Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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Have to go to A&E to manage my PMR

The added 5mg has done very little for my flare after 5 days. I therefore phoned rhematology department and was told next appointment was scheduled in 7 1/2...

The added 5mg has done very little for my flare after 5 days. I therefore phone...

Body_bonkers

•9 hours ago

6 Replies

Brain fog & fatigue returns

Towards end of 2024 and after significant lowering & raising Pred through out, inflammation came back in my shoulders & neck. I was constantly fatigued & had...

Towards end of 2024 and after significant lowering & raising Pred through out, i...

Naim1

•9 hours ago

2 Replies

Down to 6 at last!

Nearly 2 years ago I was involved in a nasty traffic accident where several of my bones were broken. I was admitted to an ICU where, before they operated, I...

Nearly 2 years ago I was involved in a nasty traffic accident where several of m...

Louisepenygraig

•11 hours ago

4 Replies

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Forum support

I am so grateful for advice and support offered on the forum. Thank you all.

Groggrim

•20 hours ago

1 Reply

flare up

Morning all again.. If you recall, I posted a few days ago about my post gardening pain followed by tripping when out walking… I increased my prednisone dose...

Morning all again.. If you recall, I posted a few days ago about my post gardeni...

Cashewnutty1962

•20 hours ago

19 Replies

newly diagnosed

Hello, I have recently been diagnosed with PMR and following a rheumatology appointment am now taking steroids. I am feeling much better and having been signed...

Hello, I have recently been diagnosed with PMR and following a rheumatology appo...

CatloverK

•21 hours ago

7 Replies

Sick day protocol

Morning wonderful people , I had some sort of virus last weekend end that resulted in 24 hours of vomiting and diarrhoea . I followed the sick day protocol and...

Morning wonderful people , I had some sort of virus last weekend end that result...

FiddleFern

•21 hours ago

1 Reply

CRP looking good

Currently down at 3 ¼ mg after starting at 20mg in November 2023. I have had a few aches and a bit of wooziness and was looking for my CRP results to give an...

Currently down at 3 ¼ mg after starting at 20mg in November 2023. I have had a ...

ChrisBeeLoop

•22 hours ago

2 Replies

Part 2 . In need of help .Have gone from bad to a lot worse . Don`t know what to do ? A little detail and thank yous

Firstly, Can I say a massive thank you for all your support and best wishes . I guess its obvious that I`m not in a good place and I felt aprehensive at...

Firstly, Can I say a massive thank you for all your support and best wishes . ...

Marek1

•1 day ago

26 Replies

colonoscopy and pred dose

Can I ask for advice. I’m booked for colonoscopy next tuesday after a bowel screening result. I went for the pre assessment today. When I asked the nurse...

Can I ask for advice. I’m booked for colonoscopy next tuesday after a bowel scre...

Temeraire

•1 day ago

8 Replies

Return of PMR

My last prednisone after about 5 years PMR and tapering was October of 2023. I still continue to regularly go through the published postings and replies. I...

My last prednisone after about 5 years PMR and tapering was October of 2023. I s...

Manderson

•1 day ago

9 Replies

I had my Rheumatologist follow up today.....

and I am still in the dark, she was more forceful in the assertion that I do not have GCA as all the testing done has come back negative. She firmly suggested...

and I am still in the dark, she was more forceful in the assertion that I do not...

spoof99

•1 day ago

2 Replies

PMR - DEXA results

I've been trying to get my DEXA results from March 2024 and the doctor's surgery couldn't get them either, So I decided to go private with Vista Health at...

I've been trying to get my DEXA results from March 2024 and the doctor's surgery...

Gimme

•2 days ago

8 Replies

About to start a course of antibiotics

I am now down to 2.5mg of Pred and was going to start a taper to 2.0 mg in two weeks, but I am about to start a course of antibiotics for a bacterial infection...

I am now down to 2.5mg of Pred and was going to start a taper to 2.0 mg in two w...

jinoadby

•2 days ago

10 Replies

My good news story

Hello, I acknowledge that I have not been one to post here, but I did take the advice offered and am so grateful for it all. After being diagnosed with PMR...

Hello, I acknowledge that I have not been one to post here, but I did take the ...

LucPaul

•2 days ago

6 Replies

5 week taper

Hi, I was thinking about when I return to tapering with Dorset Lady's 5 week taper. I'm not sure which would be more effective, to reduce 0.5mg every 5 weeks...

Hi, I was thinking about when I return to tapering with Dorset Lady's 5 week tap...

Groggrim

•2 days ago

40 Replies

Easter Greetings

Easter comes but once a year and then it comes again. The treat of hunting eggs was dear unless it chose to rain. There's so much chocolate everywhere...

