Long term use of vaclovir?
Daisychain123 hours ago
I will be answering you all bit by bit but I am just off to the rheum office to pick up the script fr vacyclovir. I am not sure if I will ta...
CRP up 10
Lin-calif5 hours ago
I have gotten to 10 mgs. At my last crp last month I was 14. My doctor has looked at my record and 13-14 seems to be my normal. But my la...
Balance issue's when standing
Dolly20185 hours ago
Has anyone had balance problems when standing in one spot but not when walking, my problem is as soon as I come to a full stop I am very unb...
1 Reply1 Like
barbthy5 hours ago
Bottoms of my feet burn when I walk. Is this related to PMR? What is the treatment if any?
Any Canadian PMR/GCA sufferers out there?
Waterwise8 hours ago
Try as I might I have not been able to find any support networks in Canada. PMR/GCA UK was my support and source of broader information. M...
I've just signed up so I might be butting in the middle of a discussion. I've got PMR and GCR am weaning off Prednisone and still on Methot...
3 Replies1 Like
Hair changes with PMR.
Suffolklady10 hours ago
I was just wondering if anyone has experience the nature of their hair changing? I know it can get thin and it falls out when taking prednis...
16 Replies1 Like
Praise from (and for!) my rheumatologist
xdbx15 hours ago
I saw my rheumy yesterday. He is wonderful!
I last saw him in February and since April I've followed a restrictive diet and lifestyle regime...
10 Replies9 Likes
Am I having a flare?
Attic16 hours ago
Hi everyone, I am now down to 3mg of Pred, with the dead slow method. I have been on 3mg now for about 10days, but today I feel so stiff all...
GP training - and polymyalgia rheumatica (and other musculoskeletal disorders)
PMRpro17 hours ago
This link was posted on the lupus forum today. Polymyalgia...
7 Replies3 Likes
mamici119 hours agoPOPULAR
Those that can't do... RANT!
Warning; There nay be one or two slightly offensive words contained in this blog p...
30 Replies15 Likes
Prednisolone side effects?
Chihuahua120 hours ago
Well it seems that prednisolone has taken its toll after all. I thought I had got away scot free but it wasn't to be. I went to the optician...
12 Replies1 Like
Sorry yet another new thread but I don't want anyone to miss this. It might make a difference to your treatment.
Daisychain1220 hours ago
I spoke to my rheumatologist at half four. It scares me how things can become altered by someone else emailing my info to the doc and him re...
15 Replies3 Likes
Adcal before bed?
Sandradsn21 hours ago
Is it my imagination or does taking Adcal before bed make me sleep so much better😏.I take one at lunchtime then one last thing at night.I'v...
4 Replies1 Like
Peep44a day ago
I am on 5my of Prednisone. I want to taper. I had to have a Synacthen test. Apparently my synacthen test result was blunted. What does this ...
The More Serious Side (What.. Me?!): Alexander Technique - and How it Might Help Some of Us Lot to Cope with the Physical Symptoms of PMR?
markbenjamin57a day agoPOPULAR
Ok ok ok. I'm back again - and for the second time this week? 'Ohh Nooo!', I hear you say....
'But Here's The Thing' (to qu...
26 Replies11 Likes
Very frightened but resolute. More update ... not looking good. Oh dear.
Daisychain12a day agoPOPULAR
As you all might know I am currently on 25 pred after a rapid 3 day taper from 75. This was on the instructions and under advice of two spec...
32 Replies1 Like
Interleukin 6 Connection
schmuppya day ago
Dairy products, especially straight, whole milk as a beverage, seems to have been a huge flare inducer for me - I've been dairy free for the...
5 Replies1 Like
Rusty8a day agoPOPULAR
This was after they drained it out
Rusty8a day ago
Hi to all you suffers of blood thinners thin skin bruising etc please please take care
I was told this but did I listen I thought as some of...
7 Replies1 Like
Rusty82 days ago
Hi could you please tell me how to upload a photo thank you
Update re blood test accessibility
Jud6662 days ago
Finally got to collect blood test print out !! Interestingly as i waited in the queue at reception i heard the very same receptionist relayi...
4 Replies2 Likes
Snookerball2 days agoPOPULAR
Hi does anyone get 15 minutes of severe fatigue through taking pred then it goes
And what is the best time to take pred
Difficult Reply to Personal Message!
Pepperdoggie2 days agoPOPULAR
A well respected member has PM'd me about my use of the word cretin in my last post! I think it's ok! In common use for stupid person how wo...
40 Replies6 Likes
RheaV2 days ago
I was diagnosed in July, 2017,though I'm pretty sure that it started a number of months before that. I started on 15 mgof pred, reduced to ...
I'm new here and I have a question
Francien2 days ago
Hi, my name is Francien, I'm 67, and I live in The Netherlands. Just discovered this helpful and wonderful forum.
I've been diagnosed with G...
13 Replies2 Likes
The Lighter Side: Product / Consumer Review - POLYMYALGIA RHEUMATICA (Product Code PMR 001). My Scores out of ‘5’. But You Decide…?
markbenjamin572 days agoPOPULAR
As if you haven’t got better things to do, you might find the enclosed PMR Consumer Review useful. But if you HAVE got better t...
36 Replies19 Likes
How I am coping with PMR and dry mouth/eye
saffron522 days ago
I have been tapering down from 20mg to 12.5 m.g Pred from February 2018 with little help from my GP who insisted I came down by 5mg ea...
12 Replies2 Likes
Methotrexate GCA not effective unless started early
gtate19142 days ago
Can anyone tell me where Dr. Baskhar Dasgupta, gives his opinion on this subject that methotrexate is not effective for GCA unless started i...
GCA and tocilizumab withdrawal
christine27152 days ago
Has anyone given up taking tocilizumab (Actemra) and remained in remission or did you get GCA back. Is there a program to reduce injections...
9 Replies1 Like
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