Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2015

Bed topper comfort

Have just bought a John Lewis bed topper- the top of the range cost £255 for king size. It is so comfy....wish I'd bought it 3 years ago when PMR started and...

Have just bought a John Lewis bed topper- the top of the range cost £255 for kin...

suzieh

•9 years ago

12 Replies

PMRGCAuk London Support Group meeting - October 26th

When: Monday 26 October 2015, 13:00 – 16:00 Where: Artizan Street Library Ground Floor room 1 Artizan Street London E1 7AF RSVP. It’s really helpful to...

When: Monday 26 October 2015, 13:00 – 16:00 Where: Artizan Street Library Groun...

Green_girl

•9 years ago

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Cautiously optimistic

For a month before my diagnosis, over 4 years ago, I'd had a low backache which I was sure was muscular. It has stayed with me all this time and now, quite...

For a month before my diagnosis, over 4 years ago, I'd had a low backache which ...

Annodomini

•9 years ago

12 Replies

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Doc Martin story line

Was it just me, or was anyone else upset with the PMR/GCA portrayal on this TV show. Aunt Joan seemed to be suffering a slight stiffness in her shoulders and a...

Was it just me, or was anyone else upset with the PMR/GCA portrayal on this TV s...

elainecleary

•9 years ago

11 Replies

Steroid trial

Hi, I had a telephone appointment with my GP today who had recieved a letter from my endo suggesting he thinks i have PMR. I have an appointent to see my GP...

Hi, I had a telephone appointment with my GP today who had recieved a letter fro...

yorkshiregirl44

•9 years ago

11 Replies

Alendronic acid

Hi all, I would really appreciate your views on taking these meds. I went to see my rumy 2 weeks ago and unbeknownst to me he prescribed them and Ad-cal, the...

Hi all, I would really appreciate your views on taking these meds. I went to see...

Angex05

•9 years ago

15 Replies

Hi all, I'm back in the land of the living

Fingers (and toes) crossed I'm feeling relatively well after what has been a very difficult few weeks. Yesterday was first day out of bed - exhausted but felt...

Fingers (and toes) crossed I'm feeling relatively well after what has been a ver...

babssara

•9 years ago

3 Replies

Temporal Arteritis and PMR

Hi all, like most with this problem I am early sixties, but also developed Temporal Arteritis. Although I came away with leaflets, the side effects of 50 mg of...

Hi all, like most with this problem I am early sixties, but also developed Tempo...

lillegirl

•9 years ago

15 Replies

Pain while reducing steroids

I was diagnosed with GCA in August 2014 and have been on steroids since then reducing from 40 mg to 10 mg and on methotrexate. I am very disappointed to be...

I was diagnosed with GCA in August 2014 and have been on steroids since then red...

PenelopeVita-Finzi

•9 years ago

9 Replies

Adcal-D3 caplets

Hi everyone again. Grateful thanks for yesterday's input. Today my query is about taking Adcal-D3 which my surgery has changed from Calcichew. The Calcichew...

Hi everyone again. Grateful thanks for yesterday's input. Today my query is abou...

Sandybo

•9 years ago

6 Replies

PMR AT AGE 38

Hi very new too this and have never posted before. I'm 38 and have just been diagnosed with PMR and I am on 15mg of prednisolone daily. Having a very hard time...

Hi very new too this and have never posted before. I'm 38 and have just been dia...

Belle10

•9 years ago

18 Replies

Dosing pred every other day?

Doc has me dosing 30mg pred every other day. Just diagnosed 4 weeks ago and been on this program a week. Has anyone had experience with this every other day...

Doc has me dosing 30mg pred every other day. Just diagnosed 4 weeks ago and been...

Robnc

•9 years ago

4 Replies

statins & PMR

Reading in the national in the National press this week regarding reports of research that appears ton confirm the adverse side effects that statins can have...

Reading in the national in the National press this week regarding reports of res...

JOHNONE28

•9 years ago

8 Replies

Some advice please

Hi everyone, I don't post very often but am an avid daily reader of the forum which is a lifeline to people like us. Also it has made me realise how lucky I am...

Hi everyone, I don't post very often but am an avid daily reader of the forum wh...

Sandybo

•9 years ago

8 Replies

PMR Disability

Hi Just wanted to share with you all attended work health assessment today with a private medical company due to being of sick for 12 weeks .Very...

Hi Just wanted to share with you all attended work health assessment today wi...

Rose54

•9 years ago

21 Replies

Adrenal Cortex for PMR

Has anyone tried Adrenal Cortex for their PMR. I have been trying to taper down from Methylprednisolone and I was suggested to use Adrenal Cortex because it...

