Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,638 members•41,040 posts

All posts for January 2025

neck pain and GCA/PMR

when I was diagnosed with GCA in addition to PMR, the GCA pain was in the occipital area. Now I’m having pain in my neck on the right side when I move...

when I was diagnosed with GCA in addition to PMR, the GCA pain was in the occipi...

Mstiles

•13 hours ago

7 Replies

Taking Binosto and Prednisolone

I have to start taking Binosto for osteoporosis which I'm told to take first thing and then stay upright for 30 minutes before consuming anything else. I...

I have to start taking Binosto for osteoporosis which I'm told to take first thi...

Lopera

•14 hours ago

6 Replies

Professor Bhaskar Dasgupta

Has anyone ever been seen by Professor Bhaskar Dasgupta? If so, what was he like and where did you see him?

Has anyone ever been seen by Professor Bhaskar Dasgupta? If so, what was he like...

Tappo

•15 hours ago

11 Replies

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would a 2.5 drop be too much?

As reported in an earlier post I did too much leading up to and over Christmas and PMR punished me. The pain and stiffness returned in shoulders and legs and I...

As reported in an earlier post I did too much leading up to and over Christmas a...

Nanatoo

•16 hours ago

4 Replies

Prednisolone and eye problems

This is a follow-on in a way from the palpitation problem I wrote about-got an even higher one today with my pulse at 135 flashing on the pulse oximeter, so...

This is a follow-on in a way from the palpitation problem I wrote about-got an e...

Purplegloss

•16 hours ago

3 Replies

PMR from GCA?

Hi all, I am 45 and still undiagnosed with normal bloods and ultrasounds. Two months ago I developed symptoms of GCA (temple pain, scalp pain, headache, jaw...

Hi all, I am 45 and still undiagnosed with normal bloods and ultrasounds. Two m...

Curlacious

•17 hours ago

5 Replies

We fell in love when I was 15 and now he's gone

New Year's Eve 2024 was when he died. Heart finally succumbed to flu and the last 3 years of deterioration and caring came to an end.Still coping on 3.5mgs...

New Year's Eve 2024 was when he died. Heart finally succumbed to flu and the las...

Poshdog

•17 hours ago

40 Replies

PMR burned out? How do you know

I have never showed inflammation in my blood. I have had a PET scan which showed the inflammation, so I know I have PMR! I had the PET scan as I developed...

I have never showed inflammation in my blood. I have had a PET scan which showed...

Phoebenooby

•20 hours ago

16 Replies

Mistake over pred dose

Dear everyone I’m on a dosage of 5 mg pred a day and it’s been going OK. Took dose at 1 pm yesterday, (usual time). Then came my mistake. Despite the use of a...

Dear everyone I’m on a dosage of 5 mg pred a day and it’s been going OK. Took do...

Renlim

•20 hours ago

10 Replies

Steroid reduction tips

I have PMR. Was feeling absolutely fine yesterday. Reduced steroids yesterday from 8mg to 7mg (after 4 weeks as per GP) and today I am not so good. Thinking...

I have PMR. Was feeling absolutely fine yesterday. Reduced steroids yesterday fr...

Glynawel

•21 hours ago

5 Replies

Magazines can print inaccurate information too!

I've just been reading a well known women's weekly magazine, and come across this!! Oh dear! Somewhat worrying and yet another reminder of the lack of...

I've just been reading a well known women's weekly magazine, and come across thi...

Kendrew

•21 hours ago

33 Replies

Further update on tapering problems

Following on from last last post I decided to go private again to see Dr Bala at the Nuffield. Saw him a couple of days ago and he was quite concerned for two...

Following on from last last post I decided to go private again to see Dr Bala at...

Paul76

•23 hours ago

7 Replies

Norwich support group

Hi, does anyone know the date of the next Norwich support group meeting, thank you

Hi, does anyone know the date of the next Norwich support group meeting, thank y...

purplesprouting

•24 hours ago

13 Replies

Crip time

I've never heard of it. Interesting article I think. https://www.bedperspective.com/p/embracing-crip-time-redefining-pace Embracing Crip Time: Redefining...

I've never heard of it. Interesting article I think. https://www.bedperspective...

IdasMum

•1 day ago

4 Replies

Starting Methotrexate when only on 4mg of Pred.

Hi Had a Rheumatology appointment today. It was a regular review but I have, since Christmas been experiencing a flare. I was on 3mg Pred but put it up...

Hi Had a Rheumatology appointment today. It was a regular review but I have, s...

fairy100

•1 day ago

7 Replies

Calling men with PMR or GCA in the UK - your input is wanted for Patient Involvement

As fewer men than women get PMR and GCA their experience is often overlooked. So if you're male and feel you have views adn ideas you'd like to contribute...

As fewer men than women get PMR and GCA their experience is often overlooked. S...

tangocharlie

•2 days ago

14 Replies

re. Pain around rib age and back

Thanks to everyone who took the time and trouble to respond to my post; this forum is a godsend especially with our NHS being in its sad state at the moment...

Thanks to everyone who took the time and trouble to respond to my post; this for...

