Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,267 members • 37,934 posts

All posts for March 2017

Spacing the medication!!!

I've been reading about not taking Vit D3 and Calcium at the same time as pred, taking it with something fatty..breaking the Adcal tablets in half!! Someone...

I've been reading about not taking Vit D3 and Calcium at the same time as pred, ...

altywhite

•7 years ago

46 Replies

Chest Xray ?

HI, I wrote some posts on Health Unlocked some time ago when I was living in Nicaragua but on the verge of returning to the UK. I am back now and due to...

HI, I wrote some posts on Health Unlocked some time ago when I was living in Ni...

Hidden

•7 years ago

12 Replies

Some advice please pmrpro and others re reduction of pred

I was diagnosed with pmr end of November - stared on 20 mg pred. Had almost immediate effect. Reduced to 15mg after 4 weeks and to 12.5 by Feb . No real issues...

I was diagnosed with pmr end of November - stared on 20 mg pred. Had almost imme...

Jude62

•7 years ago

9 Replies

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Pred reduction

Hi all hope you had a great day, weather helped. Anyway, I went to gp today because if I try to reduce below 5 mg I get a terrible feeling as though I'm being...

Hi all hope you had a great day, weather helped. Anyway, I went to gp today beca...

JJackdaw

•7 years ago

4 Replies

Dead Slow Nearly Stop

Hi, Would someone be kind enough to let me have the link for this tapering programme. I gave away my hard copy to one of our number at today's "Meet up", and...

Hi, Would someone be kind enough to let me have the link for this tapering progr...

Charlie1boy

•7 years ago

7 Replies

Hydroxychloroquine

Has anyone been prescribed Hydroxychloroquine with Predisnolone? And if so jave you experienced any after effects? I have been one Predisnolone for about a...

Has anyone been prescribed Hydroxychloroquine with Predisnolone? And if so jave ...

suracon

•7 years ago

11 Replies

Pain when reducing Pred

Hi I was diagnosed with PMR in July 2016 and all symptoms disappeared overnight after being prescribed 25mg of pred. I've been reducing very slowly and am...

Hi I was diagnosed with PMR in July 2016 and all symptoms disappeared overnight ...

ALLYMAC88

•7 years ago

6 Replies

An article about living with autoimmune disorders

This was posted over on the LupusUK forum this morning. I think it is worth the read to put autoimmune illness into the context of living:...

This was posted over on the LupusUK forum this morning. I think it is worth the ...

PMRpro

Ambassador•7 years ago

4 Replies

Sweating

Hi - so it's me again to ask a question of the more experienced on here: I started on 20mg for 6 weeks, tapered to 17.5 and am doing 15 this week (Started...

Hi - so it's me again to ask a question of the more experienced on here: I start...

Slosh

•7 years ago

9 Replies

Long time

Hi all, have been a PMR sufferer for 6 years now. Seem to manage the disease on 3 to 4 mg of Pred, but can't seem to taper any more. I eat well and walk...

Hi all, have been a PMR sufferer for 6 years now. Seem to manage the disease on ...

PMR2011

•7 years ago

24 Replies

Lowering prednisone

I need some input please. I am currently at prednisone 14 mg from 30 mg. I have so much fatigue I could sleep 24 hours a day is this normal as you lower your...

I need some input please. I am currently at prednisone 14 mg from 30 mg. I have ...

nancyannehanson

•7 years ago

8 Replies

Next London Group Meeting

Could someone let me know the date of the next London Group Meeting please Greenheath

Could someone let me know the date of the next London Group Meeting please Green...

greenheath

•7 years ago

5 Replies

glad and sad........gca..

Today I took leave of my lovely Neuro, who has been such a kind, understanding, friendly man. Not my decision. Have been with him 12 years, and used to live...

Today I took leave of my lovely Neuro, who has been such a kind, understanding, ...

karools16

•7 years ago

9 Replies

Prednisolone side effects

Been on prednisolone for 3 weeks now and wondered if I am going to get any side effects when will it be.

Been on prednisolone for 3 weeks now and wondered if I am going to get any side ...

Koalajane

•7 years ago

7 Replies

Tocilizumab

Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have...

Does anyone have any experience of having been given this drug (by intravenous i...

Tonylynn

•7 years ago

3 Replies

Steroids and alendronic acid

I have been having troubles with my legs being painful and weak enough to collapse. I was diagnosed as having vitamin d deficiency. My doctor has been...

I have been having troubles with my legs being painful and weak enough to collap...

Koalajane

•7 years ago

11 Replies

GCA fear

Reading the posts on this forum has been a great support, knowing there are people out there who understand what it means to have this dreadful disease is a...

