Stifffingersan hour ago
Has anyone tried this as an alternative medicine?
No plaquanil for Daisy!!
Daisychain125 hours ago
I told my gp exactly what we discussed here. I told him I have had a rough time and need to just have stability. I showed him my research,...
11 Replies4 Likes
Difference between PMR and GCA?
prunus5 hours ago
As someone with GCA can I be educated on the differences between the two and how initially they know it is one and not the other?
Stomach upset "cured" PMR temporarily?
Jenniyr8 hours ago
I have had PMR affecting hips for just under a year. Pred has not been very effective. I have regular flare ups and experience pain and a lo...
3 Replies1 Like
Kyrenia10 hours ago
Hello everyone. I was diagnosed November 2017 with GCA/PMR. Started on 40mg Pred. After a bumpy ride I am currently taking 11mg. When can I ...
9 Replies1 Like
Seagu1118 hours ago
Do I need this. Or is my pain bursitis? How do I know?
Moggie Mad 🙀
14 Replies1 Like
Wenben19 hours ago
Have allergic reaction to post op dressing which I must try to keep on until Thursday. Rang nurse at hospital and she suggested trying ...
Trish21a day ago
Been to doctors today with my list of symptoms, lovely man, has not ruled out pmr and has given me a weeks trail on prednisone. Also going t...
6 Replies8 Likes
Guess i,m needing some encouragement!
Stifffingersa day agoPOPULAR
Hi, rang the help line earlier(thanks for listening and advice). Guess i,m like everyone else?.....came out of nowhere.One day woke up after...
mamici1a day agoPOPULAR
Just answered the phone... it was a receptionist from my Surgery. Apparently the urine sample, that was taken, by the Neurologist, on NOVEM...
46 Replies9 Likes
Jura1959a day ago
One and all I was diagnosed with pmr back in 2016/2017 Was put on the dreaded predisolne but feel it was reduced to fast the f...
5 Replies1 Like
Hip Pain is it PMR or in need of hip replacement
sailormana day ago
Hi Folks well I have been reducing just fine from 10 mg doing it as recommended on here, successfully down to 5 mg stayed there for a few we...
Me in One of Melissa's Masks - for details see my other recent post !
Rimmya day ago
An extra pic of me wearing mine - Just to show the size and quality of one of the two masks Melissa made us - see my other post and picture ...
3 Replies8 Likes
MELISSA YOU ARE A 'CREATIVE GENIUS' - YOUR WONDERFUL MASKS HAVE ARRIVED AND WE LOVE THEM !!
We are taking advantage of being able to share our great delight and fascination on the much anticipated arrival of your FANTAS...
15 Replies10 Likes
any day now
coda1232 days ago
Any day now I'm going to get up off my couch and do these exercises. I promise.
18 Replies9 Likes
Sorry to sound like a ouija board but... is anybody there???
Daisychain122 days agoPOPULAR
I am off to do battle with my dear gp soon. First I get the Dexa scan but I won’t get any results today. Then I have a three o’clock appoin...
64 Replies1 Like
Listening!!! Anyone Else Have This Problem!!
Pepperdoggie2 days agoPOPULAR
Brexit...Brexit..Brexit. Media! Relentless Rabbit....Rabbit...Rabbit...!!!.
Must tune in to more soothing radio in the dark hours!
61 Replies3 Likes
Fatigue prior to PMR
bunnymom2 days agoPOPULAR
Did anyone experience severe fatigue several years prior to PMR diagnosis? I out of the blue could barely get off the couch. Diagnosed as de...
26 Replies1 Like
Scarter7702 days ago
Has anyone tried SAMe for relief of PMR symptoms ? I seem to be having some luck with it. Trying to stay off the prednisone and side effect...
Down to 6mg feeling "odd"!
MamaBeagle2 days ago
I've got a telephone consult with my very amiable gp coming up on 21st........and would like to be able to point him in the right direction!...
13 Replies1 Like
Trish212 days ago
Results of blood test showed borderline vitamin d deficiency. Going to see another doctor tomorrow. I'm going to write a list of the symptom...
My tribe, in the bleak mid-winter. Australia style.
SheffieldJane2 days agoPOPULAR
It’s going to me a shock for them, when the two littlest come over in a couple of weeks. Cannot wait!
29 Replies15 Likes
Cramping feet and hands ?
Rimmy2 days ago
I have now tapered down to 12 mg after a flare of GCA which meant a few months ago I had to 'go up' again after reaching this ...
18 Replies1 Like
teesher3 days ago
I've seen a few posts about the benefits of pilates and wanted to add that I've also found it very beneficial. Had pmr for 3 years. Had to ...
8 Replies5 Likes
The Lighter Side: Leave or Remain? ...Breaking News…
markbenjamin573 days agoPOPULAR
Greetings again You Lot. Twice in 2 days? All I can say is: haven’t you got anything better to do on Friday and Saturday nights?
Children In Need
Marilyn19593 days ago
Did anyone watch Children In Need last night. It kind of puts things into perspective doesn't it!
A particular story touches me each year and...
1 Reply10 Likes
Unusual pmr attack on system
Linny33 days ago
Not sure if it was pmr or not. I am slow tappering and have gone from 12 &1/2mg to ll mg of rayos in two months. Had some ups and downs ...
Constance133 days agoPOPULAR
Someone just asked my husband “what is actually wrong with Constance?” and he answered “a lot of abbreviations”. I’m just rolling up!😂😂?...
21 Replies9 Likes
How does steroid myopathy differ from pmr? Consultant now says stiffness is myopathy, but it wears off during the day.
Cally553 days ago
Desperate to get off steroids but this stiffness seems familiar.
Tightness and Tennis Balls
JulieR23 days ago
Hi everyone it’s a while since I posted but read avidly! I am down to 2mgs prednisone and am two years into the journey. I have read the rec...
17 Replies1 Like
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