Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for June 2016

Matalic taste

Been on steroids since March and over the last few days I've started to get a matalic taste in my mouth and can smell chemical smells? I lost my smell and...

Been on steroids since March and over the last few days I've started to get a ma...

Zellamze

•8 years ago

8 Replies

Newly diagnosed

Today I was diagnosed with PMR after a month of agony & prescribed Prednisolone. The doctor said it should help fairly quickly, I would be interested to know...

Today I was diagnosed with PMR after a month of agony & prescribed Prednisolone....

marylu

•8 years ago

23 Replies

Worried about using Methotrexate

Hi Can anyone help me with their experiences of Methotrexate? Being urged to take it as I cannot seem to reduce steroids below 15mg. I'm worried about the...

Hi Can anyone help me with their experiences of Methotrexate? Being urged to ta...

yos72

•8 years ago

17 Replies

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GCA Remission

Hi everyone, I haven't posted in quite a while..Brief update, I have GCA now for 1yr and 10 mo, started at 60mg and finally down to 6mg. Doing good on 6 and...

Hi everyone, I haven't posted in quite a while..Brief update, I have GCA now for...

bert403

•8 years ago

6 Replies

~Short term memory loss 4 anyone on their PMR journey with steroids?~

~Good morning to you all from NZ~ Would be keen to hear from those who may have noted from their PMR journey with prx'd steroid meds if you may have been aware...

~Good morning to you all from NZ~ Would be keen to hear from those who may have ...

Megams

•8 years ago

22 Replies

GCA and Pred

I was diagnosed with GCA on April 15th and started with 60 mg pred ( no visual disturbances) and reduced to 45 when I had a flare so back on 50 mg straight...

I was diagnosed with GCA on April 15th and started with 60 mg pred ( no visual d...

christine2715

•8 years ago

14 Replies

Rheumatologist success?

My General Physician has referred me to the Rheumatologist again. I asked why since the Rheumatologist doesn't do anything different for me than he(GP). He...

My General Physician has referred me to the Rheumatologist again. I asked why s...

alice58

•8 years ago

2 Replies

Anyone have trouble remembering things?

I seem to have difficulty remembering things. I was curious if anyone else with PMR have this trouble too. I fear I may not be able to retain my job due to...

I seem to have difficulty remembering things. I was curious if anyone else wit...

alice58

•8 years ago

8 Replies

PMR & Steroid side effects

I've been on steroids for 18 months and after GCA investigation am now down from 40 mg to 18 mg daily. No pain but walking especially in the morning is stiff -...

I've been on steroids for 18 months and after GCA investigation am now down from...

Arturo39

•8 years ago

1 Reply

Working on pred.

Has anyone given up their job due to the PMR and steroids? I was working part time in my local garden centre which I loved, due to lifting and bending as well...

Has anyone given up their job due to the PMR and steroids? I was working part ti...

Zellamze

•8 years ago

10 Replies

Taper Reducing Medrol by 2 mg at a time

with all the reading I've done, that seems too fast. And the rheumy said it's ok if I want to do it by 1 mg increments... However, the smallest tab the...

with all the reading I've done, that seems too fast. And the rheumy said it's ok...

Zacsmimi

•8 years ago

5 Replies

Considering Increasing Prednisone

Hi wise and wonderful wizards of the wacky PMR world, requesting wisdom please! My gut tells me I need to increase back to 5.5 pred after the last 3 days which...

Hi wise and wonderful wizards of the wacky PMR world, requesting wisdom please! ...

Meg1711b

•8 years ago

2 Replies

Three years in

Hi All thank for the helpful post over the years they have made it possible for me to cope with this condition . During the last eighteen months I have been...

Hi All thank for the helpful post over the years they have made it possible for ...

di-bach

•8 years ago

8 Replies

PMR diagnosis yesterday 27th June '16

I have a year or two of this; I enjoy writing and so thought I would like to start a blog. I will update it as regularly as possible;...

I have a year or two of this; I enjoy writing and so thought I would like to sta...

Hidden

•8 years ago

6 Replies

Bath Cafe Meet Up Group

The next meeting of the Bath group will be at 2:30pm on Monday July 4th at Garfunkels, Orange Grove, Bath, BA1 1LP. Please come along if you are in the area.

The next meeting of the Bath group will be at 2:30pm on Monday July 4th at Garfu...

Hidden

•8 years ago

1 Reply

Bad mornings

Hi All I have found this forum most helpful over the past four years so many thanks to all contributors. I have been reducing pred. very slowly just 1mg on...

Hi All I have found this forum most helpful over the past four years so many tha...

Mischevious

•8 years ago

6 Replies

Calcium and Vit D sup/ pred.

