Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for November 2024

Pred head or spacing out

How to word this title …not sure Doing Math , financial stuff ..feeling quite with it that way 5 years Prednisone currently 10 mg …also Methyltrexate 25...

How to word this title …not sure Doing Math , financial stuff ..feeling quite ...

Darcy2000

•8 hours ago

2 Replies

Update

I saw the rheumatologist this morning and I liked her a lot. She diagnosed shoulder impingement with a possibility of PMR. She has asked for further tests and...

I saw the rheumatologist this morning and I liked her a lot. She diagnosed shoul...

LadyJayne68

•12 hours ago

5 Replies

More good news: GP appointment

I saw a GP in person this week for the first time in ages and she was great. Gave me a full 20 minutes and really listened 😊 She accepts that i am having...

I saw a GP in person this week for the first time in ages and she was great. Gav...

Nextoneplease

•12 hours ago

11 Replies

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cataract surgery and prednisone dose and Actemra infusion

Hi again everyone. Last time I posted I had had a relapse of the GCA after having to pause the Actemra infusions due to pneumonia and sepsis. I am now back on...

Hi again everyone. Last time I posted I had had a relapse of the GCA after havin...

Kt1943

•12 hours ago

2 Replies

Blue Badge : good news

Hi, thought I’d just share that as my mobility has got very poor , I applied recently for a Blue Badge (which enables parking in spaces for the disabled, on...

Hi, thought I’d just share that as my mobility has got very poor , I applied rec...

Nextoneplease

•13 hours ago

13 Replies

uti infection

Hi I have been on antibiotics for a uti, first one didn’t do anything now on trimethoprim. I know steroids make it hard sometimes to fight off infections but...

Hi I have been on antibiotics for a uti, first one didn’t do anything now on tri...

lennysmummy

•14 hours ago

21 Replies

Tapering advice please

Would be so grateful for your help. When PMR hit in February 2023 thought I’d be off steroids in a couple weeks how foolish was I….. Prescribed Prednisolone...

Would be so grateful for your help. When PMR hit in February 2023 thought I’d be...

Westland1

•15 hours ago

14 Replies

Grieving

Grieving has hit me like a sledge hammer as my wife passed away in 8 short weeks she had deteriorated reso much she had to go int a hospice after being in...

Grieving has hit me like a sledge hammer as my wife passed away in 8 short weeks...

Doublef

•18 hours ago

12 Replies

Thank you so much

I just want to say thank you to everyone who has responded to my pleas for help, information or just been a sympathetic ear to my moaning. My health has just...

I just want to say thank you to everyone who has responded to my pleas for help,...

Strippy

•2 days ago

6 Replies

Pros and Cons about methotrezate

been prescribed methtrexate by rheumy for painful what MRI s and exray few mos ago showed osteoarthris,back, hip, hands( now have been booked for hip...

been prescribed methtrexate by rheumy for painful what MRI s and exray few mos a...

arvine

•2 days ago

9 Replies

Adrenal Glands Waking Up ???

Are there any obvious symptoms we will notice to suggest our Adrenal Glands are coming back to life? I understand this could happen around 7.5mg of Pred and...

Are there any obvious symptoms we will notice to suggest our Adrenal Glands are ...

Golf-1

•2 days ago

15 Replies

Overheard in Waitrose (conversation about how long PMR lasts)

I overheard two ladies having a conversation in a shop recently along the lines of "he's got something called polymyalgia and the doctor says if it isn't gone...

I overheard two ladies having a conversation in a shop recently along the lines ...

tangocharlie

•2 days ago

64 Replies

Stopping Actemera

I broke three ribs months ago, had complications so I had been off Actemera for over two months with no affects. Last month I went for my first infusion after...

I broke three ribs months ago, had complications so I had been off Actemera for ...

Plains

•2 days ago

9 Replies

Update to my fingers swelling problem

Well, yesterday, I had a full hand x-ray, which I won't get the result for just yet, but my GP also added a urate test to my usual CRP and ESR blood test. ESR...

Well, yesterday, I had a full hand x-ray, which I won't get the result for just ...

Purplegloss

•2 days ago

22 Replies

aneurysm

So yesterday got home to a letter from Neurovascular who had seen my scans for GCA and apparently now I have a small aneurysm in one of the arteries in my head...

So yesterday got home to a letter from Neurovascular who had seen my scans for G...

Missbisous

•2 days ago

5 Replies

Headaches while tapering

Hi you lovely people I'm once again looking for your advice.My mum who as you know is 87 with PMR GCA and has been doing really well tapering by 1/2 mg with no...

Hi you lovely people I'm once again looking for your advice.My mum who as you kn...

Buchanan16

•2 days ago

5 Replies

Follow up!

