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PMRGCAuk

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Help with second opinion

Any suggestions for a reliable rheumatologist in Forset or Hampshire. I need a second opinion.

Any suggestions for a reliable rheumatologist in Forset or Hampshire. I need a s...

Seanfleming25

•14 days ago

2 Replies

covid vaccination

in a dilemma.Reduced Prednisone to 5mg after 5 years up & down for PMR. Feeling good.Am due my Covid vaccination & can’t decide wether to have it.Opinions seem...

in a dilemma.Reduced Prednisone to 5mg after 5 years up & down for PMR. Feeling ...

Glyngin

•1 month ago

15 Replies

If one works nights, when are PMR cytokines at their highest?

It seems that cytokine peak would differ according to one's sleep schedule.

darkred

•1 month ago

2 Replies

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Smouldering Myeloma diagnosis

Hi everyone, Just updated my bio - in short, having been diagnosed with PMR in early March, a MGUS “flag” in my early blood test results has led, unexpectedly...

Hi everyone, Just updated my bio - in short, having been diagnosed with PMR in ...

GRB8

•2 months ago

35 Replies

Video about the history of PMR

great video on YouTube about PMR. best info starts at about 20mins to the end. please watch if you have. PMR...

great video on YouTube about PMR. best info starts at about 20mins to the end. p...

Hidden

•3 months ago

3 Replies

new here, looking for advice

Hi, I’m new to this group but was pointed here by someone in the Thyroid group. I’m looking for some advice please. so I’m a 48 year old female that was...

Hi, I’m new to this group but was pointed here by someone in the Thyroid group. ...

Margiepargie

•4 months ago

43 Replies

Amt. of calcium to take daily

How much Calcium shoud I be taking daily? I have PMR and GCA. I take prolia shot every 3 months and a shot of methotrexate once a week. I exercise daily...

How much Calcium shoud I be taking daily? I have PMR and GCA. I take proli...

ayoung

•4 months ago

7 Replies

Do you have the symptoms of Dry Eye Syndrome? Is your doctor helping you manage it?

This set of links popped up today and I thought it was worth posting about. Many of us DO have dry eyes and it is clear from these articles that it isn't taken...

This set of links popped up today and I thought it was worth posting about. Many...

PMRpro

Ambassador•4 months ago

14 Replies

Pain around left eye & head pains

I read Health Unlocked every day and get so much help and support from it - thank you all so much. Currently I am having continuous sharp pains around my left...

I read Health Unlocked every day and get so much help and support from it - than...

Saintmalo

•4 months ago

11 Replies

6 month hold at 5 mg

I faithfully read this forum daily ever since my PMR journey began 1 year ago. I live in the US where there are no support groups that I can find. I seem to be...

I faithfully read this forum daily ever since my PMR journey began 1 year ago. I...

ashlandbird

•5 months ago

12 Replies

Update do i have PMR/GCA

Just a update after being refused a second appinion i spoke to the rhumy department for a answer as to why,was told the dr i was supposed to see recomended i...

Just a update after being refused a second appinion i spoke to the rhumy departm...

pink123floyd

•5 months ago

7 Replies

Wife Has Similar Symptoms

I have had PMR 5 yrs. I enjoy good days now @ 4mg Pred daily plus 20mg Methotrexate per week. 2 wks ago my wife began having the same intense bone and...

I have had PMR 5 yrs. I enjoy good days now @ 4mg Pred daily plus 20mg Methotrex...

DrRon

•5 months ago

17 Replies

reflexology

is it safe to have Reflexology when undergoing treatment for GCA

Bluemoon2023

•6 months ago

3 Replies

Is it ok to let PMR get worse before starting treatment?

I’m 85, normally active and fit for my age and a good weight. I had GCA in 2015 and started on 60mg prednisolone. The usual side effects but quite extreme -...

I’m 85, normally active and fit for my age and a good weight. I had GCA in 2015 ...

Willowherb35

•6 months ago

22 Replies

Post Moderna covid vaccination

I had my covid vaccination just over a week ago, it was Moderna, my first time for this brand. I had been feeling really great. However I now feel dreadful,...

I had my covid vaccination just over a week ago, it was Moderna, my first time ...

KASHMIRI1

•6 months ago

4 Replies

Struggling with flare..if it is flare

Hi all.Had PMR since Feb. 2020. All in all not been too bad and able to cope most of the time. Usually aching knees and occasionally in wrists. 2 weeks ago was...

Hi all.Had PMR since Feb. 2020. All in all not been too bad and able to cope mos...

Poll8

•6 months ago

3 Replies

Dexa Scan Results

"This patient has low bone mass." No surprise really. I know what to expect or do I? I am tapering from 10mg yet again and down to 7mg Quite a few...

