Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,308 members • 38,046 posts

All posts for January 2015

Re: jaw pain

Has anyone else suffered this way? Its not the GCA/PMR jaw pain - I had that at the beginning 3yrs ago & when I had a flare last year. Now the right side of...

Has anyone else suffered this way? Its not the GCA/PMR jaw pain - I had that at...

optimist-ok

•9 years ago

11 Replies

The shakes

Hello everyone. I have been reading all your posts for a while and have to say they have been really helpful. I was diagnosed with PMR in July 2012. Got down...

Hello everyone. I have been reading all your posts for a while and have to say ...

Soon70

•9 years ago

6 Replies

Itchy skin

Have been off steroids now since September and all going well. However I now have very itchy skin, is this Steroid withdrawal? Has anyone else experienced...

Have been off steroids now since September and all going well. However I now ha...

Falkers

•9 years ago

3 Replies

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Kate Gilbert's book and GCA

Kate, if you are out there, thank goodness you are! The book, PMR and GCA, a survival guide, will be a sight saver for many a patient. I hope so for myself....

Kate, if you are out there, thank goodness you are! The book, PMR and GCA, a sur...

daphne_retired

•9 years ago

6 Replies

Bromley & NorthKent Support Group Meeting

Next meeting for Bromley & NorthKent Support group is: Tuesday 10 February Guest Speaker, Mariana Broucher, will be demonstrating how the Bowen technique. This...

Next meeting for Bromley & NorthKent Support group is: Tuesday 10 February Guest...

pennyw

Administrator•9 years ago

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CRP Levels

I am beginning my third year of PMR and prednisone. My recent blood work shows my CRP is still at 25. It's never been below 25. Shouldn't the prednisone be...

I am beginning my third year of PMR and prednisone. My recent blood work shows ...

JJ2013

•9 years ago

20 Replies

angelone2

As if PMR sufferers dont have enough to cope with both with the disease itself and the side effects of Prednisolene, my friend was...

As if PMR sufferers dont have enough to cope with both with the d...

angelone2

•9 years ago

3 Replies

Onset of my symptoms in 2008, and a brief description of events since.

July 2008. Bed sheets hard to pull up during night and painful. Increase of pain in shoulders and hands and wrists, neck and head over next four weeks. Unable...

July 2008. Bed sheets hard to pull up during night and painful. Increase of pain...

daphne_retired

•9 years ago

8 Replies

Tray

Hi. Just wondering whether what I am experiencing at present is normal? I have been on 15 mg pred for 7 weeks exactly now. Am due to see my Gp on Tuesday . I...

Hi. Just wondering whether what I am experiencing at present is normal? I have b...

pmrdec112014

•9 years ago

12 Replies

Head Pain ????

Visited GP yesterday, having been out of hospital for one week with suspected GCA, I am waiting results from biopsy next Monday. My GP has put a question mark...

Visited GP yesterday, having been out of hospital for one week with suspected GC...

TimTooYoung

•9 years ago

10 Replies

New to all this!

My tail started in April 14 at 48 year old with sudden knee stiffness and excruciating shoulder and elbow pain and the muscle in between pain. Put up with it...

My tail started in April 14 at 48 year old with sudden knee stiffness and excruc...

sealine30

•9 years ago

3 Replies

Feeling better

Don't want to shout it too loud but since my last post on here re steroid reduction I have started to feel better. I am not so tired and listless and have...

Don't want to shout it too loud but since my last post on here re steroid reduct...

kingharold11

•9 years ago

2 Replies

Recent PMR diagnosis

Have supersensitive gut with long standing gastro-intestinal issues. Stopped Predn. after 4 days of 5mg x2 daily. Now prx'd Hydrocortisone 5mg x 2 3 times...

Have supersensitive gut with long standing gastro-intestinal issues. Stopped Pr...

Megams

•9 years ago

16 Replies

meeting

Hi every one,does anyone know the date of our meeting at the Marten country club Middlesbrough please, I have not been to one yet as I have been to ill but I...

Hi every one,does anyone know the date of our meeting at the Marten country club...

ritter

•9 years ago

6 Replies

KateGilbert's Book

Just got the book yesterday, and have had a good first read. Wow! I believe this is a must for those just recently diagnosed. It's full of good advice, and...

Just got the book yesterday, and have had a good first read. Wow! I believe this...

Charlie1boy

•9 years ago

1 Reply

PMRGCANE

Hi all just to say thanks to all of the people I met on Monday at support group in Gateshead.It was my first time and was made to feel welcome ,thanks to John...

