Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

18,371 members • 34,135 posts

Sort posts by:

taper

i am sorry i cannot offer anything other than it took me two years plus to get to 1 mg. I would listen to PMR Pro and Snazzy and others in this website. They...

i am sorry i cannot offer anything other than it took me two years plus to get ...

•10 hours ago

episode 6 of a limited series!

thank you to everyone who took the time to respond to my previous update Today I was told that contrary to what the rheumatologist nurse told me that I was to...

thank you to everyone who took the time to respond to my previous update Today ...

•10 hours ago

General blood test - do I need to worry (not that it helps!)

Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum...

Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassi...

•11 hours ago

Want to take advantage of all our features? Just log in!

or

PMR or GCA Flare. Can GCA affect head/hearing?

I have written about this previously. I was down to 27 mg. pred about two weeks ago. I started getting PMR flare pain (?) about a week ago. Today, everything...

I have written about this previously. I was down to 27 mg. pred about two weeks ...

•11 hours ago

Blood tests

Hi, hope everyone is as well as can be. I had some bloods done this week and to my surprise, my CRP had reduced quite a bit but ESR still high but not as...

Hi, hope everyone is as well as can be. I had some bloods done this week and t...

•15 hours ago

ILL AGAIN :-(

Hi had health issues related to PMR since 2017 I am also type 2 diabetes. Been up and down on pred, since Han this year tried to lower dose going 1/2 mg every...

Hi had health issues related to PMR since 2017 I am also type 2 diabetes. Been ...

•16 hours ago

query about pred and surgery

I am having a total hip replacement later this month, and had my pre-op assessment this week. After some deliberation the nurse told me that I should not take...

I am having a total hip replacement later this month, and had my pre-op assessme...

•17 hours ago

heart attack

I have just got out of hospital owing to a heart attack, will post later as I need some advice🙏

I have just got out of hospital owing to a heart attack, will post later as I ne...

•17 hours ago

Info onActemra

Hi everyone, I was diagnosed with GCA Dec 21 and put on 65mg Pred. Then March 22 I started Actemra weekly injections. I have been very fortunate so far as I...

Hi everyone, I was diagnosed with GCA Dec 21 and put on 65mg Pred. Then March ...

•18 hours ago

How medical training works

Obviously people who’ve worked in medicine or allied fields know this but that leaves a lot of people who don’t and might be interested. Keep it simple and...

Obviously people who’ve worked in medicine or allied fields know this but that l...

•1 day ago

Dr. Did not advise another Covid booster.

I visited my lung doctor and I inquired about the current Covid booster. He advised against it. (US) because it was not formulated for newer variants. He did...

I visited my lung doctor and I inquired about the current Covid booster. He advi...

•1 day ago

Low Cortisol levels

Hello, I’ve been steadily tapering back to 5 mg after a flare, currently on 7 mg of Pred, and I have been feeling pretty rough most days, the usual fatigue,...

Hello, I’ve been steadily tapering back to 5 mg after a flare, currently on 7 m...

•1 day ago

anti depressants and prednisone.

Is anyone taking antidepressants while on prednisone? I’m currently on 9 mg I’ve been on them at various times, but not since I got PMR/GCA. Everything...

Is anyone taking antidepressants while on prednisone? I’m currently on 9 mg I...

•1 day ago

Withdrawal or Flare

Good afternoon I am just 1 year into my PMR journey and have reduced from 15mg Prednisolone to 5mg. I have been 9 days now on 5mg and reduced from 5.5mg and...

Good afternoon I am just 1 year into my PMR journey and have reduced from 15mg P...

•1 day ago

Prednisolone out of date

I realised yesterday that all my prednisolone is out of date by at least several months. Because I already had quite a lot of pred in 1mg 5 mg and 2 and a...

I realised yesterday that all my prednisolone is out of date by at least several...

•1 day ago

Sourcing advice please

Hi I went to my GP in April with this problem. My GP practice give you forms for self booking for Rheumatology at choice of 2 hospitals. Both have no...

Hi I went to my GP in April with this problem. My GP practice give you forms fo...

Wonderfullifeandmore

•2 days ago

GCA tapering

Since being diagnosed late Jan this year I have for the 2nd time tapered down to 20mg Pred- both times had to go back up to 30 & 25mg. Last month down to 20mg...

Since being diagnosed late Jan this year I have for the 2nd time tapered down to...

•2 days ago

DSNS tapering

hi I have been trying for over a year to get below 7 mg of prednisone Decided to try the DSNS method I am now at 6,5 new and 2. Days of old 7 mg When I...

hi I have been trying for over a year to get below 7 mg of prednisone Decided t...

•2 days ago

Actemra..any problems when taking this..

Was wondering what problems people have when taking Actemra weekly. I have been on it for a couple of months, slowly reducing Prednezone. Would like some...

Was wondering what problems people have when taking Actemra weekly. I have been...

•2 days ago

Peroneal Tendonitis

I have just been diagnosed with Peroneal tendonitis at a clinic after an ultrasound on my foot due to quite severe pain after just stepping down a step. The...

I have just been diagnosed with Peroneal tendonitis at a clinic after an ultraso...

•2 days ago

New diagnosis today , need your advice and guidance please .

I have just received a letter from my visit to the pain clinic , it states my pain in buttocks and hip as right sided trochanteric and right sided ischial...

I have just received a letter from my visit to the pain clinic , it states my pa...

•2 days ago

Wrong diagnosis

Hi everyone, I don't post very much, a bit of a lurker but I will be leaving the group anyway but thought I would share my recent update. Three years ago...

Hi everyone, I don't post very much, a bit of a lurker but I will be leaving t...

•2 days ago

crp 6.7

Hi, I went to see my gp yesterday with suspected uti. I did a urine sample which was showing Leucocytes present, I was given a three day course of...

Hi, I went to see my gp yesterday with suspected uti. I did a urine sample wh...

•3 days ago

Alt liver test

Alt levels are stable what does this mean?

Alt levels are stable what does this mean?

•3 days ago

Pain in wrists and thumbs.

I was diagnosed with PMR nine years ago and have had my ups and downs but I was fairly settled on 5mgs of Prednisolone. I now have another flare with the usual...

I was diagnosed with PMR nine years ago and have had my ups and downs but I was ...

61EllieCheshire

•3 days ago

Appointment cancelled again!

Last year I couldn’t attend my rheumy appt as I had Covid so I was given an appointment for this July. That was changed to October 2023 and now been cancelled...

Last year I couldn’t attend my rheumy appt as I had Covid so I was given an app...

•3 days ago

Cardiff meeting

The next meeting is on Friday, 16th June at 11.30 in the Central Library, room 4.

The next meeting is on Friday, 16th June at 11.30 in the Central Library, room 4...

•3 days ago

TinaAird48

I am taking 4 Pred one day & 3 on alternate days I have just started & since have had pain in my right toes is this just a coincidence or has anyone else had...

I am taking 4 Pred one day & 3 on alternate days I have just started & since hav...

•3 days ago

maybe chest infection ?

I was diagnosed with pmg last September and after a few hours on steroids , a miracle happened, no pain, able to get out of bed, and for the most part still on...

I was diagnosed with pmg last September and after a few hours on steroids , a mi...

•3 days ago

How long

I have osteoarthritis and waiting hip replacement. The last couple of months I’ve been in agonising pain not only in that hip but ringer down to my knees on...

I have osteoarthritis and waiting hip replacement. The last couple of months I’v...

•3 days ago

Write a post or ask a question