Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,053 posts

All posts for November 2022

Changing symptoms in a flare of PMR

Just wondering whether it is usual for symptoms to change with different flares? I usually know that I am starting to flare because I get symptoms in my arms...

Just wondering whether it is usual for symptoms to change with different flares?...

Manihiki

•1 year ago

4 Replies

Short Synthen Test.

My rheumatology nurse ordered a SST as I’m now sitting on 3 mgs of prednisone to check adrenal activity. I didn’t take my prednisone prior to the blood test...

My rheumatology nurse ordered a SST as I’m now sitting on 3 mgs of prednisone to...

golfnutter

•1 year ago

8 Replies

Quick question about Shingrix vaccine

Has anyone had a flare with shinrix, think mine was with covid ,flu , as well.x

Harrywogan

•1 year ago

4 Replies

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No Prednisone, is it dangerous?

Going of prednisone and I was at12mg for awhile. Then suddenly there was a mixup at the pharmacy and now I've gone 2mg a day and now I have no pred. at all,...

Going of prednisone and I was at12mg for awhile. Then suddenly there was a mix...

Trevgrrl

•1 year ago

18 Replies

Am I supposed to feel this "crappy?"

Hi all. I have not written for a while, but read each comment every day. I was diagnosed with GCA in mid August, started on 60 mg PRED per day, and am now at...

Hi all. I have not written for a while, but read each comment every day. I was...

montebello

•1 year ago

53 Replies

Heartburn, acid reflux and pantoprazole

Gaviscon advance is really good (advance bit is important) It forms a seal over the contents of stomach and stops the acid coming up your throat - therefore...

Gaviscon advance is really good (advance bit is important) It forms a seal over...

Blackcatbeach

•1 year ago

1 Reply

Leflunomide

I am new here. I am about to start on Leflunomide after being on Prednisolone for 11 years. I would be interested to hear how other people have got on with...

I am new here. I am about to start on Leflunomide after being on Prednisolone ...

allotment-lover

•1 year ago

2 Replies

What to expect from your rheumatologist

This is fitting for anyone with a chronic disease: https://creakyjoints.org/doctor-patient/seeing-right-rheumatologist/ Sorry folks- the link isn't working:...

This is fitting for anyone with a chronic disease: https://creakyjoints.org/doc...

123-go

•1 year ago

9 Replies

Rheumatologist says I’m too young for PMA, I’m 52. Help!

Hi everyone, I’m new here and in desperate need of some help. My GP diagnosed PMR due to my severe symptoms, ESR and CRP high and climbing in direct relation...

Hi everyone, I’m new here and in desperate need of some help. My GP diagnosed ...

Bramble2000

•1 year ago

64 Replies

Getting fat after pred,

Hello everyone, I have been silent for some time but I wanted to ask for advice re post pred. After 3 years of GCA - Aug 2018 to Aug 2022 I managed to get off...

Hello everyone, I have been silent for some time but I wanted to ask for advice ...

Fieldofdreams

•1 year ago

71 Replies

Financial help

Good morning, Has anyone been successful in obtaining pip in the uk on the grounds of PMR? This is for help with housework and dog walking?

Good morning, Has anyone been successful in obtaining pip in the uk on the grou...

Jlml

•1 year ago

21 Replies

Night pain that jumps around.

My voice dropped at least two octaves on Monday which, for me, generally means a cold. However no runny nose, so far, but chest a little tight and voice still...

My voice dropped at least two octaves on Monday which, for me, generally means a...

Flivoless

•1 year ago

5 Replies

off pred…. Update

good morning all. I have now been ‘off’ pred for 6 weeks. It’s been a bumpy ride. I started to have pain in my knees and thighs, which made walking and...

good morning all. I have now been ‘off’ pred for 6 weeks. It’s been a bumpy rid...

Alazarin

•1 year ago

8 Replies

Recovery from surgery

I’ve been on prednisolone for two and a half years and have now tapered down to one mg. and am taking 0 on the odd day hoping slowly to reduce to zero....

I’ve been on prednisolone for two and a half years and have now tapered down to ...

Moness

•1 year ago

11 Replies

ADCal alternatives?

Hello everyone. Am prone to UTIs and don't like the ADCal tabs as they are grainy/gritty. I take a Soldar Vit D, but what dose is advisable, and what brand,...

Hello everyone. Am prone to UTIs and don't like the ADCal tabs as they are grai...

Temoral

•1 year ago

5 Replies

Cateract Surgery on 17.5 mg Prednisone is

Has anyone had cateract surgery while on 17.5 (or similar) dose of prednisone? Is infection a problem with that high of a dose?

Has anyone had cateract surgery while on 17.5 (or similar) dose of prednisone? ...

Pamk1949

•1 year ago

2 Replies

Highlight for me

I have been lifted in spirit as a young female cyclist I started and coached Sophie Lewis is riding the track League championship at 19 against the best riders...

