Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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GCA NEWBIE

GCA Newbie and my first post. Diagnosed 4 October 2024. Classic text book journey so far. Hitting my first major bump in the road and you guessed it, tapering....

GCA Newbie and my first post. Diagnosed 4 October 2024. Classic text book journe...

Raisinwheat

•3 hours ago

8 Replies

Pulled muscle

Hi - I rolled over in bed pulling the quilt over me and pulled a shoulder muscle. After a week I was in excruciating referred pain down my arm and into my...

Hi - I rolled over in bed pulling the quilt over me and pulled a shoulder muscle...

Potemkin

•4 hours ago

4 Replies

GCA urgent rheumatologist app coming up

Hello ladies I've got my appointment to see what the rheumatologist thinks ,if it's gca . I've got normal inflammatory markers and after 7 days the...

Hello ladies I've got my appointment to see what the rheumatologist thinks ,if ...

Dee101

•17 hours ago

4 Replies

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Alendronic acid 70mg

I’ve just been presented Alendronic Acid 70mg and having read the guide on taking it I’m not keen. I’m taking Prednisolone, only 1mg every other day, for PMR...

I’ve just been presented Alendronic Acid 70mg and having read the guide on takin...

Woolyhead

•17 hours ago

4 Replies

Cataracts?

Any one been diagnosed with prednisone induced cataracts? Went to the eye dr. 4 months ago and they saw the start of cataracts but said they would keep a...

Any one been diagnosed with prednisone induced cataracts? Went to the eye dr. 4...

Khof123

•18 hours ago

7 Replies

hip pain

That post should have title Hip Pain!

random901

•20 hours ago

3 Replies

hip pain

I have an excruciatingly sharp pain deep in my left hip/buttock (RHS none too good either). Bending down, walking, getting up from chair or bed a challenge....

I have an excruciatingly sharp pain deep in my left hip/buttock (RHS none too go...

random901

•20 hours ago

5 Replies

Fall and possible flare up

A week ago I had a bad fall while out walking my dog on a mountain path. Full impact on my left side - shoulder. Attended Minor A&E and no fracture but it's an...

A week ago I had a bad fall while out walking my dog on a mountain path. Full im...

Glynawel

•1 day ago

2 Replies

Prednisone , endoscopy and colonoscopy.

Good morning. Some of you may remember me and how the grinch has been following me around for a while. You were all so caring and wonderful when my daughter...

Good morning. Some of you may remember me and how the grinch has been following ...

Nightingales

•1 day ago

21 Replies

What a difference a doctor makes

Good morning I was contacted this morning by my registered GP who I have been with for many years. He gave me some advice which made sense and echoed things I...

Good morning I was contacted this morning by my registered GP who I have been w...

Groggrim

•1 day ago

21 Replies

Lyme or PMR?

Lyme disease 6 years ago. Treated with 3 weeks doxycycline. Took several years to feel better, fatigue and low mood bad.Now after a very stressful year have...

Lyme disease 6 years ago. Treated with 3 weeks doxycycline. Took several years t...

Tennisplayer82

•1 day ago

5 Replies

reduced steroid

hi not posted for a while, I’ve got awful pain in my arms/ shoulders and my hands are so painful. I have tried to get Intouch with my Rheumatologist but no...

hi not posted for a while, I’ve got awful pain in my arms/ shoulders and my hand...

Shaza123

•2 days ago

7 Replies

Update one GCA/PMR

So finally had a referral from ophthalmologist to Rheumatologist on 31st December as ‘urgent’ apparently within 4 weeks -still waiting. Sight is now badly...

So finally had a referral from ophthalmologist to Rheumatologist on 31st Decembe...

Nonameme

•2 days ago

4 Replies

Another disappointment..😥

Thought I was on the right track, besides rapid hair loss. I was at 12.5 with a CRP of 2, reduced to 10. Now my CRP is 31.3 second highest reading since...

Thought I was on the right track, besides rapid hair loss. I was at 12.5 with a ...

GivenUp24

•2 days ago

20 Replies

Repeat Colour Doppler Ultrasound

Hello there, I have just had a call from the Vascular Unit in Coventry who want to do an ultrasound test (I had brain MRI, Blood Vessel MRI and Colour...

Hello there, I have just had a call from the Vascular Unit in Coventry who want...

GingerPoodle1

•2 days ago

2 Replies

Rheumatologist thinks I might not have PMR

I have recently been diagnosed with a recurrence of breast cancer and due to have a mastectomy within the next few weeks. I consulted a GP as to what I should...

I have recently been diagnosed with a recurrence of breast cancer and due to hav...

Smithson

•2 days ago

27 Replies

private Consultation

Good afternoon I just thought I would share this mornings experience as it may be helpful to others. I had a private consultation with Dr Andrew Barr at the...

Good afternoon I just thought I would share this mornings experience as it may ...

5goFlotilla

•2 days ago

18 Replies

Increased my dose but still in pain

I have been reducing according to the schedule given to me by Professor Hughes. I had got down to 10mg and was due to reduce to 9 on 2nd Feb. However, as l...

I have been reducing according to the schedule given to me by Professor Hughes. ...

marrabone

•2 days ago

11 Replies

Triglycerides high…

just checking whether the PMR markers blood tests had been done or in (no) but noticed the triglycerides are high… 1.92…. they haven’t been high before (been...

just checking whether the PMR markers blood tests had been done or in (no) but ...

Phoebenooby

•2 days ago

9 Replies

flying

I feel I need to book a holiday and chill out for a bit - Is it ok to fly with GCA and is the insurance a nightmare now?

I feel I need to book a holiday and chill out for a bit - Is it ok to fly with G...

Missbisous

•2 days ago

4 Replies

Matcha drinks

have been given a packet of Matcha tea. Apparently it can / might suppress cortisol production. Can’t find much on posts about it, reluctant to try something...

have been given a packet of Matcha tea. Apparently it can / might suppress cort...

Scaredofpred

•2 days ago

12 Replies

Actemra Side Effects

Hello, on Wednesday I have an appointment with my Rheumy who insists I should take Actemra. I have been taking prednisone for 4 years, initially for PMRA and...

Hello, on Wednesday I have an appointment with my Rheumy who insists I should t...

Vikinga

•2 days ago

43 Replies

prednisone anxiety

I just went from 4 mg. After one month you 3 mg. And am having lots of anxiety, shaking, is this from prednisone withdrawal? Would it be ok to take an anti...

I just went from 4 mg. After one month you 3 mg. And am having lots of anxiety, ...

Perf

•3 days ago

12 Replies

Pain after reducing pred from initial 3 weeks at 15mg down to 12.5mg.

I am a previously fit and active 64 year old, recently diagnosed with PMR. After starting on pred, it felt like a near-miraculous reduction in pain and...

I am a previously fit and active 64 year old, recently diagnosed with PMR. After...

Apridoodle

•3 days ago

8 Replies

Shivery symptom

I’m tapering slowly and have reached 4/4.5mg prednisolone daily which I take at about 8am. I was diagnosed in November 2023. November 2024, I had emergency...

I’m tapering slowly and have reached 4/4.5mg prednisolone daily which I take at ...

Palgeo

•3 days ago

7 Replies

Newly Diagnosed

Being treated for GCA. On high dose of prednisone Apparently my presentation is somewhat atypical. Initially I did not respond to steroids so look looked for...

Being treated for GCA. On high dose of prednisone Apparently my presentation is...

Clarinet1234

•3 days ago

14 Replies

West Norfolk support group

The first meeting of west Norfolk support group will be held on Friday 7th March 2.30 in Thetford Garden Centres cafe/resteraunt This venue has a large car...

The first meeting of west Norfolk support group will be held on Friday 7th March...

purplesprouting

•3 days ago

20 Replies

polymyalgia

have polymyalgia hands are sometimes painful

Redcottage

•3 days ago

11 Replies

Flares

How do we know that resumption of pain is due to a flare of PMR rather than general aches and pains in the same areas i..e. Shoulders, arms, thighs,...

How do we know that resumption of pain is due to a flare of PMR rather than gen...

JessicleS

•3 days ago

5 Replies

Support group

HiWondered if there was a support group for North Wales? Thanks

Glynawel

•3 days ago

4 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

GCA NEWBIE

Pulled muscle

GCA urgent rheumatologist app coming up

Alendronic acid 70mg

Cataracts?

hip pain

hip pain

Fall and possible flare up

Prednisone , endoscopy and colonoscopy.

What a difference a doctor makes

Lyme or PMR?

reduced steroid

Update one GCA/PMR

Another disappointment..😥

Repeat Colour Doppler Ultrasound

Rheumatologist thinks I might not have PMR

private Consultation

Increased my dose but still in pain

Triglycerides high…

flying

Matcha drinks

Actemra Side Effects

prednisone anxiety

Pain after reducing pred from initial 3 weeks at 15mg down to 12.5mg.

Shivery symptom

Newly Diagnosed

West Norfolk support group

polymyalgia

Flares

Support group

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