Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,271 members • 37,954 posts

All posts for September 2020

Symptoms

PMR or GCA.? I have been sick for 25 days now thought it was Covid flu like symptoms aches and pains. Went for many Covid test came back negative then Jaw pain...

PMR or GCA.? I have been sick for 25 days now thought it was Covid flu like symp...

Bro-

•4 years ago

12 Replies

Ro-Actemra/Tocilizumab Patients advice/ experiences please.

I am on Tocilizumab ( for GCA with Pred) ( 13th self administered injection due Friday). I have had a cold type virus for a week that seems to have eased off...

I am on Tocilizumab ( for GCA with Pred) ( 13th self administered injection due ...

SheffieldJane

•4 years ago

68 Replies

Scared of drugs. Take pred as no choice there. Now waiting for approval for actemra.

After much research I think the side effects are extreme and I am not willing to give it a try. Has anyone else rejected this treatment. ? I do ok on pred so I...

After much research I think the side effects are extreme and I am not willing to...

Chopin002

•4 years ago

33 Replies

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Pneumonia and flu jabs

Hello everyone I had the flu jab in one arm and the pneumonia jab in the other on Saturday. 24 hours of fever on Monday which has now subsided. Feel decidedly...

Hello everyone I had the flu jab in one arm and the pneumonia jab in the other o...

Skodadet

•4 years ago

13 Replies

Methotrexate

I’m having issues sleeping severe pain in shoulders and wrists rummy says go on methotrexate I’m not sure. Any advice thanx

I’m having issues sleeping severe pain in shoulders and wrists rummy says go o...

vlrdngh

•4 years ago

15 Replies

Reducing from 15mg to 10mg

Having read so many comments during my brief period as a fellow sufferer I seem to recall numerous statements regarding how much we should reduce and how...

Having read so many comments during my brief period as a fellow sufferer I seem ...

yorkieme

•4 years ago

5 Replies

PMR and kidney functions

My doctor is concerned about my kidney function. Is this likely to be a side effect to PMR

My doctor is concerned about my kidney function. Is this likely to be a side eff...

Frustrate

•4 years ago

43 Replies

Flu vac ?

Delighted to have my flu vac 18 September. Never had a bad reaction until now. The next day I was really unwell. Thought I may have been having a heart...

Delighted to have my flu vac 18 September. Never had a bad reaction until now. ...

SuziCutie

•4 years ago

27 Replies

Reducing Prednisolone GCA - what symptoms to look out for?

I started Pred 1st September, initially had 60mg Pred for 2 weeks, am coming to the end of my 40 mg Pred for two weeks, blood tests tomorrow to check levels...

I started Pred 1st September, initially had 60mg Pred for 2 weeks, am coming to ...

SomersetWife

•4 years ago

15 Replies

Relapse gca

Yesterday I woke with neck ache thinking I'd slept in the 1 position all night I put a hot water bottle in it and took my usual pain killers. As the day went...

Yesterday I woke with neck ache thinking I'd slept in the 1 position all night I...

Hoobabes

•4 years ago

11 Replies

Chiropractor culprit

I see a chiropractor every two weeks to keep this old body from falling apart. After each session I’m a little sore but eventually feel better than when I...

I see a chiropractor every two weeks to keep this old body from falling apart. A...

Blackcatlover

•4 years ago

19 Replies

Reducing pred

Can some one direct me to the list of charts on reducing steroids , I thought I could find it ,but cannot

Can some one direct me to the list of charts on reducing steroids , I thought I ...

Fitch1

•4 years ago

5 Replies

5 Years on Alendronic Acid

Just had my annual PMR blood check etc. with my GP. I've had no problems with AA but I brought up the subject of reviewing taking it after 5 years and asked...

Just had my annual PMR blood check etc. with my GP. I've had no problems with AA...

scrambledegg

•4 years ago

6 Replies

Second Rheumy appt went well but....

So, went for blood work results and second consult with Rheumy. I like this doc. He tells me what he would like me to do, I tell him what I feel comfortable...

So, went for blood work results and second consult with Rheumy. I like this doc....

Dydee

•4 years ago

29 Replies

Dosage Dilemma

Felt unwell last week - doctor visited and took urine sample which immediately tested clear. It was considered that I was suffering ‘stress’ as my husband had...

Felt unwell last week - doctor visited and took urine sample which immediately t...

Jantayl

•4 years ago

6 Replies

Pred cut back

Hi everyone. I need some advice. I started on 15 mg of Pred on November 22nd I am now down to 6 mg and am due to go to 5 mg in two days. I was doing good on...

Hi everyone. I need some advice. I started on 15 mg of Pred on November 22nd I...

TINYdes

•4 years ago

18 Replies

Has anyone had surgery and stopped steroids?

I have to have surgery on my foot after Christmas. The doctor wants me off Prednisone so I heal completely. I can't function if I go less than 5 mg without...

I have to have surgery on my foot after Christmas. The doctor wants me off Predn...