Reading the posts on this forum has been a great support, knowing there are peop...

Jean56

•7 years ago

21 Replies

I am out of bed flu gone

No I won't be going anywhere for a few more days . I mostly wanted to share the distinction between PMR and the flu. It was as if they said you get this...

No I won't be going anywhere for a few more days . I mostly wanted to share th...

Hidden

•7 years ago

5 Replies

Brain fog

i have seen a lot of people on this forum talk about "brain fog", while taking prednisone, can some of you elaborate on that, is it just your head, or does...

i have seen a lot of people on this forum talk about "brain fog", while taking p...

arvine

•7 years ago

8 Replies

Something just heard a doctor say.

Watching GP's behind closed doors and one of the doctors said sugar plays havoc with your immune system. Interesting.

Watching GP's behind closed doors and one of the doctors said sugar plays havoc ...

Stroppymoo

•7 years ago

6 Replies

Medical Students learning about GCA

My GP spends some of his week teaching medical students at Norwich University Hospital. He contacted me to ask if I would agree to be interviewed by some...

My GP spends some of his week teaching medical students at Norwich University Ho...

rosalinda

•7 years ago

7 Replies

Morning or evening dose?

I've read on this forum that some people get benefit from taking their daily dose of pred before bed or even at 2am when the cytokines kick off, so last night...

I've read on this forum that some people get benefit from taking their daily dos...

Zebedee44

•7 years ago

6 Replies

Finally at 30 numbers stop rising

Finally at 30 numbers stop rising. Went from normal at 11 then at 10 things went haywire. Went back to 12 and 20 and then 30 mg. Finally at 30 mg ESR is 37...

Finally at 30 numbers stop rising. Went from normal at 11 then at 10 things we...

Nap1

•7 years ago

5 Replies

New PMRGCAuk Phone Group

Have you been diagnosed with PMR in the last 6 months? Would you like to participate in our pilot phone group? You will also need to be in the UK with access...

Have you been diagnosed with PMR in the last 6 months? Would you like to partici...

Hidden

•7 years ago

Be the first to reply

Liz Smith

Having been diagnosed in November 2016, was started on 20 mgs, then reduced after 1 month to 15, then after another month to 10. Now have been on 9 for a...

Having been diagnosed in November 2016, was started on 20 mgs, then reduced afte...

LizSmith

•7 years ago

12 Replies

Allergic reaction

Good morning everyone Surprisingly I didn't die in the chair as predicted by the expert private Practice in Cardiff and the tooth was extracted easily since...

Good morning everyone Surprisingly I didn't die in the chair as predicted by the...

EdithWales

•7 years ago

9 Replies

Ambivalent

Greetings everyone! I'm new here! I'm really grateful to have discovered this forum. 2 days ago, I was diagnosed with PMR. for months I've had these...

Greetings everyone! I'm new here! I'm really grateful to have discovered this fo...

Usauna

•7 years ago

19 Replies

Really need sorting out!

Which is worst for PMR, I drink and get drunk about 3x a week. I smoke roll ups about 8 to 12 per day. Same as b4 pmr. Hate my job, which is my exercise,...

Which is worst for PMR, I drink and get drunk about 3x a week. I smoke roll ups...

Stroppymoo

•7 years ago

11 Replies

Reducing steroids while taking Leflunomide

Hi all I know a few people were following how I was coping with reducing pred while taking Leflunomide, well since last October have been trying to reduce from...

Hi all I know a few people were following how I was coping with reducing pred wh...

valrene

•7 years ago

28 Replies

advice as to what to do now

i have had pmr for a year now, i was down to 8mg prednislone in jan when i got a cold, which i think caused a flare, as i had a moment of double vision in the...

i have had pmr for a year now, i was down to 8mg prednislone in jan when i got a...

jac-s

•7 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2017

Spacing the medication!!!

Chest Xray ?

Some advice please pmrpro and others re reduction of pred

Pred reduction

Dead Slow Nearly Stop

Hydroxychloroquine

Pain when reducing Pred

An article about living with autoimmune disorders

Sweating

Long time

Lowering prednisone

Next London Group Meeting

glad and sad........gca..

Prednisolone side effects

Tocilizumab

Steroids and alendronic acid

GCA fear

I am out of bed flu gone

Brain fog

Something just heard a doctor say.

Medical Students learning about GCA

Morning or evening dose?

Finally at 30 numbers stop rising

New PMRGCAuk Phone Group

Liz Smith

Allergic reaction

Ambivalent

Really need sorting out!

Reducing steroids while taking Leflunomide

advice as to what to do now

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