purplecrow

•24 days ago

5 Replies

aaaarrrrgggg…You are so right! (Regarding cutting Pred dose in half)

I’ve been dealing with this PMR business for so long, it just felt like an ok idea to just get off the pred. Thank you for giving me cause to reevaluate my...

I’ve been dealing with this PMR business for so long, it just felt like an ok id...

Purplecrow

•24 days ago

5 Replies

Hi folks question

Down to 1, 1/2 prednisolone haven't a clue if Adrenals are working or not just know IAM not as tired and don't nod off in afternoon,have changed my reduction...

Down to 1, 1/2 prednisolone haven't a clue if Adrenals are working or not just k...

Harrywogan

•24 days ago

29 Replies

DMARDs -biologics v non-biologics as a 'sparer' in PMR steroid reduction - advice needed

The above looks a bit technical but I am in a bit of a fix following a review at Moorfields Eye Hospital. I recently had an emergency with my eye in July,...

The above looks a bit technical but I am in a bit of a fix following a review at...

Fatsiajaponica

•24 days ago

12 Replies

New boots. Recommendations please?

Bonsoir Last winter I bought new boots. Not cheap, recommended by him indoors. My last pair had done 4 winters and if I can't get this right will need to do...

Bonsoir Last winter I bought new boots. Not cheap, recommended by him indoors....

IdasMum

•24 days ago

23 Replies

Polymyalgia

Is there much evidence of links with vaccines? I have seen a few mentions in academic papers but wondered if there was more recent evidence. Three weeks ago I...

Is there much evidence of links with vaccines? I have seen a few mentions in aca...

Spinnie

•24 days ago

12 Replies

when can you have an adrenal testing?

Just had visit with Rheumy. I am at 2mg Prednisone and asked if I could be tested for the adrenal and was advised that I must be OFF Pred altogether. It...

Just had visit with Rheumy. I am at 2mg Prednisone and asked if I could be teste...

jarn

•24 days ago

29 Replies

Ending prednisone

I’ve decided to drop current dose of Pred from 5 to 2.5 mg. After a week or so,…I intend to stop pred totally. I started pred in 2013, After 10 + years on...

I’ve decided to drop current dose of Pred from 5 to 2.5 mg. After a week or so,...

Purplecrow

•24 days ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2024

back on pred

Gca undiagnosed

Shoulder Shakes on 5.0 mg Prednisolone

What to do?

Seemingly stuck at 7/7.5 mg prednisolone

New Rheumy questions my 5 year old PMR diagnosis

Taper Plan DSNS

adcal vs D3K2mk7

Old timer with PMR - Alarming exhaustion and aching not experienced since diagnosis 7 years ago

Today and Tomorrow

Steroid dependent??

Totally shocked.

Adrenal Insufficiency -- PMR vs GCA

Newly diagnosed PMR - Prednisolone dose

Bulging vein/ artery in my right arm

Change in symptoms

Struggling to taper

RSV injection and Methotrexate

depression, tiredness and pred

knee replacement operation

Adrenal fatigue?

Adrenal Crisis

aaaarrrrgggg…You are so right! (Regarding cutting Pred dose in half)

aaaarrrrgggg…You are so right! (Regarding cutting Pred dose in half)

Hi folks question

DMARDs -biologics v non-biologics as a 'sparer' in PMR steroid reduction - advice needed

New boots. Recommendations please?

Polymyalgia

when can you have an adrenal testing?

Ending prednisone

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