Amber1414

•4 years ago

9 Replies

Flare up or something else?

I've been on the dead slow tapering and got down to 3 mg when I got and still have a painful right buttocks emanating to the small of my back so to see if it...

I've been on the dead slow tapering and got down to 3 mg when I got and still ha...

skipspmr

•4 years ago

8 Replies

Problem with sleeping PMR and costochondritis.

Any advice please. Tapering pred and now at 3 1/2 which I take at 8am. Last few months have had real difficulty with sleeping -painful every time I move across...

Any advice please. Tapering pred and now at 3 1/2 which I take at 8am. Last few ...

Doubtfulsound

•4 years ago

10 Replies

Alendronic Acid

Quick question to the experts please. At what dosage can I stop taking Alendronic acid? Currently taking 7.5mg Pred. No side effects currently after being on...

Quick question to the experts please. At what dosage can I stop taking Alendron...

Gunflash

•4 years ago

10 Replies

LVV Does a flare come on suddenly?

Hi I have been doing really well down to3mg pred and weekly tocilizumab. Felt fine until midday today, I was bending over and suddenly felt nauseous, stood up...

Hi I have been doing really well down to3mg pred and weekly tocilizumab. Felt fi...

Devoid

•4 years ago

10 Replies

Am i at greater risk

Does having a history of polymyalgia and just now having a flare up and starting on prednisolone, does this put me at greater risk of Covid-19. Should i shield...

Does having a history of polymyalgia and just now having a flare up and starting...

Husseyflower

•4 years ago

13 Replies

PMR flare up

I've been on 8mg of prednisone for a couple of years. I do have flare ups that last awhile. My current flare up has been going on for two weeks. Any...

I've been on 8mg of prednisone for a couple of years. I do have flare ups that l...

LThomas

•4 years ago

6 Replies

CHANGING FROM PRED TO HYDROCORTISONE

Morning , 3 weeks ago my rheumy changed me from 5mg of pred to 20mg a day of hydrocrtisone so tomorrow l can have a short synacthen test . Within days of the...

Morning , 3 weeks ago my rheumy changed me from 5mg of pred to 20mg a day of hyd...

sallie1804

•4 years ago

16 Replies

Bloating, nausea and tingling

I’ve recently tapered to 1 mg having delayed my taper due to hip surgery 12 weeks ago. I seemed to have no classic PMR symptoms but over the past few weeks...

I’ve recently tapered to 1 mg having delayed my taper due to hip surgery 12 week...

Casia

•4 years ago

10 Replies

sickness

Hi been suffering from sickness after going down to 3mg pred, welcome any advice if this is a problem with reducing. Have tried too reduce slowly by 1/2mg,...

Hi been suffering from sickness after going down to 3mg pred, welcome any advice...

Snnib

•4 years ago

13 Replies

To take or not to take?

Hi Everyone Hope you are all hanging in there. I am down to 1 mg Pred and 75 mg Levothyroxine for an under active thyroid. I am a bit stressed (and bored)...

Hi Everyone Hope you are all hanging in there. I am down to 1 mg Pred and 75 m...

whitefishbay

•4 years ago

24 Replies

GCA / PMR

I was diagnosed with GCA in August 2019, speaking to my brother the other day he had just been put on Steroids as they think he might have PMR is it something...

I was diagnosed with GCA in August 2019, speaking to my brother the other day he...

Phed

•4 years ago

42 Replies

Should PMR symptoms clear up rapidly with prednisilone?

I was diagnosed with PMR 6 weeks ago, and am now on 12 1/2 mg prednisilone, having started on 15mg. My symptoms are sometimes worse than before the medication,...

I was diagnosed with PMR 6 weeks ago, and am now on 12 1/2 mg prednisilone, havi...

humlies

•4 years ago

12 Replies

Flu jab

Does anyone have feedback on whether it’s a good idea to have a flu jab with PMR? It may be a coincidence, but my first symptoms appeared a few days after a...

Does anyone have feedback on whether it’s a good idea to have a flu jab with PMR...

Bobbikins

•4 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2020

Symptoms

Ro-Actemra/Tocilizumab Patients advice/ experiences please.

Scared of drugs. Take pred as no choice there. Now waiting for approval for actemra.

Pneumonia and flu jabs

Methotrexate

Reducing from 15mg to 10mg

PMR and kidney functions

Flu vac ?

Reducing Prednisolone GCA - what symptoms to look out for?

Relapse gca

Chiropractor culprit

Reducing pred

5 Years on Alendronic Acid

Second Rheumy appt went well but....

Dosage Dilemma

Pred cut back

Has anyone had surgery and stopped steroids?

Flare up or something else?

Problem with sleeping PMR and costochondritis.

Alendronic Acid

LVV Does a flare come on suddenly?

Am i at greater risk

PMR flare up

CHANGING FROM PRED TO HYDROCORTISONE

Bloating, nausea and tingling

sickness

To take or not to take?

GCA / PMR

Should PMR symptoms clear up rapidly with prednisilone?

Flu jab

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