Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for October 2020

Live Vaccines

I read somewhere that while suffering with PMR and on prednisone one should avoid live vaccines. I’m due for a pneumonia shot so wondering if it qualifies as a...

I read somewhere that while suffering with PMR and on prednisone one should avoi...

Citation

•4 years ago

11 Replies

Advice and tips on living with PMR

Just been diagnosed with PMR and now taking 15mg Prednisolone daily. Feeling so much better now I know what is wrong and the pain is lessened. Still can’t...

Just been diagnosed with PMR and now taking 15mg Prednisolone daily. Feeling so...

GrannyJane

•4 years ago

11 Replies

VIT D

Hi ive been on Pred now for 2 and half months on 15mg and now down to 12.5mg.im 54 and male should i start to take vit D and calcium by now?.i go for a 3...

Hi ive been on Pred now for 2 and half months on 15mg and now down to 12.5mg.i...

rustyrussell

•4 years ago

26 Replies

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Still walking and now doing The Fast 800

Hello from locked down France. Just wanted to update you and say I am still walking. I realised today that I am building new neural pathways to overwrite the...

Hello from locked down France. Just wanted to update you and say I am still walk...

IdasMum

•4 years ago

24 Replies

PMR or Fibromyalgia?

PMR or Fibromyalgia? Following a telephone consultation with a new Rheumotologist back in August I got a copy of the report sent to my GP today. I’m a bit...

PMR or Fibromyalgia? Following a telephone consultation with a new Rheumotologis...

Griggser

•4 years ago

17 Replies

Taper dosage plan

Hi All, I have been following the taper plan from this group page. Starting with 1 day new dose, 6 days old dose, etc. In my case the old dose is 10 mills of...

Hi All, I have been following the taper plan from this group page. Starting with...

Southmead

•4 years ago

4 Replies

Dorothy Byrne’s article in Wednesday’s Guardian

My son forwarded this article by Dorothy to me today- sobering words, and sadly all too true....

My son forwarded this article by Dorothy to me today- sobering words, and sadly ...

Suzita76

•4 years ago

3 Replies

Advice on medication

I have been reducing dose of prednisolone but have got to 12.5 and am having a lot of muscle pain, aches and cramps in my legs and feet so once again I am...

I have been reducing dose of prednisolone but have got to 12.5 and am having a l...

jaybee58

•4 years ago

12 Replies

E Mail. PMRGCA. X MAS CARD'S & CALENDAR!

Personal view! Well worth supporting now the forum has some lightness there again! Buying a few cards myself. ATB . Keep Safe it's Mad Out There!

Personal view! Well worth supporting now the forum has some lightness there aga...

Hidden

•4 years ago

11 Replies

PMR

I was wonder has anyone has a relapse of PMR and how was it ? I was PMR free for 7 years and the last two months I think it is back. I feel the same as I did...

I was wonder has anyone has a relapse of PMR and how was it ? I was PMR free for...

smiley67

•4 years ago

10 Replies

PMR

Can PMR go away by its self with out any treatment when you are having a relapse ?

Can PMR go away by its self with out any treatment when you are having a relaps...

smiley67

•4 years ago

7 Replies

Blood Test Essential with Omeprazole

Hi I had an endoscopy/colonoscopy last June, the results of which indicated I had mild gastritis. My own GP put me on omeprazole morning and evening it was...

Hi I had an endoscopy/colonoscopy last June, the results of which indicated I ha...

Chengdu18

•4 years ago

6 Replies

Negative biopsy-now what?

I was diagnosed with PMRGCA on September 9. Immediately started 60 mg of prednisone. Had jaw claudication, sensitive scalp, blurred vision, severe headaches,...

I was diagnosed with PMRGCA on September 9. Immediately started 60 mg of prednis...

Bro-

•4 years ago

2 Replies

Managing stairs following a hip replacement

At what stage have you been able to walk up stairs normally following a hip replacement?

At what stage have you been able to walk up stairs normally following a hip repl...

Golf123

•4 years ago

10 Replies

Panic attacks at 71/2 dropping to 7

Hi everyone, my husband is doing the dead slow drop and was doing great until now. He is dropping from 71/2 to 7 but major anxiety and panic attacks have set...

Hi everyone, my husband is doing the dead slow drop and was doing great until no...

rescuedogs

•4 years ago

21 Replies

MRI results

I've been having PMR symptoms since February, and finally just had x-rays and MRI (no contrast) done, to see if anything showed up - both came back clear. I...

I've been having PMR symptoms since February, and finally just had x-rays and MR...

Anna135

•4 years ago

10 Replies

Vertigo

Having my third bout of Vertigo would this be yet another Problem connected with PMR or Pred..? It is such a horrible feeling and you get no warning one...

Having my third bout of Vertigo would this be yet another Problem connected with...

Macas

•4 years ago

12 Replies

PMR

Do any suffered experience breathlessness?

madhouse1

•4 years ago

5 Replies

Urgent advice please

Hi Hoping someone can advice me on what to do here. My Mum just told me she has been experiencing some unusual sharp, piercing, painful headaches,...

Hi Hoping someone can advice me on what to do here. My Mum just told me she has ...

Jeromekjerome

•4 years ago

24 Replies

Off Pred for 60 days : What Should I Expect?

Hi all, just curious, for those who have transitioned off prednisone what should I expect in terms of pain. Should I be 100% pain free? A little sore? And for...

Hi all, just curious, for those who have transitioned off prednisone what should...

EnduranceEngine

•4 years ago

6 Replies

Can you help with newspaper piece about difficulty getting dr appointments?

As some of you may have seen, our deputy chair, Dorothy Byrne, wrote an article for The Guardian this week about medical treatment of older people during the...

As some of you may have seen, our deputy chair, Dorothy Byrne, wrote an article ...

Fran_Benson

Partner•4 years ago

1 Reply

Do PMR symptoms linger when you've recovered?

Are lingering symptoms of PMR normal? I was diagnosed with rheumatoid arthritis (RA) & given sulphasalazine, (I'm allergic to methotrexate), which took the...

Are lingering symptoms of PMR normal? I was diagnosed with rheumatoid arthritis...

Funnyrook

•4 years ago

6 Replies

My Cherry Tree😊

I usually post a photo of my tree in spring and autumn as it gives so much pleasure. Grown from a stone 34 years ago for one of our boys!!

I usually post a photo of my tree in spring and autumn as it gives so much pleas...

diana1998

•4 years ago

18 Replies

Cortisone cream

Can I put cortisone cream on a very itchy injection site. I injected Actemra on Monday and site is ver itchy and red. Ugh!

Can I put cortisone cream on a very itchy injection site. I injected Actemra on ...

Blackcatlover

•4 years ago

11 Replies

Hot Flushes!

Hi everyone, finally got of Pred about a week ago after six and a bit years. I have started getting awful hot flushes, is this a withdrawal symptom. I am 71 so...

Hi everyone, finally got of Pred about a week ago after six and a bit years. I h...

Attic

•4 years ago

18 Replies

D.Mannose advice.

Does anyone know if D Mannose is particularly good for UTI or are the cheaper cystitis powders just as effective? Are these things something that you can...

Does anyone know if D Mannose is particularly good for UTI or are the cheaper c...

Francesbarbara

•4 years ago

17 Replies

Vitamin K and Covid

I know quite a few people on this site take Vitamin K2 and they might be interested to read this. Think I may pause it for a while....

I know quite a few people on this site take Vitamin K2 and they might be interes...

maria40

•4 years ago

6 Replies

Gratitude diary

Edited to add some examples I've just read in another book. They say keeping a gratitude diary - every day writing down 3 things for which you are grateful -...

Edited to add some examples I've just read in another book. They say keeping a ...

tangocharlie

•4 years ago

61 Replies

New, if reluctant, exclusive club member

Hello everyone, Just joining today, after diagnosis of GCA in early August. A condition I’d never heard of, but I now realise is directly connected to the...

Hello everyone, Just joining today, after diagnosis of GCA in early August. A co...

Frewen1

•4 years ago

20 Replies

Hba1c now 43 - Prediabetic?

When I was really ill I lost 3 stone in weight in a few months as I was unable to eat or even drink a cup of tea. This was the only upside as I had tried to...

When I was really ill I lost 3 stone in weight in a few months as I was unable t...

HappyDiamonds

•4 years ago

24 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2020

Live Vaccines

Advice and tips on living with PMR

VIT D

Still walking and now doing The Fast 800

PMR or Fibromyalgia?

Taper dosage plan

Dorothy Byrne’s article in Wednesday’s Guardian

Advice on medication

E Mail. PMRGCA. X MAS CARD'S & CALENDAR!

PMR

PMR

Blood Test Essential with Omeprazole

Negative biopsy-now what?

Managing stairs following a hip replacement

Panic attacks at 71/2 dropping to 7

MRI results

Vertigo

PMR

Urgent advice please

Off Pred for 60 days : What Should I Expect?

Can you help with newspaper piece about difficulty getting dr appointments?

Do PMR symptoms linger when you've recovered?

My Cherry Tree😊

Cortisone cream

Hot Flushes!

D.Mannose advice.

Vitamin K and Covid

Gratitude diary

New, if reluctant, exclusive club member

Hba1c now 43 - Prediabetic?

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