Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,310 members • 38,046 posts

All posts for February 2018

Adrenal support

After 3 years I have reduced pred very slowly from 15mg after diagnosis down to 5. The side effects have been a losing battle and I don't feel close to...

After 3 years I have reduced pred very slowly from 15mg after diagnosis down to ...

PMRpixie

•6 years ago

13 Replies

GCA or prednisone?

Hello everyone, I had previously posted about trying to sort out what was going on with me, as I had earlier been diagnosed with Graves’ disease last...

Hello everyone, I had previously posted about trying to sort out what was ...

Mstiles

•6 years ago

16 Replies

Showing on Facebook.

https://vimeo.com/user81841867/mypmrjourney Angela Edwards, a PMR patient, tells her story to Kate Gilbert for PMRGCAuk. Angela talks about her experiences of...

https://vimeo.com/user81841867/mypmrjourney Angela Edwards, a PMR patient, tell...

IdasMum

•6 years ago

10 Replies

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Leeds Meeting 1 March

Is the Leeds meeting still on?

Estellemac

•6 years ago

Be the first to reply

Is there any point in a TAB after a positive ultrasound?

Hello all. I started Prednisone a week ago, for GCA confirmed by positive ultrasound. I've been booked for a TAB on Friday by which time I'll be 9 days into...

Hello all. I started Prednisone a week ago, for GCA confirmed by positive ultras...

Brizzleben

•6 years ago

37 Replies

NEW to this site

Started Actemra injection last Friday is any else on this drug for the treatment of PMR? How is it working for you? any side effects? I also suffer from IBS...

Started Actemra injection last Friday is any else on this drug for the treatmen...

mpl615

•6 years ago

6 Replies

Flare Up

Hi All. I'm new to this site and am anxious to hear others stories of their experiences with PMR. I was diagnosed in 2013/2014 with PMR. Did the Prednisone...

Hi All. I'm new to this site and am anxious to hear others stories of their exp...

cmcg830

•6 years ago

1 Reply

Special teddies

Picture didn’t appear last time!

Brixhamhampster

•6 years ago

3 Replies

Special teddies

Dorset lady I too have a special “teddy” given to me by my pilot son when he was nineteen. He is now 52 so teddy has seen better days. If you look closely you...

Dorset lady I too have a special “teddy” given to me by my pilot son when he was...

Brixhamhampster

•6 years ago

1 Reply

The Lighter Side: IMPORTANT SAFETY ADVICE during the Cold Snap... ;-)

Greetings All, just a quick one.. :-) I just read some helpful advice on the BBC News about staying safe if you venture-out in the Icy Cold Snap. It goes:...

Greetings All, just a quick one.. :-) I just read some helpful advice on the BBC...

markbenjamin57

•6 years ago

49 Replies

Thanks

For all the replies. Will let you know what doc says on Friday and what I've got.

For all the replies. Will let you know what doc says on Friday and what I've go...

Hollyhock11

•6 years ago

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Bowen Therapy - It didn't work for me, but...

Yesterday, I experienced my first (and possibly last) Bowen Therapy session, but "Hey," at least I tried, right? The 60-80 mg of potentially lethal...

Yesterday, I experienced my first (and possibly last) Bowen Therapy session, but...

Hidden

•6 years ago

65 Replies

Splitting the dose!

Also wanted to mention that I do split the dose, so take 3mg in the morning and 2mgs around 7pm. This really works for me, as an not stiff in the morning. I...

Also wanted to mention that I do split the dose, so take 3mg in the morning and ...

Welshnewbie

•6 years ago

6 Replies

Slowly slowly catchy monkey!!

Morning. I’m diagnosed since Sept. started on 40mg. Now at 5mg! And I listen really to my body as to when to drop down. I was on 6mg for ages and moving to 5mg...

Morning. I’m diagnosed since Sept. started on 40mg. Now at 5mg! And I listen rea...

Welshnewbie

•6 years ago

17 Replies

meds

What is the doses you guys started on? How long before you start to feel great again?

What is the doses you guys started on? How long before you start to feel great ...

viamonv

•6 years ago

33 Replies

Anyone taking Letrozole after being treated for breast cancer ?

I would be interested to know how other people are coping, and what side effects you have. I have peripheral neuropathy, and I have to be very careul about...

I would be interested to know how other people are coping, and what side effects...

Leymay24

•6 years ago

4 Replies

Forgot to ask

Janine again! I've started losing my hair on top, do any ladies have wigs and can you get them on the NHS?

Janine again! I've started losing my hair on top, do any ladies have wigs and c...

Hollyhock11

•6 years ago

17 Replies

I'm new here

Hi I've started Prednisolone for GCA and see the doctor on Friday, my blood result over the phone this morning was ' abnormal and as expected'! I may have PMR...

Hi I've started Prednisolone for GCA and see the doctor on Friday, my blood resu...

Hollyhock11

•6 years ago

9 Replies

She May Be a Monster, but She’s My Monster

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/02/27/she-may-be-a-monster-but-shes-my-monster/

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/02/27/sh...

Hidden

•6 years ago

49 Replies

Polymyalgia and low Dhea

Has anyone been treated with prednisalone and a dhea supplement. I read an article that attributed many ailments suffered by an older person as a result of...

Has anyone been treated with prednisalone and a dhea supplement. I read an arti...

Patricia10

•6 years ago

2 Replies

Odd heart beats

I tapered from 5mg preds to 4.5mg on 1st Feb. Usually odd for a few days but this time I got a weird butfairly regular heart beat that actually measured in the...

I tapered from 5mg preds to 4.5mg on 1st Feb. Usually odd for a few days but thi...

Nagswoman

•6 years ago

20 Replies

When is a Downward Trend a Good thing?

Well, I'd say the answer is... TODAY! Back in November, when I was diagnosed with PMR/GCA, I was started on 60 mg of Prednisolone. Due to an aggressive (but...

Well, I'd say the answer is... TODAY! Back in November, when I was diagnosed w...

Hidden

•6 years ago

28 Replies

Is there a beginner's guide to the symptom cycle?

Hello fellow club members, and my thanks and appreciation to everyone who has contributed to this forum, especially those who took the time to reply to my post...

Hello fellow club members, and my thanks and appreciation to everyone who has co...

Brizzleben

•6 years ago

25 Replies

Reasonable expectations after recent flare up?

Hi friends, about 3 weeks ago I wrote about a recent PMR flare up (my first) occurring after a bad head cold. My SED registered at 44, from 5, and I went back...

Hi friends, about 3 weeks ago I wrote about a recent PMR flare up (my first) occ...

peter1191

•6 years ago

16 Replies

Weight gain

Have u gained any weight and does it come off after.

viamonv

•6 years ago

39 Replies

Methotrexate as a steroid sparer - a possible benefit?

https://www.medpagetoday.com/rheumatology/arthritis/71358?xid=nl_mpt_DHE_2018-02-26&eun=g1179467d0r&pos=0&utm_source=Sailthru&utm_medium=email&utm_campaign=Dail

https://www.medpagetoday.com/rheumatology/arthritis/71358?xid=nl_mpt_DHE_2018-02...

PMRpro

Ambassador•6 years ago

18 Replies

Itching Legs

Almost certainly not related to PMR, but I just thought I would ask if any of you good people could help. Does anybody have any useful advice about the cause...

Almost certainly not related to PMR, but I just thought I would ask if any of yo...

birdwatcher

•6 years ago

28 Replies

Back ache

Ok just recently I have begun to have lower back pain that just doesn’t stop. I have to straighten up slowly when I stand and can hardly lift anything moe than...

Ok just recently I have begun to have lower back pain that just doesn’t stop. I ...

northwesterner

•6 years ago

26 Replies

Inflammation and Diet

Thought this would be of interest: http://www.todaysdietitian.com/newarchives/1016p48.shtml

Thought this would be of interest: http://www.todaysdietitian.com/newarchives/10...

HeronNS

•6 years ago

21 Replies

General Anaesthetic While Taking Prednisolone

I have been told I need a hernia repair operation involving general anaesthetic. I am presently taking 9mg Prednisolone daily and wonder if it is safe to have...

I have been told I need a hernia repair operation involving general anaesthetic....

Maur1

•6 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2018

Adrenal support

GCA or prednisone?

Showing on Facebook.

Leeds Meeting 1 March

Is there any point in a TAB after a positive ultrasound?

NEW to this site

Flare Up

Special teddies

Special teddies

The Lighter Side: IMPORTANT SAFETY ADVICE during the Cold Snap... ;-)

Thanks

Bowen Therapy - It didn't work for me, but...

Splitting the dose!

Slowly slowly catchy monkey!!

meds

Anyone taking Letrozole after being treated for breast cancer ?

Forgot to ask

I'm new here

She May Be a Monster, but She’s My Monster

Polymyalgia and low Dhea

Odd heart beats

When is a Downward Trend a Good thing?

Is there a beginner's guide to the symptom cycle?

Reasonable expectations after recent flare up?

Weight gain

Methotrexate as a steroid sparer - a possible benefit?

Itching Legs

Back ache

Inflammation and Diet

General Anaesthetic While Taking Prednisolone

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