Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for June 2013

Princess Alexandra and PMR

I guess most of us are old enough (young enough) to remember when Princess Alex was a great society beauty as well as a bastion of the Royal Family. She is...

I guess most of us are old enough (young enough) to remember when Princess Alex ...

Polywotsit

PMRGCAuk team member•11 years ago

46 Replies

HIGH ESR CONSEQUENCES?

I have read a lot of the posts on here saying that a raised ESR can cause more 'nasties'. What are these nasties? I know that the body is attacking itself,...

I have read a lot of the posts on here saying that a raised ESR can cause more '...

happyfacesometimes

•11 years ago

7 Replies

Thought I was down to 30mg Pred....wrong!!

Having successfully reduced from 50mg to 45mg Pred for 3 weeks, then to 40mg, started driving again & returned to work everything seemed to be running...

Having successfully reduced from 50mg to 45mg Pred for 3 weeks, then to 40mg, st...

violetsnowdrop

•11 years ago

4 Replies

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My esr is now very low (9) and I have reduced to 2.5 prednisone. All over pain has resumed, Anyone else have this experience?

I was diagnosed in April, 2013, after an acute episode. esr was 90. 40 mgs of pred quickly stopped the pain. I feel like I have a mild case compared to what...

I was diagnosed in April, 2013, after an acute episode. esr was 90. 40 mgs of ...

honeyadams

•11 years ago

16 Replies

? My symptoms not typical.

I first posted in a blog on 5 Jun 2013. I saw my GP the following week ESR and CRP at very normal levels. He waited waited for results of Vitamin D levels as...

I first posted in a blog on 5 Jun 2013. I saw my GP the following week ESR and C...

Cwmidwal

•11 years ago

5 Replies

hi can you please tell me if osteoporosis just affects your back bones

as i have had my ribs fell like they have cracked for a number of years sometimes very sore when i carry on with my kids or husband its that bad that i get...

as i have had my ribs fell like they have cracked for a number of years sometime...

mags4colin

•11 years ago

2 Replies

Another development!

After a morning being short of breath,I laid on the bed.Got phone call from GP to say latest blood test was showing infection(As always!)Asked how I felt.I...

After a morning being short of breath,I laid on the bed.Got phone call from GP t...

Hidden

•11 years ago

4 Replies

My adventures with the beasts

My adventure with "The Beasts of PMR GCA and PREDISALONE" so far. For the last few years I have had problems with pain in my lower back and hips. This was a...

My adventure with "The Beasts of PMR GCA and PREDISALONE" so far. For the last...

ianR

•11 years ago

5 Replies

Atypical PMR - was responding to steroids, not now

Four years ago I was diagnosed with PMR with an ESR of 20. All settled with steroids, which were tailed off by two years. Earlier this year I had...

Four years ago I was diagnosed with PMR with an ESR of 20. All settled with ste...

missrat

•11 years ago

2 Replies

diagnosed with PMR 3 months ago was put on perdisalone for 2 months then suddenly stopped. Pain returned told to take Ibuprofen. What now?

Conny

•11 years ago

10 Replies

55 ESR READING, IS THIS SERIOUS?

I was diagnosed PMR with raised ESR to 40 two years ago. Everything stabilised with lots of drugs. I was always at about 28-34 ESR. Now all of a sudden ESR...

I was diagnosed PMR with raised ESR to 40 two years ago. Everything stabilised ...

happyfacesometimes

•11 years ago

11 Replies

Is It always necessary to take omprazamol with preds or is there an alternative on lower doses

JOHNONE28

•11 years ago

7 Replies

Hello, I have gone back up to20mg from 15mg of pred. For 10 days. As was having neck / shoulder pain.

Have doubled up on stomach protecters, because I have 'bowel issues'. Is this common! Also! Does anyone find they are irritable over silly little things. ie....

Have doubled up on stomach protecters, because I have 'bowel issues'. Is this co...

annihami

•11 years ago

2 Replies

If one contracts an infection eg a cold etc shoukd you increase the dose of your predes if so by how much

JOHNONE28

•11 years ago

3 Replies

Hi every one,can you help me please.

Hi saw rheumy last week and he wants to reduce my preds and that is good as I have been on 30mg for the last 3 months but he said to take 25mg for 15...

Hi saw rheumy last week and he wants to reduce my preds and that is good as I ha...

ritter

•11 years ago

10 Replies

Has anyone suffered from an apparent asthma attack whilst being on preds

I recently suffered a coughing fit which came out of nowhere it lasted about half an hour leaving me wheezing also with my chest rattling for a couple of days,...

I recently suffered a coughing fit which came out of nowhere it lasted about hal...

JOHNONE28

•11 years ago

1 Reply

Osteoporosis risk or Cardiac risk?

I was unable to be prescribed Alendronic Acid and have been taking Strontium Ranelate from the start, though I misguidedly gave myself a break for a few...

I was unable to be prescribed Alendronic Acid and have been taking Strontium Ran...

Annodomini

•11 years ago

2 Replies

Question about PMR and Fibromyalgia.

Afternoon guys, Getting lots of vitamin D at the moment in Spain. I have a friend staying with me at the moment and she has Fybromialgia, but she has all...

Afternoon guys, Getting lots of vitamin D at the moment in Spain. I have a...

Buenavista

•11 years ago

4 Replies

Sweating, shakiness alongside PMR problems - steroids or other cause.

I'm 67 and have a long history of dysthymia / chronic depression with exacerbations, and also moderate essential tremor affecting my hands and head. I've had...

I'm 67 and have a long history of dysthymia / chronic depression with exacerbati...

missrat

•11 years ago

2 Replies

Reducing Pred 1/2 mg ,down to 17.5 from 20.Rhemy passed me over to Dr, who lets me do my own thing .Is this typical pred reduction symptoms

77 year old male,PMR since July'12.add.meds,Thyroxine, Allupurinol/gout since '83.After 3 tries to reduce-toofast, now on end of 17.5 session.During which not...

77 year old male,PMR since July'12.add.meds,Thyroxine, Allupurinol/gout since '8...

Hidden

•11 years ago

4 Replies

Will I ever get better?

Trish 29 asking will I ever get better? 8years of this horrible condition.PMR . I could not get the energy to go out today. Pain level high , medication...

Trish 29 asking will I ever get better? 8years of this horrible condition.PMR . ...

trish29

•11 years ago

27 Replies

British Society of Rheumatology Guidelines

The BSR guidelines for PMR and GCA are currently up for review and updating, and an international group is also working on a project to establish a set of...

The BSR guidelines for PMR and GCA are currently up for review and updating, and...

Polywotsit

PMRGCAuk team member•11 years ago

5 Replies

Flare - saw rheumatologist yesterday

I am currently supposed to be on 10mg prednisolone daily, having had a week of 10mg and 12.5mg alternate days after two weeks on 15mg, . My GP is anxious that...

I am currently supposed to be on 10mg prednisolone daily, having had a week of 1...

missrat

•11 years ago

8 Replies

On Line Newsletter

http://www.pmr-gca-northeast.org.uk/assets/pmr_resource_51.pdf Issue June 2013.

http://www.pmr-gca-northeast.org.uk/assets/pmr_resource_51.pdf Issue June 201...

jinasc

•11 years ago

3 Replies

a month into my diagnosis of pmr and undiagnosed gca?

hi everybody out there one month in on 15mg pred .it has cleared my aches & pains but head problems still persist. .have been to see an opthalmologist, &...

hi everybody out there one month in on 15mg pred .it has cleared my aches & pain...

tiddlypom7

•11 years ago

23 Replies

Just Found Forum

Hello the Forum I'm a bloke aged 62. Just thought I would share my story. I was diagnosed with TA in July 2012, after many visits to my local health...

Hello the Forum I'm a bloke aged 62. Just thought I would share my story. ...

Dazey

•11 years ago

6 Replies

Side effects of prednisolone

I'm writing on behalf of my 86-year-old mum, who was diagnosed with PMR and GCA two or three months ago and has been on prednisolone ever since. That sorted...

I'm writing on behalf of my 86-year-old mum, who was diagnosed with PMR and GCA ...

bloodvessel

•11 years ago

2 Replies

Normal blood results but continue to have head pains and fatigue.

Diagnosed with GCA two and a half years ago. Off Prednisolone and now take 10mgs. Methotrexate weekly. I continue to have head pains and some days I have...

Diagnosed with GCA two and a half years ago. Off Prednisolone and now take 10mg...

tomasina

•11 years ago

7 Replies

New to Forum

Hello all, I am new to this forum. Diagnosed in 2011 with PMR. I was started on 40mg pred and I am down to 11mg and go to 10mg tomorrow. All was well until...

Hello all, I am new to this forum. Diagnosed in 2011 with PMR. I was started on...

floral

•11 years ago

3 Replies

I am new to this site and diagnosed with PMR in March 2013 (56 yrs old and female). Down to 15 mg predn.,

but still in a lot of discomfort daily. Seeing the Rheumyin 2 weeks. What is the best exercise for PMR? I use to walk 3-4 miles every morning and place tennis...

but still in a lot of discomfort daily. Seeing the Rheumyin 2 weeks. What is the...

Tsnan

•11 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2013

Princess Alexandra and PMR

HIGH ESR CONSEQUENCES?

Thought I was down to 30mg Pred....wrong!!

My esr is now very low (9) and I have reduced to 2.5 prednisone. All over pain has resumed, Anyone else have this experience?

? My symptoms not typical.

hi can you please tell me if osteoporosis just affects your back bones

Another development!

My adventures with the beasts

Atypical PMR - was responding to steroids, not now

diagnosed with PMR 3 months ago was put on perdisalone for 2 months then suddenly stopped. Pain returned told to take Ibuprofen. What now?

55 ESR READING, IS THIS SERIOUS?

Is It always necessary to take omprazamol with preds or is there an alternative on lower doses

Hello, I have gone back up to20mg from 15mg of pred. For 10 days. As was having neck / shoulder pain.

If one contracts an infection eg a cold etc shoukd you increase the dose of your predes if so by how much

Hi every one,can you help me please.

Has anyone suffered from an apparent asthma attack whilst being on preds

Osteoporosis risk or Cardiac risk?

Question about PMR and Fibromyalgia.

Sweating, shakiness alongside PMR problems - steroids or other cause.

Reducing Pred 1/2 mg ,down to 17.5 from 20.Rhemy passed me over to Dr, who lets me do my own thing .Is this typical pred reduction symptoms

Will I ever get better?

British Society of Rheumatology Guidelines

Flare - saw rheumatologist yesterday

On Line Newsletter

a month into my diagnosis of pmr and undiagnosed gca?

Just Found Forum

Side effects of prednisolone

Normal blood results but continue to have head pains and fatigue.

New to Forum

I am new to this site and diagnosed with PMR in March 2013 (56 yrs old and female). Down to 15 mg predn.,

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