My husband is now home but the dr.called me yesterday to say he has a blockage.Iam assuming that would be in heart.The Dr is arranging an appointment now with...

My husband is now home but the dr.called me yesterday to say he has a blockage.I...

Hunter134

•2 days ago

4 Replies

CRP high

completely flummoxed, any suggestions? Have been off Actemra for 6 months. Have generally been feeling good. No symptoms of PMR. Do get slightly hoarse with...

completely flummoxed, any suggestions? Have been off Actemra for 6 months. Have...

PMR2011

•2 days ago

5 Replies

Tocilizumab after one year

Hi there I’ve had GCA for two years and been prescribed Tocilizumab for the last year I’m just coming up to the last 3 injections my consultant has told me...

Hi there I’ve had GCA for two years and been prescribed Tocilizumab for the las...

JcDc527980

•2 days ago

11 Replies

Rheumy appt

As I mentioned in my post yesterday about my ongoing stomach pain, I got a surprise appt with an NHS rheumy, a consequence of the GP referral in Aug 23. Had to...

As I mentioned in my post yesterday about my ongoing stomach pain, I got a surpr...

Indigo2417

•3 days ago

8 Replies

visual disturbances

hi I just had a what I’d describe as visual disturbances lasted about 10-15 minutes- I sat down rested and took an extra 1mg Pred (I’m tapering presently on...

hi I just had a what I’d describe as visual disturbances lasted about 10-15 minu...

Beebo8

•3 days ago

5 Replies

possible adrenal crisis?

2 nights ago I had severe pain both sides low mid abdomen, it reminded me of ovary pain years ago but was higher. It was so very bad I was hesitating to...

2 nights ago I had severe pain both sides low mid abdomen, it reminded me of ova...

Molly555

•3 days ago

4 Replies

Sore throat - update

Regarding my previous post wondering if my sore throat could be linked to PMR or pred. I managed to get an appointment Monday to see a GP (but not my usual...

Regarding my previous post wondering if my sore throat could be linked to PMR or...

Strippy

•3 days ago

28 Replies

PMR - prednisolone - arthritis - other symptoms.

With a variety of symptoms, including 'pins and needles' in my feet, leg and hip pain, general aches and pains ( on top of my existing asthma, levothyroxine...

With a variety of symptoms, including 'pins and needles' in my feet, leg and hip...

Meriadoc

•3 days ago

11 Replies

Looking back

I have eyes in the back of my head, I am always looking backwards wishing things were different and they are not, they never can be. I miss so much. I am going...

I have eyes in the back of my head, I am always looking backwards wishing things...

LadyJayne68

•3 days ago

36 Replies

diagnosis at last and methotrexate

hello everyone, thank you for your support over the last eight months. I saw the consultant rheumatologist yesterday and he confirmed that he thought it was...

hello everyone, thank you for your support over the last eight months. I saw th...

JessJess21

•3 days ago

4 Replies

Is PMR back?

I have been in 'remission' for almost a year now, finally getting off the prednisolone in January.I had a catheter ablation in March this year for atrial...

I have been in 'remission' for almost a year now, finally getting off the predni...

Karendeena

•3 days ago

14 Replies

What can I take for this pain?

I am currently on 4mg Pred for GCA having tapered down from 60mg. Seem to be doing OK on a very slow taper. Problem is I think I have injured my neck/shoulder...

I am currently on 4mg Pred for GCA having tapered down from 60mg. Seem to be doi...

Janeval

•3 days ago

21 Replies

Pmr headaches on top of head

Got doc appointment today as I've been getting headaches on top of head and losing my hearing in left ear I'm on prenisalone 10mg and really scared fir gsa...

Got doc appointment today as I've been getting headaches on top of head and losi...

Polym

•3 days ago

6 Replies

Actemra infusions

I have discussed my journey with PMR and GCA a few times here. February will mark 5 years since I was diagnosed, though I'm sure I had it for 2 years before I...

I have discussed my journey with PMR and GCA a few times here. February will mar...

Cgt1151

•3 days ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2024

Pred head or spacing out

Update

More good news: GP appointment

cataract surgery and prednisone dose and Actemra infusion

Blue Badge : good news

uti infection

Tapering advice please

Grieving

Thank you so much

Pros and Cons about methotrezate

Adrenal Glands Waking Up ???

Overheard in Waitrose (conversation about how long PMR lasts)

Stopping Actemera

Update to my fingers swelling problem

aneurysm

Headaches while tapering

Follow up!

CRP high

Tocilizumab after one year

Rheumy appt

visual disturbances

possible adrenal crisis?

Sore throat - update

PMR - prednisolone - arthritis - other symptoms.

Looking back

diagnosis at last and methotrexate

Is PMR back?

What can I take for this pain?

Pmr headaches on top of head

Actemra infusions

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