Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,306 members • 38,037 posts

All posts for May 2019

GCA-PMR, Talking & flinging arms while sleeping!

Wife & dog are becoming frightened of me after bedtime. I have been taking prednisone for GCA-PMR since December 2018. However some of the "wildness" started 6...

Wife & dog are becoming frightened of me after bedtime. I have been taking predn...

Lucy2013

•5 years ago

6 Replies

Back aches and drippy sinus.

I have bad back aches from even small activity since I started prednisone. I also have drippy sinus and a feeling my throat is congested since I started...

I have bad back aches from even small activity since I started prednisone. I al...

alvertta

•5 years ago

17 Replies

anyone experience coming off combination prednisone/methroxecate/plaquinil?

Greetings, I started last year april on 20mg prednisone for muscle rheuma and tapered off to 10 in december when my rheumy introduced 10mg methotrexate per...

Greetings, I started last year april on 20mg prednisone for muscle rheuma and ta...

lilydee

•5 years ago

15 Replies

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Adrenals.

Afternoon everyone. Does anyone know how we can tell when our adrenals are kicking in again? Are there any symptoms? Thank you.

Afternoon everyone. Does anyone know how we can tell when our adrenals are kicki...

sandrathecat

•5 years ago

19 Replies

Drop dead tired

Yesterday evening at about 17:30 I fell asleep in front of the tv in my over comfy armchair ... I woke up at about 20:00 hours, confused and thought it was...

Yesterday evening at about 17:30 I fell asleep in front of the tv in my over com...

YuliK

•5 years ago

27 Replies

IMPORTANT INFO RE PRED

Back at doc today. Told her I still had symptoms after 10 days on pred and that maybe 15mg wasn't high enough. She said NICE guidelines only allow 15. Told her...

Back at doc today. Told her I still had symptoms after 10 days on pred and that ...

Aamar

•5 years ago

14 Replies

Going from 5 to zero - wish me luck!!

So as you know, Rheumy wants me off pred by my appt on 6th June to determine if it is PMR or something else. I went down from 10 to 5 about 5 days ago and...

So as you know, Rheumy wants me off pred by my appt on 6th June to determine if ...

Pristina

•5 years ago

19 Replies

Can start my taper.

After 7 weeks on 15mg Prednisolone my Dr has agreed to let me taper at my own pace and has provided me with an assortment of 5mg and 1mg coated and uncoated....

After 7 weeks on 15mg Prednisolone my Dr has agreed to let me taper at my own pa...

jaycee444

•5 years ago

13 Replies

Holiday update

Some of you may remember that I wrote a post recently about feeling stressed before doing my first "solo" cruise. Well, I'm so pleased to report that I had a...

Some of you may remember that I wrote a post recently about feeling stressed bef...

Janann25

•5 years ago

21 Replies

1st rheumy update

Rheumy thoroughly explained gca, possible prednisone effects, other risks and, said, "if you get to feeling better in 2, 3, 5 years you very well may have an...

Rheumy thoroughly explained gca, possible prednisone effects, other risks and, s...

Spanky2019

•5 years ago

10 Replies

Hi from California GCA questions

Thanks for sharing so much helpful information. I am new here. Awaiting a heart catherization as my EKG for my GCA biopsy indicated a heart issue and the...

Thanks for sharing so much helpful information. I am new here. Awaiting a heart ...

Anniegal

•5 years ago

17 Replies

If you are feeling a little 'sorry' for yourself today read this the story of one very brave woman !!

Hello Everyone Although we may be having a tough time - and some of us more than others with more than one health problem to negotiate - I often realise how...

Hello Everyone Although we may be having a tough time - and some of us more than...

Rimmy

•5 years ago

30 Replies

cement in boots...is this normal...?

Apologies for more questions, but I'm at the beginning of this journey (3 weeks into preds). Whilst I now have very little actual pain (some stiffness) I find...

Apologies for more questions, but I'm at the beginning of this journey (3 weeks ...

Daisyfield

•5 years ago

46 Replies

Limitation of shoulder and top arm muscle movement.

As you probably know from my last post I will be moving house tomorrow and I stupidly over did things. Unfortunately I have had to soldier on with the help of...

As you probably know from my last post I will be moving house tomorrow and I stu...

Whippetygirl

•5 years ago

26 Replies

Prednisone and Insomnia

I am presently taking 10 mg prednisone and next week I will taper to 9 mg. The problem I am having is I am up most of the night needless to say I am exhausted...

I am presently taking 10 mg prednisone and next week I will taper to 9 mg. The p...

jensen0518

•5 years ago

27 Replies

Coated pred

Sorry if this sound naive but I’ve looked at my prednisolone and can’t decide if it’s coated or not. Does it state it somewhere on the packet?

Sorry if this sound naive but I’ve looked at my prednisolone and can’t decide if...

