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PMRGCAuk

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Alendronic Acid-Decision Made

Following a 'face to face' consultation yesterday with my GP I have taken his "strong" advice, went home and took the Alendronic Acid (empty stomach). Although...

Following a 'face to face' consultation yesterday with my GP I have taken his "s...

Gc2596

•1 hour ago

3 Replies

Any help on Hydroxychloroquine

Had a telephone appointment today with rheumatologist and he’s suggesting I try Hydroxychloroquine as I have been taking Pednisolone for 4 yrs and I’m stuck at...

Had a telephone appointment today with rheumatologist and he’s suggesting I try ...

Petcut

•2 hours ago

3 Replies

Carpal Tunnel Update

Hi all. Just when must have thought you had got rid of me, I'm back. New house definitely, now, looking and feeling like home and two weeks in the Caribbean...

Hi all. Just when must have thought you had got rid of me, I'm back. New house d...

Bcol

•2 hours ago

8 Replies

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Update

Thank you everyone who has patiently offered advice and support. I had allowed myself to become trapped in a negative cycle of steroid induced fatigue and...

Thank you everyone who has patiently offered advice and support. I had allowed m...

Groggrim

•4 hours ago

7 Replies

total knee replacement surgery today

Does anyone have any top tips regarding recovery? I am on 7.5 mg pred. I have physio sessions booked for the first 4 weeks post op. My other knee will be...

Does anyone have any top tips regarding recovery? I am on 7.5 mg pred. I have ph...

Horsewhisper

•10 hours ago

14 Replies

Repeating the Zoom talk on how steroids cause weight gain and raise blood sugars - and low carb eating - 11am Thurs 3rd April 2025

From feedback this was very well received last week so we're going to repeat it. I'm going to be leading a discussion on this hosted by the Yorkshire PMRGCAuk...

From feedback this was very well received last week so we're going to repeat it....

tangocharlie

•23 hours ago

21 Replies

Steroids Hair loss?

Joined group in February. Sorry to ask another question. Had breast cancer sometime ago and subsequently my hair is a lot thinner. I believe you are more...

Joined group in February. Sorry to ask another question. Had breast cancer some...

Redcottage

•2 days ago

17 Replies

Where I am Now on My Journey

Hi everyone. I have had PMR 6 yrs. Thru the yrs, many flares. Slow Tapering record. I have been off of Pred for 3 months. Still on 20mg Methotrexate weekly....

Hi everyone. I have had PMR 6 yrs. Thru the yrs, many flares. Slow Tapering reco...

DrRon

•2 days ago

3 Replies

For PMR

Like a sneaky thief you prowl around Like an unwanted guest you try to take ground Be sure you'll be defeated No place will I let you hold You needn't...

Like a sneaky thief you prowl around Like an unwanted guest you try to take gro...

Groggrim

•2 days ago

4 Replies

Disappointing

I am not able to travel to our daughters with my husband tomorrow 😞. Last night I felt very unwell and am not much better this morning. I am upset and so is...

I am not able to travel to our daughters with my husband tomorrow 😞. Last night...

Groggrim

•2 days ago

63 Replies

Methotrexate? Or not?

After aborted taper while on holiday in Australia in December 2024 - (60 - 50 - 40) which put me horizontal from about 6am to 3pm each day, a doctor in...

After aborted taper while on holiday in Australia in December 2024 - (60 - 50 - ...

Sunburst001

•3 days ago

27 Replies

Anti-inflammatory guide book

I have just seen an advert for a book entitled Anti-inflammatory Guide. It's a hardback book. Does anyone have any views on it? Is it worth buying and could it...

I have just seen an advert for a book entitled Anti-inflammatory Guide. It's a h...

Oddmanout

•3 days ago

3 Replies

No time left

Thanks to those who replied to my introductory post yesterday. I literally was so tired after reading lots of interesting posts and then filling in the joining...

Thanks to those who replied to my introductory post yesterday. I literally was s...

Muesligreen

•3 days ago

4 Replies

Advice please

I had Lyme disease in Autumn 24 and was treated for 2 months with antibiotics but was left with a dull ache in neck which the doctor then decided may be PMR as...

I had Lyme disease in Autumn 24 and was treated for 2 months with antibiotics bu...

Flashback

•3 days ago

14 Replies

carpal tunnel operation

After several months pain etc eventually diagnosed with polymyalgia in January. Given a steroid injection 3 weeks ago and now taking 15mg Prednisone daily....

After several months pain etc eventually diagnosed with polymyalgia in January. ...

Redcottage

•3 days ago

11 Replies

PMR and Mounjaro

I’ve had PMR for some years. My weight has yo yo’d. I had tried to limit carbs with some success, and lost 3.5 stone on WW - but put it all back on. I love...

