Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for January 2014

Hi.thank everyone for their support last weekend.

Have been to the rheumatologist this week and had the methetextrate injection on Monday and the Cushing's type symptoms don't seem so evident, nor as bad....

Have been to the rheumatologist this week and had the methetextrate injection on...

Whittlesey

•11 years ago

3 Replies

Prednisone

I seen my rermey today she said to go to 10mgs one day and 7.5 mgs the next day for one week and drop to 7.5 mgs for 4 weeks then to 5mgs till I see her in...

I seen my rermey today she said to go to 10mgs one day and 7.5 mgs the next day ...

smiley67

•11 years ago

27 Replies

Hello again my lovely fellow PMR sufferers. Thought I would post an update to my stopping Pred 3 weeks ago......

After stopping Pred from 1mg almost a month ago I can honestly say I'm now feeling fine. I caught a cold/flu which was a pretty nasty one and one which hung...

After stopping Pred from 1mg almost a month ago I can honestly say I'm now feeli...

Lollysimp1

•11 years ago

14 Replies

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Last dose yesterday ?

After two years, of being diagnosed with PMR, starting on 30mg of Prednisone, on a sliding scale, and three months with few complications, I am now free of...

After two years, of being diagnosed with PMR, starting on 30mg of Prednisone, on...

shania

•11 years ago

21 Replies

Pins and needles down left side of face. Next day watery left eye.

Diagnosed with GCA three years ago. Now down to 5mgs. Prednisolone per day. Bloods normal. Taking Aspirin, Ad.cal, Alendronic Acid, Omeprazol and Bisprolol....

Diagnosed with GCA three years ago. Now down to 5mgs. Prednisolone per day. Bl...

tomasina

•11 years ago

4 Replies

Fighting a Flare!

Last week I went to the GP for the results of the latest blood test which showed my CRP up to 26. Since then I have had increasing pain, especially in my arms...

Last week I went to the GP for the results of the latest blood test which showed...

Annodomini

•11 years ago

7 Replies

Should I be under the care of a rheumatologist?

I first saw my GP in October and was put on 20 mg prednisolone in November following a blood test that showed high ESR and CRP. Another blood test in December...

I first saw my GP in October and was put on 20 mg prednisolone in November follo...

Badgergirl

•11 years ago

8 Replies

Has anyone developed Vasculitis affecting the skin,after PMR and GCA?

hege

•11 years ago

9 Replies

I am in my tenth month of PMR now and down to 5mgs. I have been having monthly deep muscle massages and find this helps to unlock me. Recomm

I have to pay myself, but well worth while. Coming on leaps and bounds since starting this course.

I have to pay myself, but well worth while. Coming on leaps and bounds since sta...

55grove

•11 years ago

2 Replies

Hi there fellow PMR/GCA sufferers, Just wondering if any one else has experienced sudden one-sided hearing loss? Some scalp achiness as well

rockyandzeus

•11 years ago

2 Replies

How much to increase ? - need to control a flare up

Have been on 5.5 mg since Dec; thought I was just about ok before Xmas but getting more uncomfortable by the day - had such a heavy feeling and all over...

Have been on 5.5 mg since Dec; thought I was just about ok before Xmas but getti...

suzieh

•11 years ago

4 Replies

Need advice on pain killers

Hi guys, I need some help on pain killers. My trigger fingers are giving me a lot of pain and I have been given a pain killer called Adolonta Retard 50mg by...

Hi guys, I need some help on pain killers. My trigger fingers are giving me a ...

Buenavista

•11 years ago

4 Replies

I would like to know anyone's methotrexate withdrawal schedule. I've been on it along with prednisone since October 2013.

I don't think it is helping me with reducing the prednisone, still on between 9-10 mg. Taking 15 mg of methotrexate. Any advise or your experience is...

I don't think it is helping me with reducing the prednisone, still on between 9-...

Tsnan

•11 years ago

15 Replies

Hi everyone, I'm in North Yorkshire, close to Cumbria and Lancashire! Are there any groups for PMA and GCA that we can attend in person? x

heli13

•11 years ago

14 Replies

Is it possible to have methetextrate withdrawal, which includes heavy fatigue? Or is it the adrenals not highly functioning?

Missed the appt. w/Dr. this Wed. for injection of methetextrate and slowly since Wed. have been feeling more and more fatigued. today it's very bad. I took...

Missed the appt. w/Dr. this Wed. for injection of methetextrate and slowly since...

Whittlesey

•11 years ago

7 Replies

Scan rescheduled for Tues due to heavy snow and extreme cold in Manhattan.

Hi everyone, I missed my appointment with my rheumatologist, last Wed due to this weather. So I did not get the 10 mgs of methetextrate by muscular injection....

Hi everyone, I missed my appointment with my rheumatologist, last Wed due to thi...

Whittlesey

•11 years ago

Be the first to reply

muscle weakness

Hi every one, Just this one question. does any one suffer weakness in their thigh muscle , so much that their legs keep giving way? I am having so much pain...

Hi every one, Just this one question. does any one suffer weakness in their thig...

cynbil

•11 years ago

14 Replies

Hi everyone just updating my previous posts about my gp using other medication rather than increasing my Pred, am on 10mgs at the moment,

Getting some aches in arms and hand joints early morning. Have tried ampitryplin and Gabapentin both failed made pain worse. I have now been given pregabal to...

Getting some aches in arms and hand joints early morning. Have tried ampitryplin...

