Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,270 members • 37,949 posts

All posts for July 2020

Follow up to son who wants to meet with an aquaintance

Thank you so much for all of you who gave me so support on this. Before I talked to him I copied down your words and had my thoughts together as to what I...

Thank you so much for all of you who gave me so support on this. Before I ta...

Mstiles

•4 years ago

17 Replies

SYNACTHEN TEST

I asked my GP for a synacthen test he said that this test can only be authorised by an hospital I assume that this would mean a referral ?

I asked my GP for a synacthen test he said that this test can only be authorise...

JOHNONE28

•4 years ago

17 Replies

Hi Cholesterol

Hello everyone, I’ve just had some blood tests after a bout of Gallstones and it’s revealed I have high cholesterol and high blood platelets. Is this normal...

Hello everyone, I’ve just had some blood tests after a bout of Gallstones and i...

Daisy246

•4 years ago

34 Replies

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Shielding question

When Lockdown started in March I didn’t come into any particular category being 62 and with no illness or condition to suggest I was vulnerable. (Just PMR...

When Lockdown started in March I didn’t come into any particular category being ...

DogAgilityObsessed

•4 years ago

10 Replies

Alendronic Acid and Adcal

Can we stop these at 5 mg if pred?

Daffodilia

•4 years ago

4 Replies

Adrenal Function

Should I ask gp for adrenal function test at lower dose of pred? If so what dose? 3 mg?

Should I ask gp for adrenal function test at lower dose of pred? If so what dose...

Daffodilia

•4 years ago

5 Replies

Fatigue

Hi All Having been on 15mg for the last few weeks I am due to do my first taper tomorrow down to 12.5mg for 4 weeks as long as pains don’t return. 15mg has...

Hi All Having been on 15mg for the last few weeks I am due to do my first taper ...

Hidden

•4 years ago

4 Replies

The difference 0.5mg makes!

I’m well on my way to 7.5mg, then had to have anti-biotics. Pred and the anti-biotics weren’t very happy and some familiar achiness started to make itself...

I’m well on my way to 7.5mg, then had to have anti-biotics. Pred and the anti-bi...

Thelmarina

•4 years ago

2 Replies

Dose reduction, pred. Suggested by GP

Hi all. Still new to all this, but trying to be very pro active with it. Diagnosed GCA. symptoms started 4 weeks go. Been on 60 ml pred. 2.5 weeks. Dr...

Hi all. Still new to all this, but trying to be very pro active with it. Diagn...

Malsy

•4 years ago

8 Replies

Pmr tabs

Hi,have been following post for a while,have lived in Greece the last 16 years,just over 2 years ago after progressive pain in shoulders,thighs,hips make at...

Hi,have been following post for a while,have lived in Greece the last 16 years,j...

reds15

•4 years ago

1 Reply

Should I contact rheumatologist?

Can't get my head round this. 15mg for 2 weeks, 12.5 for 4 weeks and, to date, 20 weeks on 10mg. Extreme fatigue, lethargy and dizziness. I don't know whether...

Can't get my head round this. 15mg for 2 weeks, 12.5 for 4 weeks and, to date, 2...

ChinaWuntoo

•4 years ago

30 Replies

Not the news I wanted

Well - that’s a bit of a bummer - following my recent set of blood tests, I received a phone call from the surgery; in a rather too enthusiastic voice (I...

Well - that’s a bit of a bummer - following my recent set of blood tests, I rece...

Rokerman

•4 years ago

51 Replies

Blue Steroid Card

Morning all, in UK anyway, just a quick question, I have seen in a number of places, including the NHS information, that they issue a Blue Steroid Card, if you...

Morning all, in UK anyway, just a quick question, I have seen in a number of pla...

Bcol

•4 years ago

65 Replies

Popeye Bicep

Well I’ve gone and torn it now, quite literally😩 I have managed to tear the tendon to my bicep and now have the biggest bicep like Popeye. It looks very...

Well I’ve gone and torn it now, quite literally😩 I have managed to tear the ten...

Tuppence55

•4 years ago

3 Replies

Injury then a flare.

I got down to 5mg prednisone then got a knee injury. Approximately 1 week after the knee injury I started having neck and shoulder pain. I am not sure what to...

I got down to 5mg prednisone then got a knee injury. Approximately 1 week after ...

Sadie1024

•4 years ago

14 Replies

DEXA Scan results

I just had my third DEXA Scan results and I am delighted, after 4 years of Prednisalone for PMR and a recent high dose for GCA. The results are described as...

I just had my third DEXA Scan results and I am delighted, after 4 years of Predn...