Has anyone tried Adrenal Cortex for their PMR. I have been trying to taper down ...

espolj

•9 years ago

2 Replies

Knee Pain

Hi every one I have had PMR for 8 years am now down to 3.5pred for the second time so I have my fingers crossed. However I have been getting a lot of knee...

Hi every one I have had PMR for 8 years am now down to 3.5pred for the second ti...

lucky12

•9 years ago

9 Replies

Trip to America

I'm going to a big family do in USA soon, my first time in America. I'll be there a fortnight staying in various places. It will be fun and I'm looking forward...

I'm going to a big family do in USA soon, my first time in America. I'll be ther...

DDKRM

•9 years ago

6 Replies

PMR and Lyme disease

In JULY STarted with neck pain, but nothing so terrible. A few weeks later my both arms and back of my both legs began to ache. A few days later I couldn't...

In JULY STarted with neck pain, but nothing so terrible. A few weeks later my b...

987460

•9 years ago

7 Replies

Pmr and lymes disease

I was bitten by deere tick early June. Coincidentally had a physical scheduled with my internest June 12. Exam went great. Blood work excellent. Started...

I was bitten by deere tick early June. Coincidentally had a physical scheduled w...

Robnc

•9 years ago

4 Replies

Ups and Downs

Struggling right now. Long term disability insurance company hasn't reached a decision yet and I'm getting scared about how I'm going to live. Then found out...

Struggling right now. Long term disability insurance company hasn't reached a de...

PamelAnneCT

•9 years ago

2 Replies

Valerie in Lee on the Solent. Diagnosed with PMR in June 2015.

Have found the posts really helpful in understanding this condition. Much improved on 25 mg of Pred, now reduced to 10. Side effects have seriously disturbed...

Have found the posts really helpful in understanding this condition. Much improv...

Valnvaughan

•9 years ago

12 Replies

Any advice on iv bisphosphonates

Hi all, I haven't posted for a while, but I have intently read new posts. I have been diagnosed with PMR (April 2015) and am still stuck on my starting dose of...

Hi all, I haven't posted for a while, but I have intently read new posts. I have...

jane57

•9 years ago

3 Replies

Flareup

I was doing so well and here we go again.!! I have been reducing my pred very slowly since a year ago July. I had it down last week to 8 mg a day after being...

I was doing so well and here we go again.!! I have been reducing my pred very sl...

DeliaGray

•9 years ago

9 Replies

alcohol

Has anybody else had any adverse effects from drinking alcohol, except for the obvious - hangover particularly Scotch whisky, while taking preds.

Has anybody else had any adverse effects from drinking alcohol, except for the o...

Lilymaerose

•9 years ago

17 Replies

Would a fall bring on a flare up

HI I asked you all Weds/Thursday why I should still feel so poorly? And took all your comments on board, really helpful. However, having read the thread about...

HI I asked you all Weds/Thursday why I should still feel so poorly? And took all...

lesley2015

•9 years ago

4 Replies

Need to moan

Now that I fully understand the need to rest and avoid stress, why does life continue to throw stressors my way? Nothing, no matter how simple, ever seems to...

Now that I fully understand the need to rest and avoid stress, why does life con...

HeronNS

•9 years ago

16 Replies

Mrs

Hi, my name is Ange and I've recently been diagnosed with polymyalgia 😢

Angex05

•9 years ago

11 Replies

Newly diagnosed, scary stuff

Hi, I have just been diagnosed about 5 weeks ago. This is all very scary stuff to me as I'm an active 53 year old and now feel like a little old granny. I...

Hi, I have just been diagnosed about 5 weeks ago. This is all very scary stuff...

Angex05

•9 years ago

24 Replies

Severe Rib and Buttock pain.

I have had PMR for a year exactly now and am down from 20mg of Prednisolone to 7mg, which I will stay on for a month. I have developed severe debilitating...

I have had PMR for a year exactly now and am down from 20mg of Prednisolone to 7...

Attic

•9 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2015

Bed topper comfort

PMRGCAuk London Support Group meeting - October 26th

Cautiously optimistic

Doc Martin story line

Steroid trial

Alendronic acid

Hi all, I'm back in the land of the living

Temporal Arteritis and PMR

Pain while reducing steroids

Adcal-D3 caplets

PMR AT AGE 38

Dosing pred every other day?

statins & PMR

Some advice please

PMR Disability

Adrenal Cortex for PMR

Knee Pain

Trip to America

PMR and Lyme disease

Pmr and lymes disease

Ups and Downs

Valerie in Lee on the Solent. Diagnosed with PMR in June 2015.

Any advice on iv bisphosphonates

Flareup

alcohol

Would a fall bring on a flare up

Need to moan

Mrs

Newly diagnosed, scary stuff

Severe Rib and Buttock pain.

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