Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,053 posts

All posts for January 2023

Hospital postponing check up

Tapering pred and really starting to feel PMR returning down to 4mg was supposed to see consultant in April when I would be down to 1mg - really not sure how I...

Tapering pred and really starting to feel PMR returning down to 4mg was supposed...

Aeowin777

•1 year ago

28 Replies

ACTH blood test

My GP has sent me for an ACTH blood test. Is this the correct test or should he have asked for ACTH Stimulation test? Will the ACTH test be sufficient? I am...

My GP has sent me for an ACTH blood test. Is this the correct test or should he ...

ChinaWuntoo

•1 year ago

9 Replies

forgot steroids thus an

Argh forgot to take my steroids this am - am on 3 mg EC Have just taken 2 mg at 4:30 pm is that the right thing to do?? I don’t feel any different!!

Argh forgot to take my steroids this am - am on 3 mg EC Have just taken 2 mg at...

bakingD

•1 year ago

6 Replies

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just been prescribed AA & Adcal D3?

a big shout out to all you wonderful people. Diag early Oct 2022 with GCA, started on 40mg, now on 15mg. Had my Rheumy follow up appt a couple of weeks ago...

a big shout out to all you wonderful people. Diag early Oct 2022 with GCA, star...

Cfmad298601

•1 year ago

9 Replies

does anyone else get an ache all over?

Hello. Was wondering if anyone else gets an ache all over their body? It’s hard to describe but feels like my whole body is hurting. No one location just an...

Hello. Was wondering if anyone else gets an ache all over their body? It’s hard ...

Grannyasbo

•1 year ago

15 Replies

Actemra and low WBC(1.9) and low Immunoglobulin levels. Asking for your thoughts.

I had blood test recently showing low levels of WBC, ALP, and all the globulins low. Called rheumatologist to see if I should cease taking Actemra as I had...

I had blood test recently showing low levels of WBC, ALP, and all the globulins ...

Elephants2019

•1 year ago

18 Replies

DEXA results

I am waiting for a DEXA scan appointment. Meanwhile I'm looking at my last results from 2019 and I'm not sure if they're good or bad or borderline. Can anyone...

I am waiting for a DEXA scan appointment. Meanwhile I'm looking at my last resul...

JanetRosslyn

•1 year ago

25 Replies

Prednisilone to Methotrexate/ private Rheumy/too young for PMR.

Hi, I paid to see my old, now retired rheumatologist for his opinion as my NHS rheumatologist has been faffing about telling me I’m too young for PMR which...

Hi, I paid to see my old, now retired rheumatologist for his opinion as my NHS ...

Bramble2000

•1 year ago

22 Replies

Costochondritis & PMR?

Is there a connection between costochondritis and PMR? After developing PMR in 2018 last year I developed (what I am sure is) costochondritis. The ache ( there...

Is there a connection between costochondritis and PMR? After developing PMR in 2...

HamishPMR

•1 year ago

11 Replies

tooth extraction

I have been on 7 1/2 mg for nearly 4 weeks and doing very well. I am just finishing a course of antibiotics for a tooth infection and am having the tooth out...

I have been on 7 1/2 mg for nearly 4 weeks and doing very well. I am just finish...

Meggs01

•1 year ago

7 Replies

Nearly there

Was diagnosed with PMR in Oct 2020 and I am down to 1mg. I have the opinion that stress brought it on and with my daughters wedding in 2 weeks time I know its...

Was diagnosed with PMR in Oct 2020 and I am down to 1mg. I have the opinion that...

Deneez99

•1 year ago

7 Replies

Going higher than original 15mg to control a flare?

I’ve had a month of what I first thought was a PMR flare. When going back up to my original post-diagnosis dose of 15mg for ten days didn’t touch my buttock...

I’ve had a month of what I first thought was a PMR flare. When going back up to ...

Donna5658

•1 year ago

16 Replies

Pred 'the controlled drug' update

Just to let you know... It's taken a couple of weeks, but at long last I have had a return call from the manager at my Surgery. She was very apologetic about...

Just to let you know... It's taken a couple of weeks, but at long last I have ha...

Artnmusiclover

•1 year ago

58 Replies

Another cancelled Rheumy appointment - UPDATE

I decided to phone to Rheumy Nurse Helpline as I I was concerned about the 3 months gap between blood tests, due to cancelled appointments. She agreed this...

I decided to phone to Rheumy Nurse Helpline as I I was concerned about the 3 mon...

Baner

•1 year ago

3 Replies

Recurring Sub-conjunctival haemorrhage - has anyone else experienced this?

Getting concerned about a fresh bleed in the corner of my left eye for the third day in a row. I also had a bleed a couple of weeks ago and I haven't dome...

Getting concerned about a fresh bleed in the corner of my left eye for the third...

katzma

•1 year ago

9 Replies

Alendronic Acid and drugs to help pred reduction

Hi , I was prescribed Alendronic Acid when I started taking Prednisilone in March 21. My dexa scan showed -1.9 in the hip and -2.1 in the neck. And as a woman...

Hi , I was prescribed Alendronic Acid when I started taking Prednisilone in Marc...

Animalover65

•1 year ago

20 Replies

increase pred before a colonoscopy?

Your advice please. A bit of background info. I am now on 4mg having decreased from 60mg 3 years ago. It has been a very gradual process and since around...

Your advice please. A bit of background info. I am now on 4mg having decreased...

agingfeminist

•1 year ago

13 Replies

Sorry for the mix up !

