Horizon1242 minutes ago
Results from ultrasound show that there is no sign of cancer. So relieved.
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Other Actemera users
mpl6153 hours ago
My wife's PMR started after she thinks she past a kidney stone ( blood in urine and pain she took an antibiotic and this cleared up. Prior ...
Update from Mark??
powerwalk5 hours ago
Just wondering how Mark is getting on - having stopped his pred at 4 mg? Did I miss an update? Thanks.
What is normal ? 6.5mgs different pains every day
DavidMF5 hours ago
PMR since Nov. 2014. Three/four relapses when reducing to 8mgs. Using DSNS & 1/2 megs. 9 Months ago I started taking Pred. early morning 5.3...
The $64,000 Question!
mamici16 hours ago
So... many of you know I went to see my Rheumy last Wednesday. It was a routine appointment that ended up with her draining, what appeared...
16 Replies1 Like
JanetT587 hours ago
Hi I have only recently been diagnosed with PMR and have been on 15mg of Prednisolone for 11 days, I seem to wake up about 2to 3 am every mo...
Sunshine & Streaming eyes
Pepperdoggie17 hours agoPOPULAR
Lovely sunshine the last couple of days but my eyes stream constantly even with sun glasses on. Is this to be expected after nearly a year o...
21 Replies1 Like
Reducing Pred symptoms Also taking hydroxychloroquine
RNRN17 hours ago
Reducing predisone. I just reduced from 4 to 3 mg of pred. I have am experiencing bouts of high frustration. I will be doing something...
Steroid injection v pain killers
margiebell421 hours ago
I would appreciate some advice or opinions on treatment I've been offered. I'm 3 years into PMR and down to 3.5mg prednisolone. I've recentl...
Candida in nose and sinuses
Amkoffeea day agoPOPULAR
I recently read a post from someone on this site about being treated for a Candida fungal infection that not only affected their mouth but a...
21 Replies2 Likes
Curious about new TMJ symptoms with PMR new diagnosis 10 weeks
Leilagirl2 days ago
This TMJ is annoying. It is loud a click with each bite and is painful the next day due to inflammation I’m sure.
I must be careful now how ...
5 Replies1 Like
Any advice please?
Wenben2 days agoPOPULAR
Diagnosed PMR August 2015 and started on 15 mg Pred. After approx 8/9 months developed pain in right buttock. Have always been told this...
33 Replies1 Like
Further to my post on poss vascular connection with Fibromyalgia...
SoSarah2 days ago
If you found my initial post to this article interesting, then check out this link to a follow up 'critique' article, initially sent to me b...
1 Reply6 Likes
Anyone having NO side effects from Alendronate?
DianeA12 days agoPOPULAR
Hi, my Dr wants me on it tho my Dexa was normal. Please advise if you have had no side effects from it. Thank you!
Just signed up and fed up with PMR
athronydd2 days ago
I'm in my sixties and diagnosed with PMR at the end of May 2017. I have seen so many different stories and experiences here which h...
15 Replies4 Likes
Pmr and brownies
bunnymom3 days agoPOPULAR
So I decide to make brownies for the church potluck tomorrow. I haven't made them for several years since I am trying to cut back on sugar a...
39 Replies12 Likes
Newly diagnosed with PMR
Dejon733 days ago
This is my first time on here. I’m 63 years old and was recently diagnosed with pmr. Rheumatologist immediately started me on 40mg prednison...
14 Replies1 Like
Could the vascular changes that cause pain in Fibromyalgia also be responsible for PMR pain?
SoSarah3 days ago
Following my last post, have Just started on the depressing task of reading through all the articles linked to PMR pain in hands & feet & al...
PMR/GCA and COPD
Janann253 days ago
For many years I have felt slight wheezy during the autumn months but not enough to affect my normal activities so just put it down to a sea...
Carriacou19373 days ago
I just watched Trust me i am a Doctor. They covered GCA, but no mention of PMR. Should be on catch up.
7 Replies5 Likes
Blue Badge and benefits?
billinSurbiton3 days ago
I seem to be on a writing roll today ✍️
I’ve read some of posts about getting a blue badge for parking, and so I am wondering, now or in the...
PMR diagnosing protocols?
My NHS GP is a very fine Dr. I have faith in him, even if he got the Steroid tapering routine wrong ( see the drama from .LAST week 🙄)
11 Replies1 Like
People who have a really hard time dealing with side effects and pain
Pirnilla3 days agoPOPULAR
I wonder. Are there people who have altared their eating habits to non inflammatoric, Paleo or whole 30 who still have big problems with pai...
84 Replies5 Likes
How does one know when PMR is in remission?
zag19993 days ago
I understand PMR may or may not go into remission. Once in remission is pred or any medicine require?
Constance133 days ago
Does anyone have troubles when taking statins (muscle weakness, dizzyness, constipation, etc)?
Some years ago the medical gurus said everyone...
19 Replies1 Like
Once again many thanks. A little light reading to do now - Ha ha!!
Thank you all again for helping me out. Really appreciated.
I will try & follow up all the leads you have provided on reports stating that ...
1 Reply11 Likes
One thing after another 🤨
Pamela603 days ago
Lying in bed as I write.
Diagnosed GCA November 2015. Down to 3.5 mg and 4 mg this week. Three weeks ago started with pain right shoulder gr...
2nd Taper Effort Not Successful
navejasjoe3 days ago
My wife has been on Prednisone almost 2 years. Her first rheumy tried to have her taper all the way down to no steroids after only 7 months...
17 Replies2 Likes
Worried about headaches...and much more
dinhal4 days ago
I am 83 yrs old and three yrs ago started getting stabbing headaches on each side in temple area. I never had a headache in my life before t...
4 Replies1 Like
Doctor offers a solution she knows specialists can’t offer.
ConventCassie4 days ago
Anybody read this? Anybody tried the full 30 days? (Copyright 2015) She offers a lot!!! Makes sense to me.
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