Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2020

Taking 2 pills of 625mgs of Beetroot capsules 2times a day and it’s HELPING

Hi everyone. I have had PMR for 15 months. Started on 15 mgs of Prednisone and Have been slowly reducing. Six weeks ago I reduced down a half a mg to 2mgs of...

Hi everyone. I have had PMR for 15 months. Started on 15 mgs of Prednisone and...

Hidden

•4 years ago

20 Replies

Updated profile

I've also updated my profile.

WillOllier

•4 years ago

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Flu jab

Many thanks for all the helpful replies, I'm resolved to have the flu jab this year as I'll never know if the jab triggered PMR and anyway I'm more at risk now...

Many thanks for all the helpful replies, I'm resolved to have the flu jab this y...

WillOllier

•4 years ago

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Time Restricted eating

Does anyone have any information/experience of Time restricted eating?

Rachmaninov2

•4 years ago

76 Replies

Any studies on longterm effects of live shingles vaccine and PMR

I was wondering if anyone knows of any studies that have been done about those of us that contracted PMR after taking the live shingles vaccine. I wonder if...

I was wondering if anyone knows of any studies that have been done about those ...

Linny3

•4 years ago

38 Replies

side effect of pred:

Does anyone know if the steroids can cause a dry mouth and light headiness? MCO

Does anyone know if the steroids can cause a dry mouth and light headiness? M...

mustcarryon

•4 years ago

12 Replies

Fatigue

This is my second bout of PMR completely different to the first . This time I was just stiff and unable to turn over in bed with a little neck pain and some...

This is my second bout of PMR completely different to the first . This time I wa...

Booge_15

•4 years ago

19 Replies

help with navigating this forum

Hi, I have never been able to figure out where I can see my comments or posts, or for that matter posts by others. Is it possible? Sometimes replies say poster...

Hi, I have never been able to figure out where I can see my comments or posts, o...

Jan_Noack

•4 years ago

4 Replies

Flare

I have been tapering, l was down to 2mg which l have been on for a month but this last week l have muscle pain all over my body, l am not sure if this is a pmr...

I have been tapering, l was down to 2mg which l have been on for a month but thi...

Fifelassieo

•4 years ago

5 Replies

Am I immune suppressed?

How often do I hear someone say that they are "Immune Suppressed". Is there a standardardised test for this condition or is it just anecdotal tales of how...

How often do I hear someone say that they are "Immune Suppressed". Is there a s...

podo

•4 years ago

5 Replies

Hair

Hi everyone. I hope this doesn’t post twice. First time it wouldn’t work. I have been on Pred for 16 months and in the last month or so my hair has changed....

Hi everyone. I hope this doesn’t post twice. First time it wouldn’t work. I hav...

Hidden

•4 years ago

16 Replies

2mg but what next?

Hi everyone Would appreciate your thoughts please. I’ve tapered down to 2mg and held it steady for 3months however I have residual pain/discomfort in three...

Hi everyone Would appreciate your thoughts please. I’ve tapered down to 2mg and ...

Mikeysaab

•4 years ago

13 Replies

Genuinely asking for a friend!

Hello everyone! Not sure how long since my last post? I was diagnosed with PMR in January 2017 and am now down to 2mg with a few blips along the way, helped by...

Hello everyone! Not sure how long since my last post? I was diagnosed with PMR i...

NWFiona

•4 years ago

19 Replies

is it possiable to get GCA on the other side of your head,had it on the right side,am getting headache on left side.

just wondering if it is possiable.

Flosy

•4 years ago

6 Replies

Post Cataract treatment

I enjoyed deteriorating cataracts courtesy of Prednisolone and had both cataracts done three years ago. The results were life changing and I had new lenses...

I enjoyed deteriorating cataracts courtesy of Prednisolone and had both cataract...

EdithWales

•4 years ago

45 Replies

New to PMR

Diagnosed with (PMR onset inflammatory arthritis) just over three weeks ago. Prescribed Prednisolone 20mg for three weeks. After my Prednisolone at breakfast...

Diagnosed with (PMR onset inflammatory arthritis) just over three weeks ago. Pre...

Pinkly

•4 years ago

9 Replies

Should I have the flu jab

I'm 63 and new to this group. I contracted PMR 2 years ago, a few days after having the flu jab. My doctor agrees that the flu jab may have triggered PMR but...