I have been lifted in spirit as a young female cyclist I started and coached Sop...

cycli

•1 year ago

21 Replies

It’s back 😩

Good evening, I had PMR 3 years ago and managed to wean myself off prednisone in August. I have been feeling unwell and achey recently, went to the drs and...

Good evening, I had PMR 3 years ago and managed to wean myself off prednisone i...

Jlml

•1 year ago

12 Replies

Heartburn & Prednisone

I just started on Pantoprazole, generic for Protonix after suffering for 5 months with terrible stomach pain, excess acid in my throat, and heartburn. I...

I just started on Pantoprazole, generic for Protonix after suffering for 5 month...

potterylady

•1 year ago

12 Replies

Shingles shot with GCA & PMR?

I've never had a shingles shot but probably should get one. Does the shot cause horrible side effects for those of us with GCA and PMR? Thanks

I've never had a shingles shot but probably should get one. Does the shot cause ...

potterylady

•1 year ago

10 Replies

Am I Relapsing

I was diagnosed by GP with PMR Aug 2019. Started with 15 mg pred got down to 3 by November 2021 then had a relapse. Extreme fatigue major symptom. Saw Rheumi...

I was diagnosed by GP with PMR Aug 2019. Started with 15 mg pred got down to 3 b...

Pommygranny

•1 year ago

8 Replies

What are the possible causes PMR/GCA?

Hi all, i have recently been experiencing intense muscle pain in my shoulders and pelvic griddle area, along with systematic symptoms of malaise and low grade...

Hi all, i have recently been experiencing intense muscle pain in my shoulders an...

Lucyscure

•1 year ago

49 Replies

Going off prednisone????

I have tapered to .5mg every other day, and 1mg every other day. I have never gotten this low before and I feel like PMR might be gone. (I felt like that once...

I have tapered to .5mg every other day, and 1mg every other day. I have never go...

yogabonnie

•1 year ago

45 Replies

ESR and CRP

how can your ESR be ok but your CRP be high? They are both inflammatory markers right?

how can your ESR be ok but your CRP be high? They are both inflammatory markers ...

Plains

•1 year ago

20 Replies

Am I at risk of having too much calcium in my blood?

diagnosed Sept. 21 now tapered to 2 mg. in the summer I was informed that I would require some dental treatment, possibly an implant. After speaking to my...

diagnosed Sept. 21 now tapered to 2 mg. in the summer I was informed that I wou...

Fetlar73

•1 year ago

9 Replies

low low carb diet while on prednisone

For me, the only successful dieting I’ve done in my life are low carb diets, I generally cut down to 10-15 carbs per day and lose what I want to and stop....

For me, the only successful dieting I’ve done in my life are low carb diets, I g...

SLCR

•1 year ago

8 Replies

LARANZOPROL

I FEEL VERY LIGHT HEADED AND TIRED FOR A FEW HOURS AFTER TAKING MY P.P.I. HAS ANYONE ELSE SUFFERED THIS?

I FEEL VERY LIGHT HEADED AND TIRED FOR A FEW HOURS AFTER TAKING MY P.P.I. HAS A...

eyeBRing

•1 year ago

1 Reply

Should I consider increasing my prednisolone to cover Zoledronic acid infusion?

Morning all- I need to have an infusion of Zoledronic acid next week as my latest DEXA scan has shown that I am osteoporotic again following a year of...

Morning all- I need to have an infusion of Zoledronic acid next week as my lates...

PPop

•1 year ago

9 Replies

Tooth extraction

Hi all. I had a flare and had to go up to 7mg from 1 which seems to be working. My question is I am having a tooth extraction soon. Is there anything I need to...

Hi all. I had a flare and had to go up to 7mg from 1 which seems to be working. ...

Holycow2

•1 year ago

14 Replies

Stumbled upon this interesting article!

I was feeling bored in bed, just waiting for the sun to rise, and for no other particular reason Googled, 'The Truth About PMR' to see what popped up. This...

I was feeling bored in bed, just waiting for the sun to rise, and for no other p...

Kendrew

•1 year ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

Changing symptoms in a flare of PMR

Short Synthen Test.

Quick question about Shingrix vaccine

No Prednisone, is it dangerous?

Am I supposed to feel this "crappy?"

Heartburn, acid reflux and pantoprazole

Leflunomide

What to expect from your rheumatologist

Rheumatologist says I’m too young for PMA, I’m 52. Help!

Getting fat after pred,

Financial help

Night pain that jumps around.

off pred…. Update

Recovery from surgery

ADCal alternatives?

Cateract Surgery on 17.5 mg Prednisone is

Highlight for me

It’s back 😩

Heartburn & Prednisone

Shingles shot with GCA & PMR?

Am I Relapsing

What are the possible causes PMR/GCA?

Going off prednisone????

ESR and CRP

Am I at risk of having too much calcium in my blood?

low low carb diet while on prednisone

LARANZOPROL

Should I consider increasing my prednisolone to cover Zoledronic acid infusion?

Tooth extraction

Stumbled upon this interesting article!

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