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PMRGCAuk

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downsides of pred

I'm new to this forum - was diagnosed with GCA in January and went immediately on to 60 mg prednisolone. I'm now down to 20 mg , and am feeling much better,...I'm new to this forum - was diagnosed with GCA in January and went immediately o...

Best pillows for my aching neck?

Hello, just been diagnosed with GCA. Any suggestions as to most comfy pillows for back of neck pain? I can't get on with those hard ones in two horizontal...Hello, just been diagnosed with GCA. Any suggestions as to most comfy pillows fo...

“Damaged Hair Follicles”

Hope this doesn’t come through twice, lost the first post on this! Have had PMR going up two years now. On 2.5 pred and coping ok. Cannot walk too far and...Hope this doesn’t come through twice, lost the first post on this! Have had PMR...

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Breast cancer and PMR

I am 64 and have had PMR for about six years. I went for a routine mammogram at the beginning of the year and a tumour was found, I am having it removed in a...I am 64 and have had PMR for about six years. I went for a routine mammogram at ...

Newly diagnosed PMR

Having had bad hip pain since before Christmas I then developed bad pains down the backs of my arms and wrists so made an appointment with GP. I wanted to know...Having had bad hip pain since before Christmas I then developed bad pains down t...

Weight gain

I have been on prednisone 5mg at the moment, for nearly 8 years and really struggle to loose any weight. Has anyone ever lost the weight gained on prednisone I...I have been on prednisone 5mg at the moment, for nearly 8 years and really strug...

Pain free when tapering?

Hi, I'm hoping some of you can help me with an ongoing issue. I was diagnosed in September, and after two months of agony ended up in the ER. I was diagnosed...Hi, I'm hoping some of you can help me with an ongoing issue. I was diagnosed i...

IS GRIEF HEALING IN MOTION?

I found this short article/essay intriguing. It associates \"grief,\"with much more than the loss of a loved one. The author hypotheses that we can (and often...I found this short article/essay intriguing. It associates \"grief,\"with much m...

Can PMR come back after 3 month?

I have been off Prednisone for 3 month after just 5 month of PMR with the help of my Homeopathic Doc. Blood tests came out negative on inflammation. I feel...I have been off Prednisone for 3 month after just 5 month of PMR with the help o...

Loss of feeling in left arm and hand.

I woke up yesterday with numbness in my left hand and arm. It just wants to flop down when I lift it up. I also felt a. It dizzy when moving to other side in...I woke up yesterday with numbness in my left hand and arm. It just wants to flop...

Methotrexate or Sulfasalazine, the lesser of two evils?

I recently posted about a flare of hand pain on reducing from 4mg to 3 over Christmas; I wanted to add this development to that post but couldn't find it so if...I recently posted about a flare of hand pain on reducing from 4mg to 3 over Chri...

'Twas a good day~!!! A new way to see and read~!

Today I went to a low vision specialist~!!! The Iris Foundation had recommended it (I think that is the Iris Fund in the UK) She is an opthamologist who...Today I went to a low vision specialist~!!! The Iris Foundation had recommended...

It's back

Bit confused, cannot update my profile, I input the details, click continue and when I log on again the updates have not been added. s The above is not the...Bit confused, cannot update my profile, I input the details, click continue and ...

Past, Present, Future

When you have a debilitating autoimmune illness (or two!) like PMR/GCA, you have a lot of time to think, to ponder... contemplate and consider. Maybe it's...When you have a debilitating autoimmune illness (or two!) like PMR/GCA, you have...

PMR Symptoms back with a vengeance

I am battling PMR since 2017 and have tried internist, rheumatologist and now orthopedic. So one seems to know about PMR except rheumy...I started this journey...I am battling PMR since 2017 and have tried internist, rheumatologist and now or...

Want to see an all round answer of how Aunty Bee copes with Chronic Illness Self Care , read Ansteynomads post on The AI Protocol ,Q+A here!

Good Sunday All, I just wanted to let people know whom might be interested that I had written a reply to Ansteynomad on their post of yesterday with a...Good Sunday All, I just wanted to let people know whom might be interested that...

Severe pain and stiffness

For the last 8 days I’ve had a dreadful cough and cold. During the last 3 days ever bone and muscle in my body aches, is sore and painfully stiff (including...For the last 8 days I’ve had a dreadful cough and cold. During the last 3 days ...

PMG finger pain

PMG Has anyone experienced finger pain, stiffness with PMG PMG Has anyone experienced finger pain, stiffness with PMG

Muscle wastage

I was diagnosed with PMR in October 2018, but after two visits to a Rheumatology Dept, I was told my blood tested were normal, and to get off the steroids, I...I was diagnosed with PMR in October 2018, but after two visits to a Rheumatology...

Aunty Bees Advent Calendar. Dec 20. Baby it's Cold Outside! A Quiz , My Winter Star Buy for Hip and Back Pain , and Why do We get left Out!

Hello Forum Folks , I don't know if you are like me and feel the Pain and Stiffness from your symptoms a lot more in these winter months , but if you do I...Hello Forum Folks , I don't know if you are like me and feel the Pain and Stiff...

I could kick myself!

I ignored the painful twinges in my right shoulder for a few days until it became a concern — if only I hadn’t persuaded myself that I must have injured it...I ignored the painful twinges in my right shoulder for a few days until it becam...

braininjurythepits•

Started tapering with some issues

Firstly I feel I should correct something I said in my first post. I stated that the GP had increased my initial pred dose from 15mg to 20mg. I don't know...Firstly I feel I should correct something I said in my first post. I stated that...

Temporal Ultrasound May Be Useful in Giant Cell Arteritis Disease Monitoring (in patients paring corticosteroids with tocilizumab)

Thought this was an interesting article... wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA,...Thought this was an interesting article... wouldn't it be great if ultrasounds ...

Aunty Bees PMR, GCA, and Chronic Pain Sufferers Advent Calendar . Dec 11. Festive Pacing in Action . Who is the Snowman?

Are you , like Me, feeling like this fed up and weary Olaf today ? After yesterday's flame grilled events the only fire left Flaring is in my joints so todays...Are you , like Me, feeling like this fed up and weary Olaf today ? After yester...

Aunty Bees Advent Calendar. Dec 9. The one thing 'NOT' to cross off your Christmas 'To Do' List , those Medical Appointments.

Before I get a bit Mumsy on today's Post , I thought I might indulge in my first Christmas Cracker joke. Groans abound . Hard Luck , here it comes .... How do...Before I get a bit Mumsy on today's Post , I thought I might indulge in my first...

PMR beginner

Hi, I've just joined the post and am on my 3rd day of 15mg Pred for PMR. I suffered my first flare up about 2 weeks ago, went to my GP a week ago, results of...Hi, I've just joined the post and am on my 3rd day of 15mg Pred for PMR. I suffe...

PMR, Prednisolone and Poland

I have just returned from a long weekend in Krakow, Poland! What a great city! I would highly recommend it to anyone who likes a “city break,” and/or would...I have just returned from a long weekend in Krakow, Poland! What a great city! ...

Change innblood tests?

Does anybody know about this comment on my blood test results? +++++++++++++++++++++++++++++++++++++++++++++++++++++++ Erythrocyte sedimentation rate NA....Does anybody know about this comment on my blood test results? +++++++++++++++++...

Am I typical?

I have been diagnosed with PMR for just under two years. I reckon I've had it longer, but I'm not sure how typical my symptoms are.I am currently tapering my...I have been diagnosed with PMR for just under two years. I reckon I've had it lo...

motherofspaniels2•

How to be Sick: An Inspired Guide for the Chronically Ill and Their Caregivers –Toni Bernhard

Just received this book today.... \"Toni Bernhard got sick and, to her and her partner's bewilderment, stayed that way. As they faced the confusion,...Just received this book today.... \"Toni Bernhard got sick and, to her and her ...