Lionking50

•11 years ago

3 Replies

Hi Im on 45mg preds at the moment for GCA and PMR, has anyone else got a cataract from taking preds? My eyes are also watering non stop

which makes my eyes blurry, got viscoclear eye drops, I have dry eye as well, but they are worse than normal. I'm still getting temple and jaw pain, going on...

which makes my eyes blurry, got viscoclear eye drops, I have dry eye as well, bu...

heli13

•11 years ago

4 Replies

Hi Just wanted to check if anyone notified their insurance companies I.e. Driving and health, and is it necessary when diagnosed with GCA

When on 60mg per day

Tobytomtom

•11 years ago

6 Replies

Slow progress

I went to my GP yesterday to discuss the results of my last blood test. The CRP was up to 26 and ESR to 19. I wasn't too surprised as I hadn't felt brilliant...

I went to my GP yesterday to discuss the results of my last blood test. The CRP ...

Annodomini

•11 years ago

3 Replies

GCA since 2010, I have feeling of wearing a lead helmet and pain in my head worse when lying down

My GP and Rheumatologist think this is either all in my mind or referred pain from my neck. I really do not think they are correct as I have only had it since...

My GP and Rheumatologist think this is either all in my mind or referred pain fr...

tomasina

•11 years ago

4 Replies

Appointment with thoracic surgeon today re: aneurysm vertebral artery

Hi everyone. Today I have an appointment with my thoracic surgeon to discuss the aneurysm found on the vertebral artery. I have to go for imaging later in the...

Hi everyone. Today I have an appointment with my thoracic surgeon to discuss the...

Whittlesey

•11 years ago

2 Replies

Pred and vaccination?

, I´m a woman, 65 years old, from Sweden. So please excuse my bad English. I was diagnosed PMR/GCA in November 2012 and started at 40 mg Pred. Now I´m at 8,75...

, I´m a woman, 65 years old, from Sweden. So please excuse my bad English. I wa...

amieangel

•11 years ago

3 Replies

averis

Hi all i have been to my gp today and they have cut me down from 8 to 7 prednisolone i started eight 13 days ago so i just hope i.m going to be ok coming down...

Hi all i have been to my gp today and they have cut me down from 8 to 7 predniso...

averis

•11 years ago

2 Replies

Drs advice - confusing?

Saw Dr today - she said my inflammation is less - 7 instead of 13 which it was 2 months ago; Also said she doesn't just look at inflammation but needs to...

Saw Dr today - she said my inflammation is less - 7 instead of 13 which it was ...

suzieh

•11 years ago

5 Replies

It turns out I do have PMR after all!!

I posted back in November that, after a consultation with Prof. Dasgupta, he considered I did not have PMR and had not needed the pred. that i had been taking...

I posted back in November that, after a consultation with Prof. Dasgupta, he con...

suzy1959

•11 years ago

4 Replies

hi l am new. I have had pmr for two years. Does anyone suffer from really high temperatures on a daily and night basis? Is it the steroids?

Hidden

•11 years ago

12 Replies

Does anyone still work with PMR or has anyone managed to get any sort of ill health retirement?

I'd been becoming exhausted and getting lots of aches and pains for over a year before I got ny GP to take me seriously and was diagnosed with it 4 months ago....

I'd been becoming exhausted and getting lots of aches and pains for over a year ...

TiredScot

•11 years ago

10 Replies

Is it better to "manage" on a lower dose of pred or put it back up a little to feel better?

I have now reduced to 5 1/2 mg a day and have been on this dose since early Dec. Had my usual feelings of low energy and not very well on some days for a...

I have now reduced to 5 1/2 mg a day and have been on this dose since early Dec....

suzieh

•11 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2014

Hi.thank everyone for their support last weekend.

Prednisone

Hello again my lovely fellow PMR sufferers. Thought I would post an update to my stopping Pred 3 weeks ago......

Last dose yesterday ?

Pins and needles down left side of face. Next day watery left eye.

Fighting a Flare!

Should I be under the care of a rheumatologist?

Has anyone developed Vasculitis affecting the skin,after PMR and GCA?

I am in my tenth month of PMR now and down to 5mgs. I have been having monthly deep muscle massages and find this helps to unlock me. Recomm

Hi there fellow PMR/GCA sufferers, Just wondering if any one else has experienced sudden one-sided hearing loss? Some scalp achiness as well

How much to increase ? - need to control a flare up

Need advice on pain killers

I would like to know anyone's methotrexate withdrawal schedule. I've been on it along with prednisone since October 2013.

Hi everyone, I'm in North Yorkshire, close to Cumbria and Lancashire! Are there any groups for PMA and GCA that we can attend in person? x

Is it possible to have methetextrate withdrawal, which includes heavy fatigue? Or is it the adrenals not highly functioning?

Scan rescheduled for Tues due to heavy snow and extreme cold in Manhattan.

muscle weakness

Hi everyone just updating my previous posts about my gp using other medication rather than increasing my Pred, am on 10mgs at the moment,

Hi Im on 45mg preds at the moment for GCA and PMR, has anyone else got a cataract from taking preds? My eyes are also watering non stop

Hi Just wanted to check if anyone notified their insurance companies I.e. Driving and health, and is it necessary when diagnosed with GCA

Slow progress

GCA since 2010, I have feeling of wearing a lead helmet and pain in my head worse when lying down

Appointment with thoracic surgeon today re: aneurysm vertebral artery

Pred and vaccination?

averis

Drs advice - confusing?

It turns out I do have PMR after all!!

hi l am new. I have had pmr for two years. Does anyone suffer from really high temperatures on a daily and night basis? Is it the steroids?

Does anyone still work with PMR or has anyone managed to get any sort of ill health retirement?

Is it better to "manage" on a lower dose of pred or put it back up a little to feel better?

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