Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

10,433 members • 18,963 posts

All posts for November 2017

Batting my head against a brick wall!!

I was diagnosed with PMR in April this year and was prescribed 15mg Pred which worked its usual magic. Then in August I was diagnosed with possible GCA and the...I was diagnosed with PMR in April this year and was prescribed 15mg Pred which w...

The Lighter Side: The Santa ‘CLAUSE’. ‘Yo-Ho-No-No-NO’!!? :-{ Shock Christmas Report by Tony French ;-)

Greetings Polymalingerers and Pred Playmates worldwide :-) Well, it’s THAT time (of year) again! December has crept up on us all - just like PMR did - and...Greetings Polymalingerers and Pred Playmates worldwide :-) Well, it’s THAT tim...

markbenjamin57•

Chip off the old block

Hi Arrived yesterday. Good flights. May be a bit quiet for a while ......stop cheering at the back there, specially you know who! Take care. Hi Arrived yesterday. Good flights. May be a bit quiet for a while ......stop ...

DorsetLadyPMRGCAuk volunteer•

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DIY Blue Steroid Record Card

I just printed my own 'card' onto blue paper from the Imperial College/NHS Trust website -...I just printed my own 'card' onto blue paper from the Imperial College/NHS Trust...

Recent research

I read here recently of a review by a Dr Mattteson on side effects of prednisone but cannot find it now. Help ! I read here recently of a review by a Dr Mattteson on side effects of prednisone...

patrickmcinerney•

Leveled out - My Actemra story continues

Hi everyone! As you can tell from my salutation I am feeling much better. I believe I have finally leveled out (thanks to all of you) at 6mg. I feel almost...Hi everyone! As you can tell from my salutation I am feeling much better. I beli...

question re blood markers

Can I ask a quick question - as we go on the symptoms as opposed to the raised blood markers at times - what happens if you need to change work arrangements -...Can I ask a quick question - as we go on the symptoms as opposed to the raised b...

Blood in the mouth

Can anyone come up with suggestions? Yesterday evening, still suffering from a prolonged cold, I coughed and congealed blood came into my handkerchief. I...Can anyone come up with suggestions? Yesterday evening, still suffering from a ...

43tripandskip•

Question?

So well into my third month of PMR, down from 20mg's to 15 of prednisone...going nice and slow...my main complaints now are very sore stiff hands in the...So well into my third month of PMR, down from 20mg's to 15 of prednisone...going...

I'm new here

6 weeks ago I was diagnosed with PMR. I have been grieving for my partner who died from Prostate cancer 17 months ago and my world had become a grey,...6 weeks ago I was diagnosed with PMR. I have been grieving for my partner who d...

Gastritis

I was diagnosed with gastritis (inflamation of the stomach lining) last week, and curious to know if anyone else has gastritis and PMR as autoimmune diseases...I was diagnosed with gastritis (inflamation of the stomach lining) last week, an...

One step forward and one step back!

Thank you to all those who responded to my question, do I have PMR? I found the answers supportive, helpful and useful in taking action. I have seen the...Thank you to all those who responded to my question, do I have PMR? I found the ...

DevonMichael•

Absent without leave

Hi everyone it has been a longtime since I wrote last. Lots of changes still have PMR and GCA but have also had both knees replaced, the first in September...Hi everyone it has been a longtime since I wrote last. Lots of changes still hav...

Thank Goodness for this forum, Detectives needed please.

I would value your opinions please, my heads mashed with thinking. In 2012, I woke up with appalling flashing, electrical type pains and severe patches of...I would value your opinions please, my heads mashed with thinking. In 2012, I wo...

Out of focus steriods or GCA

Can anyone else confirm this x I am fed up of trying to focus and it’s like a switch that just pushes it out x getting really fed up now x all I do is squint...Can anyone else confirm this x I am fed up of trying to focus and it’s like a sw...

Twitching Muscles

Hi I sometimes suffer from twiching muscles which feel really strange. Sometimes it can occur in several areas at once and feel like a bubbling sensation under...Hi I sometimes suffer from twiching muscles which feel really strange. Sometimes...

Trial Run

The medication for steroids is 20mg a day folks, not 40. Just to clear up any further misunderstanding. The medication for steroids is 20mg a day folks, not 40. Just to clear up any f...

SLE and pregnency

I am suffering from SLE since 4 years. I want to know how SLE affects for the pregnancy. I am suffering from SLE since 4 years. I want to know how SLE affects for the pr...

Trial

Just to put any misunderstandings on an even keel, I wasn`t on any meds other than pain killers. I start a full range of Meds tomorrow, 8am. If it`s all...Just to put any misunderstandings on an even keel, I wasn`t on any meds other th...

Reducing prednisone

Hi,I’m attempting to reduce the amount of Prednisone I take,had got down to 7mgs a day but the pain and stiffness in my shoulders and back returned.Im back up...Hi,I’m attempting to reduce the amount of Prednisone I take,had got down to 7mgs...

Potential change in diagnosis from R/A - PMR - Vascilitis

Good evening all, I recently posted an update on my dads condition and instructed reduction from 30-20mg pred last Tuesday. The plus side is no R/A PMR pain...Good evening all, I recently posted an update on my dads condition and instructe...

Hanna somatics

I've been introduced to Hanna somatics and am impressed by the results. Initially I had an individual lesson and was shown suitable exercises for my upper arms...I've been introduced to Hanna somatics and am impressed by the results. Initiall...

Trial Run

Back from a consultant today, As yesterday was a bad day, today was hung over. Still, I`ve got a 6 week trial of Medication. One first thing with only water...Back from a consultant today, As yesterday was a bad day, today was hung over. S...

Need advice

Rheumatologist wants me to take methotrexate as labs show RA. It seems prednisone is also used to treat RA and I do not want to take both. I have appt with...Rheumatologist wants me to take methotrexate as labs show RA. It seems prednison...

Prednisolone and Stepladders - a cautionary tale......

Hello All, I thought I’d let you know about a recent incident which should serve as a lesson, particularly to the males who have joined our unfortunate club....Hello All, I thought I’d let you know about a recent incident which should serve...

Liver Markers up

My husband has been tentatively diagnosed with PMR and just been increased to a dosage of 20mg after a hospital stay 5 weeks ago and trying to find a dosage...My husband has been tentatively diagnosed with PMR and just been increased to a ...

Antibiotics

Is it all right to take antibiotics while on steroids?Is it all right to take antibiotics while on steroids?

Can weather and heat help?

Can anyone tell me if PMR reacts to warmer weather,similar to RA? Can anyone tell me if PMR reacts to warmer weather,similar to RA?

Another tapering question

I have reduced from 17mg to 10 over 7 months with relatively few issues. 4 days ago it was time for me to reduce to 9 so I did. Two days later symptoms started...I have reduced from 17mg to 10 over 7 months with relatively few issues. 4 days ...

PMR since Sept 2017

After my original post, I think it was PMRpro that asked for a more indepth description of my journey. I have an appointment in December 2017 with my Rheumy...After my original post, I think it was PMRpro that asked for a more indepth desc...

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