Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,053 posts

All posts for September 2022

immune reaction to physical stress.

I have poly myalgia, celiac and PCOS as well as myeloma, so my immune system gets upset pretty easily. Yesterday, a Physio manhandled my body to see how much...

I have poly myalgia, celiac and PCOS as well as myeloma, so my immune system get...

Jane424

•2 years ago

9 Replies

More Blood Tests

I managed to get a doctors appointment my Doctor is going to arrange tests to check for Bone Cancer but I’m trying to stay positive.I have to wait 10 days to...

I managed to get a doctors appointment my Doctor is going to arrange tests to ch...

Brears

•2 years ago

15 Replies

Interesting on-line project we can all relate to

Reading about this on the Wren Project newsletter, thought it might be of interest...

Reading about this on the Wren Project newsletter, thought it might be of inte...

Baner

•2 years ago

5 Replies

Want to take advantage of all our features? Just log in!

asthma and pmr

does anyone else have both these conditions? And if so do you find that they seem to get worse , or better, together? I am wondering if they are linked, since...

does anyone else have both these conditions? And if so do you find that they see...

Yellow-dog

•2 years ago

30 Replies

UTI steriod dose up stay the same

hi I have a uti on antibiotics do I need to up steroids please. Feel a bit rubbish

hi I have a uti on antibiotics do I need to up steroids please. Feel a bit rubbi...

Uglow

•2 years ago

13 Replies

P M R ?

I was diagnosed with GCA in March 2016. After a rocky ride with a few flares I came off Prednisolone on 10 August this year. From 5mg onwards I reduced...

I was diagnosed with GCA in March 2016. After a rocky ride with a few flares I...

Maur1

•2 years ago

11 Replies

Cystoscopy next week - risks of procedure?

Hi folks. After decades of UTI infections, I've been having daily urethral pain that comes & goes but no infection. D-mannose has helped in combating...

Hi folks. After decades of UTI infections, I've been having daily urethral pain...

strawclutching

•2 years ago

73 Replies

Blow up bed heaven!

On holiday and the main bed was agony hard so I tried the blow up spare bed- heaven! My sleep has been transformed! So soft. No more aching joints , supporting...

On holiday and the main bed was agony hard so I tried the blow up spare bed- hea...

Maisiek

•2 years ago

6 Replies

Sudden Flare up Help Please

I know I can rely on someone on this site to advise.I successfully managed to decrease to 1 mg suddenly finding it hard to manage the pains have all gone into...

I know I can rely on someone on this site to advise.I successfully managed to de...

Brears

•2 years ago

13 Replies

Possible root canal

I went to see my local dentist due to finding what looks like an infection inside of my upper lip right next to the base of my nose. They couldn't figure out...

I went to see my local dentist due to finding what looks like an infection insid...

catdance

•2 years ago

15 Replies

Is there a minimum effective dose for prednisone?

Good day everyone, I am curious if there is a minimum effective dose for prednisone. I have tapering really (really) slowly, reducing 1/4 mg/week....

Good day everyone, I am curious if there is a minimum effective dose for predni...

Marinescience

•2 years ago

15 Replies

Off Tocilizumab after six months

I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg...

I don't know where to start. My history will show I have GCA and PMR all diagno...

redhouts

•2 years ago

4 Replies

pre- curser to PMR ?

. Jan 2021 and I was reasonably healthy for my age. ( ancient !) but suddenly developed some mega active itching in both of my legs - mainly below knee,-...

. Jan 2021 and I was reasonably healthy for my age. ( ancient !) but suddenly d...

seamaid

•2 years ago

21 Replies

Actemra?

I have been started on Actemra but don’t know if I need it. I question if I have GCA. The Dr who should be retired made a snap judgement. Even if I had GCA,...

I have been started on Actemra but don’t know if I need it. I question if I have...

Greytree

•2 years ago

26 Replies

jumping muscles

I wondered if anyone else experienced jumping muscles with Pmr. I get this in my legs and back, I was also wondering if it indicates that an increase in...

I wondered if anyone else experienced jumping muscles with Pmr. I get this in my...

Yellow-dog

•2 years ago

15 Replies

An unpleasant surprise....

Hello all, Following the sensible advice on this forum, I have been following a slow and cautious tapering of prednisone, and current at a very low dose of...

Hello all, Following the sensible advice on this forum, I have been following ...

Marinescience

•2 years ago

4 Replies

Odd thing happened today.

I had the Spikevax booster last Thursday. 6 days later, today, I had tachycardia from 9.30am to 17.30pm. We had left for our aircraft grease monkey...

I had the Spikevax booster last Thursday. 6 days later, today, I had tachycardi...

Nagswoman

•2 years ago

21 Replies

Depression?

Hello. Two years into PMR journey. I am at 3mg pred and physically feel well. I am having bouts of severe depression and have never been depressed before. I...

Hello. Two years into PMR journey. I am at 3mg pred and physically feel well. I...

paleolady

•2 years ago

9 Replies

I just want to quit GCA!

I have tapered down to a 5mg/4mg alternating dose. Have had some issues with shoulder pain, scotomas and pressure back in temples. Went back up to 5mg which...

I have tapered down to a 5mg/4mg alternating dose. Have had some issues with sho...

pmac22

•2 years ago

15 Replies

Ache Pains & Fatigue

Hi all, I have been registered with the group since last year & found the comments & questions very helpful, but this is my first post. I’ve been on Pred for...

Hi all, I have been registered with the group since last year & found the commen...

Montemoo

•2 years ago

19 Replies

Erratic BP and Pulse measurements after taking Preds for 5.5 years and v slow tapering

Diagnosed w GCA in May2017. Finally, using the v slow tapering method, took my last Pred on Sep 13th 2022. Since then BP shot down to below 120/90. Mine has...

Diagnosed w GCA in May2017. Finally, using the v slow tapering method, took my l...

Suuha

•2 years ago

14 Replies

Prednisolone and Osteoporosis

Hi all, looking for some advice/insights from you all. This is my first time posting… My question is, is it usual for prednisolone to affect bones quickly eg...

Hi all, looking for some advice/insights from you all. This is my first time pos...

WearyLucy

•2 years ago

60 Replies

Overdid things now can't find right level of steroids

In March I was down to 5mg of prednisone and felt wonderful so for better or worse I did a 5 day 4 night mountain hike here in New Zealand. I'm not sorry I...

In March I was down to 5mg of prednisone and felt wonderful so for better or wor...

Renesch

•2 years ago

2 Replies

Am I having a flair?

I have been on 7mg now for two months. I had attempted to reduce to 6.5, but couldn't do it (possibly because I had my covid booster, but maybe that had...

I have been on 7mg now for two months. I had attempted to reduce to 6.5, but co...

jinoadby

•2 years ago

3 Replies

Fatigue, dizziness, brain fog, & depression with Prednisone taper.

Recently decreased pred to 5mg. Rarely had the stated side effects at higher doses. I would have thought the lower the prednisone dose less side effects. On...

Recently decreased pred to 5mg. Rarely had the stated side effects at higher d...

SMH4CRNA

•2 years ago

59 Replies

Long Air traveling with 18 months suspected gca ? With daily dose of 10 mg prednisone. .

My wife 72 , is on 10 mg prednisone, from last 18 months on suspected GCA! She will be traveling to india from USA ,18 hours flights in business class ,...

My wife 72 , is on 10 mg prednisone, from last 18 months on suspected GCA! Sh...

Rajuguide

•2 years ago

9 Replies

Help with interpreting results

Hi everyone, would like your opinions on my latest results please, have had PMR 5 years next month. C reactive protein, 6mg/L (0.0-5.0) above high reference...

Hi everyone, would like your opinions on my latest results please, have had PMR ...

Jo1947

•2 years ago

5 Replies

fruit and pred..

Did I read on here about certain fruits that are not ideal to eat if on Pred ?..I know some time ago I read about liquorice being a no no and wondered about...

Did I read on here about certain fruits that are not ideal to eat if on Pred ?.....

Stellamavis

•2 years ago

125 Replies

ENERGY BILL DISCOUNT SCAM

Apology in advance for going off piste, I am breaking the rule and making an exception this time. SCOTTISH BORDERS ALERT Energy Bill Discount Scam...

Apology in advance for going off piste, I am breaking the rule and making an ex...

jinasc

•2 years ago

9 Replies

PMR returns, probably never away

Hi, I haven’t posted for a while, brief history I was diagnosed with PMR about a year ago, although my markers were normal, seen a Rheumatologist and my two...

Hi, I haven’t posted for a while, brief history I was diagnosed with PMR abou...

Carathedog

•2 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2022

immune reaction to physical stress.

More Blood Tests

Interesting on-line project we can all relate to

asthma and pmr

UTI steriod dose up stay the same

P M R ?

Cystoscopy next week - risks of procedure?

Blow up bed heaven!

Sudden Flare up Help Please

Possible root canal

Is there a minimum effective dose for prednisone?

Off Tocilizumab after six months

pre- curser to PMR ?

Actemra?

jumping muscles

An unpleasant surprise....

Odd thing happened today.

Depression?

I just want to quit GCA!

Ache Pains & Fatigue

Erratic BP and Pulse measurements after taking Preds for 5.5 years and v slow tapering

Prednisolone and Osteoporosis

Overdid things now can't find right level of steroids

Am I having a flair?

Fatigue, dizziness, brain fog, & depression with Prednisone taper.

Long Air traveling with 18 months suspected gca ? With daily dose of 10 mg prednisone. .

Help with interpreting results

fruit and pred..

ENERGY BILL DISCOUNT SCAM

PMR returns, probably never away

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive