Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,054 posts

All posts for August 2022

Voice

Hi Had a stinking cold a month ago and my voice was really hoarse . Now a month later I’m fine but at night my voice goes hoarse. . Fine in the day is this...

Hi Had a stinking cold a month ago and my voice was really hoarse . Now a mon...

Vito5566

•2 years ago

9 Replies

Omeprazole

Hi all,I never bothered with omeprazole much until a few weeks ago when I started to get a bit of discomfort. Now I've been taking 20 mgs for a few...

Hi all,I never bothered with omeprazole much until a few weeks ago when I star...

Exhiker

•2 years ago

6 Replies

flare advice

Hi. I had tapered down to 2.5mg after 5 years of polymyalgia. However, hand and wrist joints were a bit painful. I then tried to taper slowly to 2mg. My hands,...

Hi. I had tapered down to 2.5mg after 5 years of polymyalgia. However, hand and ...

Suedeshayes

•2 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Is it end of summer blues, low mood about having a chronic disease or a decline in my health and is it wise to taper?

I have been taking 10mg of Prednisolone since the beginning of June, reducing from a starting dose of 20mg in April. Within a few days of starting the...

I have been taking 10mg of Prednisolone since the beginning of June, reducing fr...

Siena62

•2 years ago

18 Replies

sore breast from prednisolone

I’ve been taking prednisolone for a month now and my breast have been so sore for about half the time now! I’ve had a breast ultrasound which showed a simple...

I’ve been taking prednisolone for a month now and my breast have been so sore fo...

Louie89

•2 years ago

31 Replies

Questions to consultant ?

I’m due to have my first hospital consultant appointment this Friday, and am looking for guidance from PMR buddies. What questions should I be asking, more...

I’m due to have my first hospital consultant appointment this Friday, and am loo...

Dancesaver

•2 years ago

4 Replies

PET- CT scan

Good Morning PMR hive mind. My new consultant (very young) here in Spain has reviewed my 3 years of PMR and is not happy with the treatment and high dose of...

Good Morning PMR hive mind. My new consultant (very young) here in Spain has rev...

Pawscat11

•2 years ago

31 Replies

dosage reduction

I have recently reduced from m4g to 3.5 and find after 2weeks getting lots of pain in shoulders neck and hips .Just wondering if I should go back to 4 done...

I have recently reduced from m4g to 3.5 and find after 2weeks getting lots of ...

kathyrob

•2 years ago

7 Replies

hydrodoxychloroquine??

Is anyone using this? My rheumy has suggested it for me as l'm stuck on 3mg and stiff. I couldn't contemplate it as I have gut and stomach problems and I...

Is anyone using this? My rheumy has suggested it for me as l'm stuck on 3mg an...

diana1998

•2 years ago

23 Replies

More time on initial 15mg dose of prednisone

Hello yet again. Sorry for the barrage of questions, but my (possibly prednisone stimulated?) brain just keeps cranking them out. I had a virtual appointment...

Hello yet again. Sorry for the barrage of questions, but my (possibly prednisone...

Donna5658

•2 years ago

10 Replies

Reiki, has anyone found it helpful ?

Hi A friend has suggested I try Reiki to help with pain. Just wondering whether anyone has tried it and whether it’s helped. Thanks

Hi A friend has suggested I try Reiki to help with pain. Just wondering wheth...

Hidden

•2 years ago

5 Replies

Shoulders pain

Tapered down to 8.5mg of pred to see if that's the lowest dose I can manage the PMR but unfortunately not to be. In reality my lowest dose I have realised to...

Tapered down to 8.5mg of pred to see if that's the lowest dose I can manage the...

choirsinger1986

•2 years ago

7 Replies

sorry...me again...sick day rules?

having had a bad reaction to antibiotics...or was it a virus as GP said,she recommended stopping the antibiotics which has cleared all the symptoms accept...

having had a bad reaction to antibiotics...or was it a virus as GP said,she re...

Temoral

•2 years ago

4 Replies

Strange feelings

I was diagnosed with PMR in October 2020 and prescribed 15mg of Prednisolone. It has been a very up and down journey with various side effects which, when...

I was diagnosed with PMR in October 2020 and prescribed 15mg of Prednisolone. It...

Ashington52

•2 years ago

32 Replies

Visit to new GP

Dear all. Visit to my new GP today. I was there 4 months ago, very fast where he agreed to prescribe prednisolone and talk later. So I was NERVEUSE today, if...

Dear all. Visit to my new GP today. I was there 4 months ago, very fast where ...

krillemy

•2 years ago

6 Replies

bad fall

10 days ago I had a bad fall and sprained my ankle—it’s still swollen and painful, I’m doing what doc said to do for it. When I fell, I landed on my right...

10 days ago I had a bad fall and sprained my ankle—it’s still swollen and painfu...

Twopies

•2 years ago

21 Replies

The format of the site seems to have changed.

Are we no longer able to look at contributers’ previous posts, in order to give more relevant replies? That appears to be the case with my iPad today. Anyone...

Are we no longer able to look at contributers’ previous posts, in order to give ...

SheffieldJane

•2 years ago

19 Replies

Update on "Increase dose or accept where I am?"

Many thanks for all your replies to my previous post. I have consulted the doc and upped the dose from 3 to 8mgs for the last two days. Symptoms have...

