Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2017

Help!

Hi all! Desperately seeking rheumatologist, specialising in PMR/GCA in the north west of England. Undiagnosed as yet, but G.P dragging his heels. Serious...

Hi all! Desperately seeking rheumatologist, specialising in PMR/GCA in the nort...

Janrat

•7 years ago

8 Replies

Eyes Ok.

Hospital doc say there fine for my age. I was referred by options. I told him by 10. At night my vision got v blurry. He said could be dry eyes....

Hospital doc say there fine for my age. I was referred by options. I told h...

Rocketronzy

•7 years ago

24 Replies

Racing pulse - on prednisone 15mg

Hi everyone. I have a virus in July while on holiday and was ill for 8 weeks. . My dr in England diagnosed polymyalgia tho me symptoms are in my feet and legs...

Hi everyone. I have a virus in July while on holiday and was ill for 8 weeks. . ...

Daveibiza

•7 years ago

8 Replies

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Pokymyalgia

Diagnosed with polymyalgia and stuck on steroids prednisilone originally 6 daily then ,4 now down to ,5'but serious mental and physical health issues possibly...

Diagnosed with polymyalgia and stuck on steroids prednisilone originally 6 daily...

Dorisirene

•7 years ago

2 Replies

Help needed from fellow sufferer of polymyalgia

I have been diagnosed with polymyalgia and can't cope with steroids,maybe because I also have degenerative spinal and neck. Disease so on maximum dose of...

I have been diagnosed with polymyalgia and can't cope with steroids,maybe becaus...

Dorisirene

•7 years ago

8 Replies

Pain management

Am in a lot of joint pain and need advice on the best painkillers to take alongside 15mg pred

Am in a lot of joint pain and need advice on the best painkillers to take alongs...

Purplegirl70

•7 years ago

36 Replies

Calcium levels

Hi, just joined PMRGCAuk and have been interested to read other's experiences. I started with PMR in January and was diagnosed in March and have been on pred...

Hi, just joined PMRGCAuk and have been interested to read other's experiences. ...

Pmrruth

•7 years ago

16 Replies

Trick or treat!

Happy Haloween, dear PMR/GCA UK friends.

GOOD_GRIEF

•7 years ago

4 Replies

Polymyalgia, Vitamin B 12 and Vitamin D Deficiency

Hi group of fellow sufferers.... I was diagnosed with Polymyalgia Rhumatica, Vitamin D and B12 Deficiency December 2016 and started on B12 loading shots and...

Hi group of fellow sufferers.... I was diagnosed with Polymyalgia Rhumatica, Vit...

Mariemcdo

•7 years ago

97 Replies

Is this right??

Hi all, Another question from me. The longer I go on the more confused I get by it all sometimes, so please bear with me. I was diagnosed in March. Blood...

Hi all, Another question from me. The longer I go on the more confused I get by...

DebbieF1603

•7 years ago

15 Replies

Actemra Use

I have had ups and downs with prednisone in the 31/2 years since I started with PMR and then GCA. The doctor put me on Methotexrate about 2 years ago and...

I have had ups and downs with prednisone in the 31/2 years since I started with ...

dawnsgca

•7 years ago

18 Replies

Bath Cafe Meet Up Monday October 6th at 2pm

We are a small friendly group and anyone in the area with PMR or GCA is welcome to join us at Garfunkels, the Orange Grove, Bath, BA1 1LP.

We are a small friendly group and anyone in the area with PMR or GCA is welcome ...

Hidden

•7 years ago

2 Replies

Anyone given Cortisone Injections for PMR Treatment?

Hi, I am feeling very confused on moving forward with my treatment of PMR. Like everyone else, my doctors have pushed to bump down and get off Pred no matter...

Hi, I am feeling very confused on moving forward with my treatment of PMR. Like ...

PMRinsdca

•7 years ago

10 Replies

Just a year in and clear about personal approach

Hi all, I was diagnosed almost a year ago and told, like many others, that I would be off steroids in under a year! Also in common with many others, I had the...

Hi all, I was diagnosed almost a year ago and told, like many others, that I wou...

JoDo43

•7 years ago

12 Replies

PMR or Ra

I need opinion again. Diagnosed in March With PMR. 20mg of Prednisone. Down to 9mg a month ago pain was severe in right shoulder. Doctor sent me for MRI....

I need opinion again. Diagnosed in March With PMR. 20mg of Prednisone. Down to...

Judyp1203

•7 years ago

15 Replies

Methotrexate

I took my first dose yesterday after lunch. I have had no side effects YIPPEE Can I expect side effects as I take further doses or is my experience yesterday...

I took my first dose yesterday after lunch. I have had no side effects YIPPEE C...

