Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,316 members • 38,052 posts

All posts for June 2022

Post Exercise…flare?

This year I shall be 70. I was diagnosed in March 2020 and started on 15mg which was miraculous and I’ve very carefully tapered down ever since. I saw no rush....

This year I shall be 70. I was diagnosed in March 2020 and started on 15mg which...

51Highland

•2 years ago

10 Replies

PMR returned after off Preds for 3 months

I weaned myself off Preds 3 months ago - diagnosed with PMR 6 years ago. Feeling fatigue, aching when I get up, still finger joints, pain is symmetrical in...

I weaned myself off Preds 3 months ago - diagnosed with PMR 6 years ago. Feeling...

cassie1208

•2 years ago

13 Replies

Issues with getting suspect spots frozen off skin?

I have an appointment later today in which a skin doctor will freeze a bunch of odd spots on my legs, arms, maybe face. It happens ever year or so. It's pretty...

I have an appointment later today in which a skin doctor will freeze a bunch of ...

Greytree

•2 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Prednisone - A Drug You Need But Lookout!

I was diagnosed with PMR July 2021 and immediately put on 40mg of Prednisone. By November, I had 2 torn rotator cuffs - both orthopedic dr and...

I was diagnosed with PMR July 2021 and immediately put on 40mg of Prednisone. ...

A77bruin

•2 years ago

7 Replies

When see weight loss with pred reduction?

I am tapering after a year on prednisone. I gained 20 pounds when I started on it. I am down to 7 1/2 mg. Did any of you have the pounds "melt off" when...

I am tapering after a year on prednisone. I gained 20 pounds when I started on i...

emmamom

•2 years ago

10 Replies

Calf pain when walking uphill, Pred or inflammation?

I'm experiencing quite severe pain in my calves, but worse on the right, when walking uphill which I can't really avoid when I leave the house. I don't know...

I'm experiencing quite severe pain in my calves, but worse on the right, when wa...

Dochaz

•2 years ago

18 Replies

Is it safe to reduce Pred if having symptoms

On prednisone for 2 years and trying to get off. Down to 10 mg and having the headaches, stiff neck and jaw pain. Am VERY willing to put up with this in order...

On prednisone for 2 years and trying to get off. Down to 10 mg and having the he...

nancyahayden

•2 years ago

65 Replies

What are realistic expectations?

Hi everyone. I have just been diagnosed with PMR. GP originally wanted to start me on 60mg of prednisolone. Having read NICE guidelines by then, I was...

Hi everyone. I have just been diagnosed with PMR. GP originally wanted to start...

Newplodder

•2 years ago

78 Replies

Basal Cortisol test

Tried phoning doctors to ask for a basal cortisol blood test as I am now in 3mgs of prednisolone. Feeling very weary and exhausted by the end of the day....

Tried phoning doctors to ask for a basal cortisol blood test as I am now in 3mgs...

Reddev

•2 years ago

12 Replies

Struggling with work

Hi I have just returned to work after 3 weeks off after a hospital admission (collapsed then had stoke like symptoms). Was told to come off Steroids then put...

Hi I have just returned to work after 3 weeks off after a hospital admission (co...

Hazeleyes48

•2 years ago

45 Replies

Update and advice needed please

Hi All, An update on my previous post. My husband managed to get an appointment with a new rhumey after he had a massive attack of PMR. She was very young,...

Hi All, An update on my previous post. My husband managed to get an appointment...

Buenavista

•2 years ago

8 Replies

New GCA diagnosis and first dose of Prednisone

After waiting 3 months to see a rhumatologist and just completing a bilateral temporal artery biopsy, I have been given the diagnosis of bilateral GCA. My...

After waiting 3 months to see a rhumatologist and just completing a bilateral te...

Abikitty

•2 years ago

19 Replies

Fatigue. PMR or Covid?

I was diagnosed with PMR on May 6. Immediately went on 20 mg of prednisone and pain disappeared within hours, literally. I did find that I could not exercise...

I was diagnosed with PMR on May 6. Immediately went on 20 mg of prednisone and ...

Anonnomus

•2 years ago

9 Replies

Flair and hot weather

I am so frustrated. I just need to ventilate. Started 15 mg 2 months ago, and it worked like a dream for stiffness, muscle pain, weakness and brain fog. Got a...

I am so frustrated. I just need to ventilate. Started 15 mg 2 months ago, and it...

krillemy

•2 years ago

19 Replies

Tingling

Hi woke up Monday with tingling in my right hand goes up my arm.also getting headaches.any ideas

Hi woke up Monday with tingling in my right hand goes up my arm.also getting hea...

Flosy

•2 years ago

16 Replies

Stupid or what?!

I thought I was being efficient - condense my new prescription - all the 1mg together and the same for the 5mg. Then for the last 2 days I have been feeling so...

I thought I was being efficient - condense my new prescription - all the 1mg tog...

AnniesRyder5

•2 years ago

5 Replies

Tramadol

What dose of Tramadol do you take? (Anyone). Up till now I have been using hard capsule Talvisolen but it isn’t offered over here any more, so my doctor...