I'm 63 and new to this group. I contracted PMR 2 years ago, a few days after hav...

WillOllier

•4 years ago

12 Replies

I am on 5 mg and about to reduce to 4 how long should I stay on 4 before trying 3 ? Is a week long enough ?

Prednisone reducing

diduck

•4 years ago

9 Replies

Prednisolone

I have run out of 2.5 mg tablets would it be ok to half 5 mg tablets

Caradomben

•4 years ago

9 Replies

MRI in PMR diagnosis

I am wondering if anyone has had an MRI that showed evidence of PMR? I have been experiencing symptoms of PMR since February (stiffness and pain/aching in my...

I am wondering if anyone has had an MRI that showed evidence of PMR? I have be...

Anna135

•4 years ago

13 Replies

Unusual post

Awake as always after yet another night with partial sleep. 2 x 2 hour sessions though is better than nothing though and whilst Zopiclone does provide relief,...

Awake as always after yet another night with partial sleep. 2 x 2 hour sessions ...

Hidden

•4 years ago

24 Replies

Thank you

Can i thank you all for the lovely welcome i have received. Plus the support and answer to my question. mco xxx

Can i thank you all for the lovely welcome i have received. Plus the support and...

mustcarryon

•4 years ago

3 Replies

Shingles Zostavax injection

Am very appreciative of all the communications and information on this site. I developed PMR as a result of the shingles(zostavax) vaccine given at the same...

Am very appreciative of all the communications and information on this site. I d...

Watercolorist

•4 years ago

66 Replies

Ibuprofen Gel and Pred

I know you shouldn’t use oral n-saids with pred but can you use the gel to try and relieve specific areas of inflammation , my sternum which I have posted...

I know you shouldn’t use oral n-saids with pred but can you use the gel to try ...

Gaz227

•4 years ago

6 Replies

Pain down back of head and neck

I have had GCA for almost 5 years with a few flares. I am now following the DSNS taper and am tapering from 3,5mg to 3mg Prednisolone. For the past week I...

I have had GCA for almost 5 years with a few flares. I am now following the DSN...

Maur1

•4 years ago

6 Replies

Another Actemra question

I realize this is a question for my Dr but not seeing him for a month .Feeling heady and pressure in head and hopefully this side effect wanes .Has anyone who...

I realize this is a question for my Dr but not seeing him for a month .Feeling h...

Darcy2000

•4 years ago

12 Replies

PMR Predisalone reduction problem.

Diagnosed with PMR back in 2019, have presently reduced down from 20mg to 3mg per day. New problem is pain in buttocks thigh and leg on left side. Is reduction...

Diagnosed with PMR back in 2019, have presently reduced down from 20mg to 3mg pe...

David4345

•4 years ago

17 Replies

Methotrexate injections

Hi has anyone found they have been better with the injections when they felt awful on the tablets?

Hi has anyone found they have been better with the injections when they felt awf...

Devoid

•4 years ago

14 Replies

Our Community

With such a diagnosis I was a little shocked What does it mean, from what am I blocked Can I work, can I play, am I now past my day Web said avoid pred, it's...

With such a diagnosis I was a little shocked What does it mean, from what am I ...

Harbel

•4 years ago

7 Replies

Loss of dreams

I really miss my dreams. I’ve always had lots of dreams, sometimes prophetic ones. I’ve kept Dream journals for years. I’ve gotten so much guidance and...

I really miss my dreams. I’ve always had lots of dreams, sometimes prophetic o...

Mstiles

•4 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2020

Taking 2 pills of 625mgs of Beetroot capsules 2times a day and it’s HELPING

Updated profile

Flu jab

Time Restricted eating

Any studies on longterm effects of live shingles vaccine and PMR

side effect of pred:

Fatigue

help with navigating this forum

Flare

Am I immune suppressed?

Hair

2mg but what next?

Genuinely asking for a friend!

is it possiable to get GCA on the other side of your head,had it on the right side,am getting headache on left side.

Post Cataract treatment

New to PMR

Should I have the flu jab

I am on 5 mg and about to reduce to 4 how long should I stay on 4 before trying 3 ? Is a week long enough ?

Prednisolone

MRI in PMR diagnosis

Unusual post

Thank you

Shingles Zostavax injection

Ibuprofen Gel and Pred

Pain down back of head and neck

Another Actemra question

PMR Predisalone reduction problem.

Methotrexate injections

Our Community

Loss of dreams

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