Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for September 2023

Flare while tapering--need guidance

I have been on prednisone for about 2 1/2 years. I recently got down to 8 mg a day for about 3 months with NO PAIN (oh the bliss...). I went to 7.5 mg about 3...

I have been on prednisone for about 2 1/2 years. I recently got down to 8 mg a d...

emmamom

•1 year ago

6 Replies

GCA flare, or not?

I had undiagnosed GCA two years ago, perhaps at the same time PMR started. I had all the classic symptoms. PCP did all kinds of tests for other things, all...

I had undiagnosed GCA two years ago, perhaps at the same time PMR started. I ha...

G-Jo

•1 year ago

25 Replies

Creatinine

I just got my blood work in and all reads are heading down.I ve been on 8 mgs for 5 weeks and iam doing ok.What I want to ask us has anyone had a lower...

I just got my blood work in and all reads are heading down.I ve been on 8 mgs fo...

Hunter134

•1 year ago

5 Replies

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Can you have PMR if you are under 50?

I am enquiring if anyone here on this site has been or was diagnosed with PMR under the age of 50 or knows of people who have been? All the research I have...

I am enquiring if anyone here on this site has been or was diagnosed with PMR un...

MsWhistledown

•1 year ago

52 Replies

here we go again!

As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I...

As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on ...

AnniesRyder5

•1 year ago

20 Replies

flu jab with adjuvent

My lovely gurus. I am so very worried. This morning I had my flu jab and I stupidly forgot to ask for the under 65 jab without the adjuvent. I have always...

My lovely gurus. I am so very worried. This morning I had my flu jab and I stup...

Smokygirl

•1 year ago

39 Replies

Progress report

Oh what a fun week I have had. Those of you that followed the tooth saga will be pleased to hear I am nearly at the finishing line and had the fitting for the...

Oh what a fun week I have had. Those of you that followed the tooth saga will b...

EdithWales

•1 year ago

22 Replies

Different Slow Drop

Ages ago my rheumie whom I haven't needed for a number of years, gave me his version of a Dead Slow Drop starting with Week 1 say Wednesday, 1 day new dose....

Ages ago my rheumie whom I haven't needed for a number of years, gave me his ver...

diana1998

•1 year ago

23 Replies

PMR & Osteoarthritis in Knees

I have been added to the waiting list for knee replacement. I am trying to loose weight which I feel will help the pain in my knees. They can be very stiff...

I have been added to the waiting list for knee replacement. I am trying to loose...

jules1955

•1 year ago

46 Replies

Depression

I am starting to feel like I need an anti-depressant. Does anyone also take one? I've been taking something for anxiety, but I don't think it's helping any...

I am starting to feel like I need an anti-depressant. Does anyone also take one...

Paulagcl

•1 year ago

21 Replies

alcohol

hi has anyone has a couple of alcoholic beverages while on Prednisolone. I am down to 3mg and have been off alcohol since I started my PMR journey. Just...

hi has anyone has a couple of alcoholic beverages while on Prednisolone. I am do...

pmrdays

•1 year ago

34 Replies

Very tired & can’t walk in straight line.

I was diagnosed in Jan 2023 with PMR & put on 15mg Prednisolone. I am now tapering 1mg per month and am down to 8mg. I am exhausted most of the time, can’t...

I was diagnosed in Jan 2023 with PMR & put on 15mg Prednisolone. I am now taper...

Claremont2023

•1 year ago

42 Replies

Leflunomide and tapering. Update on flare this Summer

I posted in late July about getting into a yo-yo situation trying to control a flare of PMR and got excellent advice from DL which sorted it out. I've been on...

I posted in late July about getting into a yo-yo situation trying to control a f...

PastelsinArt

•1 year ago

5 Replies

What is the dead slow method?

I am currently using DL 14 week tapering chart, tapering from 3mg-2.5mg however, I keep reading posts that mention the dead slow method. Is this different...

I am currently using DL 14 week tapering chart, tapering from 3mg-2.5mg however...

Orangecakes

•1 year ago

2 Replies

a little drama

I have just reduced to 5mg. And like many others my energy is crashing. So a bit of a roller coaster and trying to plan things so that I don’t have too much...

I have just reduced to 5mg. And like many others my energy is crashing. So a bit...

Alazarin

•1 year ago

11 Replies

DSNS method of tapering

What do the initials stand for?

Paulagcl

•1 year ago

2 Replies

Strange sensation in legs

I get a strange cold/burning sensation in my hamstring muscles after exercising and especially after stretching. never had this before PMR, so it is PMR...

I get a strange cold/burning sensation in my hamstring muscles after exercising...

Paulagcl

•1 year ago

1 Reply

RHEUMY FINALLY CALLED!!

Finally!!! He put me back on 8 mg for a month and then will reduce it more slowly.

Finally!!! He put me back on 8 mg for a month and then will reduce it more slow...

Paulagcl

•1 year ago

3 Replies

HAIRLOSS

I am tapering off prednisone and suddenly chunks of hair are falling out!!!!! Yikes!!!!!

I am tapering off prednisone and suddenly chunks of hair are falling out!!!!! Y...

Paulagcl

•1 year ago

7 Replies

Better this morning!

For the first time this morning I woke up feeling better!!!!!!! So I am going to take the advice from all of you and taper much more slowly. Thank you again...

For the first time this morning I woke up feeling better!!!!!!! So I am going ...

Paulagcl

•1 year ago

2 Replies

sudden loss of strength

I’m in year 4 of PMR and down to 4mg of Pred. I’ve always kept as fit as PMR would allow and have played golf occasionally during that time without much...

I’m in year 4 of PMR and down to 4mg of Pred. I’ve always kept as fit as PMR wou...

Wolfman99

•1 year ago

17 Replies

Using the dead slow method to taper from 2mg to 1 and then to O

I am currently using the dead slow method of tapering, for I have had a great deal of difficulty tapering at this level before. If I experience any...

I am currently using the dead slow method of tapering, for I have had a great d...

RaisinBran

•1 year ago

13 Replies

steroids & diabetes

Hi I’m diabetic type 2 . I was put on a high dose of steroids in the spring , due to suspected GCA after being diagnosed with pmr . I was on the steroids for...

Hi I’m diabetic type 2 . I was put on a high dose of steroids in the spring , ...

TedTheMaineCoon

•1 year ago

27 Replies

DAY 7 OF SICK DAYS, ET AL

Last Wednesday evening increased Pred from 16 to 20 mg. It has been 7 days. Still on antibiotics to avert any infection from that cut on my shin. Almost done...

Last Wednesday evening increased Pred from 16 to 20 mg. It has been 7 days. Stil...

Missus835

•1 year ago

2 Replies

diabetic macular oedema or problems with blood flow to the eye

I went for my eye clinic appointment today and the doctor there said that I may not have diabetic macular oedema but a problem with the flow of blood to my...

I went for my eye clinic appointment today and the doctor there said that I may ...

Koalajane

•1 year ago

36 Replies

Quick question

I have an appointment for a flu jab this coming Saturday but have had a flare last weekend which has meant an increase in Pred. I actually managed to SEE a...

I have an appointment for a flu jab this coming Saturday but have had a flare la...

Janann25

•1 year ago

2 Replies

Deathly Fatigue?

In my last post I wrote that I was experiencing deathly fatigue along with hay fever/ stinging eyes. As some of you suggested, the hayfever was NOT it was...

In my last post I wrote that I was experiencing deathly fatigue along with hay f...

Louisa1840

•1 year ago

17 Replies

Tapering, exhausted

I am six month into PMR. Started at 20 mg but dizzy so reduced to 10. Now my dr has me starting to taper. Within a month down to 7 and felt fine, but on 7...

I am six month into PMR. Started at 20 mg but dizzy so reduced to 10. Now my d...

Paulagcl

•1 year ago

38 Replies

Hypertension and prednisolone

Hi I have just had another hypertensive episode.Settled down now.I am reducing off prednisolone for temporal arteritis.I am having an operation for...

Hi I have just had another hypertensive episode.Settled down now.I am reducing o...

Raewynne

•1 year ago

13 Replies

Temporal Artery Ultrasound

Just wondering if anyone has had any experience with temporal artery ultrasounds? I finally saw a rheumatologist after being treated for PMR for a year by my...

Just wondering if anyone has had any experience with temporal artery ultrasounds...

Donna5658

•1 year ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2023

Flare while tapering--need guidance

GCA flare, or not?

Creatinine

Can you have PMR if you are under 50?

here we go again!

flu jab with adjuvent

Progress report

Different Slow Drop

PMR & Osteoarthritis in Knees

Depression

alcohol

Very tired & can’t walk in straight line.

Leflunomide and tapering. Update on flare this Summer

What is the dead slow method?

a little drama

DSNS method of tapering

Strange sensation in legs

RHEUMY FINALLY CALLED!!

HAIRLOSS

Better this morning!

sudden loss of strength

Using the dead slow method to taper from 2mg to 1 and then to O

steroids & diabetes

DAY 7 OF SICK DAYS, ET AL

diabetic macular oedema or problems with blood flow to the eye

Quick question

Deathly Fatigue?

Tapering, exhausted

Hypertension and prednisolone

Temporal Artery Ultrasound

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