GP is refusing to prescribe enteric coated Prednislone
pinks3334 minutes ago
I want to stop taking lansoprozole and rely on yoghurt instead to protect the stomach from the steroids. I have been taking the uncoated pre...
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Bilateral buttock and upper back of thigh pain
offtothebeach14 hours ago
I am having bilateral lower buttock pain and upper back of thigh pain which is much worse when sitting. It is like a band all the way across...
Thanks for all your support
Wraysbury16 hours ago
just seen GP and gd news. My iron level has shot up since August with my reformed diet. She apologised that the other GP told me re renal fa...
4 Replies5 Likes
Question on preds
Lonsdalelass17 hours ago
Hi there, I have read suggestions about asking my dr for gastro-resistant preds so I wouldn't need to take lansaprozole (think thats the rig...
Hello - I am new and wondering if I have to accept a trade off re: pain and side-effects.
AddictedtoRightmove17 hours agoPOPULAR
Hi everyone I am new to the forum - I am so please to know there is support out there and I am not the only one with PMR. I am a 56 yo woman...
27 Replies2 Likes
yogabonnie18 hours agoPOPULAR
HI. Not to incite a riot... but just out of curiosity.. as I am reading the paper here in the US about "Preppers" for Brexit...just in case....
25 Replies4 Likes
Side effects of Prednisilone versus GCA
Stkeyna20 hours ago
A topic I haven't seen raised, or might have missed, is one of the side effects of prednisilone versus GCA.
I have suffered from CGA for ar...
6 Replies1 Like
No Chance of "Inappropriate Happiness" Today!
mamici121 hours agoPOPULAR
I showed up for my 11:45 appointment with the Rheumatologist, at 11:15.
Bright-eyed and bushy-tailed, I was eager to see her!
It's been 6 m...
126 Replies3 Likes
Advice please. Sickness & diarrhoea bug
Bubbsyboo21 hours ago
Hello. I posted a few days ago worried about gca as had headaches etc. Think now that I was coming down with some sort virus. I'm feeling un...
Pamela60a day ago
My surgery rang yesterday to ask if I would be a patient for medical students. Requested specifically as I had GCA/PMR.
Consultation done th...
4 Replies4 Likes
powerwalka day ago
I am plagued with UTIs. Really getting out of hand. I've tried everything, cranberry, D mannose, nothing is helping. Continually back on an...
17 Replies1 Like
Zofitmogelijka day ago
good morning my forum friends. This is not a technical question, but I wonder if there are more pmr and/or gca people experiencing this and ...
13 Replies4 Likes
Burning feeling in scalp
Suet3942a day ago
Morning all. I am currently on 9mg pred and was doing okayish. Last night, went to bed with a feeling like the top of my head was burning. ...
'INAPPROPRIATE HAPPINESS' - HOW DARE WE !!!??
Rimmya day agoPOPULAR
Well we all know about the ZILLIONS of 'side effects' we might expect from taking Prednisone - the list seems 'endless' and I ...
23 Replies18 Likes
Tingling Scalp & Headache
Mks9558a day ago
On 60 mg of pred since september 21. diagnosed with PMR/GCA - 9/17- initial dose was 20 mg for 5 days - have seen rhuemy every two weeks - r...
10 Replies1 Like
NHS Appointments system... blurgh...
Funky-Butt2 days ago
So, OH asked GP for a referral to see one of two rheumies at QE Gateshead who have an interest in PMR & GCA. (He tried to ask for a named d...
Flu shingles jab
shella2 days agoPOPULAR
What’s feeling about this with PMR GCA ... never had flu jab doctors seem keen to give flu and shingles jab..., all surgeries seen so keen a...
Do I increase dose?
Alison3003562 days ago
I thought I was doing so well! Reduced all the way down to 2mg of pred stayed there for about 6 weeks then WHAM out of the blue got up Satur...
Oh what a night follow up
patriciawhite2 days ago
Hubby is home from hospital now .thank you for all your kind words .He is ok a bit weak but he is good at resting lol so no problems there ...
8 Replies5 Likes
Yellowbluebell2 days ago
I started Pred on the 2nd Oct and have beennok on it but today got up quite late, and feel really dizzy. Is this normal for Pred or is it b...
You won’t believe this.
Daisychain122 days agoPOPULAR
You won’t. I am in hospital again. Yep.
I came in supposedly overnight on a drip so I can have the pill camera test to look at my small i...
40 Replies16 Likes
TJ032 days ago
Does anyone know if there are any PmR support groups in Northern Ireland I could attend?
1 Reply1 Like
Is there any help out there?? It feels like I'm suffering in silence!
PurpleG2 days ago
I have been suffering for over 7 -8 years with weak bones in my knee and acid problems and bowel problems. It took Drs a while to diagnose m...
Biopsy or not to Biopsy? That is the question.
SoHereWeAre3 days agoPOPULAR
I mentioned to my Eye Doctor that I have had some issues with waking up in the night and in the dark and not being able to see out of my rig...
Is my hip pain a symptom of PMR
Twitcher13 days ago
I suffered PMR 5 years ago and have been PMR and steroid free for 2 years. Over last 2 weeks I have had gradually increasing hip pain until ...
Omanain3 days ago
I wonder if you can help. I recently joined PMR&GCAuk North East Support. I would like to receive news letters by email but had a note with...
Heart Monitor Outcome + Wallop On My Shin!!
Pepperdoggie3 days agoPOPULAR
Bear with me!! Pouring with rain on way to local rail station. Flat cap positioned against the wind! (Wife gave me a lift). Earlier train l...
50 Replies5 Likes
CBD medicinal use
PMRpro3 days agoPOPULAR
I thought since there has been a lot of discussion about this recently that this link was worth posting about:
31 Replies20 Likes
More advice please.
yogabonnie3 days ago
Update on costochondritis.... that new pain (inflammation) in my breast bone and ribs seems to be a bit worse... It was better...but perhaps...
12 Replies1 Like
GCA - nasal and rectal bleeding
pinks333 days ago
This is my first post so hello everyone and many thanks for all your helpful insights and advice so far. I was diagnosed with GCA in late Ju...
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