PJPSan hour ago
Hi everyone, thought it was about time I write a post about club zero. I used the really slow reduction method and I have been steroid free ...
10 Replies3 Likes
Any help please I’m desperate
Jude629 hours ago
Diagnosed with PMR for a year, eyesight getting fizzy but told have not got GCA. Just started alrndronic acid and my previous knee problems ...
So fed up ,need advise
Manchesterlady16 hours agoPOPULAR
I have had P M R now for over twelve months , with many ups and downs ,urinary infections ,the dreadful fatigue.
I had managed to get down t...
26 Replies1 Like
Ramblings on The Lighter Side: THAT New Silly Book... Thank You All!
markbenjamin57a day ago
Greetings Polymalingerers and others here who are Bonkers enough to follow my Ramblings (or is it Rantings..?!).
Just a 'quick one' to say a ...
9 Replies12 Likes
Here's my take.
mamaici1a day agoPOPULAR
If you are inclined to read the blog below, please do not be offended by the implied profanity.
34 Replies21 Likes
Estellemaca day agoPOPULAR
Parker was planning his redundancy for March. As my hip grew stronger and the PMR is taking a back seat for the time being, I thought I woul...
42 Replies32 Likes
BONES Calcium Vit D magnesium Vit k2
yogabonniea day agoPOPULAR
I have decided definitely not to take Alendronate (fosomax) or any of the Bone "strengthening" prescriptions. That being said I am wondering...
35 Replies2 Likes
Tocilizumab is not approved by NHS England for GCA on cost grounds
KateGilbert2 days agoPOPULAR
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of toc...
38 Replies7 Likes
Cortisone injection in the knee
kulina2 days ago
Hello everyone, I don't post much but I read everything you write. You are a fountain of knowledge on PMR, I couldn't survive PMR without yo...
Empty capsule size
Alwayaheadache2 days agoPOPULAR
Can anyone tell me what empty capsule size would work best with prednisone. So many brands and sizes! I take 1,5, and 10 MG. Currently ta...
Has anyone taken Zolendronate?
Footfairy-12 days agoPOPULAR
I saw Rheumy last week and asked for a dexa scan but he said no (as did my GP previously) as it's not necessary. He said that the AA is to l...
Notifications that don't lead anywhere?
KateGilbert2 days ago
If you have set your settings to get notifications when someone replies to one of your posts, you may have noticed that you are ...
Be the first to reply4 Likes
Janann252 days ago
I have been struggling to deal with my PMR and GCA - I never seem to see the same doctor twice at my local surgery and they have all been ke...
14 Replies2 Likes
Just so confused....
For those of you who read my earlier post "Batting my head against a brick wall", you will know the problems I've had with both side effects...
Lara1193 days ago
I have had pmr/gca for 4 years and after a long tapering came off the pred about 2 weeks ago. Unfortunately I have had severe pmr...
Alwayaheadache3 days ago
My pathology report came back yesterday saying I have Barrett's Esophagus 😐 Also, had PMR flare about a week ago. Have appointment with g...
Prednisone study..not so bad
yogabonnie3 days ago
Hi. I just today read someone's post with a link to a study that said the Prednisone risks are NOT so bad as first thought. Can you repost? ...
16 Replies1 Like
Anyone tried acupuncture? Did it help?
Dinty1233 days agoPOPULAR
May have posted my comments in the wrong place initially – so I am reposting, hopefully, correctly.
Hi – haven’t written for a while, but I ...
25 Replies1 Like
Dot20173 days agoPOPULAR
I have just thawed out from clearing the snow off my car which was approx 1.5" thick but strangely only about 1/2" on the ground. The sun is...
30 Replies3 Likes
quincey14 days ago
I wrote on her three weeks ago regarding my situation and diagnosis of Hirdoadencarcinoma, I have had a Cat scan and the news is better than...
polymy4 days ago
I have had to stop taking AA as it was playing havoc with my stomach. It has been suggested that I could have AA infusions instead of the or...
Jsne4 days ago
Been on prednisone 17 yr for 4 different problems.
Dr insists on reduction from 20 to 15 mg. I have tried this in past but pain puts me in ch...
CRP is High Again
navejasjoe4 days ago
18 months ago, my wife was diagnosed with PMR. At the time, her CRP was 13.7 and ESR was 47. At the time, she could not raise her arms and ...
NEW (Silly) Book for PMR and GCA Survivors: You asked for it! ‘Write Me Funny - Ramblings on The Lighter Side of PMR and GCA’
markbenjamin574 days agoPOPULAR
Dear Friends, Polymalingerers, GCA Crusaders and Pred Playmates everywhere
Yes, a few of You Lot might have been wondering why I’ve been (q.)...
26 Replies21 Likes
Rosbud4 days ago
Have been prescribed Adcal by my Gp , have read the side effects but no information on best time to take it , I'm on 14 mg pred ( will be ta...
It’s me in my silly hat I promised
ronzy4 days ago
Had to start mew to add pictures
Brace your self. Well I hope it makes you
Laugh. Please feel free.
4 Replies13 Likes
New post coming down. Off pred.
Thought l would start a brand new post for you. I am now at the dreaded 5 gms
Think I’m winning 🤔
But today felt a bit latharjic. ( ra...
1 Reply1 Like
daworm4 days ago
Stay safe over there, sounds like a nasty storm "Caroline"....not sure where it's hitting...all we got is cold, wind and light snow here in ...
Prednisone's ugly taste
rbgirl4 days ago
I'm 63 and just put on Prednisone again for PMR. First relapse since 2008. When the uncoated tablet hits my tongue I instantly get nauseous...
OFF to the Doc
yogabonnie4 days ago
Hi I am off to the doc in a few hours for the first appointment after being diagnosed.. will no doubt have new blood tests. I am going with...
8 Replies3 Likes
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