Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for September 2013

PMR or Not PMR Who Knows ? Especially when your specialist goes on a sabbatical for 12 months.

Hi to all. some of you in the past may have seen some of my posts about whats been happening so here is an update, I have been having treatment for PMR for...

Hi to all. some of you in the past may have seen some of my posts about whats b...

Bell4796

•11 years ago

15 Replies

REFERRAL TO RHEUMATOLOGIST

3 1/2 years ago when I lost the sight of my right eye to GCA I asked my GP to refer me to a Rheumatologist. He said there was at least a 3 month waiting so I...

3 1/2 years ago when I lost the sight of my right eye to GCA I asked my GP to re...

hwigston

•11 years ago

16 Replies

My PMR started last year after flu jab I am due to have another next month and shingles jab, should I risk it?

Appleby

•11 years ago

27 Replies

Want to take advantage of all our features? Just log in!

I have been given a chance to have a consultation by a chiropractor-has anyone else found this helpful? I have lupus/fibromyalgia

I do have lower back pain/pelvic pain/sciatica,wondered if it would help

senorascully

•11 years ago

5 Replies

I have had GCA and Polymyalgia for almost two months. My question is can you fly with it? I am hoping to go to Canada next spring.

Freeman12

•11 years ago

8 Replies

Desperate to get help for these terrible hot flushes that happen every 30 minutes with excessive sweating on 30mg steroids will it improve?

These temperatures and sweating are making my life a misery -Has anyone found that by lowering the steroids that this problem improves - I can't sleep as I am...

These temperatures and sweating are making my life a misery -Has anyone found th...

Healthhopes

•11 years ago

16 Replies

Hello, does anyone get hot flushes - like meneopausal ones- sorry to any males reading this! NB. I'm 63, so have discounted that!

annihami

•11 years ago

12 Replies

Does anyone with GCA find that cold weather/wind makes their jaw/facial pain worse?

Any information gratefully received!

Hidden

•11 years ago

31 Replies

What am I going to do?

Now down to 11mg pred and my mobility is not good i also have pain in my knee and I know I have osteoarthritis in my right knee , I was trying to remain...

Now down to 11mg pred and my mobility is not good i also have pain in my knee an...

lynabelle

•11 years ago

15 Replies

Increased my steroids at present (separated from other thread)

Ive separated this from my other thread as it appeared to mainly concern another person after the first three posts. Are there any guidelines for when a new...

Ive separated this from my other thread as it appeared to mainly concern another...

missrat

•11 years ago

7 Replies

whole rib /chest ache,pain when sitting back in chair, fatigue,generally feeling unwell. Dont want to go back ,comments appreciated

July'12,PMR,20mg,3 sessions to reduce-too fast.Since Mar. when at 20mg have been reducing at 1/2mg 2weeks,only gen.OK but had 2sessions-1/2 mg month.Now at...

July'12,PMR,20mg,3 sessions to reduce-too fast.Since Mar. when at 20mg have been...

Hidden

•11 years ago

10 Replies

Have pain (like a burning pain) in left upper arm but no stiffness am on 12.5mg steroids could this be a flare-up?

I am 56 diagnosed ten weeks ago. Inflammation levels were 79, had MRI scan on hips which showed massive inflammation also had extreme pain and stiffness in...

I am 56 diagnosed ten weeks ago. Inflammation levels were 79, had MRI scan on h...

Bracken12

•11 years ago

7 Replies

Does anyone else get bouts of thrush caused by steroids?

At the moment I am suffering from an unpleasant bout of oral thrush which my GP puts down to taking prednisolone. I have been given a course of tablets but...

At the moment I am suffering from an unpleasant bout of oral thrush which my GP ...

Loco99

•11 years ago

9 Replies

I wondered where you all felt most pain with PMR?

I am diagnosed with atypical PMR and have severe pain in my buttocks and thighs, but only a little shoulder pain. I also have disc degeneration in my lumbar...

I am diagnosed with atypical PMR and have severe pain in my buttocks and thighs,...

missrat

•11 years ago

4 Replies

Confused

I am so confused with these symptoms. I have GCA, polymyalgia and cervical spondylitis, only been diagnosed about 6 weeks. I have gone from 40mg to 30 over...

I am so confused with these symptoms. I have GCA, polymyalgia and cervical spond...

Freeman12

•11 years ago

2 Replies

New academic article on Giant Cell Arteritis

Hello everyone! Those of you with a penchant for reading scientific journals might like to have a look at this latest review article on GCA, authored by...

Hello everyone! Those of you with a penchant for reading scientific journals mi...

Polywotsit

PMRGCAuk team member•11 years ago

6 Replies

Alternative treatment?

I am an Holistic Therapist and have been approached by an 89 year old who is looking to try an alternative approach for polymyalgia. As I am not familiar with...

I am an Holistic Therapist and have been approached by an 89 year old who is loo...

healthyone12

•11 years ago

8 Replies

Severe buttock and thigh pain whenever I reduce my steroid dose

In April I was having primarily buttock and thigh pain and stiffness, plus a little shoulder pain and stiffness. At that point the pain sometimes made it hard...

In April I was having primarily buttock and thigh pain and stiffness, plus a lit...

missrat

•11 years ago

20 Replies

Blood results and tendonitis

I had the results of my regular blood test this morning: CRP has gone up from 15 to 21; ESR still OK at 12. The rise in CRP could be caused by an infection or...

I had the results of my regular blood test this morning: CRP has gone up from 15...

Annodomini

•11 years ago

4 Replies

Is amourosis fugax a TIA or mini stroke.?

Im on high pred 35 mg at mo been on 80 ,ive giant cell vasculitis symptoms not dia of gca.Also on blood thinner for poss aps hughes.Ive slowed right down my...

Im on high pred 35 mg at mo been on 80 ,ive giant cell vasculitis symptoms not d...

mickt

•11 years ago

4 Replies

CONFUSED Re: ESR Blood test results after an initial diagnosis from osteopath of PMR!

I was referred to an osteopath for the pain that I had made a GP appt for, stating it could be peripheral nerve problem, osteopath disagreed and said he thinks...

I was referred to an osteopath for the pain that I had made a GP appt for, stati...

antiglo

•11 years ago

13 Replies

How much notice to take of ESR and CRP levels?

I started to take Methotrexate in May and my levels were: ESR around 20-22 and CRP around 14-17. In July, as the Methotrexate kicked in ( or so I thought) they...

I started to take Methotrexate in May and my levels were: ESR around 20-22 and C...

suzy1959

•11 years ago

8 Replies

Calf pains

I am getting bad calf pains and swelling, but only in one leg, it getting really painful to walk now, feels like muscle strain but I know it's not that, is...

I am getting bad calf pains and swelling, but only in one leg, it getting really...

Hidden

•11 years ago

26 Replies

Strontium Ranelate (Protelos)

Is anyone taking or have taken the above? Can anyone tell me anything about it. Wendy

Is anyone taking or have taken the above? Can anyone tell me anything about it. ...

kingharold11

•11 years ago

3 Replies

Can any one tell me please what the Recommended pattern is for coming down off steroids,at the moment I am on 17.5 & 16 starting Monday,

ritter

•11 years ago

10 Replies

What is or where can I find an anti-inflammatory diet. I had taken Prednisone for 1 1/2 yr

lkloster

•11 years ago

6 Replies

Does Prednisolone make your hair fall out?

I could thatch a roof with what I have left every time I brush my hair, I didn't have this problem before and my hair feels a lot thinner to the touch, it used...

I could thatch a roof with what I have left every time I brush my hair, I didn't...

DazedAndConfused

•11 years ago

21 Replies

Any one taking Methorexate for Pmr and Gcr i am now on 5mg predinosolone daily ,and have been on MTX for a year .Thank you

2watsons

•11 years ago

2 Replies

Hi all, just went on the forum to see the replies to a question about stopping the prednisone because of the side effects.

Why has it been deleted? I was very interested to see the replies, because I have many side effects. Regards Buenavista

Why has it been deleted? I was very interested to see the replies, because I ha...

Buenavista

•11 years ago

3 Replies

Could I have something else apart from PMR,GCA and Fibromyalgia?

My symptoms began in May 2011 with small painful lumps under the skin on my forehead, which quickly spread to the rest of my head, then down my neck and into...

My symptoms began in May 2011 with small painful lumps under the skin on my fore...

DazedAndConfused

•11 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2013

PMR or Not PMR Who Knows ? Especially when your specialist goes on a sabbatical for 12 months.

REFERRAL TO RHEUMATOLOGIST

My PMR started last year after flu jab I am due to have another next month and shingles jab, should I risk it?

I have been given a chance to have a consultation by a chiropractor-has anyone else found this helpful? I have lupus/fibromyalgia

I have had GCA and Polymyalgia for almost two months. My question is can you fly with it? I am hoping to go to Canada next spring.

Desperate to get help for these terrible hot flushes that happen every 30 minutes with excessive sweating on 30mg steroids will it improve?

Hello, does anyone get hot flushes - like meneopausal ones- sorry to any males reading this! NB. I'm 63, so have discounted that!

Does anyone with GCA find that cold weather/wind makes their jaw/facial pain worse?

What am I going to do?

Increased my steroids at present (separated from other thread)

whole rib /chest ache,pain when sitting back in chair, fatigue,generally feeling unwell. Dont want to go back ,comments appreciated

Have pain (like a burning pain) in left upper arm but no stiffness am on 12.5mg steroids could this be a flare-up?

Does anyone else get bouts of thrush caused by steroids?

I wondered where you all felt most pain with PMR?

Confused

New academic article on Giant Cell Arteritis

Alternative treatment?

Severe buttock and thigh pain whenever I reduce my steroid dose

Blood results and tendonitis

Is amourosis fugax a TIA or mini stroke.?

CONFUSED Re: ESR Blood test results after an initial diagnosis from osteopath of PMR!

How much notice to take of ESR and CRP levels?

Calf pains

Strontium Ranelate (Protelos)

Can any one tell me please what the Recommended pattern is for coming down off steroids,at the moment I am on 17.5 & 16 starting Monday,

What is or where can I find an anti-inflammatory diet. I had taken Prednisone for 1 1/2 yr

Does Prednisolone make your hair fall out?

Any one taking Methorexate for Pmr and Gcr i am now on 5mg predinosolone daily ,and have been on MTX for a year .Thank you

Hi all, just went on the forum to see the replies to a question about stopping the prednisone because of the side effects.

Could I have something else apart from PMR,GCA and Fibromyalgia?

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