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PMRGCAuk

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COVID Vaccine question

Hello. I've been following a thread here from people who have experienced flares after getting their COVID vaccinations. I'm scheduled to get my first shot...

Hello. I've been following a thread here from people who have experienced flare...

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Piriformis Syndrome

Hi everyone I was diagnosed with PMR in March 2020, started on 15 mg. Reduced by 1mg each month, had to return to 10 mg in January 2021. Decreasing slowly...

Hi everyone I was diagnosed with PMR in March 2020, started on 15 mg. Reduced...

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Waning PMR now shingles. New poster.

Now on low dose prednisolone (1mg) after 2 1/2 years feeling very pleased with myself. Had the Covid jab 3 weeks ago, then a blistery rash for 2 weeks and...

Now on low dose prednisolone (1mg) after 2 1/2 years feeling very pleased with m...

Pesterfootbridge

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PMR FLARES

prednisone want to understand what is meant by a “flare”. is it any PMR discomfort or something major?

prednisone want to understand what is meant by a “flare”. is it any PMR discom...

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Newly diagnosed PMR – returning to work.

Hi Everyone. I was diagnosed with PMR 2 weeks ago and I’m currently on 25mg of Pred, down from 30 last week and due to reduce to 20 next week (per GPs...

Hi Everyone. I was diagnosed with PMR 2 weeks ago and I’m currently on 25mg of ...

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any side effects with taking steroids?

I believe my GP has finally diagnosed PMR. Im concerned that there will be side effects? Eswpecially as i take Ropinarole for Restless legs syndrome.

I believe my GP has finally diagnosed PMR. Im concerned that there will be side ...

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Vaccine response...

I had my second Pfizer vaccine on FEB 18. (74 years old on 4.5 mg after 3.5 years) felt fine but 3 days later nausea then chills and achy neck and shoulders...

I had my second Pfizer vaccine on FEB 18. (74 years old on 4.5 mg after 3.5 year...

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Zolendronic acid transfusion for osteoporosis

The side effects listed for this treatment are horrid. I am very small and less than 48 kilos in weight. What are others’ experiences with this chemotherapy...

The side effects listed for this treatment are horrid. I am very small and less ...

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PMR health

HELP!! no relief after 6th day on 20mg.

HELP!! no relief after 6th day on 20mg.

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Efficiency of Gastro-Resistant Prednisolone Tablets?

I am new to this forum, although I have had PMR for 7 years and a PMRGCAuk Member for 6 years. My \"year on year\" problem is tapering below 3.5 mg/pd...

I am new to this forum, although I have had PMR for 7 years and a PMRGCAuk Membe...

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New person on the block

I am loving reading other people's experiences of temporal arteritis as so many correspond to mine. They did not ring bells with my GP practice (5 doctors,...

I am loving reading other people's experiences of temporal arteritis as so many ...

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I'm new to tell my story

I was diagnosed with PMR 2006 and was on 15mg Prednisolone reducing gradually to zero in 2008. My job was a care assistant and I kept working throughout. I...

I was diagnosed with PMR 2006 and was on 15mg Prednisolone reducing gradually to...

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New to PMR

I was diagnosed with PMR 4 weeks ago. I started on 15mg Prednisolone and now have reduced to 12.5mg on the advice of my doctor. I don't really know what to...

I was diagnosed with PMR 4 weeks ago. I started on 15mg Prednisolone and now h...

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PMA one month - Now Grade 2 Diabetes!

I've only been part of your community for a month, having been diagnosed with PMR on January 2nd. I am on the usual 15 mg Pred and have had my first monthly...

I've only been part of your community for a month, having been diagnosed with PM...

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Re Vaccinations

Probably with others, I just listened to the Zoe Covid update webinar... the one thing I thought worth repeating here was that indeed, people with auto immune...

Probably with others, I just listened to the Zoe Covid update webinar... the one...

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New journey

I was just diagnosed less than 3 weeks ago, so am just beginning my PMR journey. Have probably had it for a year or more. Am doing well so far on prednisone,...

I was just diagnosed less than 3 weeks ago, so am just beginning my PMR journey....

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Hi, I’m new here, and having trouble weaning off prednisone

Hello! I’ve been on prednisone for almost 2 years for an indefinite diagnosis: the symptoms are very like Polymyalgia rheumatica, which I had several years...

Hello! I’ve been on prednisone for almost 2 years for an indefinite diagnosis: t...

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Something good for pain between shoulders

PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back below neck in middle of shoulders - I use Glucosamine Complex Gel with Aloe Vera...

PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back bel...

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Lansoprazole and Prednisolone

Can you tell me if I should take Lansoprazole before Pred or after Pred? Instructions on the box doesn’t say but one of you advisers said I should do so, to...

Can you tell me if I should take Lansoprazole before Pred or after Pred? Instr...

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Blood tests?

Can you tell me how often I should be having blood tests, and should I be able to just phone my GP practice to ask for them if I feel I have a flare? I have...

Can you tell me how often I should be having blood tests, and should I be able t...

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Help and advice please!

I have had PMR for 6 and a half years, with GCA after two years. Nearly 3 years ago I managed to reduce Pred. to 3.5mgs with a small amount of returning pain....

I have had PMR for 6 and a half years, with GCA after two years. Nearly 3 years ...

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Reassurance

Looking for some encouragement .I’ve had Pmr for 4 1/2 years .it doesn’t seem to want to go away . I’m on 5mgs alternating 4mgs a day ... but have never...

Looking for some encouragement .I’ve had Pmr for 4 1/2 years .it doesn’t seem to...

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Pain in mouth and jaw

Three weeks ago I had a tooth removed due to suffering pain in my mouth for a number of weeks. The alternative was root canal treatment which was priced at...

Three weeks ago I had a tooth removed due to suffering pain in my mouth for a nu...

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What constitutes a ‘flare’?

Diagnosed in March with PMR I am on a taper down from 15mg and have just reached 6mg. All has gone pretty well until 7mg when I was waking at the ‘witching...

Diagnosed in March with PMR I am on a taper down from 15mg and have just reached...

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Advise re GCA blurry vision

Please can anyone give advise. I have GCA/PMR, I am currently reducing pred, 8mg per day plus TCZ once a week. For the last few weeks my eyesight has become...

Please can anyone give advise. I have GCA/PMR, I am currently reducing pred, 8mg...

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What do I do Now?

I have had pmr for over 4 years and 15mg is the dose I take most often. I do not get total pain relief but can handle what I have. Right before Christmas I...

I have had pmr for over 4 years and 15mg is the dose I take most often. I do not...

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Opening new acct error.

My email is 44 not 45 I changed it but i don’t see a change here.

My email is 44 not 45 I changed it but i don’t see a change here.

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Almost 4 months since GCA diagnosis and can't get my shoes on for swollen ankles.

Hello again folks. Just a bit concerned over the holiday period, as my ankles and blood pressure (156/88 this morning) have gradually got worse and I'm...

Hello again folks. Just a bit concerned over the holiday period, as my ankles a...

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Too soon for a taper?

Hello, I have learnt a lot from this site, thank you to everyone. Diagnosed with PMR on 6 July 2020 I started on 30mg for 5 days, then down to 25, and 20 and...

Hello, I have learnt a lot from this site, thank you to everyone. Diagnosed with...

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Newbie

I am a young 63 year old male, diagnosed with PMR last summer, and had almost no support from the NHS because of Covid - which I understand and accept, there...

I am a young 63 year old male, diagnosed with PMR last summer, and had almost no...

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