Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,036 posts

All posts for June 2015

Going round in circles!

I was diagnosed in March with GCA and PMR, I started on 60 mgs of prednisone a day, reducing monthly. I am now on 20 mgs a day. Whilst on holiday I developed a...

I was diagnosed in March with GCA and PMR, I started on 60 mgs of prednisone a d...

Janbu

•9 years ago

10 Replies

Dealing with PMR

I find it extremely comforting to hear different symptoms and experiences that others are going through. Many of which doctors never tell about!! Does anyone...

I find it extremely comforting to hear different symptoms and experiences that o...

PMRpixie

•9 years ago

15 Replies

New

I am new to this site and wonder if it will be any hgelp to me as I have pmrgca

SherryAnnie

•9 years ago

5 Replies

Want to take advantage of all our features? Just log in!

PMRGCA

Can anyone tell me if there is a group in the Stoke On Trent area for folks with PMRGCA

Can anyone tell me if there is a group in the Stoke On Trent area for folks with...

SherryAnnie

•9 years ago

1 Reply

Bristol Plan ?

Hi Everyone, have been reading the posts about tapering/reducing prednisone. Have read references to the Bristol Plan. Exactly what is it/where can it be...

Hi Everyone, have been reading the posts about tapering/reducing prednisone. Hav...

Whittlesey

•9 years ago

4 Replies

Thank you

Thank you to all of you. I'm not sure you understand how incredibly helpful you are to me and to everyone who posts. No one I know understands this problem. No...

Thank you to all of you. I'm not sure you understand how incredibly helpful you ...

Asbeck

•9 years ago

14 Replies

Knee pain related to PMR?

Has anyone else had bad knee pains that started with their PMR diagnosis? Rheumatologist say that knee pain does not go along with PMR but it seems that so...

Has anyone else had bad knee pains that started with their PMR diagnosis? Rheum...

JJ2013

•9 years ago

8 Replies

GCA temporal arteritis

Hi my name is BOb and i have been put on 60mg pred been on it for a week My symptoms were severe head pains i describe as a nerve pain and a head ache all...

Hi my name is BOb and i have been put on 60mg pred been on it for a week My symp...

bobless

•9 years ago

17 Replies

Levels of Pred?

Hi, I'm an avid reader of the posts on here and was just wanting to 'clarify' something that seems to be talked of often - the raising and lowering of our Pred...

Hi, I'm an avid reader of the posts on here and was just wanting to 'clarify' so...

Hidden

•9 years ago

17 Replies

Heat Sensitive

I live in Miami, Florida. It is very, very hot here, now. I simply can't stand the heat. If I go outside for only a few minutes it's unbearable. I had been...

I live in Miami, Florida. It is very, very hot here, now. I simply can't stand t...

Asbeck

•9 years ago

5 Replies

Foot stopped being able to walk. Claudication?

On Thursday I was almost finished with a slow taper from 8 mg. Prednisone to 7.25 mg. After about 39 days working on the taper I was on PMRpro's series of one...

On Thursday I was almost finished with a slow taper from 8 mg. Prednisone to 7.2...

Asbeck

•9 years ago

11 Replies

Cream for thin skin

Read here about a cream to help skin that is thin because of pred. I know it is available in UK but want to do some research on availability here in Canada....

Read here about a cream to help skin that is thin because of pred. I know it is...

peanuckle

•9 years ago

12 Replies

Shingles

I am now into my third week with Shingles and I am in constant pain. I have had all the appropiate medicines...anti viral and neurotin for pain and nothing...

I am now into my third week with Shingles and I am in constant pain. I have had...

30048

•9 years ago

13 Replies

Problems with balance and shakiness

Please can anyone advise me if a flare up of PMR can include serious balance problems and general all over shakiness. I have been to my GP and he advised me...

Please can anyone advise me if a flare up of PMR can include serious balance pro...

Soon70

•9 years ago

8 Replies

Biopsy

Hi everyone, I have just had the results of my biopsy for GCA they are saying that there is signs that it has burnt itself out. My doctor & rheumy are saying...

Hi everyone, I have just had the results of my biopsy for GCA they are saying th...

Lilymaerose

•9 years ago

6 Replies

Quinine

Has anyone heard of using Quinine Hydrochloride as a treatment for vasculitis?

BillP101

•9 years ago

2 Replies

try again, I made a mess out of my first try,

I sure messed up my prior post ... I've been on a actemra for 14 months, the pain is gone & my weight is good but I still don't feel like myself, I tire out...

