Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for August 2023

Nervous changing from Prednisolone to Hydrocortisone

I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so...

I have been on prednisolone for about 6 years and was down to 4.5mg but not feel...

Suffolklady

•1 year ago

32 Replies

GCA and Ear Swelling, Pressure

Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could...

Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. M...

Pamk1949

•1 year ago

35 Replies

Good news re white blood cell count

Well the GP sent me for blood tests this morning and the good news is the level has dropped, so he is happy that is going in the right direction. Still a...

Well the GP sent me for blood tests this morning and the good news is the level ...

gillsky8

•1 year ago

5 Replies

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steroids

Is there an alternative to steroids or do I have to have them ? I can’t stand sweating buckets for hours on end ! Or is it a matter of having to deal with it...

Is there an alternative to steroids or do I have to have them ? I can’t stand s...

TedTheMaineCoon

•1 year ago

14 Replies

Steroid withdrawal?

Hi, following on from my previous post back in Jan/feb I'm still struggling and feeling unwell. Last July I was on 5mg when headaches started. Had synacthen...

Hi, following on from my previous post back in Jan/feb I'm still struggling and ...

Lovetobe

•1 year ago

44 Replies

Blood test for inflammation

Hi I have PMR I’ve received my blood test results for cpr and esr. I was told they are satisfactory! But I’m in so much pain ! Which I can’t understand...

Hi I have PMR I’ve received my blood test results for cpr and esr. I was to...

TedTheMaineCoon

•1 year ago

15 Replies

Is it PMR?

Diagnosed with PMR approximately 2019. Came off Prednisone in October 2020. Saw Rheumatologist who did repeat bloods. At the time I was discharged my ESR was...

Diagnosed with PMR approximately 2019. Came off Prednisone in October 2020. Saw ...

Purplelamp

•1 year ago

18 Replies

Humidity and PMR

We have had very high humidity for some weeks and my pelvis is so rheumatic. Not my shoulders. I have upped my prednisone from 4 mg which it has been for...

We have had very high humidity for some weeks and my pelvis is so rheumatic. No...

Jane424

•1 year ago

16 Replies

sailormo

Hi I have pmr trying to reduce my prednisalone from 20mg down to 16mg I've been up and down for afew years, I'm using mycophenolate to help me reduce but I've...

Hi I have pmr trying to reduce my prednisalone from 20mg down to 16mg I've been ...

Sailormo

•1 year ago

2 Replies

re:- White blood cell count on steroids

Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done...

Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now d...

gillsky8

•1 year ago

9 Replies

feeling sick

Hi I’m new to this PMR diagnosis. Is it normal to feel sick and off food ? I’ve been off steroids for a few weeks , but might be put back on them .

Hi I’m new to this PMR diagnosis. Is it normal to feel sick and off food ? I’v...

TedTheMaineCoon

•1 year ago

6 Replies

Long Term Use of Prednisolone

I have posted several times before on my lack of success in dealing with PMR. Earlier this year I had yet another flare and needed to go up again to 17.5mg....

I have posted several times before on my lack of success in dealing with PMR. E...

Blacksley

•1 year ago

28 Replies

Infusion

Fractured left humorous currently, previous fractured wrist and previous fractured foot, all left side, all due to falls. Am on 3.5mgs down from 15mgs May2022,...

Fractured left humorous currently, previous fractured wrist and previous fractur...

456again

•1 year ago

13 Replies

dexa scan

Good job I decided to look at my medical records online. The results of my dexa scan have been sitting there since July and the surgery didn’t let me know!...

Good job I decided to look at my medical records online. The results of my dexa...

Doraflora

•1 year ago

7 Replies

Connective tissue clinic

I've had GCA/PMR since 2017, currently on 4.5-5 mg of pred daily. I take 25mgs Mtx weekly.I did successfully come off pred a couple of years ago but was back...

I've had GCA/PMR since 2017, currently on 4.5-5 mg of pred daily. I take 25mgs M...

Pamela60

•1 year ago

4 Replies

Supplements for PMR ?

GMA74

•1 year ago

34 Replies

I stopped steroids rapidly and all PMR symptoms returned - HELP!

Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well...

Hi, I have only found this group today so I am really pleased to find ANYONE ...

Megasorearms

•1 year ago

37 Replies

Actemra; The elephant in the room. Is it working or not working for you?