I think I was a bit panicky when I wrote my post. I would like to say thank you to everyone who took the time to reply. My problem with claustrophobia is two...

I think I was a bit panicky when I wrote my post. I would like to say thank you...

Viv54

•1 year ago

13 Replies

Covid with Predisone

Anyone on Predisone ger Covid, prescribed Paxlovid and rebound from positive and negative 3 times?Seems like I have no immune system left to kick the Covid

Anyone on Predisone ger Covid, prescribed Paxlovid and rebound from positive and...

fifties123

•1 year ago

9 Replies

Pred reduction and jelly legs, dizzy spells and neck and shoulder spasms - is there a connection?

Hi all you knowledgeable people. I have been doing well with my fourth attempt in four years to get below 4 mgs of pred. Diagnosed with PMR in spring 2019. I’m...

Hi all you knowledgeable people. I have been doing well with my fourth attempt i...

Loyd

•1 year ago

26 Replies

Fed up of PMR.

PMR / steroids = pills for water retention pills for cramp more pills for pain no sleep kidney & liver problems. Depression / anxiety & skint as I can t work ....

PMR / steroids = pills for water retention pills for cramp more pills for pain n...

Vito5566

•1 year ago

72 Replies

prednisone lowering dosage

hi there everyone, so since I wrote here I was on 9 mg of prednisone a day I have managed to get down to 5mgs a day, which right now seems the lowest I can get...

hi there everyone, so since I wrote here I was on 9 mg of prednisone a day I hav...

Heidiypi1

•1 year ago

13 Replies

Prednisone roller coaster ride over...and stable.

I think it was Bette Davis that said, "Hang on, it's going to be a bumpy ride." or something like that. I take anticonvulsants though I've been seizure free...

I think it was Bette Davis that said, "Hang on, it's going to be a bumpy ride." ...

Grammy80

•1 year ago

23 Replies

PMR or Arthritis..

Please can I ask for your advice ..I was diagnosed with PMR in Aug 2019, I had had 3 stressful years followed by an awful shingles attack, I was at a very low...

Please can I ask for your advice ..I was diagnosed with PMR in Aug 2019, I had h...

RFrankie

•1 year ago

88 Replies

CAN BARELY WALK WITH LOW BACK, GROIN, HIP PAIN DOWN TO OUTSIDE OF RIGHT KNEE.

What has Missus835 done to her low back??? No idea. The 60 mg of Pred does not touch this pain. Starts in groin pull, goes around to low right back and hip,...

What has Missus835 done to her low back??? No idea. The 60 mg of Pred does not t...

Missus835

•1 year ago

39 Replies

Metoject pen first time.

I used my Metoject pen for the first time this morning. It would have been simple if my thumbs had any strength in them 🤪. I managed, felt absolutely nothing...

I used my Metoject pen for the first time this morning. It would have been simp...

IdasMum

•1 year ago

2 Replies

Is there anyone in France with GCA and/or PMR in this group ? Y a-t-il des personnes vivant en France dans ce groupe avec Horton ou PPR ?

Reaching out to any people who live in France with either GCA or PMR, or, in French, artérite à cellules géantes ou pseudo polyarthrite rhizomélique. When I...

Reaching out to any people who live in France with either GCA or PMR, or, in Fre...

Dochaz

•1 year ago

14 Replies

DEXA Scan

Okydoky, something to look forward to I have a DEXA scan tomorrow afternoon, perhaps that will give me something to cheer up about. I'll update with results as...

Okydoky, something to look forward to I have a DEXA scan tomorrow afternoon, per...

Bcol

•1 year ago

15 Replies

Adrenal glands

I’m tapering from 6 mg to 5.5 mg and have had 2 bouts of nausea, with the first instance being a lot worse than the 2nd one. I have also been a lot more tired...

I’m tapering from 6 mg to 5.5 mg and have had 2 bouts of nausea, with the first ...

LucilleG

•1 year ago

51 Replies

Omeprazole

I know there has been many discussions about Omeprazole but I'm still undecided over using it. I've been on and off it since being on pred and never really had...

I know there has been many discussions about Omeprazole but I'm still undecided ...

Exhiker

•1 year ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2023

Hospital postponing check up

ACTH blood test

forgot steroids thus an

just been prescribed AA & Adcal D3?

does anyone else get an ache all over?

Actemra and low WBC(1.9) and low Immunoglobulin levels. Asking for your thoughts.

DEXA results

Prednisilone to Methotrexate/ private Rheumy/too young for PMR.

Costochondritis & PMR?

tooth extraction

Nearly there

Going higher than original 15mg to control a flare?

Pred 'the controlled drug' update

Another cancelled Rheumy appointment - UPDATE

Recurring Sub-conjunctival haemorrhage - has anyone else experienced this?

Alendronic Acid and drugs to help pred reduction

increase pred before a colonoscopy?

Sorry for the mix up !

Covid with Predisone

Pred reduction and jelly legs, dizzy spells and neck and shoulder spasms - is there a connection?

Fed up of PMR.

prednisone lowering dosage

Prednisone roller coaster ride over...and stable.

PMR or Arthritis..

CAN BARELY WALK WITH LOW BACK, GROIN, HIP PAIN DOWN TO OUTSIDE OF RIGHT KNEE.

Metoject pen first time.

Is there anyone in France with GCA and/or PMR in this group ? Y a-t-il des personnes vivant en France dans ce groupe avec Horton ou PPR ?

DEXA Scan

Adrenal glands

Omeprazole

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