Hi all just to say thanks to all of the people I met on Monday at support group ...

mickt

•9 years ago

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VITAMIN D

I have had GCA for two and a half years going along quite well at the moment but I don't think my diet is very good dont seem to have much of an appetite at...

I have had GCA for two and a half years going along quite well at the moment bu...

Vpankhurst

•9 years ago

2 Replies

Plymouth Cornwall & South Devon Group Next Meeting 2pm

Plymouth Cornwall & South Devon Group Next Meeting Thu 29 Jan 2015 Community Room 7 Pendeen close, Southway Plymouth PL6 6SB

Plymouth Cornwall & South Devon Group Next Meeting Thu 29 Jan 2015 Community R...

Hidden

•9 years ago

2 Replies

GCA progress

I had a long walk yesterday with lots of fresh air. It seemed to clear many of my symptoms. The main one that has not cleared is the headache across my fore...

I had a long walk yesterday with lots of fresh air. It seemed to clear many of m...

TimTooYoung

•9 years ago

9 Replies

Lemon on sticks

My rheumy has described a person who has been on long term steroids as having a figure like a lemon on sticks!... I know what he means, I am currently on...

My rheumy has described a person who has been on long term steroids as having a ...

geater16393

•9 years ago

6 Replies

Feeling well ....last reduction?

Currently on 2 mg pred per day. Hardly dare to say no pains apart from a sore heel rim around my right foot ( think this has crept up over last month - ?)...

Currently on 2 mg pred per day. Hardly dare to say no pains apart from a sore ...

suzieh

•9 years ago

11 Replies

Headaches

I was diagnosed GCA 2 years ago, I started on 60mg pred and am now down to 12. I 've been through many of the ups and downs that I have read about on this...

I was diagnosed GCA 2 years ago, I started on 60mg pred and am now down to 12. I...

FranTodd

•9 years ago

11 Replies

GCA and a visit to the Opthalmist.

Having had my first attack of the dreaded GCA last week, and been given 40mg a day of pred by my GP, I visited the opthalmist for a check on my vision. All...

Having had my first attack of the dreaded GCA last week, and been given 40mg a d...

daphne_retired

•9 years ago

20 Replies

Has anyone else read ..PMR why me ?

Hi has anyone else read this book ? It only seems to be in kindle form which I downloaded from Amazon.. It's excellent .. Kate Gilberts book on PMR/ GCA is my...

Hi has anyone else read this book ? It only seems to be in kindle form which I d...

trish29

•9 years ago

11 Replies

Spondyoarthritis

anyone else got this too ? i can't find any posts about it !...

carineinparis

•9 years ago

15 Replies

steroid withdrawal?

Hi all I saw my rheumy last in December. She insists that I am pmr clear (blood tests etc) so must reduce steroids as soon as possible. As I said in a post in...

Hi all I saw my rheumy last in December. She insists that I am pmr clear (blood ...

kingharold11

•9 years ago

9 Replies

Can I take Alendronic Acid later in the day?

I stopped Alendronic Acid six months ago, mainly because I *hate* having to wait an hour after taking it before I can have breakfast. As I take leflunomide...

I stopped Alendronic Acid six months ago, mainly because I *hate* having to wait...

Trenny

•9 years ago

23 Replies

Giant cell arteritis diagnosed 160115

Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were...

Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculi...

daphne_retired

•9 years ago

31 Replies

Pred side effects

Hi everyone I know that Pred can cause stomach problems but as anyone suffered with trapped wind ? The last few days had pain in my upper back with gurgling...

Hi everyone I know that Pred can cause stomach problems but as anyone suffered ...

northants

•9 years ago

9 Replies

Two weeks into Pred - then!

As I previously reported my GP started me on15mg on January 2nd which appears to be approximately the correct dose. I am having no issues but will see my...

As I previously reported my GP started me on15mg on January 2nd which appears to...

Patricia157

•9 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2015

Re: jaw pain

The shakes

Itchy skin

Kate Gilbert's book and GCA

Bromley & NorthKent Support Group Meeting

CRP Levels

angelone2

Onset of my symptoms in 2008, and a brief description of events since.

Tray

Head Pain ????

New to all this!

Feeling better

Recent PMR diagnosis

meeting

KateGilbert's Book

PMRGCANE

VITAMIN D

Plymouth Cornwall & South Devon Group Next Meeting 2pm

GCA progress

Lemon on sticks

Feeling well ....last reduction?

Headaches

GCA and a visit to the Opthalmist.

Has anyone else read ..PMR why me ?

Spondyoarthritis

steroid withdrawal?

Can I take Alendronic Acid later in the day?

Giant cell arteritis diagnosed 160115

Pred side effects

Two weeks into Pred - then!

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