Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for July 2017

Problems with tapering Pred

First of all I'd like to thank you all for all your advice. I could not have gone through this without you. My doctors are great but this year they tried to...

First of all I'd like to thank you all for all your advice. I could not have gon...

kulina

•7 years ago

36 Replies

New study...No Special Risks Seen with Long-Term Steroids in Polymyalgia Rheumatica............One exception: cataracts

https://www.medpagetoday.com/rheumatology/generalrheumatology/66912 interesting article...very new....study on prednisone.

https://www.medpagetoday.com/rheumatology/generalrheumatology/66912 interesting ...

Hidden

•7 years ago

27 Replies

leflunomide or mycophenolate

Hi All, So a very long story short, after a disappointing Rheumy visit who after a total 4 minute consult suggested Mycophenloate I went to see my doctor,...

Hi All, So a very long story short, after a disappointing Rheumy visit who after...

lesley2015

•7 years ago

15 Replies

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Frantic - hair loss continues

Hi All: I am down to 5 mg pred for last two weeks...my hair is still falling out....I'm so upset. I had very thin hair to begin with. When does it stop??? :(...

Hi All: I am down to 5 mg pred for last two weeks...my hair is still falling out...

Bonnig

•7 years ago

9 Replies

Anyone from Arizona?

Hi - Is there anyone by any chance who knows of an experienced rheumatologist in or near Phoenix, Arizona? My 89 year old aunt has been diagnosed after a long...

Hi - Is there anyone by any chance who knows of an experienced rheumatologist in...

PatMat

•7 years ago

12 Replies

In search of diagnosis and help...PMR or RA

Hi folks, What started out as shoulder pain in mid June (figured it was bursitis) quickly progressed into shoulder, hand, then both sides of my neck and upper...

Hi folks, What started out as shoulder pain in mid June (figured it was bursitis...

Jesnaskah

•7 years ago

26 Replies

Economic impact of vasculitis

https://healthunlocked.com/vasculitis-uk/posts/135958669/economic-impact-of-vasculitis If anyone in the UK has had to change their employment in any way...

https://healthunlocked.com/vasculitis-uk/posts/135958669/economic-impact-of-vasc...

PMRpro

Ambassador•7 years ago

Be the first to reply

Hi

Not sad at all I'm in COPD group but I don't like anyone to suffer keep writing people do care and there's more happiness in giving than receiving you might be...

Not sad at all I'm in COPD group but I don't like anyone to suffer keep writing ...

Samjeff

•7 years ago

3 Replies

PMR Lessons

Years ago I had mono in college, later Epstein Barre virus, last year Bell's Palsy. A weakened immune system ultimately led to PMR. A doctorate at 27,...

Years ago I had mono in college, later Epstein Barre virus, last year Bell's Pal...

Sandy1947

•7 years ago

5 Replies

ADVICE NEEDED PLEASE

At the end of last year I had to increase my pred up to 8mg because of sensitive teeth. I went very slowly back down to 6.5 mg Thursday this week being my last...

At the end of last year I had to increase my pred up to 8mg because of sensitive...

siran-22-46

•7 years ago

10 Replies

Lefluonomide added

male81 on Pred for 4years,down to 10mg DSNS method. Consultant requires me to go faster and has prescribed Lefluonomide-10 mg slow uptake and then 20mg.Good...

male81 on Pred for 4years,down to 10mg DSNS method. Consultant requires me to go...

Hidden

•7 years ago

6 Replies

Adrenal Glands

I have been on Pred for a year now. Can someone please advise me what happens when your adrenal glands kick back in. I have been hypothyroid for 30 years and...

I have been on Pred for a year now. Can someone please advise me what happens wh...

Xanthe12345

•7 years ago

10 Replies

How do I switch dosage Time for two weeks.

I know this is not a major issue but am not sure how to switch from my Rayos at ten PM to a regular dosage in the morning. I have run out of samples and my...

I know this is not a major issue but am not sure how to switch from my Rayos at ...

30048

•7 years ago

8 Replies

Chills,Fever and SWEATING

Hi, I am new here. I am from the U.S. and thank you for the helpful information I receive from your site. I have been struggling with PMR since Dec. '16. I was...

Hi, I am new here. I am from the U.S. and thank you for the helpful information ...

NanciJean

•7 years ago

13 Replies

Quick reduction - bad withdrawal -increased markers

All the above insisted by rheumatologist because of steroid myopathy. So I moved to another state for a top rheumatologist who reduced my prednisone from 30...

All the above insisted by rheumatologist because of steroid myopathy. So I mov...

Nap1

•7 years ago

2 Replies

Mouth Ulcers

Hi Everyone, I have been suffering for several weeks from mouth ulcers especially on top and edges of my tongue. I mentioned in the passing to doc when I saw...

Hi Everyone, I have been suffering for several weeks from mouth ulcers especial...

PatB1948

•7 years ago

13 Replies

Dianet

Hi I have been diagnosed with early palindromic polymyalgic rheumatoid arthritis been in so much pain been back and forward to hospitals since Jan my body...

Hi I have been diagnosed with early palindromic polymyalgic rheumatoid arthritis...

Dianet1964

•7 years ago

2 Replies

I really have had enough.....

I was diagnosed with PMR in April of this year and prescribed 15 mg Pred. Tried to reduce to 12 1/2 after 4 weeks but back up to 15 for another four weeks....

I was diagnosed with PMR in April of this year and prescribed 15 mg Pred. Tried ...

Janann25

•7 years ago

41 Replies

How to cope with negative thoughts

This is a very long article about how to manage stressful thoughts. Many here write about how hopless they are, and how useless they feel. The article is...

This is a very long article about how to manage stressful thoughts. Many here wr...

Bittebitt

•7 years ago

7 Replies

Antibiotics or not?

Hi Just a query really. Went on family holiday and one of the son in laws had a very bad throat, which went onto his chest but couldn't avoid him completely...

Hi Just a query really. Went on family holiday and one of the son in laws had a...

Jackoh

•7 years ago

11 Replies

Glioblastoma diagnosed: tapered, stopped Medrol

Hi, i was on Medrol for 3 months, diagnosed with glioblastoma. After radiation of 6 weeks, the Medrol has been tapered and stopped. I feel tasteless, very...

Hi, i was on Medrol for 3 months, diagnosed with glioblastoma. After radiation o...

Sarojinivm

•7 years ago

1 Reply

Still have PMR...now RA added on (maybe) ...wanting to know why long term, low dose prednisone as monotherapy is an issue.

So I'm at 10 mg now. Going to see my 5th rheumatologist in 1.5 years. Going to ask him if I can just do pred for PMR and my "maybe" RA. Slowly taper and get...

So I'm at 10 mg now. Going to see my 5th rheumatologist in 1.5 years. Going to...

Hidden

•7 years ago

3 Replies

Under chin swelling .

I'm showing a lot of prednisone face today and the swelling under my chin is the worst of it. My eyes are also puffed under and slits for openings. Ate in...

I'm showing a lot of prednisone face today and the swelling under my chin is the...

Aleish

•7 years ago

14 Replies

Why so tired?

Thanks to all of you! I've learned so much since I signed up a couple of months ago. Since I signed up, I've been following DSNS to get from 9 mg to 7 mg of...

Thanks to all of you! I've learned so much since I signed up a couple of months ...

judyb100

•7 years ago

29 Replies

Again 😞

Hi all you lovely people, a week tomorrow been on 10mg ( upped by 2.5mg ) My GCA not going seem fine until around lunch time then on pain killers. Don't even...

Hi all you lovely people, a week tomorrow been on 10mg ( upped by 2.5mg ) My GCA...

Margaret1951

•7 years ago

70 Replies

Pmr and arthritis

I have had pmr for 4 years. Currently using 6 mg prednisone. Recently, an MRI revealed arthritis in my spine. The doc said My Pmr contributed to the...

I have had pmr for 4 years. Currently using 6 mg prednisone. Recently, an MRI...

1Purplecrow

•7 years ago

2 Replies

New to community and living with GCA and off prednisone for 10 months but Prednisone withdrawal is real so take it slow.

Good day to all and thank you for having this community. I am 56 yr old Pharmacist in the US diagnosed with GCA 3 years ago. I was in the same place that many...

Good day to all and thank you for having this community. I am 56 yr old Pharmaci...

yourpharmacist

•7 years ago

54 Replies

Arthritis and pmr

After 4 years with pmr, a recent MRI showed severe arthritis in spine. Ok,...now what!!! I was prescribed 200 mg celecoxib, which I started this morning....

After 4 years with pmr, a recent MRI showed severe arthritis in spine. Ok,...no...

1Purplecrow

•7 years ago

23 Replies

down to 10 mg pred shoulder stiffness and pain return

i have been down to 10 mg pred now for about 6 weeks now, didn,t notice in beginning of decrease but over last few weeks seems left shoulder stiff and hurting...

i have been down to 10 mg pred now for about 6 weeks now, didn,t notice in begin...

arvine

•7 years ago

14 Replies

Do I need to treat PMR?

Hi I'm a newbee looking for knowledge. My GP thinks I have PMR and is asking me to take steroids for a trial period to rule it in or out of diagnosis. I have...

Hi I'm a newbee looking for knowledge. My GP thinks I have PMR and is asking me...

mmer8625

•7 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2017

Problems with tapering Pred

New study...No Special Risks Seen with Long-Term Steroids in Polymyalgia Rheumatica............One exception: cataracts

leflunomide or mycophenolate

Frantic - hair loss continues

Anyone from Arizona?

In search of diagnosis and help...PMR or RA

Economic impact of vasculitis

Hi

PMR Lessons

ADVICE NEEDED PLEASE

Lefluonomide added

Adrenal Glands

How do I switch dosage Time for two weeks.

Chills,Fever and SWEATING

Quick reduction - bad withdrawal -increased markers

Mouth Ulcers

Dianet

I really have had enough.....

How to cope with negative thoughts

Antibiotics or not?

Glioblastoma diagnosed: tapered, stopped Medrol

Still have PMR...now RA added on (maybe) ...wanting to know why long term, low dose prednisone as monotherapy is an issue.

Under chin swelling .

Why so tired?

Again 😞

Pmr and arthritis

New to community and living with GCA and off prednisone for 10 months but Prednisone withdrawal is real so take it slow.

Arthritis and pmr

down to 10 mg pred shoulder stiffness and pain return

Do I need to treat PMR?

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