Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for July 2024

GCA concerns

I have been on Prednisone since January for PMR, and GCA. 60 mg. x 6 weeks, and then at 40-45 mg. for four months. Recently tapered to 30 mg. three weeks...

I have been on Prednisone since January for PMR, and GCA. 60 mg. x 6 weeks, an...

Bummed24

•4 months ago

14 Replies

Increase prednisone to help pain temporarily

as posted few times have to get MRI done on both hips this Sat, tried to get left hip done about a month ago, couldnt tolerate on MRI table , because if...

as posted few times have to get MRI done on both hips this Sat, tried to get lef...

arvine

•4 months ago

15 Replies

PMR and blood clots

Have had PMR for 7 months and currently on 8.5 mg Pred. Just ended up in hospital with multiple blood clots in lungs. No apparent cause (don't smoke, not...

Have had PMR for 7 months and currently on 8.5 mg Pred. Just ended up in hospit...

lsplumb

•4 months ago

20 Replies

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Tapering at low dose

I am on Pred over a year tapering from 40 mg to 1. I've followed 10% rule and done fairly well. Few days after taper I get nausea and dizziness and fatigue....

I am on Pred over a year tapering from 40 mg to 1. I've followed 10% rule and ...

Booch

•4 months ago

8 Replies

newly diagnosedPMR

Recenty diagnosed and taking 15 mg of Pred which although seemed to help slightly originally has levelled out . I’m 2 weeks in to a 3 week course before seeing...

Recenty diagnosed and taking 15 mg of Pred which although seemed to help slightl...

Scalloplover

•4 months ago

44 Replies

Scalp tenderness and pain in head

38 year old male with swelling in temporal artery (getting worse) as well as edema in the crown as of recent. Going to see a Dr. and wanted to get opinions on...

38 year old male with swelling in temporal artery (getting worse) as well as ede...

MaybeGCA

•4 months ago

11 Replies

hallo

I wa diagnosed with Pmr yesterday after quite a long journey. I’m only 56 and very fit, but last few weeks have been hard. Rheumatologist at the hospital says...

I wa diagnosed with Pmr yesterday after quite a long journey. I’m only 56 and ve...

Limpylissy

•4 months ago

13 Replies

Hair loss

Ive been on pred since Oct 2023. Starting at 15mg I'm now on 7.5mg. I've now found that my hair is thinning and falling out especially when i wash it...not...

Ive been on pred since Oct 2023. Starting at 15mg I'm now on 7.5mg. I've now fo...

Timek

•4 months ago

8 Replies

It's been 2 months since my last confession!

Hello. I hope you're all coping with the heat and the summer that has finally arrived. 2 months ago I started to taper down towards 9mg from 10mg. This last...

Hello. I hope you're all coping with the heat and the summer that has finally ar...

IdasMum

•4 months ago

4 Replies

High Leukocytes in urine

So blood tests have come back as above and I have a feeling this has been going on for some time, but not actually had a urine sample test in the past few...

So blood tests have come back as above and I have a feeling this has been going ...

gillsky8

•4 months ago

5 Replies

Fed up with this…….

Have just reduced from 4.5 to 4mg using DSNS and intend remaining on that dose for a further 2 weeks before attempting to drop again. Throughout this last...

Have just reduced from 4.5 to 4mg using DSNS and intend remaining on that dose f...

jaycee444

•4 months ago

8 Replies

ONE - Prednisolone

I was diagnosed with the above around 9 months ago. I believe this was caused by Vivid as I was perfectly healthy before. I have been tapering down a couple...

I was diagnosed with the above around 9 months ago. I believe this was caused b...

Roselily100

•4 months ago

4 Replies

Unsure about symptoms

Before I contact my doctor I would appreciate some advice. Presently on 9mg prednisone for 2 months, three weeks in. Not feeling well, headache, nausea, aches...

Before I contact my doctor I would appreciate some advice. Presently on 9mg pre...

Hidden

•4 months ago

5 Replies

How to respond to inflamed thumb joint?

Hi all, I've been reading on here since I developed PMR in April this year and found the experience of others really helpful. My GP and I made the diagnosis...

Hi all, I've been reading on here since I developed PMR in April this year and f...

Mellowgrover

•4 months ago

29 Replies

cortisol blood test

Good morning I am tapering from 4 to 3.5mg Prednisolone and struggling to establish what the random fatigue and , what I think are Osteo pains. I think they...

Good morning I am tapering from 4 to 3.5mg Prednisolone and struggling to esta...

5goFlotilla

•4 months ago

5 Replies

Metformin

Does anyone take Metformin for type two diabetes and also take Prednisalone? I have read that you should not…Supposed to start it today and also on various...

Does anyone take Metformin for type two diabetes and also take Prednisalone? I ...

Antoinette48

•4 months ago

29 Replies

Dry eyes ,disrupted tear film, ?Sjogrens

I believe we have a few members who have posted about this in the past. I'm a PMR long termer diagnosed in Nov 2017 and currently taking 2.5mg Prednisolone....

I believe we have a few members who have posted about this in the past. I'm a P...

PMRnewbie2017

•4 months ago

6 Replies

Flare or at a Level?

Hi All, Thankyou for all your experiences on here, your advice has helped me loads! I was back in the gym and doing great workouts from 15mg Pred down to 8mg...

Hi All, Thankyou for all your experiences on here, your advice has helped me lo...

Lickle

•4 months ago

6 Replies

Another update on the swollen eye

Back in Moorfields today, turns out the original diagnosis was Retinal detachment,Anterior Uveitis, possible Scleritis. After all the tests today and a weekend...

Back in Moorfields today, turns out the original diagnosis was Retinal detachmen...

Fatsiajaponica

•4 months ago

11 Replies

prednisilone and UTI infections.

Hardly posted for a while as very little to report, but the latest is GP now feels the time is right for reduction from 10mg to 9mg prednisilone. Here we go...

Hardly posted for a while as very little to report, but the latest is GP now fe...

gillsky8

•4 months ago

8 Replies

should I take extra pred!

Yesterday I reduced from 3mgs to 2.5 (Dr wanted me to drop 1mg a month) . Today hubby had an appointment at hospital to see dermatologist as he has a nasty...

Yesterday I reduced from 3mgs to 2.5 (Dr wanted me to drop 1mg a month) . Today...

Decsgran

•4 months ago

5 Replies

adrenal insufficiency and reduced renal function

hi, I am now on 3.5mg of prednisolone and suffering with some symptoms of adrenals struggling. I am experiencing fatigue and some tummy symptoms, occasional...

hi, I am now on 3.5mg of prednisolone and suffering with some symptoms of adrena...

Koalajane

•4 months ago

19 Replies

Zero Pred Zone update

I posted a few days ago and ended with saying I had already sent an eConsult request to my GP. No reply within the 48 hours so as the weekend was upon me I...

I posted a few days ago and ended with saying I had already sent an eConsult req...

Queenie1901

•4 months ago

29 Replies

COVID

I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I...

I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause...

Paulagcl

•4 months ago

7 Replies

cortisol test kit

Hi, I managed to purchase the cortisol test kit from the sit that Dorset Lady gave me, I do have one question though, has anybody else used one of these kits...

Hi, I managed to purchase the cortisol test kit from the sit that Dorset Lady ...

Josie-Anne

•4 months ago

34 Replies

A question about exercise

I have a question for you all about exercise. I have read a lot of posts on the topic, and many people write that they exercise a lot. Today, someone wrote...

I have a question for you all about exercise. I have read a lot of posts on th...

krillemy

•4 months ago

21 Replies

Covid Update

Hi all, a quick update to my previous post. I have had a couple of days of negative tests for Covid so holiday plans are going ahead as planned (as at this...

Hi all, a quick update to my previous post. I have had a couple of days of negat...

Bcol

•4 months ago

9 Replies

breathlessness

do I remember correctly that PMR can cause breathlessness. I’m concerned to find myself short of breath and I’m wondering if this can be the cause? Is it the...

do I remember correctly that PMR can cause breathlessness. I’m concerned to find...

Jakey67

•4 months ago

8 Replies

Chronic stress and long term issues (adrenals)

A few questions in the hope I can have an even better understanding. After getting infection after infection and struggling to get rid, I was diagnosed with...

A few questions in the hope I can have an even better understanding. After gett...

Naim1

•4 months ago

14 Replies

Emollient cream

Thank you to all who have replied to my message but I have another question now. I have been given antiseptic washing lotion to use for the 5 days leading up...

Thank you to all who have replied to my message but I have another question now....

caftan

•4 months ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2024

GCA concerns

Increase prednisone to help pain temporarily

PMR and blood clots

Tapering at low dose

newly diagnosedPMR

Scalp tenderness and pain in head

hallo

Hair loss

It's been 2 months since my last confession!

High Leukocytes in urine

Fed up with this…….

ONE - Prednisolone

Unsure about symptoms

How to respond to inflamed thumb joint?

cortisol blood test

Metformin

Dry eyes ,disrupted tear film, ?Sjogrens

Flare or at a Level?

Another update on the swollen eye

prednisilone and UTI infections.

should I take extra pred!

adrenal insufficiency and reduced renal function

Zero Pred Zone update

COVID

cortisol test kit

A question about exercise

Covid Update

breathlessness

Chronic stress and long term issues (adrenals)

Emollient cream

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