Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,054 posts

All posts for May 2023

I'm dragging 'my you know what' Low pred? Adrenals?

Hello all, I'm down to 3mg of pred and holding at that until I return from an anticipated trip to Canada before tapering some more. I'll witness my first...

Hello all, I'm down to 3mg of pred and holding at that until I return from an an...

Grammy80

•11 months ago

24 Replies

Achy legs

My PMR feels OK in the morning unless I overdo my physical activity the day before. Then I feel terrible for most of the next day. Is this normal or is this...

My PMR feels OK in the morning unless I overdo my physical activity the day befo...

Seal49

•11 months ago

9 Replies

In a quandary!

Just for background, PMR since last 2010, later diagnosed as Late Onset Rheumatoid Arthritis with PMR prodome. Started on 15mg pred, and have recently got to...

Just for background, PMR since last 2010, later diagnosed as Late Onset Rheumato...

Lizzery

•11 months ago

8 Replies

Want to take advantage of all our features? Just log in!

Going on holidays soon

For got to say down to 3 1/2 mg

Harrywogan

•11 months ago

Be the first to reply

Feeling so low

Hi all today IAM feeling so low for no reason for it so IAM thinking Adrenals coming to life, nobody understand stands unless you have this condition hubby...

Hi all today IAM feeling so low for no reason for it so IAM thinking Adrenals co...

Harrywogan

•11 months ago

16 Replies

PMR and Osteopenia

Evening everyone, Last time I posted I think I was struggling with Alendronic Acid weekly. Saw the rheumy again and now I am to have an annual infusion of...

Evening everyone, Last time I posted I think I was struggling with Alendronic Ac...

annieg1890

•11 months ago

8 Replies

PMRGCAuk Webinars

If anyone has registered for the webinars for Awareness Week - check your Spam folder. Gmail decided it looked dangerous and could be stealing information!!!...

If anyone has registered for the webinars for Awareness Week - check your Spam f...

PMRpro

Ambassador•11 months ago

3 Replies

Second year report

It might be of interest to read my relatively banal account of ‘progress’ after two years, just up. PMR has not, of course, gone away. I am now on 3.5 mg...

It might be of interest to read my relatively banal account of ‘progress’ after ...

SID3

•11 months ago

11 Replies

Macular Degeneration and PMR

Hi, Several months ago, my mum was diagnosed with PMR and has been taking Prednisolone (initially 15 mg, now 10 mg after a taper). Unfortunately, her vision...

Hi, Several months ago, my mum was diagnosed with PMR and has been taking Pre...

Helpingmum

•11 months ago

24 Replies

Pred for life

Diagnosed with PMR October 2019 , moved to Cyprus in September 2022 . I am continually attempting to taper off pred and am currently alternating 5mg to 4.5mg ....

Diagnosed with PMR October 2019 , moved to Cyprus in September 2022 . I am conti...

Hampit54

•11 months ago

60 Replies

Decreasing Prednisone,Major Problems

I’m a 79 year old women! Started withdrawals from prednisone after 20 something years on this drug! From15 mg to 10 mg for one week then decrease to 5 mg and...

I’m a 79 year old women! Started withdrawals from prednisone after 20 something ...

Nanof3

•11 months ago

16 Replies

thank you!

We’ve just had a helpful telephone call with Roddy Hughes. He said I was right and mum had most likely flared. I am so thankful that this site has given me...

We’ve just had a helpful telephone call with Roddy Hughes. He said I was right a...

RT18

•11 months ago

4 Replies

Pred update

Hi Everyone. After feeling all the usual symptoms in my last post...dizzy, woozy, fatigued etc, and the rheumy expectation that I should alternate 5 and 4 for...

Hi Everyone. After feeling all the usual symptoms in my last post...dizzy, woozy...

Temoral

•11 months ago

7 Replies

Lymphedema

Lymph nodes all removed in left groin. Now have swollen left leg.

Raymundo

•11 months ago

7 Replies

Rosuvastatin Calcium 20mg for High Cholesterol

I picked up my Rx on May 2, 2023 and just yesteday the pharmacy called to see if I needed a refill. I fessed up and told her I had not started taking it...

I picked up my Rx on May 2, 2023 and just yesteday the pharmacy called to see if...

Missus835

•11 months ago

10 Replies

Managing glucose spikes

In case you haven't seen it, a new book by a biochemist on managing spikes. She gave her 3 top tips on TV. 1 Have a savoury not a sweet breakfast - otherwise...

In case you haven't seen it, a new book by a biochemist on managing spikes. She...