Many thanks for all your replies to my previous post. I have consulted the doc ...

LBM1953

•2 years ago

7 Replies

blurry vision

is it the pred or just the PMR causing blurry vision? Finding it difficult to read. And oh sooo tired all the time.

is it the pred or just the PMR causing blurry vision? Finding it difficult to re...

Leont1na

•2 years ago

23 Replies

progress report

I’ve been on 1mg, for a month now, and have a few adrenal fatigue symptoms, but they are passing. I’ve also managed to lose my pred weight! Off to see...

I’ve been on 1mg, for a month now, and have a few adrenal fatigue symptoms, but ...

Alazarin

•2 years ago

9 Replies

Walking???

Greetings people. I read on here so many times about people going for short walks, long walks, more walks, less walks, all kinds of things about walking. How...

Greetings people. I read on here so many times about people going for short wal...

ChrisinNam

•2 years ago

25 Replies

PMR and Statins

Hello all. 64 year old male. Diagnosed with PMR 8/8/22. On 20 mg of prednisone. Feeling better. Follow up 9/19/22. My question is Statin related. Had to...

Hello all. 64 year old male. Diagnosed with PMR 8/8/22. On 20 mg of prednisone. ...

Kuipersr2

•2 years ago

43 Replies

GCA Starting Dose?

My doctor wants me to be prepared in case I develop GCA along with PMR. I think she usually starts people at 60mg for GCA. Does this sound similar to normal...

My doctor wants me to be prepared in case I develop GCA along with PMR. I think ...

Donna5658

•2 years ago

39 Replies

Day 2 at Zero Prednisone and counting

Don’t recall last time I had pain attributed to PMR. Little or no symptoms of Adrenal Insufficiency to date which I attribute to trying to abide by the not...

Don’t recall last time I had pain attributed to PMR. Little or no symptoms of Ad...

Boss302Fan

•2 years ago

25 Replies

Tocilizumab Tapering

I have been on TZ for 4 years and have cut my Predisilone down to 3mg. I think I may be in remission from GCA and wonder if anyone has experience of coming...

I have been on TZ for 4 years and have cut my Predisilone down to 3mg. I think ...

christine2715

•2 years ago

23 Replies

Does Weather Affect PMR Symptoms? For me, Semi Tropical Climate makes it worse?

PMR symptoms less in colder climates?

salparadise127

•2 years ago

13 Replies

flexiseq

I have ordered the Flexiseq but have to say that the pains in my wrists and hands are gone thanks to upping the prednisone. Still I will have it in store when...

I have ordered the Flexiseq but have to say that the pains in my wrists and hand...

Dartmoor4

•2 years ago

25 Replies

Sick of this

hi all I am down to 1mg from 15 in October after a second got round with PMR. Having a terrible time with exhaustion and weak legs etc. But the most...

hi all I am down to 1mg from 15 in October after a second got round with PM...

Logic

•2 years ago

4 Replies

Sick of this

hi all I am down to 1mg from 15 in October after a second got round with PMR. Having a terrible time so

hi all I am down to 1mg from 15 in October after a second got round with PM...

Logic

•2 years ago

3 Replies

dosage

hi all o took wrong dose 2 days ago I took 6 instead of 9 feel really tired back on 9 is this normal to feel knackered

hi all o took wrong dose 2 days ago I took 6 instead of 9 feel really tired bac...

Uglow

•2 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

Voice

Omeprazole

flare advice

Is it end of summer blues, low mood about having a chronic disease or a decline in my health and is it wise to taper?

sore breast from prednisolone

Questions to consultant ?

PET- CT scan

dosage reduction

hydrodoxychloroquine??

More time on initial 15mg dose of prednisone

Reiki, has anyone found it helpful ?

Shoulders pain

sorry...me again...sick day rules?

Strange feelings

Visit to new GP

bad fall

The format of the site seems to have changed.

Update on "Increase dose or accept where I am?"

blurry vision

progress report

Walking???

PMR and Statins

GCA Starting Dose?

Day 2 at Zero Prednisone and counting

Tocilizumab Tapering

Does Weather Affect PMR Symptoms? For me, Semi Tropical Climate makes it worse?

flexiseq

Sick of this

Sick of this

dosage

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

Voice

﻿Omeprazole

flare advice

Is it end of summer blues, low mood about having a chronic disease or a decline in my health and is it wise to taper?

sore breast from prednisolone

Questions to consultant ?

PET- CT scan

﻿dosage reduction

﻿hydrodoxychloroquine??

More time on initial 15mg dose of prednisone

Reiki, has anyone found it helpful ?

﻿Shoulders pain

﻿sorry...me again...sick day rules?

Strange feelings

Visit to new GP

bad fall

The format of the site seems to have changed.

Update on "Increase dose or accept where I am?"

blurry vision

progress report

Walking???

PMR and Statins

GCA Starting Dose?

Day 2 at Zero Prednisone and counting

Tocilizumab Tapering

Does Weather Affect PMR Symptoms? For me, Semi Tropical Climate makes it worse?

flexiseq

﻿Sick of this

﻿Sick of this

dosage

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Omeprazole

dosage reduction

hydrodoxychloroquine??

Shoulders pain

sorry...me again...sick day rules?

Sick of this

Sick of this