Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,272 members • 37,959 posts

All posts for August 2018

Tapering again, sorry I'm new to this

I was diagnosed with GCA June 2017 started on 60mg pred, I experienced several of the usual side effects In July 2018 I was tapering ( example 10mg/7.5mg 3...

I was diagnosed with GCA June 2017 started on 60mg pred, I experienced several o...

Robert09

•6 years ago

8 Replies

A disappointing visit to my GP

After I saw the rheumatologist earlier this month I had some blood tests done. When I rang the surgery for the results I was told one of the results was a bit...

After I saw the rheumatologist earlier this month I had some blood tests done. W...

Louisepenygraig

•6 years ago

13 Replies

What are the early signs of GCA ?

Stlll fairly new to this forum. PMR for 1 year and tapering very slowly. Now 7-6 mgms Pred. Due to see rheumatologist again in December. She has said contact...

Stlll fairly new to this forum. PMR for 1 year and tapering very slowly. Now 7-6...

readingbooks

•6 years ago

10 Replies

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Poor Kirsty

So Kirsty Young has been diagnosed with fibromyalgia, good for her that she's advertised the fact and that she is taking time off from her radio programmes to...

So Kirsty Young has been diagnosed with fibromyalgia, good for her that she's ad...

Hidden

•6 years ago

62 Replies

I am new to this site

I was diagnosed in February of this year with PMR. I am now 73 yrs old and this came on very suddenly after a bout with the flu. My doctor recognized...

I was diagnosed in February of this year with PMR. I am now 73 yrs old and this...

painteratheart

•6 years ago

10 Replies

Prednisone on empty stomach

Is there any MEDICAL reason I cannot take it in the morning and eat a couple hours later? thanks wise ones!

Is there any MEDICAL reason I cannot take it in the morning and eat a couple hou...

yogabonnie

•6 years ago

28 Replies

Dexa scan

I had a scan 2 years ago (hips -3.4). Dr wants me to have another one. What do others think? Is there any point as it seems excercise is the only thing that...

I had a scan 2 years ago (hips -3.4). Dr wants me to have another one. What do...

Constance13

•6 years ago

16 Replies

Tightness in chest with a dry cough

I was diagnosed with PMR in early June, currently on 15mg of prednisone, down from 40mg, with one flare-up in July. I'm doing well with no pain, but have...

I was diagnosed with PMR in early June, currently on 15mg of prednisone, down fr...

Reader7

•6 years ago

4 Replies

Your good wishes

Thank you all for your good wishes. Much appreciated

Perkey

•6 years ago

3 Replies

Is medicine a threat to health?

https://www.theguardian.com/society/2018/aug/30/modern-medicine-major-threat-public-health I just thought this is an intriguing concept about how our doctors...

https://www.theguardian.com/society/2018/aug/30/modern-medicine-major-threat-pub...

PMRpro

Ambassador•6 years ago

54 Replies

FAO Singr

<Thanks for your support. Unfortunately I’m not there yet. I’ve lost my life, my looks, my figure and every door to any kind of hopeful future seems to be...

<Thanks for your support. Unfortunately I’m not there yet. I’ve lost my life, my...

Primarose

•6 years ago

8 Replies

Prednisone dose

Let’s say I feel better in a few days then I want to know how much to reduce prednisone and how long for each reduction.

Let’s say I feel better in a few days then I want to know how much to reduce pre...

Leeleep

•6 years ago

2 Replies

Temporary raising prednisone dose.

It seems like I’m in a bad relapse from extensive dental work all summer . I took it upon myself to raise my dose this AM. Have a call into doc but they are...

It seems like I’m in a bad relapse from extensive dental work all summer . I to...

Leeleep

•6 years ago

1 Reply

Temporary raising prednisone dose.

It seems like I’m in a bad relapse from extensive dental work all summer . I took it upon myself to raise my dose this AM. Have a call into doc but they are...

It seems like I’m in a bad relapse from extensive dental work all summer . I to...

Leeleep

•6 years ago

11 Replies

Long time pred user

Hi all, its great reading your posts and identify somewhere with most. I was diagnosed around 8 yrs ago with pmr and have had a topsy turvy ride all these...

Hi all, its great reading your posts and identify somewhere with most. I was di...

groovyguy

•6 years ago

8 Replies

DEXASCAN SORTED

Phoned up yesterday. Got a cancellation for 9.55 a.m. today. On time, lovely technician & done in less than 15 mins. Straightforward spine & hip. No tunnel or...

Phoned up yesterday. Got a cancellation for 9.55 a.m. today. On time, lovely tec...

Hidden

•6 years ago

16 Replies

Catch up

Recently I told you about my son having his colon removed and the discovery of liver cancer I had many lovely letters from you all. After many infections they...

Recently I told you about my son having his colon removed and the discovery of l...

Perkey

•6 years ago

14 Replies

Unable to sleep

Hello friends. Poor sleep quality is getting to me. I go to bed tired but am unable to get off to sleep for hours...Last night I only had about one hour. The...

