Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,032 posts

All posts for June 2014

Perplexed!

I have been reducing my Prednisolone from 40mg down to 20mg over quite a few weeks but the pain came back. Went to my GP who took bloods for protein levels and...

I have been reducing my Prednisolone from 40mg down to 20mg over quite a few wee...

Griggser

•10 years ago

10 Replies

I did it...

I did it.. 50k in just over 10hrs.. Bit of a drama at the end when I collapsed and couldn't breathe..but medics sorted me It was tough as all concrete and...

I did it.. 50k in just over 10hrs.. Bit of a drama at the end when I collapsed ...

Jcqln1505

•10 years ago

23 Replies

Asthma and weight gain.

Hi there, I am new to this, have never really been on anything like this before but I am going out of my mind with weight gain. My asthma flared up bad last...

Hi there, I am new to this, have never really been on anything like this before ...

Charliesangels07

•10 years ago

9 Replies

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Slow Reduction Plan question

I have got down to '1 day old dose, one day new dose'. The next line is 'one day old dose, one day new dose'. So I take two days old dose' together? Is this...

I have got down to '1 day old dose, one day new dose'. The next line is 'one day...

Trenny

•10 years ago

3 Replies

Can stress have an impact on pmr symptoms

I was just wondering if stressful situations can have any impact on recovering from a flare. Things have been a bit crazy here over the last week (such is...

I was just wondering if stressful situations can have any impact on recovering f...

mamma1027

•10 years ago

9 Replies

toning table

I was wondering if anyone has tried a toning table and if it helped health and weight wise x

I was wondering if anyone has tried a toning table and if it helped health and w...

dillydally1

•10 years ago

4 Replies

I have recently been diagnosed with PMR. However several friends & family members queried the diagnosis and asked if I was certain I did no

have lyme disease. I'm from Canada and there has been a lot of publicity around this tragically under diagnosed disease. The symptoms are very similar to...

have lyme disease. I'm from Canada and there has been a lot of publicity around...

greylife

•10 years ago

6 Replies

holidays

My wife and i are planning a visit to New York march 2015, it is a 7.5 hour flight. Should i have any concerns about the flight due to having Pmr. any advise...

My wife and i are planning a visit to New York march 2015, it is a 7.5 hour flig...

Lionking50

•10 years ago

5 Replies

Newbie

First post on here. I have been diagnosed with PMR after waking one morning and hardly being able to get out bed due to severe hip and shoulder pain. I had...

First post on here. I have been diagnosed with PMR after waking one morning and ...

Griggser

•10 years ago

4 Replies

Please support Jacqueline!

Hi everybody Jacqueline Small, who is still in her 40s and was diagnosed with PMR only six months ago, has made a huge effort to overcome the pain and...

Hi everybody Jacqueline Small, who is still in her 40s and was diagnosed with PM...

Polywotsit

PMRGCAuk team member•10 years ago

2 Replies

What are the symptons of an eye problem with GCA?

This morning I had an ‘odd’ feeling in my eye and, looking in the mirror, the left third of the eye looked a bit watery. It wasn’t painful and didn’t feel like...

This morning I had an ‘odd’ feeling in my eye and, looking in the mirror, the le...

Trenny

•10 years ago

3 Replies

Reducing Prednisolone Slowly

Celebrating that I have reduced Presdnol by 1mg started 15mg . By using the slow method advised by the group and have had a few little aches and twinges and...

Celebrating that I have reduced Presdnol by 1mg started 15mg . By using the sl...

369yds

•10 years ago

10 Replies

Prednisone

How long dose it take after a reduction dose for your body to get use to the new dose ? Will there be any pain on the new dose and for how long ? Am going...

How long dose it take after a reduction dose for your body to get use to the new...

smiley67

•10 years ago

2 Replies

unhappy with rheumy

Been to see the rheumy today last year after a dexa scan i was told I didn,t have osteoporosis but osteopenia. I stopped taking alendronic acid because it made...

Been to see the rheumy today last year after a dexa scan i was told I didn,t hav...

kingharold11

•10 years ago

3 Replies

ADRENAL INSUFFICIENCY

Recently had a short synacthen test which showed adrenal insufficiency. Today Encronologist told me that she is recommending to my Rheumatologist that I take...

Recently had a short synacthen test which showed adrenal insufficiency. Today E...

hwigston

•10 years ago

6 Replies

Prednisolone

Getting very bad feet numbness on 12.5 pred. Any advice please!

Shandon1

•10 years ago

1 Reply

I am wondering if GCA is affecting my sight.

My optician has said that, as my short sightedness is so slight, I could probably manage without glasses, however I am more comfortable wearing them for...

My optician has said that, as my short sightedness is so slight, I could probabl...

Mischevious

•10 years ago

4 Replies

Advice for a flare please

Hello all. So here I've been, jogging along nicely for the last three weeks on 20mgs of pred and doing very nicely when out of the blue on Thursday I was hit...

