~Gastric disturbances each summer it seems? ~
Megams32 minutes ago
Hi fellow friends
It's been a while since I last posted but would like to gauge from our slightly longer term steroid swallowers if any have...
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wolfgang2377 hours ago
Following a diagnosis of having PMR which manifested itself with severe upper arm muscle pain almost overnight I was prescribed 15mg prednis...
Tea and chat Woodbridge, Suffolk
Soosie569 hours ago
Tea and chat get together on Thursday 1st March 2.00pm
Wyevale Garden Centre
Grundisburgh Rd, Woodbridge, Suffolk IP13 6HX
Come and join us!
e4health9 hours ago
After many years of suffering from various aches and pains in my neck, shoulders and back, I am only just now realizing that these sym...
5 Replies1 Like
Status update and Travel/taper question.
Hindags11 hours ago
Status update and travel question.
I was in a bit of a quandri last weekend trying to figure out how to handle the 7-6mg 38 day taper. I wa...
7 Replies1 Like
Can you just remind me learned PMR Comrades
JulieR212 hours ago
I wondered if I could ask your views. I have reduced slowly from 4mgs to 3mgs. Started taking 3mgs everyday over weekend. I am s...
Julie_mia412 hours ago
Hi, I went into hospital this year to have an elective hip op, when the surgeon woke me up he said "sorry when we opened you up it was full ...
I saw this and....
IdasMum13 hours ago
wanted to share it with you.
1 Reply11 Likes
Anyone out there?
Smithann16 hours ago
I have Sjorgrens Syndrome, PMR and recently diagnosed with Bronchotrachea Malacia. I would dearly love to know if anyone out there has this...
10 Replies1 Like
Wanting to present argument for long term preds, (started at 40mg 2weeks ago) & slow taper to doc....
caterpillar16 hours ago
Hi fellow Pollys,
It has taken over 2 years to get a PMR diagnosis... had to resort to a private GP (UK)...
I was crippled with pain in my sh...
14 Replies1 Like
Swelling in one leg and cramped feeling in calf muscle
Irldino17 hours ago
I posted in Dec re a few issues I was having. Swollen right knee, costochondritus and problems with right shoulder. Had a se...
12 Replies2 Likes
Pain From Physical Activity
smoothilly19 hours ago
Hi all! I find if I do the slightest physical activity, I will pay for it for at least a week. For example, I am a teacher and had to bring ...
17 Replies1 Like
pmrgca Scotland Dundee meeting 20/2/18
Nannie-C20 hours ago
All welcome to come and join us, should be an interesting meeting
"Coming back to where you started is not the same as never leaving.” ~ Terry Pratchett
mamici1a day agoPOPULAR
Today I reduced my Prednisolone intake to 60 mg. Woooo Hoooo!
It seems I should be further along, because I started with 60 mg, back on Nov...
51 Replies24 Likes
Change of venue back to original one for Southwell /Nottinghamshire PMR support group Mon 19th Feb
Bridget1001a day ago
I have had to change the venue for the meeting tomorrow back to the original one as two things have happened:
1.I hadn’t picked up that the ...
2 Replies2 Likes
mlegintona day ago
Responding to Kate Gilbert's request, whose book is very helpful.
Hi, I live in Iowa City and am 62. I was diagnosed in May after a month on...
8 Replies7 Likes
Does taking Pred. Cause irritability
Tonysuea day agoPOPULAR
I’m still reducing with great success. Down to 12mg by reducing half a mg. every two weeks. But occasionally I feel irritable, angry even, w...
31 Replies7 Likes
CT scan with contrast
lizzie47a day ago
Thank you all so much for your kind words and advice on my CT scan today.I had the contrast as explained by the radiologist it would be a cl...
1 Reply10 Likes
Ear we go again!!
Pepperdoggie2 days ago
Thought it was sorted for the repeat prescription for pred. with GP pharmacy if I needed to higher dose. Myself, Rhumy & Doc's. seem to b...
13 Replies3 Likes
Sallydvs2 days agoPOPULAR
Hi again . I am feeling very scared and depressed this morning. Since I lowered my prednisone from 12.5 to 10 I started having a blocked fe...
24 Replies2 Likes
Maxx572 days agoPOPULAR
Wondering if anyone can explain why I've started to feel sick every morning when I wake up. I've had PMR for a year and have slow-tapered d...
23 Replies2 Likes
Allsgrandso2 days agoPOPULAR
Finally had an appointment with a very highly regarded nutritionist this week for my pmr.
My diet (although would always have a decent dinne...
64 Replies13 Likes
Support group meeting Southwell 19th Feb, change of venue
Bridget10012 days ago
There has been a change of venue for the Notts Support group which was to be held in Southwell but now will be held at the following venue
Reethebeat2 days ago
Any views on taking echinacea. Had a bad cold and been taking this herb in capsule form for 3 days. It has stopped most of the cold sympto...
GCA : Preventing blindness - fast-tracking suspected GCA patients - Outstanding Best Practice
Ruadh2 days agoPOPULAR
Southend University Hospital NHS Foundation Trust – Preventing blindness by fast-tracking suspected Giant Cell Arteritis patients to immedia...
34 Replies5 Likes
Chrissy19533 days ago
Hi. Has anyone tried this . Was it Ok to take with steroids and did it help PMR.
Would love it to be a booster if needed.
Zofitmogelijk3 days ago
Hello my almost 6000 Dear friends. I am confused once more. Under 4 Mg of Pred my arms and shoulders started to hurt again and the rheumy an...
PMR or Fibromyalgia?
AndyTheMac3 days ago
I was diagnosed with GCA in August of 2014 and I feel that I'm now coming to the end of that particular journey. My prednisolone ...
18 Replies3 Likes
Severe muscle pain strains sprains and weakness
Nap13 days ago
So I have been on 6.5 mg for a month now and Actemra every 10 days. The muscle problems are out of hand I bought a walker but can’t use it t...
13 Replies1 Like
CT scan with contrast,advice please
lizzie473 days agoPOPULAR
I was diagnosed with GCA in Dec 2016,a very up and down journey and have 2 vertebral fractures and trapped nerve.Because of feeling so unwel...
41 Replies1 Like
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