Hello friends. Poor sleep quality is getting to me. I go to bed tired but am un...

AliDeJ

•6 years ago

7 Replies

Tapering symptoms

I have GCA/PMR, diagnosed in May 2018 and started on 60mg Pred. I am now down to 25mg. But the last two times I went down from 35mg to 30mg and then from...

I have GCA/PMR, diagnosed in May 2018 and started on 60mg Pred. I am now down t...

kay7954

•6 years ago

65 Replies

An update...early days

Hi all. I mentioned earlier that I was starting 15mg prednisone earlier this week. Started on Monday rather than Saturday since I missed the pharmacy's opening...

Hi all. I mentioned earlier that I was starting 15mg prednisone earlier this wee...

KinnearD

•6 years ago

20 Replies

Tapering Pred on Actemra Feeling Bad @4Mg... Normal?

Hi, I was wondering if anyone else has gotten on Actemra and tapering down off Pred? I had been diagnosed with PMR 4 yrs ago at 54 and more recently GCA. Had...

Hi, I was wondering if anyone else has gotten on Actemra and tapering down off P...

PMRinsdca

•6 years ago

8 Replies

natural treatments

Just checking in to see if anyone has treated PMR with cannabis? I realize it is illegal in many places and it may not be ok to discuss here. I apologize in...

Just checking in to see if anyone has treated PMR with cannabis? I realize it is...

naturalchoice

•6 years ago

32 Replies

PMR AND ITS ASSOCIATED AILMENTS

Just a thought on Piriformis Syndrome. I have been on Prednisone for 3 years for PMR (undiagnosed for 2 years before start of Prednisone). Symptoms of PMR...

Just a thought on Piriformis Syndrome. I have been on Prednisone for 3 years fo...

Robinre

•6 years ago

5 Replies

Cheer up

I found this site helpful, in that it was good to talk to people who are fellow sufferers.Now I’m beginning to get the impression that people are getting too...

I found this site helpful, in that it was good to talk to people who are fellow ...

Mipsie

•6 years ago

69 Replies

Pains in right thigh and hip, i.e. not bilateral, as well as usual, although not too severe, PMR symptoms.

I've been slowly tapering down to 5 mg. for the last couple of weeks (diagnosed Oct 2016). I'm not feeling too good with it but this maybe due to withdrawal...

I've been slowly tapering down to 5 mg. for the last couple of weeks (diagnosed ...

Joan-E-D

•6 years ago

28 Replies

Nature Does It Again For Me.

Better nights sleep! Almost back to normal barmyness! Fed the mallards,coots & moorhens at Manor Farm Park. Low sharp sunlight. Must of been thirty or so...

Better nights sleep! Almost back to normal barmyness! Fed the mallards,coots & ...

Hidden

•6 years ago

51 Replies

Some not so good developments

Hi all, I haven't posted on here for quite some while, so first a bit of background. Diagnosed with PMR in Oct 2015. Struggled to reduce to below 10mg pred for...

Hi all, I haven't posted on here for quite some while, so first a bit of backgro...

Hidden

•6 years ago

11 Replies

Quick statistical perspective on DSNS tapering

I've found PMRpro's article on the background of DSNS tapering illuminating. The literature suggests that it is the cumulative amount of steroids that matter...

I've found PMRpro's article on the background of DSNS tapering illuminating. The...

Stravaman

•6 years ago

13 Replies

Metatarsal Twinge

Down to 3.5mg a day after 20 months. I started getting pain in my left big toe when moving about. Eventually went to see a podiatrist today. It turns out...

Down to 3.5mg a day after 20 months. I started getting pain in my left big toe ...

DMBpmr

•6 years ago

9 Replies

Rheumatology appointments

I was diagnosed with PMR October 2016, starting dose 15mg which worked a miracle. Found this site and tapered DSNS which worked very well, only one flare,...

I was diagnosed with PMR October 2016, starting dose 15mg which worked a miracle...

Marlenec

•6 years ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2018

Tapering again, sorry I'm new to this

A disappointing visit to my GP

What are the early signs of GCA ?

Poor Kirsty

I am new to this site

Prednisone on empty stomach

Dexa scan

Tightness in chest with a dry cough

Your good wishes

Is medicine a threat to health?

FAO Singr

Prednisone dose

Temporary raising prednisone dose.

Temporary raising prednisone dose.

Long time pred user

DEXASCAN SORTED

Catch up

Unable to sleep

Tapering symptoms

An update...early days

Tapering Pred on Actemra Feeling Bad @4Mg... Normal?

natural treatments

PMR AND ITS ASSOCIATED AILMENTS

Cheer up

Pains in right thigh and hip, i.e. not bilateral, as well as usual, although not too severe, PMR symptoms.

Nature Does It Again For Me.

Some not so good developments

Quick statistical perspective on DSNS tapering

Metatarsal Twinge

Rheumatology appointments

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