I’ve had PMR for some years. My weight has yo yo’d. I had tried to limit carbs w...

Janet57

•3 days ago

45 Replies

blood sugar and thank you!

In November my HbA1c was 47 , prediabetic I was told, but my GP was calm, saying steroids caused it and should go when you stop.... still, not ideal . On...

In November my HbA1c was 47 , prediabetic I was told, but my GP was calm, saying...

Excelsior80

•4 days ago

6 Replies

Adrenals sputtering?

I took a chance and reduced to 6.5 mgs.Just had blood work and my reads were in a normal range of esc 10.crp 4.9.Right after I lowered my dose I've been really...

I took a chance and reduced to 6.5 mgs.Just had blood work and my reads were in ...

Hunter134

•4 days ago

16 Replies

CRP blood test

Is it best to take Prednisolone after having a blood test Also can you advise if it is ok to take Vitamin B and Vitamin D with Prednisolone Thank you

Is it best to take Prednisolone after having a blood test Also can you advise i...

Redcottage

•4 days ago

3 Replies

shingles and pred

I have a rather horrific case of shingles, day 13. Misdiagnosed day 1, started acyclovir day 4. No sleep, no clothes on top, etc. doc had me up pred as...

I have a rather horrific case of shingles, day 13. Misdiagnosed day 1, started ...

Twopies

•4 days ago

22 Replies

White carbs!

I've just found half a sliced white loaf in the back of the freezer from when grandson last came to stay. It's in the bin now.Thinking how to get him to accept...

I've just found half a sliced white loaf in the back of the freezer from when gr...

Groggrim

•4 days ago

10 Replies

My wonderful doctors!

When I was first diagnosed with PMR (June/July 24) I was given a reduction plan which didn’t work. On Monday I requested my usual dose of prednisolone. Today...

When I was first diagnosed with PMR (June/July 24) I was given a reduction plan ...

InTheMoors

•4 days ago

64 Replies

Not today, no time left

I've run out of time, will do intro soon

Muesligreen

•4 days ago

2 Replies

Covid testing

Has anyone experienced a positive covid test lasting 5 weeks so far with absolutely no symptoms while on long term steroids ? Im fed up wearing a mask...

Has anyone experienced a positive covid test lasting 5 weeks so far with absolu...

Rubha

•4 days ago

6 Replies

PMR and Pred.

Just one question and a little advice of my own. Does one’s body ever return to pre PMR treatment. The bruising and the bleeding are such a massive symptom I...

Just one question and a little advice of my own. Does one’s body ever return to ...

Tamla1964

•4 days ago

21 Replies

A wake up call

Hello, I was browsing round the forum and I found a thread from a year ago that piqued my interest so I read through it. A lot of the points made caused me to...

Hello, I was browsing round the forum and I found a thread from a year ago that ...

Groggrim

•5 days ago

31 Replies

Inflammation: 4 Page article in Which Magazine

I have just received the Which Mag. for April and there is a 4 page article entitled Inflammation : what to know and how to tackle it. PMR has not been...

I have just received the Which Mag. for April and there is a 4 page article enti...

Motida

•5 days ago

21 Replies

Pausing Actemra

Hello there! I have PMR/GCA and have been taking Actemra for the last two years and am currently on 1.5 mg prednisone. I recently posted about a...

Hello there! I have PMR/GCA and have been taking Actemra for the last two years...

Pamk1949

•5 days ago

8 Replies

Odds and Ends

I've been googling PMR extensively and found that in some rare cases it just goes away on its own: However, in some cases, the condition may go away on its...

I've been googling PMR extensively and found that in some rare cases it just goe...

InTheMoors

•5 days ago

9 Replies

Desperate need for advice!

Hi! I haven’t posted for some time - but this is my bible and I read you every single day. I have just come back from my consultant - my 10th year of...

Hi! I haven’t posted for some time - but this is my bible and I read you ever...

Saintmalo

•5 days ago

15 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Alendronic Acid-Decision Made

Any help on Hydroxychloroquine

Carpal Tunnel Update

Update

total knee replacement surgery today

Repeating the Zoom talk on how steroids cause weight gain and raise blood sugars - and low carb eating - 11am Thurs 3rd April 2025

Steroids Hair loss?

Where I am Now on My Journey

For PMR

Disappointing

Methotrexate? Or not?

Anti-inflammatory guide book

No time left

Advice please

carpal tunnel operation

PMR and Mounjaro

blood sugar and thank you!

Adrenals sputtering?

CRP blood test

shingles and pred

White carbs!

My wonderful doctors!

Not today, no time left

Covid testing

PMR and Pred.

A wake up call

Inflammation: 4 Page article in Which Magazine

Pausing Actemra

Odds and Ends

Desperate need for advice!

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