Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,308 members • 38,044 posts

All posts for November 2019

Sacroiliac

I have sacroiliac pain and stiffness. Could this be related to PMR

Caradomben

•4 years ago

34 Replies

Thank you for your responses

To all, You are very kind to respond to my first post. I’ve got through my first week on 20ml prednisone. I’m absolutely shattered today. My left arm is still...

To all, You are very kind to respond to my first post. I’ve got through my first...

Denis61

•4 years ago

20 Replies

GCA update

Have seen Rheumatologist, had ultrasound, and eye examination and all seems fine thank goodness. Still have problems with focus but all other symptoms gone....

Have seen Rheumatologist, had ultrasound, and eye examination and all seems fine...

jaycee444

•4 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Tapering on a long slow journey

Hows the weather friends? Its yet another day of grey to black skies and rain rain and more rain. I began on 60mgs of Pred way back end of Dec 18....

Hows the weather friends? Its yet another day of grey to black skies and rai...

Valentina1

•4 years ago

10 Replies

Thankyou for your support

Just to say thankyou to all who replied to my post. You are all so lovely and supportive/ I didnt think I would even get a reply!

Just to say thankyou to all who replied to my post. You are all so lovely and su...

Vaggers

•4 years ago

3 Replies

Walking on ice

Have had these for some years. Think we bought them off amazon but memory not what it was. Put on over usual shoes, feel a lot more stable as they grip quite...

Have had these for some years. Think we bought them off amazon but memory not wh...

CT-5012

•4 years ago

7 Replies

Staying away from carbs?

So wondering when you all are staying away from carbs if you mean white sugar, white flour .... those kinds of carbs as compared to carbs coming from fruit. I...

So wondering when you all are staying away from carbs if you mean white sugar, w...

Whitner

•4 years ago

27 Replies

Watch your step on the ice.

Whilst out walking the dogs this morning I slipped and fell on a patch of ice and had a crashing fall, right hip, elbow and shoulder. I was being so careful to...

Whilst out walking the dogs this morning I slipped and fell on a patch of ice an...

Whippetygirl

•4 years ago

21 Replies

Type 2 blood glucose kit

Hi again. Thanks for the laughs about my stay in hospital. I had my blood sugar tested a couple of times and would love to get to grips with this by myself....

Hi again. Thanks for the laughs about my stay in hospital. I had my blood sugar...

discoballs

•4 years ago

10 Replies

PUMPKIN

Hi folks This may be a coincidence, but I bought a pumpkin just after Halloween for 10p so decided to try it. I heard it is good for the immune system. I...

Hi folks This may be a coincidence, but I bought a pumpkin just after Halloween ...

keepfitdoll

•4 years ago

22 Replies

Problem with voice

I wonder if anyone else has a problem with their voice, I was diagnosed with GCA a year ago and PMR 8 weeks ago and on Prednisolone 20mg and alendronic acid....

I wonder if anyone else has a problem with their voice, I was diagnosed with GC...

Jane-s

•4 years ago

31 Replies

Elton’s in town!!

Hello UK ... your Elton is in Perth, Western Australia and we are going to see him tonight! I have seen him a couple of times before but he’s claiming this is...

Hello UK ... your Elton is in Perth, Western Australia and we are going to see h...

LemonZest11

•4 years ago

17 Replies

In hospital!

I felt awful this morning. Headache one side along with eye ache and lots of aches. Called my GP and he saw me right away. Referred straight the medical...

I felt awful this morning. Headache one side along with eye ache and lots of ach...

discoballs

•4 years ago

63 Replies

Pred and Fragile Skin

OH (dx PMR/GCA july 2018 and started on 40mg daily - now starting on 5mg as from tomorrow having followed DL's taper since 10mg). Experienced fragile skin and...

OH (dx PMR/GCA july 2018 and started on 40mg daily - now starting on 5mg as from...

Nuff1

•4 years ago

13 Replies

Aloe Vera gel

I’ve just read Kate Gilbert’s really helpful book and was very interested in the chapter that a leaky gut may be contributing towards inflammation. She drank...

I’ve just read Kate Gilbert’s really helpful book and was very interested in the...

Suet3942

•4 years ago

18 Replies

Further to difficulty tapering post

I posted about a month ago about my difficulty in tapering and I have ended up on 17.5mg after trying to reduce to 12.5mg as I hadn't been on the bigger dose...

I posted about a month ago about my difficulty in tapering and I have ended up o...