Spinnie

•2 days ago

2 Replies

Rheumy at Stepping Hill

Went for my first ever rheumy appointment which I waited a year for and saw Dr Bachau at Stepping Hill on Dec 6th. She was initially concerned I’d been on...

Went for my first ever rheumy appointment which I waited a year for and saw Dr B...

Glasgow55

•2 days ago

8 Replies

Pred and chemo

Hi, as my updated bio explains, I have recently been diagnosed with a complication of multiple myeloma called AL Amyloidosis. This is rare (60 cases per annum...

Hi, as my updated bio explains, I have recently been diagnosed with a complicati...

GRB8

•2 days ago

9 Replies

UPDATE on my previous post regarding Aneurysm

I posted a few months back about my cardiologist finding 2 aneurysms on my yearly CT scan. He sent me to a Cardio/Thoracic surgeon for a second opinion and...

I posted a few months back about my cardiologist finding 2 aneurysms on my yearl...

luv2read

•2 days ago

6 Replies

Adrenalin glands still working or is it Prednisone

Now that I’ve been on prednisone for almost 13 weeks, I’ve noticed that some of the negative effects from the prednisone are quite strong at times. The...

Now that I’ve been on prednisone for almost 13 weeks, I’ve noticed that some of...

Gatorchief

•2 days ago

56 Replies

Steroid injection

I am coming up to year 3 of PMR journey and, at the moment, am on 9.5 mg of Pred. In that time, I have undergone 2 Carpal Tunnel Syndrome (CTS) operations...

I am coming up to year 3 of PMR journey and, at the moment, am on 9.5 mg of Pred...

tempusfugi

•2 days ago

29 Replies

Complicated GCA, no light at the end of the tunnel

Hello All, I was diagnosed with GCA on March 2024 following a 3.5 years with PMRA. My starting dose of prednisone was 60mg/day for 5 weeks. Tapering went...

Hello All, I was diagnosed with GCA on March 2024 following a 3.5 years with PM...

Vikinga

•2 days ago

28 Replies

prednisoChanging from Prednisone to ?

I have now been taking Prednisolone for 4 years for PMR. I was started on 20mg and gradually tapered down and was down to 6 mg by the end of that year....

I have now been taking Prednisolone for 4 years for PMR. I was started on 20mg...

Jomaur

•2 days ago

10 Replies

yay, I’ve today seen a Rheumatologist - the first time since my diagnosis of PMR after nearly 5 years!

I was only referred to a rheumatologist following my consultation with an orthopaedic surgeon about my hugely swollen knee and subsequent diagnosis of bursitis...

I was only referred to a rheumatologist following my consultation with an orthop...

Doraflora

•3 days ago

9 Replies

Seeking a Recommended Rheumatologist

Please may I ask if anyone can recommend a good Rheumatologist in Cheshire or further afield that has actually helped them? I'm really struggling with...

Please may I ask if anyone can recommend a good Rheumatologist in Cheshire or fu...

AncientAunt

•3 days ago

28 Replies

Gorilla

It has been said that everyone should cuddle their Gorilla. I maybe daft but wouldn't that be something of a killer. Or maybe what they really mean is that...

It has been said that everyone should cuddle their Gorilla. I maybe daft but wo...

cycli

•3 days ago

12 Replies

Has anyone signed up to an alarm button scheme.

Did you find it reassuring or annoying. Because I had that fall in my kitchen when I didn't have my mobile phone on me I've been looking at a scheme run by my...

Did you find it reassuring or annoying. Because I had that fall in my kitchen wh...

Pris80

•3 days ago

44 Replies

pins and needles

Morning everyone. For the past 4 weeks I have been getting pins and needles fizzy feeling in lower legs and feet and from elbow to hands. It’s constant even in...

Morning everyone. For the past 4 weeks I have been getting pins and needles fizz...

Missbisous

•3 days ago

14 Replies

GCA eye involvement

Hi all, I am still trying to get a diagnosis for GCA following clear bloods, ultrasound and MRI. Awaiting repeat ultrasound and PET scan but that will take a...

Hi all, I am still trying to get a diagnosis for GCA following clear bloods, ult...

Curlacious

•3 days ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2025

neck pain and GCA/PMR

Taking Binosto and Prednisolone

Professor Bhaskar Dasgupta

would a 2.5 drop be too much?

Prednisolone and eye problems

PMR from GCA?

We fell in love when I was 15 and now he's gone

PMR burned out? How do you know

Mistake over pred dose

Steroid reduction tips

Magazines can print inaccurate information too!

Further update on tapering problems

Norwich support group

Crip time

Starting Methotrexate when only on 4mg of Pred.

Calling men with PMR or GCA in the UK - your input is wanted for Patient Involvement

re. Pain around rib age and back

Rheumy at Stepping Hill

Pred and chemo

UPDATE on my previous post regarding Aneurysm

Adrenalin glands still working or is it Prednisone

Steroid injection

Complicated GCA, no light at the end of the tunnel

prednisoChanging from Prednisone to ?

yay, I’ve today seen a Rheumatologist - the first time since my diagnosis of PMR after nearly 5 years!

Seeking a Recommended Rheumatologist

Gorilla

Has anyone signed up to an alarm button scheme.

pins and needles

GCA eye involvement

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