Viveka

•11 months ago

40 Replies

probiotics for people with a compromised immune system.

https://www.medscape.com/viewarticle/992453 Having just bought various forms of probiotic to support me while taking antibiotics, this article gave me pause...

https://www.medscape.com/viewarticle/992453 Having just bought various forms of...

SheffieldJane

•11 months ago

40 Replies

P M R

what does P M R stand for ?

TinaAird48

•11 months ago

8 Replies

I discovered Metoprolol may cause arthralgia- myalgia

https://www.the-rheumatologist.org/article/case-report-metoprolol-induced-arthralgia/ I decided to not take that beta-blocker anymore. I still will take...

https://www.the-rheumatologist.org/article/case-report-metoprolol-induced-arthra...

sdowney717

•11 months ago

6 Replies

Dr Tim Spector says we are “mugs” buying supplements

At the Hay Festival, Tim Spector gave a talk on supplements and says that 99% have no effect at all. He did say B12 for vegans and vit D were OK, but the rest...

At the Hay Festival, Tim Spector gave a talk on supplements and says that 99% ha...

piglette

•11 months ago

82 Replies

Prednisone and the ongoing dental adventure

After my alarming experience of feeling majorly shaky during and after an orthodontist appointment a couple of weeks ago, I took an extra .5 mg pred this...

After my alarming experience of feeling majorly shaky during and after an orthod...

HeronNS

•11 months ago

3 Replies

increase not enough?

i increased my husbands Prednisone to 10mg from 1.5 . Achiness/pain disappeared and most of the exhaustion and tingling in feet has disappeared but he is...

i increased my husbands Prednisone to 10mg from 1.5 . Achiness/pain disappeared...

Utaker

•11 months ago

9 Replies

Tapering from 1mg

on Thursday I saw my GP with an issue, then mentioned Iwas still on 1 mg of Prednisolone, could I now come off it. He said yes that’s really a nothing amount...

on Thursday I saw my GP with an issue, then mentioned Iwas still on 1 mg of Pred...

marigoldb

•11 months ago

26 Replies

GCA flair?

I have been on Actemra since October. I recently reduced my prednisone to 1mg a day. I am starting to get sharpe pain, they only last for a second but come and...

I have been on Actemra since October. I recently reduced my prednisone to 1mg a ...

Plains

•11 months ago

8 Replies

Dental Implant

Joining my sans eyes, two cataracts and sans teeth , a tooth literally broke off in Majorca Airport and despite a local dentist making me a false one and...

Joining my sans eyes, two cataracts and sans teeth , a tooth literally broke off...

EdithWales

•11 months ago

21 Replies

Scans

Hi.just want to know what a demand scan is.do.thanks.

Flosy

•11 months ago

1 Reply

Correct level of Pred?

I can’t find the answer to my question on the site so apologies if it is there somewhere. Diagnosed early April 2023, responded immediately to 15mg Pred,...

I can’t find the answer to my question on the site so apologies if it is there s...

Jancy2

•11 months ago

6 Replies

Eye bleed and blurred vision

Hello everyone, I am having such a hard time these past months. i was seeing floaters and distorted shapes out of the side of my eyes. I was sent to an...

Hello everyone, I am having such a hard time these past months. i was seeing fl...

Sally001

•11 months ago

10 Replies

Tapering with new issues ongoing

Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious...

Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply w...

arvine

•11 months ago

23 Replies

joints clicking?

Hi everyone. Not quite sure how to describe recent symptoms ( not even sure that symptoms is the right word). I’ve been feeling and hearing what sound like...

Hi everyone. Not quite sure how to describe recent symptoms ( not even sure that...

Ana-16

•11 months ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2023

I'm dragging 'my you know what' Low pred? Adrenals?

Achy legs

In a quandary!

Going on holidays soon

Feeling so low

PMR and Osteopenia

PMRGCAuk Webinars

Second year report

Macular Degeneration and PMR

Pred for life

Decreasing Prednisone,Major Problems

thank you!

Pred update

Lymphedema

Rosuvastatin Calcium 20mg for High Cholesterol

Managing glucose spikes

probiotics for people with a compromised immune system.

P M R

I discovered Metoprolol may cause arthralgia- myalgia

Dr Tim Spector says we are “mugs” buying supplements

Prednisone and the ongoing dental adventure

increase not enough?

Tapering from 1mg

GCA flair?

Dental Implant

Scans

Correct level of Pred?

Eye bleed and blurred vision

Tapering with new issues ongoing

joints clicking?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive