Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,298 members • 38,027 posts

All posts for January 2022

Dose reduction /Blood Pressure and supplements.

Hi, Great to find this group!! I was diagnosed with PMR in December (5 weeks ago) by which time I was in agony with hips and shoulders . Started on 15mg pred....

Hi, Great to find this group!! I was diagnosed with PMR in December (5 weeks ag...

Marek1

•2 years ago

17 Replies

Is it arthritis? What to do....

I am in my 5th year of PMR and am down to 1.5 mg prednisone. My last bloodwork looked good, so I felt confident in going from 2.5 to the current 1.5, over 2...

I am in my 5th year of PMR and am down to 1.5 mg prednisone. My last bloodwork...

jackswife

•2 years ago

37 Replies

Can tapering by just 1/2 mg cause bad fatigue & Weakness

Hi I have tapered from 5mg to 4 1/2 mg over the last month , but am suffering from really bad fatigue & Weakness. Pain is manageable but the weakness is so...

Hi I have tapered from 5mg to 4 1/2 mg over the last month , but am suffering fr...

Woodsey1

•2 years ago

56 Replies

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Esr 38

Doctor rang blood test show esr38, I don't feel too bad at all just dropped to 6mg on Monday said if I don't have any symptoms stay at 6mg just wondering what...

Doctor rang blood test show esr38, I don't feel too bad at all just dropped to 6...

Snnib

•2 years ago

8 Replies

When will my adrenals come home?

It's now over two months since I took my last Prednisolone in November. I had a synacthen test a few weeks after that and everything was OK. But there's no...

It's now over two months since I took my last Prednisolone in November. I had a...

Slowday

•2 years ago

19 Replies

First day of Methotrexate 15mg

Saw Consultant last Thursday and it was decided that Methotrexate was best option as I am having a lot of gastric problems with Pred. Tapering from 25mg down...

Saw Consultant last Thursday and it was decided that Methotrexate was best optio...

Baner

•2 years ago

19 Replies

Appropriate greetings card!

I found this card to send to my Aunt but I thought first I'd post it on here. It is maybe something the charity could consider selling?

I found this card to send to my Aunt but I thought first I'd post it on here. It...

Broseley

•2 years ago

9 Replies

Pmr flare after covid

Hi everyone of you lovely people. I have been laid low with covid ( caught from my 6 year old granddaughter). I have been free of COVID for two days but...

Hi everyone of you lovely people. I have been laid low with covid ( caught from ...

Gaycreasey

•2 years ago

11 Replies

Tapering problem

I am trying to decrease from 9 to 8.5 mg of pred on a long tapering reduction since the eginning of January. I have now got to 3 days old dose 1 day new ,...

I am trying to decrease from 9 to 8.5 mg of pred on a long tapering reduction ...

Clucket

•2 years ago

7 Replies

What is Normal?

Hello, I have been in remission (GCA and PMR) and off all pred for 7 months now and I am wondering how long it takes to feel a little more "normal". I realise...

Hello, I have been in remission (GCA and PMR) and off all pred for 7 months now ...

julianne3

•2 years ago

5 Replies

Need help finding my posts

How do I get to my posts - never can find it??? Help

Artwatercolour

•2 years ago

15 Replies

Can’t remember if I took pred

Sorry for Sunday evening post. I can’t remember if I took my pred this morning. On 7mg, started on 15mg 3 years ago. I think I must have but have no...

Sorry for Sunday evening post. I can’t remember if I took my pred this morning. ...

Iloveholidays

•2 years ago

20 Replies

Sciatica

I have sciatica and am in a lot of pain. Should I change steroid dose for few days! Thanks

I have sciatica and am in a lot of pain. Should I change steroid dose for few da...

Uglow

•2 years ago

16 Replies

sleeping and waking problems

I’m down to 1mg daily of prednisone. Started on 30mg in November 2019. Since I dropped to this dose from a very slow drop from 1 and a quarter mgs,I’ve...

I’m down to 1mg daily of prednisone. Started on 30mg in November 2019. Since I ...

Denis61

•2 years ago

12 Replies

Dealing with a flare

Had got down to 3mg Pred in mid December 2021 but had a flare and had to go back to 10 (8 would not do the trick) . 10mg relieved most of my pain/stiffness...

Had got down to 3mg Pred in mid December 2021 but had a flare and had to go back...

WillOllier

•2 years ago

6 Replies

Tips

Hi all, any tips at all on how to deal with pred withdrawal? its taken me a year to get from 15 to 10.5. hospital want to start methotrexate to speed things...

Hi all, any tips at all on how to deal with pred withdrawal? its taken me a ye...

Hidden

•2 years ago

3 Replies

Flare or Something Else?

Does anyone experience leg pain with Polymyalgia? I’ve had the condition for 8 years but haven’t had this kind of pain before. It’s affecting my hips, thighs...

Does anyone experience leg pain with Polymyalgia? I’ve had the condition for 8 y...

FSP25

•2 years ago

42 Replies

My what a long journey!

Hello I’m back. After 10 years of PMR with GCA the last 4, I had done very well on Actemra. Was able to taper off Pred, then in Sept off Actemra. 4 glorious...

Hello I’m back. After 10 years of PMR with GCA the last 4, I had done very well ...

PMR2011

•2 years ago

22 Replies

Need Help with Reducing Pred

Its been two years since I last wrote on this forum and quite frankly I never thought I had to as my journey with GCA and PMR has been fairly uneventful. BUT...

Its been two years since I last wrote on this forum and quite frankly I never th...

BrianJR

•2 years ago

5 Replies

Update on restarting Prednisolone

Following my blood tests on Monday (ESR 39 and CRP 5.3 ) my telephone consult with my GP went really well with her suggesting as did PMR pro a restart dose of...

Following my blood tests on Monday (ESR 39 and CRP 5.3 ) my telephone consult wi...

Louisnhoe

•2 years ago

5 Replies

Massage for PMR

I have had PMR for 9 years. Will massages benefit me at all?

Collsie77

•2 years ago

16 Replies

Here we go again …

Hello Everyone, I’ve been sitting on 2mgs of pred since mid October and attempting to stretch my TCZ jabs out to 4 weeks. I haven’t had a blood test since 1st...

Hello Everyone, I’ve been sitting on 2mgs of pred since mid October and attempti...

LemonZest11

•2 years ago

62 Replies

Leg pain

Hi everyone Has anyone experienced leg pain and difficulty walking when reducing Pred? I am on 5 mgs (since 1st Dec) - have been asked to stay on this dose til...

Hi everyone Has anyone experienced leg pain and difficulty walking when reducing...

Hidden

•2 years ago

22 Replies

Doing OK then a positive Covid test clouded the issue

I posted about 2 weeks ago headed "Overshot I think" while tapering from 3.5 to 3mg. I decided to add 5mg which I did for 5 days and then dropped back to 4mg....

I posted about 2 weeks ago headed "Overshot I think" while tapering from 3.5 to ...

Queenie1901

•2 years ago

7 Replies

Back of skull and neck pain

Always something new. Since before Xmas I have this pain at the base of my left skull also making my neck painful on turning. GP had me move arms, neck, etc...

Always something new. Since before Xmas I have this pain at the base of my left...

whitefishbay

•2 years ago

15 Replies

PMR and cancer treatment

I have been taking Pred since Nov 21. Started at 15mg and have managed to taper to 10mg. A little bit of shoulder stiffness but so far ok. I have now been...

I have been taking Pred since Nov 21. Started at 15mg and have managed to taper ...

Booklover21

•2 years ago

10 Replies

Moving headaches/GCA diagnosing?

I have had increasingly stronger (but somewhat mild -not migraines) headaches that move from temple to patches on head, base of skull. Scalp tenderness at...

I have had increasingly stronger (but somewhat mild -not migraines) headaches th...

Greytree

•2 years ago

27 Replies

Any ideas please.

Hi all. I'm 15 months down the line from my first diagnosis of PMR and put on 20 mgs of preds. I have been following the problems and answers on this...

Hi all. I'm 15 months down the line from my first diagnosis of PMR and put on 2...

Cosmos22Marigold

•2 years ago

28 Replies

Help PMR out of control

Some advice would be great kind people- I requested bloods a couple of weeks ago as felt my PMR was out of control- was getting rashes,swelling when bitten...

Some advice would be great kind people- I requested bloods a couple of weeks ago...

bakingD

•2 years ago

13 Replies

Is this a sensible course of action?

I've posted about this before, but the saga continues. In brief: Since the beginning of December I've had neck pain on the left side when turning head to...

I've posted about this before, but the saga continues. In brief: Since the begin...

Jontie

•2 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2022

Dose reduction /Blood Pressure and supplements.

Is it arthritis? What to do....

Can tapering by just 1/2 mg cause bad fatigue & Weakness

Esr 38

When will my adrenals come home?

First day of Methotrexate 15mg

Appropriate greetings card!

Pmr flare after covid

Tapering problem

What is Normal?

Need help finding my posts

Can’t remember if I took pred

Sciatica

sleeping and waking problems

Dealing with a flare

Tips

Flare or Something Else?

My what a long journey!

Need Help with Reducing Pred

Update on restarting Prednisolone

Massage for PMR

Here we go again …

Leg pain

Doing OK then a positive Covid test clouded the issue

Back of skull and neck pain

PMR and cancer treatment

Moving headaches/GCA diagnosing?

Any ideas please.

Help PMR out of control

Is this a sensible course of action?

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