I started on 15mg 28th Feb this year. Went up to 20mg 15th May, started reducing middle of June. I had no pain at all and felt sure that the disease had gone. When I reached 8mg middle of Sept, it returned. I now realise I should have slowed down when I reached 10mg. Not wanting to go back up again - (my fat face had gone down a lot, and I was beginning to look a lot more like my old self ) - I increased slowly, 9mg, 10mg, 12mg and have been on 15mg for 2 weeks. Although the stiffness has gone in my shoulders, I have pain in my shoulder blades and lower back. I had these same pains months before I was struck down with this illness, and now know that it was the PMR. I think I may be putting off the inevitable, and that I need to go back up to 20mg, to get rid again, before I can come down. My GP is knowledgable about the disease but sort of leaves things up to me as she is not really sure herself what to do. What do you think I should do???
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