Sorry to ask, but since taking these media I've been slow at going to the loo! 😹 By the third day I now just take a laxative. Use to go every day before. Does...

Sorry to ask, but since taking these media I've been slow at going to the loo! �...

Zellamze

•8 years ago

6 Replies

PMR returns?

Hi, I developed classic PMR symptoms about a year ago, but with normal blood tests it took a while for my GP to prescribe 15mg pred last October which worked...

Hi, I developed classic PMR symptoms about a year ago, but with normal blood tes...

David-F

•8 years ago

6 Replies

Prednisolone and antibiotics

Can anyone tell me if it's OK to take antibiotics at the same time as prednisolone?

Can anyone tell me if it's OK to take antibiotics at the same time as prednisolo...

margiebell4

•8 years ago

5 Replies

INTERMITTENT HEAD PAIN

HI, Has any experienced intermittent head pain in the temple area. It is mostly dull but sometimes can be quite sharp just be above the temple it's not there...

HI, Has any experienced intermittent head pain in the temple area. It is mostly...

horas

•8 years ago

5 Replies

PMR-GCA Support East Anglia

Our second cafe meeting is on Thursday, 30th June, at 1030. The location is the Ozier Cafe, at the Museum of East Anglian Life, Stowmarket. If you are in the...

Our second cafe meeting is on Thursday, 30th June, at 1030. The location is the...

Vanner460

•8 years ago

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Swollen Tounge

Has anyone else experienced a sore mouth or swollen tounge? If so, any tips on how to resolve?

Has anyone else experienced a sore mouth or swollen tounge? If so, any tips on h...

Carolforeman

•8 years ago

11 Replies

Side effects of prednisolone

Hi, I haven't been around for a while, and I would like to report that life has improved, but it is getting worse by the day. To recap, I was diagnosed with...

Hi, I haven't been around for a while, and I would like to report that life has ...

080900ea

•8 years ago

3 Replies

Right sided Hip/thigh pain

Hi everyone Reduced my Pred by the slow method to 8 mg mid-May. Everything seemed ok for a few weeks until 10 days ago when pain started in my right hip. I...

Hi everyone Reduced my Pred by the slow method to 8 mg mid-May. Everything se...

Wenben

•8 years ago

23 Replies

New pain

I have been reducing slowly from 15mg down to 7mg. Apart from feeling very tired for most of the day I having been having pain and stiffness in my...

I have been reducing slowly from 15mg down to 7mg. Apart from feeling very tired...

Jeanjean16

•8 years ago

7 Replies

Have I really got PMR?

I am 78 years old and nothing I have taken will even touch the pain. I live in the southwest part of the USA. Being able to see a rheumatologist has been next...

I am 78 years old and nothing I have taken will even touch the pain. I live in t...

zelma1915

•8 years ago

20 Replies

Suffering with Reduction.

Hi everyone. I have at last, got down to 6 1/2 after struggling on 7 for some time. I used the dead slow stop method. I have been on the new dose for 5 days...

Hi everyone. I have at last, got down to 6 1/2 after struggling on 7 for some ti...

Attic

•8 years ago

11 Replies

Different sort of pain!

For the last few days I have been experiencing a different pain - it feels like it is coming from my bones and sometimes feels as if they are on fire! I am...

For the last few days I have been experiencing a different pain - it feels like ...

Content1

•8 years ago

3 Replies

The 5:2 diet/lifestyle

Hi All, Before PMR I was on a journey of lifestyle change that included the 5:2 diet. I actually made it more of a life change as it seemed to have so many...

Hi All, Before PMR I was on a journey of lifestyle change that included the 5:2 ...

PiersC

•8 years ago

11 Replies

Blood Results

I have read that the CR results are more reliable indicators of PMR I have accessed my medical record and am busy digesting the contents spurred on by the fact...

I have read that the CR results are more reliable indicators of PMR I have acces...

paddyfields

•8 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2016

Matalic taste

Newly diagnosed

Worried about using Methotrexate

GCA Remission

~Short term memory loss 4 anyone on their PMR journey with steroids?~

GCA and Pred

Rheumatologist success?

Anyone have trouble remembering things?

PMR & Steroid side effects

Working on pred.

Taper Reducing Medrol by 2 mg at a time

Considering Increasing Prednisone

Three years in

PMR diagnosis yesterday 27th June '16

Bath Cafe Meet Up Group

Bad mornings

Calcium and Vit D sup/ pred.

PMR returns?

Prednisolone and antibiotics

INTERMITTENT HEAD PAIN

PMR-GCA Support East Anglia

Swollen Tounge

Side effects of prednisolone

Right sided Hip/thigh pain

New pain

Have I really got PMR?

Suffering with Reduction.

Different sort of pain!

The 5:2 diet/lifestyle

Blood Results

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