Hello all. So here I've been, jogging along nicely for the last three weeks on ...

mamma1027

•10 years ago

7 Replies

Is it time for opthalmologists to be less esoteric and more transparent about their work?

It is very hard to get information from opticians, optometrists and opthalmologists. They seem to like to obfuscate more than enlighten their patients. Can...

It is very hard to get information from opticians, optometrists and opthalmologi...

Hidden

•10 years ago

18 Replies

Any advice on taking Leflunomide.. I have never taken this medication in the past and I will be taking it in a month or so's time.

Can anyone give me any advice with their experiences with this medication. I took Methotrexate a few years ago and eventually it affected my liver but I...

Can anyone give me any advice with their experiences with this medication. I too...

trish29

•10 years ago

6 Replies

I'm wondering about allergies (just thinking out loud). Anyone any experience of anti-histamine tablets causing any relief of GCA symptoms?

Hidden

•10 years ago

17 Replies

PMR and GCA question: Is there anything I should avoid or do to increase my chances of getting well quickly and without permanent damage?

Obviously, taking sufficient medication is priority. I mean does lifestyle impact on these illnesses (that some clinicians believe are the same illness). How...

Obviously, taking sufficient medication is priority. I mean does lifestyle impac...

Hidden

•10 years ago

4 Replies

Complex question: My GCA was denied by drs. I've had lower jaw dental problems - dead nerves and adsorbed roots - could this be due to GCA?

Hidden

•10 years ago

3 Replies

Has anyone tried this supplement? http://www.healthwatchersuk.co.uk/glossary/proargi9.htm

Hidden

•10 years ago

4 Replies

Good blood result

My pred increase has been successful. Both ESR and CRP are down by 12 points ESR 14 and CRP 13. Feeling optimistic, though still have backache.

My pred increase has been successful. Both ESR and CRP are down by 12 points ESR...

Annodomini

•10 years ago

4 Replies

I have been prescribed aledronic acid 70mgs 1 a week, plus adcal D3 2 a Day, have been on them for 9 weeks but have had back pain and groin

Strain for the past few weeks, this is one of the side effects of AA. Tabs was fine on my steroids until taking these tablets. Seeing my GP tomorrow Any...

Strain for the past few weeks, this is one of the side effects of AA. Tabs was...

Lionking50

•10 years ago

12 Replies

My rheumy is going to put me on Bisphosphanate Medication for Osteoporosis next visit after bone density test.

Is anyone familiar with the different drugs & side effects & oral vs. IV.

Zane1

•10 years ago

5 Replies

Thank you UK !

I am so thankful for UK forums! I have GCA and do not not have access of information in US as I get from UK !

I am so thankful for UK forums! I have GCA and do not not have access of inform...

grannma

•10 years ago

5 Replies

Tongue pain

I've been slowly dropping my Pred over the last year and am now paused at 10/11 mgs. My worst symptom is jaw pain and last night I was woken by terrible pain...

I've been slowly dropping my Pred over the last year and am now paused at 10/11 ...

Hidden

•10 years ago

6 Replies

Has anyone with PMR any experience of using topical (rub on the skin) pain relief, such as Ibuleve or Deep Heat?

I have seen a post here on the forum that ibuprofen is contra-indicated for use with prednisolone but this does not appear on the data sheet information of...

I have seen a post here on the forum that ibuprofen is contra-indicated for use ...

Hidden

•10 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2014

Perplexed!

I did it...

Asthma and weight gain.

Slow Reduction Plan question

Can stress have an impact on pmr symptoms

toning table

I have recently been diagnosed with PMR. However several friends & family members queried the diagnosis and asked if I was certain I did no

holidays

Newbie

Please support Jacqueline!

What are the symptons of an eye problem with GCA?

Reducing Prednisolone Slowly

Prednisone

unhappy with rheumy

ADRENAL INSUFFICIENCY

Prednisolone

I am wondering if GCA is affecting my sight.

Advice for a flare please

Is it time for opthalmologists to be less esoteric and more transparent about their work?

Any advice on taking Leflunomide.. I have never taken this medication in the past and I will be taking it in a month or so's time.

I'm wondering about allergies (just thinking out loud). Anyone any experience of anti-histamine tablets causing any relief of GCA symptoms?

PMR and GCA question: Is there anything I should avoid or do to increase my chances of getting well quickly and without permanent damage?

Complex question: My GCA was denied by drs. I've had lower jaw dental problems - dead nerves and adsorbed roots - could this be due to GCA?

Has anyone tried this supplement? http://www.healthwatchersuk.co.uk/glossary/proargi9.htm

Good blood result

I have been prescribed aledronic acid 70mgs 1 a week, plus adcal D3 2 a Day, have been on them for 9 weeks but have had back pain and groin

My rheumy is going to put me on Bisphosphanate Medication for Osteoporosis next visit after bone density test.

Thank you UK !

Tongue pain

Has anyone with PMR any experience of using topical (rub on the skin) pain relief, such as Ibuleve or Deep Heat?

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