"This patient has low bone mass." No surprise really. I know what to expect ...

Hidden

•6 months ago

14 Replies

Cracked finger tips, could this be caused by prednisolone?

The tips of my fingers are getting cracks, which can be a bit painful but mainly annoying as it makes opening things awkward. Started with a little crack by...

The tips of my fingers are getting cracks, which can be a bit painful but mainly...

Preposterous

•7 months ago

27 Replies

Spring COVID vaccination

Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled...

Hi all, I was told when I was diagnosed with PMR last year that the condition w...

Hedgehogfriend

•7 months ago

21 Replies

Chest pain

Hi all, I'm 52 and recently diagnosed with Sjorgen's syndrome and possible PMR... shoulder, leg & hip pain. I was put on 15mg of prednisolone for four weeks...

Hi all, I'm 52 and recently diagnosed with Sjorgen's syndrome and possible PMR.....

Hidden

•8 months ago

33 Replies

Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??

I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm, wrists, hips & thighs. Taking 15mg of Prednisolone & will be starting Cali-D...

I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm...

Shadowboxes

•8 months ago

13 Replies

Any advice on questions to ask GP at review of 1 week prednisolone trial?

I’ve just done 1 week trial on 15mg Prednisolone (which has eased symptoms of PMR to some extent). GP will call tomorrow to review and presumably come up with...

I’ve just done 1 week trial on 15mg Prednisolone (which has eased symptoms of PM...

Preposterous

•9 months ago

55 Replies

Help with timing of split Prednisolone dose

Hi, I have found this site amazingly helpful, thank you. I have a specific enquiry regarding the best time to take my split dose. When my rheumy advised...

Hi, I have found this site amazingly helpful, thank you. I have a specific enqui...

Tribie

•9 months ago

25 Replies

polymiagle 1943

i am not very good with this site. as I cant seem to find my way around i couldn't find replies to my last post. so just look at post written in by other...

i am not very good with this site. as I cant seem to find my way around i couldn...

Polymiagle1943

•9 months ago

3 Replies

RSV vaccine?

Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid...

Hi all! Is there any reason that I might want to avoid the RSV vaccine with my P...

Spartans1

•10 months ago

7 Replies

New Member

I am a very active person and had never heard of PMR. My first sign of an issue was a big one and quite strange. I had just spent 8 straight hours driving...

I am a very active person and had never heard of PMR. My first sign of an issu...

NCStateLine

•10 months ago

42 Replies

it's back

After over 5 years with no symptoms, PMR and GCA have suddenly returned. Dr has put me back on steroids, so here we go again. Nobody seems to know why this...

After over 5 years with no symptoms, PMR and GCA have suddenly returned. Dr has ...

Content1

•10 months ago

37 Replies

PMR or Ankylosing Spondylitis

PMR or Ankylosing Spondylitis Hi. I was diagnosed in Sept 2023 with PMR. This was after many telephone consultations and each time having been prescribed...

PMR or Ankylosing Spondylitis Hi. I was diagnosed in Sept 2023 with PMR. This...

Freelabour

•10 months ago

4 Replies

steroids and osteoarthritis

I have finally reduced my prednisolone to 2mg, from 25mg. It has taken a log time, but I am coping with the pmr. But now, I'm told the steroids have caused...

I have finally reduced my prednisolone to 2mg, from 25mg. It has taken a log ti...

Linbin1

•10 months ago

15 Replies

Myasthenia Gravis

I have been on prednisolone for almost 2 years for Polymyalgia Rheumatica (GP Diagnosis) but over the last year I have been losing strength and other...

I have been on prednisolone for almost 2 years for Polymyalgia Rheumatica (GP Di...

opentuned

•10 months ago

5 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All things PMRGCAuk posts

Help with second opinion

covid vaccination

If one works nights, when are PMR cytokines at their highest?

Smouldering Myeloma diagnosis

Video about the history of PMR

new here, looking for advice

Amt. of calcium to take daily

Do you have the symptoms of Dry Eye Syndrome? Is your doctor helping you manage it?

Pain around left eye & head pains

6 month hold at 5 mg

Update do i have PMR/GCA

Wife Has Similar Symptoms

reflexology

Is it ok to let PMR get worse before starting treatment?

Post Moderna covid vaccination

Struggling with flare..if it is flare

Dexa Scan Results

Cracked finger tips, could this be caused by prednisolone?

Spring COVID vaccination

Chest pain

Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??

Any advice on questions to ask GP at review of 1 week prednisolone trial?

Help with timing of split Prednisolone dose

polymiagle 1943

RSV vaccine?

New Member

it's back

PMR or Ankylosing Spondylitis

steroids and osteoarthritis

Myasthenia Gravis

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