Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

12,972 members23,536 posts

All posts for September 2020

Symptoms

PMR or GCA.? I have been sick for 25 days now thought it was Covid flu like symp...

Ro-Actemra/Tocilizumab Patients advice/ experiences please.

I am on Tocilizumab ( for GCA with Pred) ( 13th self administered injection due ...

Scared of drugs. Take pred as no choice there. Now waiting for approval for actemra.

After much research I think the side effects are extreme and I am not willing to...
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Pneumonia and flu jabs

Hello everyone I had the flu jab in one arm and the pneumonia jab in the other o...

Methotrexate

I’m having issues sleeping severe pain in shoulders and wrists rummy says go o...

Reducing from 15mg to 10mg

Having read so many comments during my brief period as a fellow sufferer I seem ...

PMR and kidney functions

My doctor is concerned about my kidney function. Is this likely to be a side eff...

Flu vac ?

Delighted to have my flu vac 18 September. Never had a bad reaction until now. ...

Reducing Prednisolone GCA - what symptoms to look out for?

I started Pred 1st September, initially had 60mg Pred for 2 weeks, am coming to ...

Relapse gca

Yesterday I woke with neck ache thinking I'd slept in the 1 position all night I...

Chiropractor culprit

I see a chiropractor every two weeks to keep this old body from falling apart. A...

Reducing pred

Can some one direct me to the list of charts on reducing steroids , I thought I ...

5 Years on Alendronic Acid

Just had my annual PMR blood check etc. with my GP. I've had no problems with AA...

Second Rheumy appt went well but....

So, went for blood work results and second consult with Rheumy. I like this doc....

Dosage Dilemma

Felt unwell last week - doctor visited and took urine sample which immediately t...

Pred cut back

Hi everyone. I need some advice. I started on 15 mg of Pred on November 22nd I...

Has anyone had surgery and stopped steroids?

I have to have surgery on my foot after Christmas. The doctor wants me off Predn...

Flare up or something else?

I've been on the dead slow tapering and got down to 3 mg when I got and still ha...

Problem with sleeping PMR and costochondritis.

Any advice please. Tapering pred and now at 3 1/2 which I take at 8am. Last few ...

Alendronic Acid

Quick question to the experts please. At what dosage can I stop taking Alendron...

LVV Does a flare come on suddenly?

Hi I have been doing really well down to3mg pred and weekly tocilizumab. Felt fi...

Am i at greater risk

Does having a history of polymyalgia and just now having a flare up and starting...

PMR flare up

I've been on 8mg of prednisone for a couple of years. I do have flare ups that l...

CHANGING FROM PRED TO HYDROCORTISONE

Morning , 3 weeks ago my rheumy changed me from 5mg of pred to 20mg a day of hyd...

Bloating, nausea and tingling

I’ve recently tapered to 1 mg having delayed my taper due to hip surgery 12 week...

sickness

Hi been suffering from sickness after going down to 3mg pred, welcome any advice...

To take or not to take?

Hi Everyone Hope you are all hanging in there. I am down to 1 mg Pred and 75 m...

GCA / PMR

I was diagnosed with GCA in August 2019, speaking to my brother the other day he...

Should PMR symptoms clear up rapidly with prednisilone?

I was diagnosed with PMR 6 weeks ago, and am now on 12 1/2 mg prednisilone, havi...

Flu jab

Does anyone have feedback on whether it’s a good idea to have a flu jab with PMR...