Rosina1871

•5 years ago

22 Replies

16 years PMR & GC

I have had PMR & GC for over 16 years. Has any one had it this long?

ejvb

•5 years ago

19 Replies

Coated Pred

So if you take the pred at night / bedtime it has to be a coated Pred ?

Silverfoxylady

•5 years ago

2 Replies

Self adjusting Pred dose

Hi , I'm trying to convince my mum (83)that's it's okay to adjust the dose without the advice of GP. I read all the threads regarding adjusting your dose if...

Hi , I'm trying to convince my mum (83)that's it's okay to adjust the dose witho...

Silverfoxylady

•5 years ago

9 Replies

Changing time of daily pred dose

I'm finding it difficult to get back to sleep after taking my pred at the usual time of 5am. I assume this is because of the early dawn . Would it make a...

I'm finding it difficult to get back to sleep after taking my pred at the usual ...

maria40

•5 years ago

4 Replies

profile?

where and how do I do my profile? stonecreek

stonecreek

•5 years ago

2 Replies

Saga continues.....and continues....

Hello all! So....back on old brand of pred- today will be day 4 of 50mg but thinking of dropping to 40mg? I have 20mg pills - so doing 45mg would be tricky....

Hello all! So....back on old brand of pred- today will be day 4 of 50mg but thi...

Kern1410

•5 years ago

13 Replies

I feel great. What's happened? Are my adrenals working?

For the first time in 3 years and 4 months I do not feel sick. I was wrestling with hip and pelvis pain for several months which was determined to be from a...

For the first time in 3 years and 4 months I do not feel sick. I was wrestling...

bunnymom

•5 years ago

14 Replies

Interesting thought to prevent another PMR/GCA attack

I have a good friend that is a GP that seems to know quite abit about Auto Immune conditions, particulary PMR. I think his wife may have PMR. But, anyway, he...

I have a good friend that is a GP that seems to know quite abit about Auto Immun...

Hidden

•5 years ago

55 Replies

Could it be pred withdrawel

down to 0.5mg using dead slow method after 4 years and two flares, arms achy and heavy and all over pain in bed in the morning, would normally up the pred but...

down to 0.5mg using dead slow method after 4 years and two flares, arms achy and...

Celticrival

•5 years ago

3 Replies

a pain free a.m.!

I cannot believe it but I awoke this morning with virtually no pain after a nasty month or more. Even the sciatica I've been dealing with is minimal....

I cannot believe it but I awoke this morning with virtually no pain after a nast...

composition

•5 years ago

8 Replies

Beginnings of PMR or Pred withdrawal?

Hi everyone. GCA for two and a quarter years and been at 1 mg for about 4 weeks now. It’s all been going pretty well and I’ve been feeling quite upbeat. Over...

Hi everyone. GCA for two and a quarter years and been at 1 mg for about 4 weeks ...

Judy211

•5 years ago

17 Replies

Erectile dysfunction , leg weakness and GCA

Ok so to come straight to the point - anyone here who can shed light on erectile dysfunction , and leg weakness with GCA . I am taking Wysolone 40 mg daily and...

Ok so to come straight to the point - anyone here who can shed light on erectile...

Iwillwin123

•5 years ago

16 Replies

GCA - Next step

First apt with rheumy tomorrow. Referred by my neuro ophthalmologist. Been so sick. Weight loss has stopped. Thought I was suppose to gain weight on high dose...

First apt with rheumy tomorrow. Referred by my neuro ophthalmologist. Been so si...

Spanky2019

•5 years ago

5 Replies

Neck irritation

Been on prednisone for approximately two months and doing well with little in the way of side affects. However I do have a slightly swollen neck but it is the...

Been on prednisone for approximately two months and doing well with little in th...

GlynisE

•5 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

GCA-PMR, Talking & flinging arms while sleeping!

Back aches and drippy sinus.

anyone experience coming off combination prednisone/methroxecate/plaquinil?

Adrenals.

Drop dead tired

IMPORTANT INFO RE PRED

Going from 5 to zero - wish me luck!!

Can start my taper.

Holiday update

1st rheumy update

Hi from California GCA questions

If you are feeling a little 'sorry' for yourself today read this the story of one very brave woman !!

cement in boots...is this normal...?

Limitation of shoulder and top arm muscle movement.

Prednisone and Insomnia

Coated pred

16 years PMR & GC

Coated Pred

Self adjusting Pred dose

Changing time of daily pred dose

profile?

Saga continues.....and continues....

I feel great. What's happened? Are my adrenals working?

Interesting thought to prevent another PMR/GCA attack

Could it be pred withdrawel

a pain free a.m.!

Beginnings of PMR or Pred withdrawal?

Erectile dysfunction , leg weakness and GCA

GCA - Next step

Neck irritation

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