SheffieldJane

•4 years ago

107 Replies

I am a new PMR victim searching for answers.

I was so happy to find a current blog about PMR. I am in the US and there doesn't seem to be anything like this on the web from here. I recently read that the...

I was so happy to find a current blog about PMR. I am in the US and there doesn'...

Dydee

•4 years ago

81 Replies

Waiting for a diagnosis

Can I ask, has anyone else had trouble getting a diagnosis? I started suffering from terrible pain and stiffness in my neck, shoulders, upper back, hips,...

Can I ask, has anyone else had trouble getting a diagnosis? I started suffering...

Toods

•4 years ago

32 Replies

PMR and now GCA !

I have just been fast tracked and have a diagnosis of GCA. Not what I wanted to hear after just having had PMR for 3.5 years ! But I have a very good...

I have just been fast tracked and have a diagnosis of GCA. Not what I wanted to ...

Pritch60

•4 years ago

10 Replies

Son who I live with wants a new acquaintance to visit.

Has anyone had difficulty with a roommate or live in family member who wants to have an outsider over to visit? I’m in California where Covid is increasing...

Has anyone had difficulty with a roommate or live in family member who wants...

Mstiles

•4 years ago

30 Replies

To wash with soap? Or not ...

I thought I'd throw this into the mix for consideration and comment:...

PMRpro

Ambassador•4 years ago

40 Replies

Still depressed about pain and upping prednisone

I wrote earlier about being in pain and trying to sort out the cause. I was at 8 mg, the lowest I’ve been after 2 1/2 years of PMR/GCA. I had developed...

I wrote earlier about being in pain and trying to sort out the cause. I was...

Mstiles

•4 years ago

67 Replies

Is this a flare?

Had PMR for 4 years and been up and down with pred , responding to return of symptoms . I have been on 5 mg of pred for almost 6 months and felt pretty good....

Had PMR for 4 years and been up and down with pred , responding to return of sym...

York54

•4 years ago

11 Replies

Where have all the rheumies gone ?

I thought it was only in Scotland, but your experience is the same as mine. However take great care with steroids. I was on maximum dosage for sometime due to...

I thought it was only in Scotland, but your experience is the same as mine. How...

Seagu11

•4 years ago

5 Replies

Starting Actemra this week

I have both PMR and GCA . I was Wondering Actemra can also help the PMR. I am currently on 15 mg of Prednisone for the PMR.

I have both PMR and GCA . I was Wondering Actemra can also help the PMR. I am cu...

Darcy2000

•4 years ago

16 Replies

Half mg Pred

I have managed to get to 5 mg from 15 a year ago. Thank you Dorset Lady- your method has worked for me! Everything I've read suggests it would be a good idea...

I have managed to get to 5 mg from 15 a year ago. Thank you Dorset Lady- your me...

Portobello

•4 years ago

45 Replies

Anyone with pmr on prednisone get shortness of breath?

Pmr and shortness of breath

Lukster

•4 years ago

20 Replies

Rheumatologists

Anyone have a similar experience? When I first experienced symptoms of PMR I went to my Primary Care Physician who prescribed 40mg of Prednisone for 6 days,...

Anyone have a similar experience? When I first experienced symptoms of PMR I wen...

bmaschino5

•4 years ago

59 Replies

Flare symptoms

Can flare symptoms be different to the original pain? I have been tapering from 15mg Nov 18 and have made it to 4mg but unfortunately due to circumstances and...

Can flare symptoms be different to the original pain? I have been tapering from ...

Maddy42

•4 years ago

8 Replies

Update

Have succumbed to steroids got to speak to dr again this week to see if working , they are a little bit was hoping to reduce this week but will see what dr...

Have succumbed to steroids got to speak to dr again this week to see if working ...

diduck

•4 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2020

Follow up to son who wants to meet with an aquaintance

SYNACTHEN TEST

Hi Cholesterol

Shielding question

Alendronic Acid and Adcal

Adrenal Function

Fatigue

The difference 0.5mg makes!

Dose reduction, pred. Suggested by GP

Pmr tabs

Should I contact rheumatologist?

Not the news I wanted

Blue Steroid Card

Popeye Bicep

Injury then a flare.

DEXA Scan results

I am a new PMR victim searching for answers.

Waiting for a diagnosis

PMR and now GCA !

Son who I live with wants a new acquaintance to visit.

To wash with soap? Or not ...

Still depressed about pain and upping prednisone

Is this a flare?

Where have all the rheumies gone ?

Starting Actemra this week

Half mg Pred

Anyone with pmr on prednisone get shortness of breath?

Rheumatologists

Flare symptoms

Update

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