Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for January 2021

Prednisolone and loss off smell

Hi, I had been suffering from (loss of smell only) for some time and I have done various of covid test but came negative, so I took prednisolone and the...

Hi, I had been suffering from (loss of smell only) for some time and I have done...

FAISUL

•4 years ago

8 Replies

Flare again

Well I wrote about a possible flare two weeks ago and received good advice to add 5 mg of Prednisone for five to ten days. I started to feel better after a...

Well I wrote about a possible flare two weeks ago and received good advice to a...

Blackcatlover

•4 years ago

24 Replies

Outside Support

This is such a wonderful, understanding, supportive group. I wonder if you all might have any advice for others we interact with who might not be so much so....

This is such a wonderful, understanding, supportive group. I wonder if you all m...

winfong

•4 years ago

31 Replies

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Rhummy

Hi all hope yr all staying safe. Received my letter yesterday off rhummy saying they received my referral off dr but due to covid they have sent further...

Hi all hope yr all staying safe. Received my letter yesterday off rhummy saying ...

Hidden

•4 years ago

10 Replies

Efficacy of Covid Vaccine if immune compromised

I am clinically highly vulnerable , taking three medications which compromise your immune system, Predisilone, Mycophenelate Tocilizumbab. Does anyone know if...

I am clinically highly vulnerable , taking three medications which compromise yo...

christine2715

•4 years ago

4 Replies

prednisolone vs. prednisone ?? headache

Wow, did I have a headache yesterday...all day despite Tylenol? It felt like my head was tightening and I even hated to move my eyes. Unusual. Much better...

Wow, did I have a headache yesterday...all day despite Tylenol? It felt like my...

Grammy80

•4 years ago

13 Replies

Bewildered

Hi, Id appreciate any advice please. I was diagnosed by an emergency doctor with polymyalgia and was started on 15mg of prednisolone which I took for 2 weeks....

Hi, Id appreciate any advice please. I was diagnosed by an emergency doctor with...

Hidden

•4 years ago

6 Replies

Stress when dealing with dementia in a loved one.

Hi everyone, A few posts have mentioned the stress of caring for a loved one with dementia. Caring for, helping to care for, or even visiting someone with...

Hi everyone, A few posts have mentioned the stress of caring for a loved one wit...

crafty_grannie

•4 years ago

24 Replies

Spike in PMR symtoms

Hi everyone, I was diagnosed with PMR last year and have been reducing from 15mg of Prednisolone to 5mg which I am on today. However, last night I began to...

Hi everyone, I was diagnosed with PMR last year and have been reducing from 15mg...

Buzybe

•4 years ago

6 Replies

Dosage reduction

Following on from my post a month ago, this is where I am now. Continued with 10 mg daily until I reached 6 weeks, then reduced to 9 mg, which is where I am...

Following on from my post a month ago, this is where I am now. Continued with 1...

Tinasleepyhead

•4 years ago

22 Replies

Off Pred

I have been off Pred since December and for couple of weeks I felt fine. I did notice my hip started to ache but that was something I had before PMR so just...

I have been off Pred since December and for couple of weeks I felt fine. I did n...

palewolf

•4 years ago

26 Replies

PMR and AstraZeneca Vaccination

I had my AZ/Oxford vaccination 3 days ago in the early afternoon. By bedtime I had no side effects and thought 'this is a doddle' ! Silly me ! I woke up...

I had my AZ/Oxford vaccination 3 days ago in the early afternoon. By bedtime I ...

NursePeggy

•4 years ago

14 Replies

At what dose of Pred does ‘moonface’ reduce or disappear?

I was diagnosed with GCA 12 months ago and reductions in Pred had not been successful until the Dr added in MMF which has ‘allowed’ me to reduce to 12.5mg. My...

I was diagnosed with GCA 12 months ago and reductions in Pred had not been succe...

Phoenix51

•4 years ago

26 Replies

Worried I may have GCA

I’m new here, and I have all the symptoms of PMR, but with normal blood counts. I realise now I’ve been tapered down off prednisone far too quickly (30mg to...

I’m new here, and I have all the symptoms of PMR, but with normal blood counts. ...

Harpgirl

•4 years ago

6 Replies

New journey

I was just diagnosed less than 3 weeks ago, so am just beginning my PMR journey. Have probably had it for a year or more. Am doing well so far on prednisone,...

I was just diagnosed less than 3 weeks ago, so am just beginning my PMR journey....

Saskie86

•4 years ago

8 Replies

My husband saved my life last week.

Many of you should know me by now as a fellow sufferer of PMR so I wanted to share this story. This happened early last week. My husband came home after work...

Many of you should know me by now as a fellow sufferer of PMR so I wanted to sha...

Amkoffee

•4 years ago

42 Replies

Allergic reactions to the Pfizer vaccine are rare

https://www.medicalnewstoday.com/articles/covid-19-allergic-reactions-to-pfizer-vaccine-are-rare?utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=MNT%2

https://www.medicalnewstoday.com/articles/covid-19-allergic-reactions-to-pfizer-...

PMRpro

Ambassador•4 years ago

17 Replies

Getting fit!

Hello! I seem to have both PMR & GCA and was taken into hospital for three days and put on a drip to 'kill' my immune system. I've gone from 80mg steriod...

Hello! I seem to have both PMR & GCA and was taken into hospital for three days...

PuttyPenguin

•4 years ago

23 Replies

Carbs?

Quite a lot of posts on here re carbs but I just wondered "can carbs actually be bad for you"? No doubt a question for our expert thereon, PMRpro). I eat...

Quite a lot of posts on here re carbs but I just wondered "can carbs actually be...

Constance13

•4 years ago

76 Replies

Actemra and weight

I've been on Actemra for about a year. Been off it for a few weeks because of tooth extraction and rheumatologist wants me to restart. RX insert and other...

I've been on Actemra for about a year. Been off it for a few weeks because of to...

Spanky2019

•4 years ago

16 Replies

Bad feet

Hi everyone. Hope I can get some advice about my feet. I have some tingly felling off and on and sometimes pain. My left foot sometimes looks bruised with...

Hi everyone. Hope I can get some advice about my feet. I have some tingly fellin...

TINYdes

•4 years ago

8 Replies

Zoe Covid Symptom Study Webinar

On Feb 3rd at 4pm, Prof Tim Spector from the ZOE Covid Symptom Study will be doing a webinar on the Covid vaccines and "What we know so far" May be of interest...

On Feb 3rd at 4pm, Prof Tim Spector from the ZOE Covid Symptom Study will be doi...

Kendrew

•4 years ago

36 Replies

Leflunomide and PMR

Hello everyone, This is my first post to your informative PMR community . My story of PMR is really no different to everyone else in a way. Although I do...

Hello everyone, This is my first post to your informative PMR community . My sto...

golfnutter

•4 years ago

34 Replies

Thank you All

Thank you to all who have been so knowledgeable and kind through the past two years. Being an American, I only have one childhood friend living in the UK. As a...

Thank you to all who have been so knowledgeable and kind through the past two ye...

Spanky2019

•4 years ago

14 Replies

HAIR

Sorry me again. Just looking for advice on hair. I have been taking steriods pred for just over a year and from 10 months onwards my hair has been absolutely...

Sorry me again. Just looking for advice on hair. I have been taking steriods pre...

TMenz

•4 years ago

57 Replies

Hopeful but still keeping fingers crossed!

I am today posting, to give hope to others on tapering plans! After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues...

I am today posting, to give hope to others on tapering plans! After 4 years of f...

DevonMichael

•4 years ago

12 Replies

Omeprazole what if anything do I do?

Hi all. I know this has appeared in posts many times, generally with no positive comments for Omeprazole. Background I have been on Omeprazole on and off...

Hi all. I know this has appeared in posts many times, generally with no positive...

Bcol

•4 years ago

10 Replies

Operation

Hi you have given me lots of fab advice in the past so I was just wondering if you could help me now please. I followed your advice and was dropping 0.5 of...

Hi you have given me lots of fab advice in the past so I was just wondering if y...

TMenz

•4 years ago

6 Replies

Prednisolone/MTX increase

Hello, I'm worried what an increase from 2.5 Pred straight up to 10 for a month, after which down to 7.5mg, might do to my adrenal glands? I have never had a...

Hello, I'm worried what an increase from 2.5 Pred straight up to 10 for a month,...

Katiecatweazel

•4 years ago

13 Replies

2 Questions

Can GCA effect the vocal chords? .I find it difficult to have a conversation with anyone, more on the phone now sadly , My voice gets feeble and my neck...

Can GCA effect the vocal chords? .I find it difficult to have a conversation wi...

Jane-s

•4 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2021

Prednisolone and loss off smell

Flare again

Outside Support

Rhummy

Efficacy of Covid Vaccine if immune compromised

prednisolone vs. prednisone ?? headache

Bewildered

Stress when dealing with dementia in a loved one.

Spike in PMR symtoms

Dosage reduction

Off Pred

PMR and AstraZeneca Vaccination

At what dose of Pred does ‘moonface’ reduce or disappear?

Worried I may have GCA

New journey

My husband saved my life last week.

Allergic reactions to the Pfizer vaccine are rare

Getting fit!

Carbs?

Actemra and weight

Bad feet

Zoe Covid Symptom Study Webinar

Leflunomide and PMR

Thank you All

HAIR

Hopeful but still keeping fingers crossed!

Omeprazole what if anything do I do?

Operation

Prednisolone/MTX increase

2 Questions

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