GCA Feb 2018 Prednisone therapy only. Here I am 6 and half years later and still trying to find the sweet spot with prednisone--not too much/not too...

GCA Feb 2018 Prednisone therapy only. Here I am 6 and half years later and stil...

Blurry62

•1 year ago

43 Replies

Heart Medicine Increased inhaled steroid absorption.

There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after...

There is a drug interaction between inhaled steroids, and diltiazem I found out...

Karenjaninaz

•1 year ago

2 Replies

Alendronic acid

I have stopped taking weekly alendronic acid, as I have started getting sharp pains at the base of my oesophagus. I am on 4 and a half mg of prednisone and...

I have stopped taking weekly alendronic acid, as I have started getting sharp p...

Strelitzia

•1 year ago

25 Replies

Clinical Trial

Did anyone else take part in the Abbie-154 clinical trial as a patient?

SudsSuds

•1 year ago

13 Replies

Acute steroid myopathy

Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response...

Finally spoke to NHS rheumatologist today (second consultation) and been advised...

Body_bonkers

•1 year ago

6 Replies

Is this overkill?

Hello again, Last Monday I had ultrasound scans on my very painful hands and wrists, on the advice of my rheumatologist. I was amazed to receive a phone call...

Hello again, Last Monday I had ultrasound scans on my very painful hands and wr...

humlies

•1 year ago

11 Replies

Voice changes

Never a dull moment in my so called journey. After the drama with the thyroid I managed a quick breast lump and had a biopsy that fortunately was just a...

Never a dull moment in my so called journey. After the drama with the thyroid I...

EdithWales

•1 year ago

26 Replies

Pred "quick" spike for back injury

Due to a level 1 herniated L5-S1 disc, I have an occasional flare up of most painful sciatica. My PCP normally recommends a temporary spike of Pred to the tune...

Due to a level 1 herniated L5-S1 disc, I have an occasional flare up of most pai...

Chris_1236

•1 year ago

6 Replies

Weight gain and osteoporosis

I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11...

I am in great discomfort because I have developed severe osteoporosis in the spi...

Raga72

•1 year ago

20 Replies

Slight increase in stiffness after sitting down

Hi, I have been fortunate to get down to 1mg of pred without any flares. I am sticking at 1 for the time being as have a gyne appt Sat morning. ( a...

Hi, I have been fortunate to get down to 1mg of pred without any flares. I am st...

Animalover65

•1 year ago

24 Replies

PMR myth busting #2 - that PMR is an older woman's disease

The second post in our PMR myth busting campaign is live this week. We often hear from patients that PMR is an older woman's disease. It's true that more...

The second post in our PMR myth busting campaign is live this week. We often he...

Fran_Benson

Partner•1 year ago

19 Replies

Disappointing letter from Rheumatology.

I had a rare face to face appt. at rheumatology at the end of June and once again felt the doctor wasn't really listening. I was on 2mgs of Pred and i told him...

I had a rare face to face appt. at rheumatology at the end of June and once agai...

Exhiker

•1 year ago

16 Replies

steroid taper

Im currently on a slow steroid taper from 5 mgms daily . I have already posted about the fatigue ,nausea,low mood and fortunately and with the help here Im...

Im currently on a slow steroid taper from 5 mgms daily . I have already posted a...

Rosekid

•1 year ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2023

Nervous changing from Prednisolone to Hydrocortisone

GCA and Ear Swelling, Pressure

Good news re white blood cell count

steroids

Steroid withdrawal?

Blood test for inflammation

Is it PMR?

Humidity and PMR

sailormo

re:- White blood cell count on steroids

feeling sick

Long Term Use of Prednisolone

Infusion

dexa scan

Connective tissue clinic

Supplements for PMR ?

I stopped steroids rapidly and all PMR symptoms returned - HELP!

Actemra; The elephant in the room. Is it working or not working for you?

Heart Medicine Increased inhaled steroid absorption.

Alendronic acid

Clinical Trial

Acute steroid myopathy

Is this overkill?

Voice changes

Pred "quick" spike for back injury

Weight gain and osteoporosis

Slight increase in stiffness after sitting down

PMR myth busting #2 - that PMR is an older woman's disease

Disappointing letter from Rheumatology.

steroid taper

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