I sure messed up my prior post ... I've been on a actemra for 14 months, the pai...

beringer

•9 years ago

20 Replies

Just not myself

I got giant cell arthritis 18 months ago, been on aftermath 14 mos, the pain is gone but I have not felt really since. Am I the only one to feel this way? I...

I got giant cell arthritis 18 months ago, been on aftermath 14 mos, the pain is ...

beringer

•9 years ago

8 Replies

Calcium supplements

Can anyone advise me about the dose of calcium supplements I should take (if any). I was diagnosed 9 weeks ago and am on 14mg prednisolone. My DEXA scan was...

Can anyone advise me about the dose of calcium supplements I should take (if any...

margiebell4

•9 years ago

7 Replies

Diagnosis

Who is best to diagnose PMR/GCA, I don't really feel confdient with my GP's diagnosis too many ifs and buts. Should I ask to see a rheumy. He did put me on...

Who is best to diagnose PMR/GCA, I don't really feel confdient with my GP's dia...

Mintymow

•9 years ago

3 Replies

Detox massage

Have a birthday coming and a well meaning friend of my hubby has suggested that he gets me this. Granddaughter overheard them talking. She came to me asking...

Have a birthday coming and a well meaning friend of my hubby has suggested that ...

olive2709

•9 years ago

4 Replies

Tapering - taking lower dose morning or evening and why?

Hi wonderful folk 12,000 miles away. When I eventually start my slow, dead slow tapering plan as per PMRpro's information, would the lower dose best be taken...

Hi wonderful folk 12,000 miles away. When I eventually start my slow, dead slow ...

Megams

•9 years ago

22 Replies

Probiotic yogurt

As I have been on steroids for 3years my Doctor said I should go on tablets for my stomach as a preventative measure, I have tried 3 different lots and they...

As I have been on steroids for 3years my Doctor said I should go on tablets for ...

dodo1

•9 years ago

21 Replies

Have I got PMR?

I was diagnosed with GCA in September 2014 and have been on steroids since then and Methotrexate for 3 1/2 months. I have had pain in my back and hips and...

I was diagnosed with GCA in September 2014 and have been on steroids since then ...

PenelopeVita-Finzi

•9 years ago

14 Replies

Not on steroids

Hi are there anyone in here who's not on steroids? I can't take it, had to many side effects. Tried a lot of drugs and are now on Humira and Methotrexate. Had...

Hi are there anyone in here who's not on steroids? I can't take it, had to many ...

evafel

•9 years ago

5 Replies

"Pain in the butt" and thighs??

Hi. PMRandRa has asked me to open this thread as it seems we have one thing in common (probably have more) but we both suffer with pain in the glutes and...

Hi. PMRandRa has asked me to open this thread as it seems we have one thing in c...

poppetpain

•9 years ago

13 Replies

ESR result

I've just had the result of an ESR test back and I'm wondering where to go now as my GP thinks the result is ok but I still have pain and stiffness. I had the...

I've just had the result of an ESR test back and I'm wondering where to go now a...

DDKRM

•9 years ago

4 Replies

Not being sensible !

Hi Just thought I'd write and try to give quick picture of how silly I've been over last week or so, which may or may not help others and ask for some advice...

Hi Just thought I'd write and try to give quick picture of how silly I've been o...

Jackoh

•9 years ago

19 Replies

Plymouth & Cornwall Support Meeting 8th July

Plymouth & Cornwall support meeting Wednesday 8th July 7 Pendeen Close. Southway Plymouth PL6 6SB. 2pm. Update from Taunton AGM and planning for prof Bhaskar...

Plymouth & Cornwall support meeting Wednesday 8th July 7 Pendeen Close. Southway...

Hidden

•9 years ago

Be the first to reply

Am I reducing too fast?

I have just found this forum and am so pleased to be able to read of others experience with this problem. I was diagnosed by my GP in June 2014. It was a...

I have just found this forum and am so pleased to be able to read of others expe...

Deemar

•9 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2015

Going round in circles!

Dealing with PMR

New

PMRGCA

Bristol Plan ?

Thank you

Knee pain related to PMR?

GCA temporal arteritis

Levels of Pred?

Heat Sensitive

Foot stopped being able to walk. Claudication?

Cream for thin skin

Shingles

Problems with balance and shakiness

Biopsy

Quinine

try again, I made a mess out of my first try,

Just not myself

Calcium supplements

Diagnosis

Detox massage

Tapering - taking lower dose morning or evening and why?

Probiotic yogurt

Have I got PMR?

Not on steroids

"Pain in the butt" and thighs??

ESR result

Not being sensible !

Plymouth & Cornwall Support Meeting 8th July

Am I reducing too fast?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive