Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2015

Whatever next!

Admitted to hospital today with lung infection on left side and pulmonary embolism on right side! I got increasingly breathless over past few day days and my...

Admitted to hospital today with lung infection on left side and pulmonary emboli...

Janbu

•9 years ago

27 Replies

Keep up with Kate!

Kate Gilbert, chair of PMRGCAuk, has been spending the past 4 days walking across the Dales through wind, hail and snow - all to raise money to provide...

Kate Gilbert, chair of PMRGCAuk, has been spending the past 4 days walking acros...

Dev_Director

•9 years ago

3 Replies

Aaaargh

So fed up with this illness! Not sure what to do now? I have been trying to reduce from 20mg of pred and am also on 1000mg of mycophenalate twice a day. When I...

So fed up with this illness! Not sure what to do now? I have been trying to redu...

Griggser

•9 years ago

22 Replies

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PMR and Phlebitis

Has anyone else been treated for phlebitis who also has PMR? I had the diagnosis yesterday from a vascular surgeon. I am having the vein in my upper thigh...

Has anyone else been treated for phlebitis who also has PMR? I had the diagnosi...

piglette

•9 years ago

11 Replies

Pred reduction and Alendronic Acid

I have had a Dexa scan and the results indicate that I am osteopenic so the doc has given me a script for Alendronic Acid. I have been on 15mgs of pred for...

I have had a Dexa scan and the results indicate that I am osteopenic so the doc...

Patricia10

•9 years ago

4 Replies

My GP told me, she will not send me for a Biopsy on my TA

29th April 2015 This morning, I went to GP to ask for Biopsy, as the rheumatologist asked me to, and dictated the letter to her in my presence saying this....

29th April 2015 This morning, I went to GP to ask for Biopsy, as the rheumatolo...

Old_Bedfordian

•9 years ago

26 Replies

Need advice

I'm taking 6 mg.. 4 mg in morning and 2 mg in evening. I wake up extremely weak and fatigue is crazy. Wondering if I switch it around. 2 mg morning and 4...

I'm taking 6 mg.. 4 mg in morning and 2 mg in evening. I wake up extremely weak...

Judyta

•9 years ago

6 Replies

Homeopathy and vitamins

Hi guys. Are there any vitamins etc that should be avoided on prednisolone and what about homeopathic stuff? I have homeopathic drops and several vitamins...

Hi guys. Are there any vitamins etc that should be avoided on prednisolone and ...

Carrollee

•9 years ago

13 Replies

hair loss

Sorry, I am taking 12,000 not 1200 mg. of biotin for the hair. Thanks for any information of help you can give me.

Sorry, I am taking 12,000 not 1200 mg. of biotin for the hair. Thanks for any i...

cassey1879

•9 years ago

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Hair loss

Can anyone recommend something to help with loss of hair from the large doses of prednisone. I am taking 1200 mg of Biotin which I think helps, just wondering...

Can anyone recommend something to help with loss of hair from the large doses of...

cassey1879

•9 years ago

7 Replies

When to reduce?

Hi, i've seen the suggested Pred reduction proposals on the forum and I'm wondering what plan should be employed when one of the reduction stages results in...

Hi, i've seen the suggested Pred reduction proposals on the forum and I'm wonder...

David_H

•9 years ago

22 Replies

Help please

Hi, was dx mid Dec 2014 started on 15mg, then 12.5, 10mg, and 8mg by 28 Jan. Was ok'ish on 7mg in Feb, then down to 6mg not brill, but going down to 5mg was...

Hi, was dx mid Dec 2014 started on 15mg, then 12.5, 10mg, and 8mg by 28 Jan. Wa...

figtree2

•9 years ago

7 Replies

Holiday

Hi folks I am now on 12.5mg Pred and about to go on holiday to Majorca for two weeks. I have decided to continue on this regime until I return although my...

Hi folks I am now on 12.5mg Pred and about to go on holiday to Majorca for two w...

Hidden

•9 years ago

10 Replies

Medical Aware Bracelet

Hi. I know everyone will have a blue steroid card but has anyone got a Medical Aware Bracelet or every thought of having one?

Hi. I know everyone will have a blue steroid card but has anyone got a Medical A...

notnice

•9 years ago

27 Replies

CRP

Sorry there was a typo error in my last post. I live in the U.S. I meant to ask if the measurement for a normal CRP level is the same in Britain.? Thanks.

Sorry there was a typo error in my last post. I live in the U.S. I meant to ask ...

DeliaGray

•9 years ago

3 Replies

CRP

Hi again, yesterday I received my results from my monthly blood test. I was diagnosed with GCA last July. My pred level is now at 13. My Rheumy wrote me an...

Hi again, yesterday I received my results from my monthly blood test. I was diag...

DeliaGray

•9 years ago

2 Replies

Scalp tenderness and GCA

The most significant early warning I had of the acute temple pain was a few days of having a very tender scalp. Using a hairbrush or disturbing the hair, was...

The most significant early warning I had of the acute temple pain was a few days...

Old_Bedfordian

•9 years ago

22 Replies

Age/life stage advice pls

Diagnosed this week, I'm 51. On 15 mg Pred, no pain so will follow tapering advice. Two issues related to my age/life stage would be v helpful: 1) Dr says am...

Diagnosed this week, I'm 51. On 15 mg Pred, no pain so will follow tapering adv...

mousebear

•9 years ago

9 Replies

How to reduce pred.

I have been taking 15mg pred for the last 6 weeks. The first four were difficult and I was I pain each day till early afternoon, then advice from the forum...

I have been taking 15mg pred for the last 6 weeks. The first four were difficul...

Patricia10

•9 years ago

7 Replies

THYROID AND PMR

Hi, l had Thyroid problems about 25 years ago and was treated with radioactive iodine tablet and since then have been on thyroxine daily. I have had PMR for 3...

Hi, l had Thyroid problems about 25 years ago and was treated with radioactive i...

Hidden

•9 years ago

9 Replies

Flushed face

Hi all, Tapering down from pred now on 6 mg . Feeling pretty good and back exercising and walking . My prob at moment is highly flushed and hot face every...

Hi all, Tapering down from pred now on 6 mg . Feeling pretty good and back exer...

bumpermac

•9 years ago

2 Replies

High ESR

I had a cold earlier this year and my blood inflammation counts shot up ESR 52 and CRP 40. A couple of weeks later it was ESR 60 and CRP 13. PMR was fine. My...

I had a cold earlier this year and my blood inflammation counts shot up ESR 52 a...

piglette

•9 years ago

15 Replies

Fatigue and Tiredness

I'm four months down the line now with PMR, and though I have felt fatigue and tiredness from the beginning it seems to be getting worse now. Is this a feature...

I'm four months down the line now with PMR, and though I have felt fatigue and t...

Charlie1boy

•9 years ago

12 Replies

Taking Pred for recently diagnosed PMR

Am taking 15mg pred daily for recently diagnosed PMR. Thought I was doing ok after 7 days, pain largely under control, but have a painful shoulder again today...

Am taking 15mg pred daily for recently diagnosed PMR. Thought I was doing ok af...

Mintymow

•9 years ago

3 Replies

hay fever

I seem to be suffering hay fever not that I have seen a doctor about it because all the gps at our surgery have left. However I have most of the...

I seem to be suffering hay fever not that I have seen a doctor about it because ...

kingharold11

•9 years ago

3 Replies

To vaccinate or not to vaccinate?

Grateful to know if others have had the flu vaccination to get them through the winter? Here in NZ it is autumn and cooling down - we are not far away from May...

Grateful to know if others have had the flu vaccination to get them through the ...

Megams

•9 years ago

30 Replies

Pred reduction

Hi, i'm currently on my 4th week on 9mg Pred (previously 5 weeks on 15mg, three weeks on 12mg and three weeks on 10mg) and notice my neck pain has improved but...

Hi, i'm currently on my 4th week on 9mg Pred (previously 5 weeks on 15mg, three ...

David_H

•9 years ago

5 Replies

Acupuncture: What do people think of it?

After a rather excruciating bursitis flare & a cortisone shot I made an appointment to see an acupuncturist. Anyone have any opinions? Any experience with...

After a rather excruciating bursitis flare & a cortisone shot I made an appointm...

Zane1

•9 years ago

16 Replies

Aching stomach

Even though I take Omeprazole 20 mgs twice a day I am getting a lot of gastric pain especially during the night, which keeps me awake. Any hints and tips!

Even though I take Omeprazole 20 mgs twice a day I am getting a lot of gastric p...

Janbu

•9 years ago

6 Replies

To see or not to see that is the question.

Had worrying temple pains yesterday, this was followed by a two day flair up of PMR with really bad hip,back, lag and knee pains. I spent several hours...

Had worrying temple pains yesterday, this was followed by a two day flair up of ...

Classicmichael

•9 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2015

Whatever next!

Keep up with Kate!

Aaaargh

PMR and Phlebitis

Pred reduction and Alendronic Acid

My GP told me, she will not send me for a Biopsy on my TA

Need advice

Homeopathy and vitamins

hair loss

Hair loss

When to reduce?

Help please

Holiday

Medical Aware Bracelet

CRP

CRP

Scalp tenderness and GCA

Age/life stage advice pls

How to reduce pred.

THYROID AND PMR

Flushed face

High ESR

Fatigue and Tiredness

Taking Pred for recently diagnosed PMR

hay fever

To vaccinate or not to vaccinate?

Pred reduction

Acupuncture: What do people think of it?

Aching stomach

To see or not to see that is the question.

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