Easter comes but once a year and then it comes again. The treat of hunting egg...

cycli

•2 days ago

15 Replies

More on very low Pred dose = arthritic-type pains in hands and feet …

Further to my post last week: It was the monthly meeting of our lovely local support group yesterday and we were swapping our experiences of the past few...

Further to my post last week: It was the monthly meeting of our lovely local su...

Hopingsail

•2 days ago

24 Replies

Lawn Bowls

Hi I went a bowls taster session on Saturday - a nice gentle sport I thought, that I could manage with the added benefit of social activities as I'm on my own....

Hi I went a bowls taster session on Saturday - a nice gentle sport I thought, th...

Pusph

•2 days ago

13 Replies

week from hell - what to do with dosage

I knew this last week was going to be a nightmare - finishing off of building work in our garden with workmen who I have discovered have to be watched like a...

I knew this last week was going to be a nightmare - finishing off of building wo...

tiredbutoptimistic

•2 days ago

2 Replies

Yoyo Reducing Question

Hi all - I seem to be stuck in a yoyo reduction situation. My problem is that once I follow the flare protocol and add 5mg to my then current dosage, all goes...

Hi all - I seem to be stuck in a yoyo reduction situation. My problem is that o...

canadacando

•2 days ago

4 Replies

Flare or Long Term Steroid Withdrawal Symptoms

After almost 10 years since my GCA/PMR diagnosis I finally thought I was well on my way to joining the “zero club” as I was slowly reducing at 4mg of...

After almost 10 years since my GCA/PMR diagnosis I finally thought I was well on...

LizMitchell

•2 days ago

7 Replies

wonderful support group.

Just curious… are there members on here who are clinical please? The responses are so great that I am wondering… they sound like the sort my colleagues would...

Just curious… are there members on here who are clinical please? The responses a...

Cashewnutty1962

•3 days ago

12 Replies

still getting fatigue on reducing

l was diagnosed in 2016 ,when the rheumatologist said she was happy with a maintenance dose of 5mg. So l was on a dose of 5 mg for over 5 years. I’ve never...

l was diagnosed in 2016 ,when the rheumatologist said she was happy with a maint...

Trulyscrumpious

•3 days ago

9 Replies

Thought this Was Relevant to us All

The picture says it all.

Bcol

•3 days ago

5 Replies

Is this DOMS?

Hi all, firstly I accept your tellings off as it’s well deserved. I posted recently that I had been gardening and subsequently was experiencing shoulder pain....

Hi all, firstly I accept your tellings off as it’s well deserved. I posted rece...

Cashewnutty1962

•3 days ago

18 Replies

advise please

first of all thanks for all the advise and support- like many I would be lost without it. I have just, on Sunday, tapered down from 11mg to 10 gms so far OK...

first of all thanks for all the advise and support- like many I would be lost wi...

Jakey67

•3 days ago

11 Replies

Second meeting of the Lincolnshire PMR group.

We are a small group from Health Unlocked and Facebook who are enjoying chatting, sharing our stories and experiences, and having a nice meal at the same time...

We are a small group from Health Unlocked and Facebook who are enjoying chatting...

Pris80

•3 days ago

8 Replies

Taking Stock

Good morning, thank you to all who have helped with wise and positive words recently. You know who you are. I realise that I had got myself into a negative...

Good morning, thank you to all who have helped with wise and positive words rece...

Groggrim

•3 days ago

36 Replies

minor surgery under local

hi all, quick question. I am booked for surgery (suspect mole, 4 cm, on upper arm) this week. Local anaesthetic. Should I use sick day rules ? They are aware...

hi all, quick question. I am booked for surgery (suspect mole, 4 cm, on upper ar...

Sally_Bones43

•3 days ago

5 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Have to go to A&E to manage my PMR

Brain fog & fatigue returns

Down to 6 at last!

Forum support

flare up

newly diagnosed

Sick day protocol

CRP looking good

Part 2 . In need of help .Have gone from bad to a lot worse . Don`t know what to do ? A little detail and thank yous

colonoscopy and pred dose

Return of PMR

I had my Rheumatologist follow up today.....

PMR - DEXA results

About to start a course of antibiotics

My good news story

5 week taper

Easter Greetings

More on very low Pred dose = arthritic-type pains in hands and feet …

Lawn Bowls

week from hell - what to do with dosage

Yoyo Reducing Question

Flare or Long Term Steroid Withdrawal Symptoms

wonderful support group.

still getting fatigue on reducing

Thought this Was Relevant to us All

Is this DOMS?

advise please

Second meeting of the Lincolnshire PMR group.

Taking Stock

minor surgery under local

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