IdasMum

•7 years ago

3 Replies

Pain

I can relate to all of those things written by many members. I am worried about the Prednisone,so many things it can do to the body but I haven't been able to...

I can relate to all of those things written by many members. I am worried about...

donnafish

•7 years ago

25 Replies

The Liver and carbs

I have recently been introduced to this woman and find her YouTube lectures fascinating. I have chosen to take what I want and sit on the fence with some of...

I have recently been introduced to this woman and find her YouTube lectures fasc...

IdasMum

•7 years ago

7 Replies

First blood results- Raised serum alkaline phosphates level.

I have just got hold of my 1st blood results after 4 weeks of Pred for PMR. My levels of CRP - 13 and ESR - 50, but there was another raised level, “Serum...

I have just got hold of my 1st blood results after 4 weeks of Pred for PMR. My l...

Jo1947

•7 years ago

4 Replies

oh yah...

feel like this ever? Haha...

daworm

•7 years ago

14 Replies

Angry/anxious for 10 days. Does anyone else struggle with these feelings? Is it the pred?

I have been really struggling to keep my composure over the last 9 days or so and wonder if it's related to the pred? I feel fidgety all the time and am...

I have been really struggling to keep my composure over the last 9 days or so an...

Purplegirl70

•7 years ago

29 Replies

Interesting article about Magnesium

Just came across this very interesting article and thought it worth sharing here. Very worrying to see how much of modern life, modern eating, modern farming...

Just came across this very interesting article and thought it worth sharing here...

IdasMum

•7 years ago

27 Replies

How much pain? Vs how much pred?

I saw my GP this week for the first time in about 8 months and obviously he was horrified that I was still taking 12mg pred/day 10months on. But, I still...

I saw my GP this week for the first time in about 8 months and obviously he was ...

Peggles

•7 years ago

26 Replies

living with Giant Cell Arteritis with PMR and large doses of Prednisone.

How can I make this disease less debilitating? I am only 66 years old. Are there ways to mediate the side effects of the prednisone? Is anyone in the...

How can I make this disease less debilitating? I am only 66 years old. Are ther...

Glennda

•7 years ago

22 Replies

Good days bad days

Strange this PMR...had almost a week of some pretty good days, did some traveling and site seeing (fall colors in Michigan), felt great except for some slight...

Strange this PMR...had almost a week of some pretty good days, did some travelin...

daworm

•7 years ago

10 Replies

Having 2nd Total Knee Replacement in 3 weeks

Hi all, Finally having 2nd TKR mid November. Not over-enthused but have been TOLD by orthopod and rheumy that I will be able to mobilise better then...

Hi all, Finally having 2nd TKR mid November. Not over-enthused but have ...

AussiePolyDee

•7 years ago

11 Replies

Giant cell

I've just been diagnosed with GCA but haven't been told a lot about it can someone please explain what I can expect

I've just been diagnosed with GCA but haven't been told a lot about it can someo...

Christi2

•7 years ago

10 Replies

Ongoing hip problem

I posted on here a few weeks ago about my painful hip. I've been to 2 GPs The first one told me to increase my prednisolone as it could be a flair. When that...

I posted on here a few weeks ago about my painful hip. I've been to 2 GPs The ...

margiebell4

•7 years ago

10 Replies

LOW blood pressure

I've written before about my afternoon lows with the wobbliness and weakness and occasionally on really bad day, some faint nausea. I usually find that it is...

I've written before about my afternoon lows with the wobbliness and weakness and...

Hindags

•7 years ago

9 Replies

Symptoms of Vasculitis?

Good afternoon everyone, I have a few questions. A year ago I developed a rash which started on my legs and went to my arms, buttocks, chest and stopped short...

Good afternoon everyone, I have a few questions. A year ago I developed a rash ...

pmrkitty

•7 years ago

25 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2017

Help!

Eyes Ok.

Racing pulse - on prednisone 15mg

Pokymyalgia

Help needed from fellow sufferer of polymyalgia

Pain management

Calcium levels

Trick or treat!

Polymyalgia, Vitamin B 12 and Vitamin D Deficiency

Is this right??

Actemra Use

Bath Cafe Meet Up Monday October 6th at 2pm

Anyone given Cortisone Injections for PMR Treatment?

Just a year in and clear about personal approach

PMR or Ra

Methotrexate

Pain

The Liver and carbs

First blood results- Raised serum alkaline phosphates level.

oh yah...

Angry/anxious for 10 days. Does anyone else struggle with these feelings? Is it the pred?

Interesting article about Magnesium

How much pain? Vs how much pred?

living with Giant Cell Arteritis with PMR and large doses of Prednisone.

Good days bad days

Having 2nd Total Knee Replacement in 3 weeks

Giant cell

Ongoing hip problem

LOW blood pressure

Symptoms of Vasculitis?

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