What dose of Tramadol do you take? (Anyone). Up till now I have been using har...

Constance13

•2 years ago

11 Replies

Technology!

In the past, every time I’ve gone on this forum I’ve had to ‘sign in’. However, the last 2 days any post that comes up takes me straight into the forum....

In the past, every time I’ve gone on this forum I’ve had to ‘sign in’. However,...

Doraflora

•2 years ago

2 Replies

Early morning chest pain - update

A few days ago I mentioned about getting early morning chest pain and several of you very kindly responded. Since then I've increased my soluble magnesium...

A few days ago I mentioned about getting early morning chest pain and several of...

Pr0jection

•2 years ago

Be the first to reply

What is the difference between PMR and polymyositis

I'm still waiting on the results of my inflammation markers. My ETS (sed rate) is 49 which is definitely high but certainly not the highest it's been. I don't...

I'm still waiting on the results of my inflammation markers. My ETS (sed rate) i...

Amkoffee

•2 years ago

3 Replies

Liquid magnesium

I saw someone post that had trouble with swallowing pills, yet needing magnesium for leg pains. There is a product I use that you can find on the internet...

I saw someone post that had trouble with swallowing pills, yet needing magnesium...

Janetknit

•2 years ago

5 Replies

Side effects of Prednisolone

Hi you lovely people ! I’ve now had 4 doses of 15 mg at 4 am ( just because I happened to be awake then ) . I took the tablets with a banana and cup of tea , a...

Hi you lovely people ! I’ve now had 4 doses of 15 mg at 4 am ( just because I ha...

Romilly2

•2 years ago

71 Replies

Stilll struggling to find is it gca?

My wife completed one year journey, with symptom like gca , started prednisone 60 mg with actemra weekly , stop actemra after 4 months , continue struggling to...

My wife completed one year journey, with symptom like gca , started prednisone 6...

Rajuguide

•2 years ago

5 Replies

Magnesium for Leg cramps + Itching all over, no rash!

I have two new symptoms this week, night leg cramps and itching all over without a rash. Both have started on reduction to 5mg Pred. I have read that...

I have two new symptoms this week, night leg cramps and itching all over without...

HappyDiamonds

•2 years ago

21 Replies

Study Report: Coming off methotrexate temporarily doubles antibody levels after Covid Vaccine

https://www.newscientist.com/article/2326185-coming-off-methotrexate-doubles-antibody-levels-after-covid-19-vaccine/...

https://www.newscientist.com/article/2326185-coming-off-methotrexate-doubles-ant...

Exflex

•2 years ago

8 Replies

Does a prednisolone dose of less than 5mgs have any effect on PMR pain if adrenal glands are working.

I was diagnosed with PMR in May 2020 and am now weaning from from 4mgs to 3 using the DSNS method. I have experienced pain in my buttocks recently which is how...

I was diagnosed with PMR in May 2020 and am now weaning from from 4mgs to 3 usin...

larkthebark

•2 years ago

17 Replies

Blood test results. Should I worry?

Using my phone right now. Home internet is out so slow typing. CRC 12.3 last 10.9 ESR 14 last 7 WBC 12.7 RDW 15.8 Nothing showed up unusual on previous CBC...

Using my phone right now. Home internet is out so slow typing. CRC 12.3 last 10....

catdance

•2 years ago

16 Replies

Butec Patches

Anyone been prescribed these

Carathedog

•2 years ago

13 Replies

Diarrhea while weaning pred and on actemra

I have had diarrhea almost constantly for 2-3 weeks. Since I started on prednisone and actemra about a year ago, I have had it about once a week, but this is...

I have had diarrhea almost constantly for 2-3 weeks. Since I started on predniso...

emmamom

•2 years ago

13 Replies

Stopping pred before a 9:00am test

I've read on here before that pred should be stopped before having a 9:00am test. My rheumy said to get one before my next visit and I asked her about...

I've read on here before that pred should be stopped before having a 9:00am test...

crafty_grannie

•2 years ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2022

Post Exercise…flare?

PMR returned after off Preds for 3 months

Issues with getting suspect spots frozen off skin?

Prednisone - A Drug You Need But Lookout!

When see weight loss with pred reduction?

Calf pain when walking uphill, Pred or inflammation?

Is it safe to reduce Pred if having symptoms

What are realistic expectations?

Basal Cortisol test

Struggling with work

Update and advice needed please

New GCA diagnosis and first dose of Prednisone

Fatigue. PMR or Covid?

Flair and hot weather

Tingling

Stupid or what?!

Tramadol

Technology!

Early morning chest pain - update

What is the difference between PMR and polymyositis

Liquid magnesium

Side effects of Prednisolone

Stilll struggling to find is it gca?

Magnesium for Leg cramps + Itching all over, no rash!

Study Report: Coming off methotrexate temporarily doubles antibody levels after Covid Vaccine

Does a prednisolone dose of less than 5mgs have any effect on PMR pain if adrenal glands are working.

Blood test results. Should I worry?

Butec Patches

Diarrhea while weaning pred and on actemra

Stopping pred before a 9:00am test

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive