Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,755 members • 39,019 posts

All posts for July 2024

seeing a dr today for first time!

hi there I am back from holiday to Vancouver! I must say wheelchair special treatment was amazing and necessary ! im still taking 25-30mg steroid but waking...

hi there I am back from holiday to Vancouver! I must say wheelchair special tre...

JessJess21

•56 minutes ago

1 Reply

Sudden nasty flare at 5mg for 6 weeks.

I have tapered very slowly to 5mg prednisolone, was comfortable for 6 weeks, now horrible pain and stiffness started about a week ago. Felt ok to stay on 5mg...

I have tapered very slowly to 5mg prednisolone, was comfortable for 6 weeks, now...

waltztherapy

•2 hours ago

2 Replies

Covid and Sick Day rules

I've come down with Covid today. The test went positive in about 30 seconds! I had just started a slow taper to 8mg from 8.5. Please can you clarify whether,...

I've come down with Covid today. The test went positive in about 30 seconds! I h...

FleetRose

•15 hours ago

2 Replies

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GP visit

Hi there. I've had PMR/GCA for 10 years which once diagnosed was reasonably managed until 2018 when having tapered to 3.5 mgs, I was told to stop Pred within...

Hi there. I've had PMR/GCA for 10 years which once diagnosed was reasonably mana...

k-mac

•15 hours ago

14 Replies

Flare timescale

Think I’ve been battling PMR flare and adrenal insufficiency for last four months. Felt the best so far on 7mg steroids but flared at 6mg with more pain and...

Think I’ve been battling PMR flare and adrenal insufficiency for last four month...

Body_bonkers

•19 hours ago

6 Replies

Tapering

Good morning all. I have been on a starter dose of prednisolone 15mg for three weeks which has made me feel absolutely amazing no aches or pains, reduced last...

Good morning all. I have been on a starter dose of prednisolone 15mg for three ...

Blodders2

•24 hours ago

9 Replies

Should I increase prednisolone before arthroscopy?

I’m down to 3.5 mg pred and feeling better than I have since I started with PMR. I’m having an arthroscopy in 2 weeks for a torn meniscus. Should I stay on...

I’m down to 3.5 mg pred and feeling better than I have since I started with PMR....

Mfaepink1973

•1 day ago

14 Replies

Alendronic acid

Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone...

Do you really need to keep taking those tablets when your managing to reduce you...

Caulkhead63

•1 day ago

11 Replies

Methotrexate tapering.

Evening all, hope you are enjoying a nice weekend 🤗I am currently tapering my Prednisolone since Jan this year. I'm tapering from 10mg using the DSNS tapering...

Evening all, hope you are enjoying a nice weekend 🤗I am currently tapering my P...

lkcreedon

•2 days ago

16 Replies

Fluid retention from prednisolone

any pointers on how to lose the fluid retention caused by pred? Besides of course reducing the dose . I’m on 12.5 mg now

any pointers on how to lose the fluid retention caused by pred? Besides of cours...

Udupik

•2 days ago

16 Replies

Vomiting in night ?Take more pred today

hallo I was vomiting for about 5 hours in the night, roughly once an hour. I think it was food poisoning. I started about two /two and a half hours after...

hallo I was vomiting for about 5 hours in the night, roughly once an hour. I th...

Freshairfiend

•2 days ago

4 Replies

Chronic Myelomonocytic Leukaemia (CMML)

Recent posts regarding MGUS and Smouldering Myloma have prompted me to share my recent diagnosis. I have had PMR for 3.5 years and following a few ups and...

Recent posts regarding MGUS and Smouldering Myloma have prompted me to share my ...

AyJayBass

•2 days ago

6 Replies

Addison's disease

Spoke with my GP yesterday regarding the extreme fatigue & rollercoaster of crashing following activity. He is now going to test & look at the possibility of...

Spoke with my GP yesterday regarding the extreme fatigue & rollercoaster of cras...

Naim1

•2 days ago

42 Replies

Respiratory Syncytial Virus

I have received a letter from NHS Scotland and an appointment for a vaccination for the above virus.I haven't heard of it before. Any comments welcome.

I have received a letter from NHS Scotland and an appointment for a vaccination ...

Mazxstitch

•2 days ago

9 Replies

PMR flare. How to proceed?

After 4 and half years tapered from 50mg(for suspected GCA) to 0.5 mg. The a month ago went to zero.Past couple of weeks noticed some early morning stiffness...

After 4 and half years tapered from 50mg(for suspected GCA) to 0.5 mg. The a mon...

agingfeminist

•2 days ago

9 Replies

Infection causing flare?

I have four weekly Depomedrone injections as I can't take oral Pred. I had tapered to 40mg six weeks ago which didn't seem to help at all..My arms and...

I have four weekly Depomedrone injections as I can't take oral Pred. I had taper...

Countrykitten

•3 days ago

Be the first to reply

Should I try the 5 mg of prednisone increase for few days

well I have told my story few times over last months, most recently over 3 weeks ago have severe groin pain and moves around, hip joint front thigh and same...

well I have told my story few times over last months, most recently over 3 weeks...

arvine

•3 days ago

23 Replies

Stuck at 6.5 Prednisolone

Hi Folks, Reduced from 7mg to 6.5 using 5 week slow reduction. All was fine until last 2days when I felt both shoulders aching again. However I decided to...

Hi Folks, Reduced from 7mg to 6.5 using 5 week slow reduction. All was fine un...

Malaga47

•3 days ago

28 Replies

GCA tapering query

Following my recent diagnosis of GCA, I had an appointment with GP after my pred being upped to 40mg daily. We agreed to me staying on 40mg for time being and...

Following my recent diagnosis of GCA, I had an appointment with GP after my pred...

SanG55

•3 days ago

8 Replies

GLA:D program with polymyalgia ?

Hi All, Hoping for some advice. I am about to start the GLA: D exercise program for hip arthritis. Apparently it is quite challenging. My question is -...

Hi All, Hoping for some advice. I am about to start the GLA: D exercise progr...

redruth123

•3 days ago

13 Replies

New to PMR Question

Hi, only been diagnosed with PMR just over a month ago. GP started me on 15mg pred. initially for 3 weeks . Did well and symptoms reduced by around 60-70%, I...

Hi, only been diagnosed with PMR just over a month ago. GP started me on 15mg pr...

Raingod

•4 days ago

8 Replies

FLARE FROM A MIGRAINE?

I have PMR & GCA, both diagnosed in 2020. Early on, I saw on here that visual distortions were a sign of the GCA ramping up, so I would increase my preds for a...

I have PMR & GCA, both diagnosed in 2020. Early on, I saw on here that visual di...

LIVEORDIEHEREIAM

•4 days ago

3 Replies

aching legs while tapering Prednisolone

I have been successfully tapering my Prednisolone dose by 1mg a month since October last year. My CRP scores have not got beyond 2 for the past 8 months and I...

I have been successfully tapering my Prednisolone dose by 1mg a month since Octo...

Handloomweaver

•4 days ago

32 Replies

Dietary question

When I had an all-over (shoulders, neck, back, hips, knees, etc) flare five years ago, before diagnosis and before Prednisone, one of my doctors suggested an...

When I had an all-over (shoulders, neck, back, hips, knees, etc) flare five year...

79andCounting

•4 days ago

14 Replies

Temporal arteritisGCA

Hi folks, I am having a bit of a meltdown as the Dr has sent for bloods and is organising a scan tdue to localised headache and scalp tenderness.as I guess...

Hi folks, I am having a bit of a meltdown as the Dr has sent for bloods and is o...

Eilidhmac

•4 days ago

13 Replies

chronic diarrhoea

I reduced to 5mg from 5.5 on 25/06. After about a week had intense nausea, headache for 2 days. From last week I’ve had chronic diarrhoea and stomach cramps....

I reduced to 5mg from 5.5 on 25/06. After about a week had intense nausea, hea...

lennysmummy

•4 days ago

20 Replies

Eyesight deterioration

My eyesight in my left eye has significantly deteriorated over a few weeks such that my optometrist is flummoxed by his own admission. He asked if my PMR was...

My eyesight in my left eye has significantly deteriorated over a few weeks such ...

LbHH

•4 days ago

8 Replies

Had anyone seen this?!

I just saw this and am intrigued! Ncbi.nlm.nih.gov

GivenUp24

•4 days ago

23 Replies

Omeprazole Tapering Off

Hi all, as I'm now on a very low dose of Pred (0.5mg)I have decided that this is probably a good a time as any to stop taking Omeprazole, I've never had a...

Hi all, as I'm now on a very low dose of Pred (0.5mg)I have decided that this is...

Bcol

•4 days ago

14 Replies

G C A/ Temporal artery biopsy

Good morning all,I was diagnosed with RA, PMR, and ILD in January 2021 and have had 5 bouts of pneumonia requiring hospital treatment since then, the last one...

Good morning all,I was diagnosed with RA, PMR, and ILD in January 2021 and have ...

Oscardoggy

•4 days ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2024

seeing a dr today for first time!

Sudden nasty flare at 5mg for 6 weeks.

Covid and Sick Day rules

GP visit

Flare timescale

Tapering

Should I increase prednisolone before arthroscopy?

Alendronic acid

Methotrexate tapering.

Fluid retention from prednisolone

Vomiting in night ?Take more pred today

Chronic Myelomonocytic Leukaemia (CMML)

Addison's disease

Respiratory Syncytial Virus

PMR flare. How to proceed?

Infection causing flare?

Should I try the 5 mg of prednisone increase for few days

Stuck at 6.5 Prednisolone

GCA tapering query

GLA:D program with polymyalgia ?

New to PMR Question

FLARE FROM A MIGRAINE?

aching legs while tapering Prednisolone

Dietary question

Temporal arteritisGCA

chronic diarrhoea

Eyesight deterioration

Had anyone seen this?!

Omeprazole Tapering Off

G C A/ Temporal artery biopsy

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