PatB1948

•4 years ago

17 Replies

Feeling low about the way I look

I have a chipmunk face with ridges inside my cheeks because I I catch them between my teeth. I have persistent cold sores, fat pads above my shoulder blades,...

I have a chipmunk face with ridges inside my cheeks because I I catch them betwe...

Vaggers

•4 years ago

68 Replies

Double whammy

I saw GP yesterday as I had an acute pain in my side and groin. I was diagnosed with kidney stones and warned to expect severe pain which, fortunately, has not...

I saw GP yesterday as I had an acute pain in my side and groin. I was diagnosed ...

maria40

•4 years ago

24 Replies

P.M.R younger folks

Morning all! Just wanted to encourage you, swap stories etc especially with the younger members; i'm 51 & was diagnosed after 4.5 months by my G.P even though...

Morning all! Just wanted to encourage you, swap stories etc especially with the ...

Shrops

•4 years ago

12 Replies

Itchy rash improving

After trying to pin rash on everything from cutting willow to fabric conditioner, it is improving with Betvonate and anti histamines at night. I have given up...

After trying to pin rash on everything from cutting willow to fabric conditioner...

Daffodilia

•4 years ago

4 Replies

Getting Below 10 Mgs

I am, once again, trying to taper below 10 mgs prednisone. I have tried at least twice before and experienced a flare. I was diagnosed with PMR in May 2017....

I am, once again, trying to taper below 10 mgs prednisone. I have tried at leas...

Louisa1840

•4 years ago

18 Replies

New to PMR

After several years of localised pain that moved around my arms, thighs and lower back, a few months ago, the wheels feel off. In addition to the pain, I...

After several years of localised pain that moved around my arms, thighs and lowe...

Dilly-B

•4 years ago

18 Replies

Dosages

What do you set your dosage at? I recently had a flare up and went back to 5 mg and first day so I'm pretty sore & stiff. Do we look to have no pain at all...

What do you set your dosage at? I recently had a flare up and went back to 5 mg...

remission

•4 years ago

21 Replies

PMR and Stomach Issues

I've had PMR for four years. I've 'seesawed' with my doses of prednisone. Finally over a year ago I started the Royal College of Physicians plan to taper. I'm...

I've had PMR for four years. I've 'seesawed' with my doses of prednisone. Finall...

LThomas

•4 years ago

3 Replies

Health Unlocked

I wish that HealthUnlocked would post, as part of their website, a simple message to anyone who is fortunate to have PMR go into remission, before leaving, let...

I wish that HealthUnlocked would post, as part of their website, a simple messag...

remission

•4 years ago

34 Replies

CHIPMUNK LOOK

I was just reading the papers and it says that young people are using so much filler they are getting the “chipmunk look”. If they took steroids they could get...

I was just reading the papers and it says that young people are using so much fi...

piglette

•4 years ago

38 Replies

Diarhoea

To bring you up to date. I saw the doc yesterday, took in a stool sample today, have a blood test tomorrow. So will soon(!) learn what I have or have not got....

To bring you up to date. I saw the doc yesterday, took in a stool sample today, ...

Dawnint

•4 years ago

16 Replies

Happy Thanksgiving to our American friends! 🙏

Also belated good wishes to our Canadian friends.

SheffieldJane

•4 years ago

16 Replies

5th week of slow taper

I have had PMR for five years and tried many times to get below 6 mgs. Firstly, by dropping 1 mg every couple of months or 1 mg on alternate days. After two...

I have had PMR for five years and tried many times to get below 6 mgs. Firstly, ...

PMRSUE

•4 years ago

17 Replies

Am I typical?

I have been diagnosed with PMR for just under two years. I reckon I've had it longer, but I'm not sure how typical my symptoms are.I am currently tapering my...

I have been diagnosed with PMR for just under two years. I reckon I've had it lo...

motherofspaniels2

•4 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2019

Sacroiliac

Thank you for your responses

GCA update

Tapering on a long slow journey

Thankyou for your support

Walking on ice

Staying away from carbs?

Watch your step on the ice.

Type 2 blood glucose kit

PUMPKIN

Problem with voice

Elton’s in town!!

In hospital!

Pred and Fragile Skin

Aloe Vera gel

Further to difficulty tapering post

Feeling low about the way I look

Double whammy

P.M.R younger folks

Itchy rash improving

Getting Below 10 Mgs

New to PMR

Dosages

PMR and Stomach Issues

Health Unlocked

CHIPMUNK LOOK

Diarhoea

Happy Thanksgiving to our American friends! 🙏

5th week of slow taper

Am I typical?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive