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PMRGCAuk

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13 years. Off Prednisona.

Took my last, hopefully, dose of pred 3 weeks ago. I live in Brasil, and see a good, reputable Immunologist. Since I have had various ailments over the past...

Took my last, hopefully, dose of pred 3 weeks ago. I live in Brasil, and see a ...

tomh

•19 days ago

1 Reply

Giant Cell Arteritis

I went from 60mg Prednisone down to 5mg and started experiencing headaches. I was diagnosed with GCA 5 months ago. I am now going up to 12mg from 7-8 -10mg...

I went from 60mg Prednisone down to 5mg and started experiencing headaches. I wa...

earlyfordv8

•25 days ago

12 Replies

LEG PAIN WITH PMR?

I have PMR and fingers crossed I am doing okay at the moment currently at 5 mg and quite happy. I don’t know if I’m allowed to do this, but I have a friend who...

I have PMR and fingers crossed I am doing okay at the moment currently at 5 mg a...

Elmadon

•1 month ago

6 Replies

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Hello Can anyone recommend a rheumatologist based near the wirral ,Liverpool or Manchester who they feel is experienced in GC ?

Awaiting an urgent referral Can anyone recommend a rheumatologist based near the wirral ,Liverpool or Manchester who they feel is experienced in GC or anyone...

Awaiting an urgent referral Can anyone recommend a rheumatologist based near th...

Dee101

•1 month ago

10 Replies

Does anyone wear a medical wristband for Polymyalgia / Steroids?

I’m just curious to know if anyone wears one and if I should get one for myself. Thank you.

I’m just curious to know if anyone wears one and if I should get one for myself...

AncientAunt

•2 months ago

63 Replies

PMR returned without inflammation?

I was diagnosed with PMR in May 2018 and treated with Prednisone with tapering, Methotrexate and umpteen flares until April 2022 when I finally stopped taking...

I was diagnosed with PMR in May 2018 and treated with Prednisone with tapering, ...

Cmmw

•3 months ago

15 Replies

GCA journey

Hello, my first post. I was diagnosed with GCA after suffering the usual problems of severe headaches, tender scalp, painful jaw, deteriorating vision and...

Hello, my first post. I was diagnosed with GCA after suffering the usual proble...

Ducati3

•3 months ago

17 Replies

Help with second opinion

Any suggestions for a reliable rheumatologist in Forset or Hampshire. I need a second opinion.

Any suggestions for a reliable rheumatologist in Forset or Hampshire. I need a s...

Seanfleming25

•5 months ago

2 Replies

covid vaccination

in a dilemma.Reduced Prednisone to 5mg after 5 years up & down for PMR. Feeling good.Am due my Covid vaccination & can’t decide wether to have it.Opinions seem...

in a dilemma.Reduced Prednisone to 5mg after 5 years up & down for PMR. Feeling ...

Glyngin

•5 months ago

15 Replies

If one works nights, when are PMR cytokines at their highest?

It seems that cytokine peak would differ according to one's sleep schedule.

darkred

•5 months ago

2 Replies

Smouldering Myeloma diagnosis

Hi everyone, Just updated my bio - in short, having been diagnosed with PMR in early March, a MGUS “flag” in my early blood test results has led, unexpectedly...

Hi everyone, Just updated my bio - in short, having been diagnosed with PMR in ...

GRB8

•6 months ago

35 Replies

Video about the history of PMR

great video on YouTube about PMR. best info starts at about 20mins to the end. please watch if you have. PMR...

great video on YouTube about PMR. best info starts at about 20mins to the end. p...

Hidden

•7 months ago

3 Replies

new here, looking for advice

Hi, I’m new to this group but was pointed here by someone in the Thyroid group. I’m looking for some advice please. so I’m a 48 year old female that was...

Hi, I’m new to this group but was pointed here by someone in the Thyroid group. ...

Margiepargie

•8 months ago

43 Replies

Amt. of calcium to take daily

How much Calcium shoud I be taking daily? I have PMR and GCA. I take prolia shot every 3 months and a shot of methotrexate once a week. I exercise daily...

How much Calcium shoud I be taking daily? I have PMR and GCA. I take proli...

ayoung

•8 months ago

7 Replies

Do you have the symptoms of Dry Eye Syndrome? Is your doctor helping you manage it?

This set of links popped up today and I thought it was worth posting about. Many of us DO have dry eyes and it is clear from these articles that it isn't taken...

This set of links popped up today and I thought it was worth posting about. Many...

PMRpro

Ambassador•8 months ago

14 Replies

Pain around left eye & head pains

I read Health Unlocked every day and get so much help and support from it - thank you all so much. Currently I am having continuous sharp pains around my left...

I read Health Unlocked every day and get so much help and support from it - than...

Saintmalo

•8 months ago

11 Replies

6 month hold at 5 mg

I faithfully read this forum daily ever since my PMR journey began 1 year ago. I live in the US where there are no support groups that I can find. I seem to be...

I faithfully read this forum daily ever since my PMR journey began 1 year ago. I...

ashlandbird

•9 months ago

12 Replies

Update do i have PMR/GCA

Just a update after being refused a second appinion i spoke to the rhumy department for a answer as to why,was told the dr i was supposed to see recomended i...

Just a update after being refused a second appinion i spoke to the rhumy departm...

pink123floyd

•9 months ago

7 Replies

Wife Has Similar Symptoms

I have had PMR 5 yrs. I enjoy good days now @ 4mg Pred daily plus 20mg Methotrexate per week. 2 wks ago my wife began having the same intense bone and...

I have had PMR 5 yrs. I enjoy good days now @ 4mg Pred daily plus 20mg Methotrex...

DrRon

•10 months ago

17 Replies

reflexology

is it safe to have Reflexology when undergoing treatment for GCA

Bluemoon2023

•10 months ago

3 Replies

Is it ok to let PMR get worse before starting treatment?

I’m 85, normally active and fit for my age and a good weight. I had GCA in 2015 and started on 60mg prednisolone. The usual side effects but quite extreme -...

I’m 85, normally active and fit for my age and a good weight. I had GCA in 2015 ...

Willowherb35

•10 months ago

22 Replies

Post Moderna covid vaccination

I had my covid vaccination just over a week ago, it was Moderna, my first time for this brand. I had been feeling really great. However I now feel dreadful,...

I had my covid vaccination just over a week ago, it was Moderna, my first time ...

KASHMIRI1

•10 months ago

4 Replies

Struggling with flare..if it is flare

Hi all.Had PMR since Feb. 2020. All in all not been too bad and able to cope most of the time. Usually aching knees and occasionally in wrists. 2 weeks ago was...

Hi all.Had PMR since Feb. 2020. All in all not been too bad and able to cope mos...

Poll8

•10 months ago

3 Replies

Dexa Scan Results

"This patient has low bone mass." No surprise really. I know what to expect or do I? I am tapering from 10mg yet again and down to 7mg Quite a few...

"This patient has low bone mass." No surprise really. I know what to expect ...

Hidden

•10 months ago

14 Replies

Cracked finger tips, could this be caused by prednisolone?

The tips of my fingers are getting cracks, which can be a bit painful but mainly annoying as it makes opening things awkward. Started with a little crack by...

The tips of my fingers are getting cracks, which can be a bit painful but mainly...

Preposterous

•11 months ago

27 Replies

Spring COVID vaccination

Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled...

Hi all, I was told when I was diagnosed with PMR last year that the condition w...

Hedgehogfriend

•11 months ago

21 Replies

Chest pain

Hi all, I'm 52 and recently diagnosed with Sjorgen's syndrome and possible PMR... shoulder, leg & hip pain. I was put on 15mg of prednisolone for four weeks...

Hi all, I'm 52 and recently diagnosed with Sjorgen's syndrome and possible PMR.....

Hidden

•1 year ago

33 Replies

Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??

I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm, wrists, hips & thighs. Taking 15mg of Prednisolone & will be starting Cali-D...

I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm...

Shadowboxes

•1 year ago

13 Replies

Any advice on questions to ask GP at review of 1 week prednisolone trial?

I’ve just done 1 week trial on 15mg Prednisolone (which has eased symptoms of PMR to some extent). GP will call tomorrow to review and presumably come up with...

I’ve just done 1 week trial on 15mg Prednisolone (which has eased symptoms of PM...

Preposterous

•1 year ago

55 Replies

Help with timing of split Prednisolone dose

Hi, I have found this site amazingly helpful, thank you. I have a specific enquiry regarding the best time to take my split dose. When my rheumy advised...

Hi, I have found this site amazingly helpful, thank you. I have a specific enqui...

Tribie

•1 year ago

25 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All things PMRGCAuk posts

13 years. Off Prednisona.

Giant Cell Arteritis

LEG PAIN WITH PMR?

Hello Can anyone recommend a rheumatologist based near the wirral ,Liverpool or Manchester who they feel is experienced in GC ?

Does anyone wear a medical wristband for Polymyalgia / Steroids?

PMR returned without inflammation?

GCA journey

Help with second opinion

covid vaccination

If one works nights, when are PMR cytokines at their highest?

Smouldering Myeloma diagnosis

Video about the history of PMR

new here, looking for advice

Amt. of calcium to take daily

Do you have the symptoms of Dry Eye Syndrome? Is your doctor helping you manage it?

Pain around left eye & head pains

6 month hold at 5 mg

Update do i have PMR/GCA

Wife Has Similar Symptoms

reflexology

Is it ok to let PMR get worse before starting treatment?

Post Moderna covid vaccination

Struggling with flare..if it is flare

Dexa Scan Results

Cracked finger tips, could this be caused by prednisolone?

Spring COVID vaccination

Chest pain

Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??

Any advice on questions to ask GP at review of 1 week prednisolone trial?

Help with timing of split Prednisolone dose

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