Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,268 members • 37,943 posts

All posts for April 2018

In the doghouse! Pred. Head

Popped into the Supermarket. Maybe 10 mins. OH stayed in the car. What did I do!! Got back to flashing car. Hell of a noise. One very unhappy who couldn't get...

Popped into the Supermarket. Maybe 10 mins. OH stayed in the car. What did I do!...

Hidden

•6 years ago

21 Replies

Teeth and alendronic acid?

Hi,fellow sufferers. Hope I can pick your well informed brains here! I have osteopenia since taking steroids and I've not been taking AA as they upset my...

Hi,fellow sufferers. Hope I can pick your well informed brains here! I have ost...

grannyouch

•6 years ago

16 Replies

Drinking baking soda update

HeronNS posted an article regarding drinking baking soda about 5 days ago that intrigued quite a few of us; however, we were stumped on how much baking soda to...

HeronNS posted an article regarding drinking baking soda about 5 days ago that i...

Insight329

•6 years ago

12 Replies

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Wish Me Luck! Update #2

(Following on from my previous posts "Wish Me Luck!" and "Wish Me Luck! Update #1") Just two weeks to go before I’ve eliminated everything on the ‘Avoid’ list...

(Following on from my previous posts "Wish Me Luck!" and "Wish Me Luck! Update #...

xdbx

•6 years ago

44 Replies

Heat Pad

So its freezing here in the south east, 4 degrees brrrrrr. I have got my electric heat pad out again, my knees and shoulders/neck are so sore - i think like...

So its freezing here in the south east, 4 degrees brrrrrr. I have got my electri...

lesley2015

•6 years ago

19 Replies

Given in

Hello Dorset lady and followers I have had to give in and use wheelchair that was supplied to me The pain after over a year got to me in the end started...

Hello Dorset lady and followers I have had to give in and use wheelchair that wa...

Rusty8

•6 years ago

12 Replies

Coming up this week.....

Taunton Support Group, Tues 1st May, 2pm at Staplegrove Village Hall. More info from: http://www.pmrgca.co.uk/group-pages/somerset/ Cardiff Meet Up, Fri 4th...

Taunton Support Group, Tues 1st May, 2pm at Staplegrove Village Hall. More info ...

Polywotsit

PMRGCAuk team member•6 years ago

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My Rheumy appointment

Saw him on Friday and he doesn't think I've got GCA or PMR and wants me to come off the Pred within 6 months, then see him again!! I had blood and urine tests...

Saw him on Friday and he doesn't think I've got GCA or PMR and wants me to come ...

Hollyhock11

•6 years ago

19 Replies

PMR versus arthritis

I have Osteo arthritis in my knees as well as PMR. Booked for knee replacement at the end of May. So I have to reduce prednisone to zero by then as it...

I have Osteo arthritis in my knees as well as PMR. Booked for knee replacement a...

RomiCurl

•6 years ago

29 Replies

Help for morrison please 🌼

Janette ( morrison) who is being treated for PMR and has been sharing how low and desperate her situation has made her feel, has asked me to ask you to help...

Janette ( morrison) who is being treated for PMR and has been sharing how low an...

SheffieldJane

•6 years ago

74 Replies

Help! First flare on my reduction plan, guidance needed please

Diagnosed September last year, got down to 10mg of Pred no problem. Have been successfully on 9mg for about 6 weeks, all ok. Started about 2 weeks ago on 9mg...

Diagnosed September last year, got down to 10mg of Pred no problem. Have been su...

Jo1947

•6 years ago

6 Replies

The Lighter Side: Zen and The Art of PMR & Pred Tapering - An Intellectual Conversation with 'Tedski..' ;-)

Greetings to all VIP Members of The PMR and GCA Pred Club and / or Pred Club Zero - whichever side of the fence you sit on, used to sit on, want to sit on,...

Greetings to all VIP Members of The PMR and GCA Pred Club and / or Pred Club Zer...

markbenjamin57

•6 years ago

36 Replies

Reason for headaches?

Hi, does anyone else suffer from headaches? And if so, do you think it is due to PMR or a side effect from pred? I've been getting a lot of headaches recently,...

Hi, does anyone else suffer from headaches? And if so, do you think it is due to...

jacdo

•6 years ago

39 Replies

Lovely day

Had a great day seeing my grandchildren. Made me so much better poor little one that is 4 has terrible chicken pox. Even on the palist of his hands and soles...

Had a great day seeing my grandchildren. Made me so much better poor little on...

morrison

•6 years ago

12 Replies

Help please

Hi I was diagnosed with Gca in October 2016 I have been on steroids all that time . I started at 60mg as symptoms were severe although they warned me biopsy...

Hi I was diagnosed with Gca in October 2016 I have been on steroids all that tim...

Gentlegill

•6 years ago

16 Replies

IL-6 blockers may usher in "new era" of giant cell arteritis treatment

This may be old news to a lot of you......

Hidden

•6 years ago

20 Replies

Advice before doctors appointment - Monday

Hi, My mum is weary and tired all the time; though she can push herself to do things (such as that 7 mile walk she did on her birthday in February) She is also...

Hi, My mum is weary and tired all the time; though she can push herself to do th...

Kirklasu

•6 years ago

19 Replies

From New York Times: How to stop eating sugar

https://www.nytimes.com/guides/smarterliving/how-to-stop-eating-sugar

Insight329

•6 years ago

16 Replies

Know a good Rheumy?

Morning all :-) Am thinking I really need to see a Rheumy, have also sadly lost confidence in my local hospital following recent "Unfortunate" experiences. I...

Morning all :-) Am thinking I really need to see a Rheumy, have also sadly lost ...

Mike1964

•6 years ago

23 Replies

Update on possible COPD diagnosis

I wrote recently about becoming breathless whilst on Pred and my subsequent lung function test which indicated possible COPD. Unfortunately my breathing really...

I wrote recently about becoming breathless whilst on Pred and my subsequent lung...

Janann25

•6 years ago

14 Replies

Coping with flare

I see where people talk about having flares, but I don't know what, if anything (other than rest), is normally done in response. Is a flare something that...

I see where people talk about having flares, but I don't know what, if anything ...

4683Louise

•6 years ago

20 Replies

Lost Message

Dont know what happened there to continue. .....Appeal with DSA. I am wiped out with all. But I need to appeal against this most awful illness that I wish I...

Dont know what happened there to continue. .....Appeal with DSA. I am wiped out ...

morrison

•6 years ago

9 Replies

Being brave

Biting the bullet and going to spend time with my grandchildren tomorrow. I miss them too much and willing to take the risk. Silly or not. Life is too short....

Biting the bullet and going to spend time with my grandchildren tomorrow. I mis...

morrison

•6 years ago

10 Replies

Latest rheumatologist visit

Saw doc last week. Told him I decided against the biopsy. He ordered a CTA scam of my chest, which came back negative. So no GCA? He increased my prednisone...

Saw doc last week. Told him I decided against the biopsy. He ordered a CTA scam ...

Dejon73

•6 years ago

9 Replies

Dozy Date. 😞

This morning, after a bad night, I inadvertently took my 100 microgrammes of Thyroxine twice. Realised the moment it was down my throat. I had just taken...

This morning, after a bad night, I inadvertently took my 100 microgrammes of Thy...

SheffieldJane

•6 years ago

101 Replies

Getting off steroids

I was diagnosed last July and put on 15mg referred to rheumatologist in Nov appointed finally came for July this year. Have blood tests but in the last month...

I was diagnosed last July and put on 15mg referred to rheumatologist in Nov appo...

kathyrob

•6 years ago

28 Replies

pmr ankle and foot pain on 10mg of pred at the moment

just wondred if anyone else had this problem

skipman

•6 years ago

9 Replies

The Lighter Side: Letter from Pred Club Zero - Well, Almost.. ;-)

Greetings All, from Benjamin Mansions in the UK - whether you are PMR Newbies, Seasoned Veterans or plain Confused.coms 'frozen' like the proverbial rabbit in...

Greetings All, from Benjamin Mansions in the UK - whether you are PMR Newbies, S...

markbenjamin57

•6 years ago

36 Replies

Recently diagnosed with PMR

Hello, my name is Robin and I am 69 years old. I was diagnosed with PMR last month. It was quite by accident. I had been suffering with all the symptoms of...

Hello, my name is Robin and I am 69 years old. I was diagnosed with PMR last mo...

Robin0449

•6 years ago

34 Replies

I'm new here, interested in management of Prednisolone

Hi, I'm new here , just recently diagnosed with PMR (November 2017) , and at the stage now where I'm interested in finding out more about the condition. It's...

Hi, I'm new here , just recently diagnosed with PMR (November 2017) , and at the...

chriss48

•6 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2018

In the doghouse! Pred. Head

Teeth and alendronic acid?

Drinking baking soda update

Wish Me Luck! Update #2

Heat Pad

Given in

Coming up this week.....

My Rheumy appointment

PMR versus arthritis

Help for morrison please 🌼

Help! First flare on my reduction plan, guidance needed please

The Lighter Side: Zen and The Art of PMR & Pred Tapering - An Intellectual Conversation with 'Tedski..' ;-)

Reason for headaches?

Lovely day

Help please

IL-6 blockers may usher in "new era" of giant cell arteritis treatment

Advice before doctors appointment - Monday

From New York Times: How to stop eating sugar

Know a good Rheumy?

Update on possible COPD diagnosis

Coping with flare

Lost Message

Being brave

Latest rheumatologist visit

Dozy Date. 😞

Getting off steroids

pmr ankle and foot pain on 10mg of pred at the moment

The Lighter Side: Letter from Pred Club Zero - Well, Almost.. ;-)

Recently diagnosed with PMR

I'm new here, interested in management of Prednisolone

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