Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for May 2014

Relationship between blood markers for inflammation and being on an NSAID?

I don't remember seeing this discussed: When finally diagnosed with PMR, I had been on a low dose of an NSAID for several years. Is it possible that might have...

I don't remember seeing this discussed: When finally diagnosed with PMR, I had b...

MJJ7960

•10 years ago

5 Replies

I don't have a definitive diagnosis but have ongoing problems with headache, blurry vision, jaw/facial pain, myalgia, arthralgia etc.

I am currently taking 8mg of prednisolone and 750mg twice daily of mycophenolate motefil. 3 months ago I developed an intermitent red rash on my face, it...

I am currently taking 8mg of prednisolone and 750mg twice daily of mycophenolate...

Hidden

•10 years ago

16 Replies

Sorry to moan - before I begin! been reducing pred on the slow plan really successfully. From 15 to 13. Reduced to starting 12 per day....

Yesterday got pain under ribs and worst ever pain ever across middle upper back. Spoke to locum gp who said it could be acid reflux or due to reduction. told...

Yesterday got pain under ribs and worst ever pain ever across middle upper back....

annihami

•10 years ago

17 Replies

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Is it normal with PMR for the skin to feel tender to the touch?

I have had this throughout the 6 months of PMR. The skin over the muscles affected by PMR feel sore to the touch - a bit like when one has the flu. I am...

I have had this throughout the 6 months of PMR. The skin over the muscles affect...

Badgergirl

•10 years ago

22 Replies

Reducing prednisolene after a temporary increase

My hip problems - started 5 years ago with a 20 month period completely free of symptoms until 2 years ago. X rays and MRI confirm bursitis, tendon...

My hip problems - started 5 years ago with a 20 month period completely free of...

paddyfields

•10 years ago

6 Replies

Is it the weather?

Having been reasonably pain-free recently, today and for the last few days, I have woken up aching all the way from my shoulders to the palms of my hands. This...

Having been reasonably pain-free recently, today and for the last few days, I ha...

Annodomini

•10 years ago

8 Replies

Forgot my prednisone for 6-7 hours and ended up with a whacko body for 5 days.

I was under stress when I forgot to take my prednisone and then when I remembered, I started having original symptoms, but not as major. Scared me; I called...

I was under stress when I forgot to take my prednisone and then when I remembere...

grannma

•10 years ago

19 Replies

is this a flare up

Not felt myself for last few days. felt achy, weaker than normal. last night and to-day couldn't get out of bed, also sweat so bad, 4 nighties drenched in 24...

Not felt myself for last few days. felt achy, weaker than normal. last night and...

dillydally1

•11 years ago

6 Replies

flare

Hi everyone its me again I did what the rheumatology nurse at the clinic said and took 10 mg for 5 days to get me over the flare/water infection the crunch...

Hi everyone its me again I did what the rheumatology nurse at the clinic said an...

kingharold11

•11 years ago

2 Replies

Some advice needed please

Hi dear friends, looking for a little advice. I have been tapering as per my gp's instructions and yesterday was my third day on 15mg down from 20mg. Started...

Hi dear friends, looking for a little advice. I have been tapering as per my gp'...

mamma1027

•11 years ago

12 Replies

Cream/Gel for moisturising steroid damaged skin

Please can you give me the name of the moisturiser for steroid damaged skin which is obtainable from Boots. I read about it on a post some time ago and would...

Please can you give me the name of the moisturiser for steroid damaged skin whic...

tomasina

•11 years ago

3 Replies

get quite painful pressure headaches at front/side of head a lot am told not related to illness but preds and to ignore them what do U think

I was diagnosed GCA Jan 2013 started with 60mg now down to 5. Taken down too quickly at start. Have never been completey headache free. Get a lot of pressure...

I was diagnosed GCA Jan 2013 started with 60mg now down to 5. Taken down too qui...

littlewren

•11 years ago

17 Replies

We want to find out more about what people need from PMRGCAuk. I've created polls on issues and support needed - all responses very welcome!

We'll be using all answers to check we have understood the main issues you experience if you have PMR and/or GCA, and make sure we are providing a range of...

We'll be using all answers to check we have understood the main issues you exper...

Dev_Director

•11 years ago

2 Replies

Does this condition cause toothache been to dentist and no problem but toothache persists

JIBReader

•11 years ago

14 Replies

Fundraising for PMR/GCA

End of the month approaching and 2 donations within the last 5 minutes.. A huge thank you from Sam and myself.. and of course the people at Polymyalgia...

End of the month approaching and 2 donations within the last 5 minutes.. A huge ...

Jcqln1505

•11 years ago

3 Replies

colonoscopy

has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel...

has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago befo...

kingharold11

•11 years ago

7 Replies

Advice to Rheumatologists

I would suggest that the Royal College of Rheumatologists should recommend this site to their members in order that they will be made aware of the problems...

I would suggest that the Royal College of Rheumatologists should recommend this ...

tomasina

•11 years ago

18 Replies

Flare up GCA

Have had GCA for two years started on 60 mg had a couple of flare ups and given 25mg methotrexate a week to help finally got down to 11 mg. Now have had...

Have had GCA for two years started on 60 mg had a couple of flare ups and given ...

Vpankhurst

•11 years ago

16 Replies

FATIGUE

Hi, I have been on prednisolone since just before Christmas, for PMR. I got one week of extra energy on starting 20mg of prednisolone, now feel weak and very...

Hi, I have been on prednisolone since just before Christmas, for PMR. I got one ...

dillydally1

•11 years ago

6 Replies

I would just like to say a big THANK YOU to PMRGCAuk, Administraters,Volunteers,& all the Girls & lads.

With advice from this forum & useing the now Famouse SLOW red plan at least with most of us suffers, I am getting down to 10mg pred with no major problems so...

With advice from this forum & useing the now Famouse SLOW red plan at least with...

daveD

•11 years ago

Be the first to reply

Is Polymyalgia a connective tissue disease?

I visited my Rheumy today, this is only the 2nd time I've seen him, as I was under a previous rheumy before. Today was organised at short notice by Rheumy...

I visited my Rheumy today, this is only the 2nd time I've seen him, as I was und...

Runrig01

•11 years ago

9 Replies

GCA PMR Book with Bhasar Dasgupta

Dear Everyone, Last year I asked for help in putting together questions to be answered in a book I am writing with Professor Bhaskar Dasgupta. I’m the...

Dear Everyone, Last year I asked for help in putting together questions to be an...

greenlander

•11 years ago

13 Replies

Should I leave my rheumatologist?

I was diagnosed by my rheumatologist in jan this year with PMR and started on 20mg of pred. After a very up and down period possibly due to reducing too fast...

I was diagnosed by my rheumatologist in jan this year with PMR and started on 20...

lizzee

•11 years ago

20 Replies

Feet numbness preb

Down from 15 to - 12.5mg preb and my feet are very numb. Any connection I wonder?

Down from 15 to - 12.5mg preb and my feet are very numb. Any connection I wonder...

Shandon1

•11 years ago

7 Replies

TAUNTON PMRGCA MEETING 14TH MAY

A big thank you to PMRGCA Southwest for a very good meeting yesterday at Taunton . It was great to listen to Prof Bhaska Dasgupta. I learnt so much and it was...

A big thank you to PMRGCA Southwest for a very good meeting yesterday at Taunto...

Hidden

•11 years ago

1 Reply

Hi, I am decreasing my pred, and using PMR-Pro's reduction plan, I am going from 7mg to 6mg (day 39-almost there ). Here is my question:

This go-round my 'old dose' was 7mg and my 'new dose' was 6mg. The next go-round what 'new dose' do I choose? If it is 5mg that is more than a 10% reduction...

This go-round my 'old dose' was 7mg and my 'new dose' was 6mg. The next go-round...

rockyandzeus

•11 years ago

17 Replies

Unable to take Pred due to severe bout of D & V.

For the past 4 days I have been suffering from a severe bout of D & V. What bothers me is that as soon as I take my medication (Pred) I lose it one way or...

For the past 4 days I have been suffering from a severe bout of D & V. What bot...

hwigston

•11 years ago

8 Replies

posted a couple of weeks ago about doctor thinking i had GCA. well she was wrong.

phoned my doctors and requested i be seen by someone else and they told me i had to go to hospital, they diagnosed me with chiari type 1 malformation, has...

phoned my doctors and requested i be seen by someone else and they told me i had...

mollymops

•11 years ago

2 Replies

Thank you for all you replies. I have had GCA for over 4yrs now and have never spoken to anyone who has this illness before.

I am now taking 3mg of steroid (tapering from 60mg). And 20mg of methotrexate. I try to walk every day and be busy but the aching and tiredness...

I am now taking 3mg of steroid (tapering from 60mg). And 20mg of methotrexate. ...

5lupins

•11 years ago

5 Replies

felt so tired

Felt so exhaustedly tired this morning I rang the rheumatology clinic at our local hospital, imagine my surprise when the rheum's secretary offered to put me...

Felt so exhaustedly tired this morning I rang the rheumatology clinic at our loc...

kingharold11

•11 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2014

Relationship between blood markers for inflammation and being on an NSAID?

I don't have a definitive diagnosis but have ongoing problems with headache, blurry vision, jaw/facial pain, myalgia, arthralgia etc.

Sorry to moan - before I begin! been reducing pred on the slow plan really successfully. From 15 to 13. Reduced to starting 12 per day....

Is it normal with PMR for the skin to feel tender to the touch?

Reducing prednisolene after a temporary increase

Is it the weather?

Forgot my prednisone for 6-7 hours and ended up with a whacko body for 5 days.

is this a flare up

flare

Some advice needed please

Cream/Gel for moisturising steroid damaged skin

get quite painful pressure headaches at front/side of head a lot am told not related to illness but preds and to ignore them what do U think

We want to find out more about what people need from PMRGCAuk. I've created polls on issues and support needed - all responses very welcome!

Does this condition cause toothache been to dentist and no problem but toothache persists

Fundraising for PMR/GCA

colonoscopy

Advice to Rheumatologists

Flare up GCA

FATIGUE

I would just like to say a big THANK YOU to PMRGCAuk, Administraters,Volunteers,& all the Girls & lads.

Is Polymyalgia a connective tissue disease?

GCA PMR Book with Bhasar Dasgupta

Should I leave my rheumatologist?

Feet numbness preb

TAUNTON PMRGCA MEETING 14TH MAY

Hi, I am decreasing my pred, and using PMR-Pro's reduction plan, I am going from 7mg to 6mg (day 39-almost there ). Here is my question:

Unable to take Pred due to severe bout of D & V.

posted a couple of weeks ago about doctor thinking i had GCA. well she was wrong.

Thank you for all you replies. I have had GCA for over 4yrs now and have never spoken to anyone who has this illness before.

felt so tired

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