Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

10,433 members • 18,963 posts

All posts for April 2014

Medication? my doctor said she thinks i have GCA but said she couldn't prescribe medication until the biopsy results.

been going back and forth to the doctors for a month now and finally bloods came back and she said she thinks i have GCA. but when i got home i was looking on...been going back and forth to the doctors for a month now and finally bloods came...

Re: GCA, rapid tapering and having a short term, mild problem speaking and finding words common in my job. Any experience with this?

I have been diagnosed with GCA and PMR and had my dose of prednisone tapered too rapidly. At 5 mg my SED rate & C reactive protein were higher than normal. I...I have been diagnosed with GCA and PMR and had my dose of prednisone tapered too...

water infection

Just come back from doctors with yet another batch of antibios for a water infection. Had full blood tests last week which are all normal yet water sample...Just come back from doctors with yet another batch of antibios for a water infec...

kingharold11•

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Hi all, can you tell me about flare-ups not related to decreasing dose of pred. If there are any? How often? etc.

I was diagnosed with pmr 2 weeks ago and am on 15mg of prednisolone, 800iu vitimin D capsules and 30mg lansoprazole a day. Am also type 2 diabetic.So far...I was diagnosed with pmr 2 weeks ago and am on 15mg of prednisolone, 800iu vitim...

Fatigue

Diagnosed pmr January, commenced on 20mg prednisolone. pain went in 24hrs and felt full of energy but only for one week, doctor reduced my dose, completed...Diagnosed pmr January, commenced on 20mg prednisolone. pain went in 24hrs and fe...

Can someone tell me this will improve........?

Me again, feeling a bit sorry for myself and a bit whingy. I was so elated after my first few doses of pred, with how the stiffness magically disappeared and...Me again, feeling a bit sorry for myself and a bit whingy. I was so elated after...

side effects Pmr or Pred.

One of my simple pleasures is (was) to relax with a good book,not any more all i can manage now are a few pages before my tired eyes start to close and i have...One of my simple pleasures is (was) to relax with a good book,not any more all i...

No inflammatory markers in my blood You don,t have PMR

After an urgent referral to the Rheumatology dept (which took 9 days to come through) I have been at told that my fever sweating, pain in hips back legs knees...After an urgent referral to the Rheumatology dept (which took 9 days to come thr...

Prednisolene breathing

I suspect that my pred 15mg is causing my restricted breathing/tight chest, especially in the hours after taking. Is this true?I suspect that my pred 15mg is causing my restricted breathing/tight chest, espe...

I have read before on here about an anti-inflamatory diet but can't find it now that I want to try it anyone help?

kingharold11•

where do I buy the new book about PMR and GCA?

RESULTS OF SHORT SYNACHTEN TEST

Can anyone tell me what the results of the test mean please. My cortisol levels were 143 before synacthen test half an hour later it was 411 and a further...Can anyone tell me what the results of the test mean please. My cortisol levels...

I AM TWYPE 2 DIABETIC, WITH C.O.P.D,TAKING SYMBORT,& SPOREVA, HAD RECENT STEM CELL REPLACMENT FOUR THE C.O.P.D & GAINED 11 LBS. IN 2 MONS.

WHY & I CHANGED NOTHING, IM GOING NUTS WHAT CAN I DO FOR FAST FIX OF THIS PROBLEM?WHY & I CHANGED NOTHING, IM GOING NUTS WHAT CAN I DO FOR FAST FIX OF THIS PROBLE...

GCA/PMR and driving

Anyone know about driving with GCA/PMR and do you have to inform DVLAAnyone know about driving with GCA/PMR and do you have to inform DVLA

Am I unwise trying to overcome muscle weakness by swimming and regularly visiting the gym.

Todays messages have made me wonder about my approach to GCA. I am aware, from reading other people's messages that my symptoms are not as bad as those of...Todays messages have made me wonder about my approach to GCA. I am aware, from ...

First Rheumy Appt

Home from 1st rheumy appointment.. and lo and behold his professional opinion is I do not have PMR or GCA.. He was very adamant that I am to young and have...Home from 1st rheumy appointment.. and lo and behold his professional opinion is...

Has anyone had ear ache and swelling on neck ????

I have asked the doctor what it is, and has it anything to do with Pollymyalgia he say no, but does not know what it is and has given me ear drops, they do...I have asked the doctor what it is, and has it anything to do with Pollymyalgia ...

I have just had my monthly blood test and my CRP is 20, when it is usually 1 or 2.

I am on Prednisolone 12 mg daily (for GCA) and had got down to 10mg in March, but had a relapse with violent headache and vomiting, so had to up the dose. What...I am on Prednisolone 12 mg daily (for GCA) and had got down to 10mg in March, bu...

Disability Living Allowance

Hi... I have been off work ( i work full -time) since 1st March. Clinically diagnosed with GCA/PMR on 60mg's pred as day and most days feel damn awful!!...Hi... I have been off work ( i work full -time) since 1st March. Clinically diag...

On prednisolene but have been given Tildiem Retard today for suspected heart problem.

It says in the leaflet that it can increase the effects of methylprednisolone? Is that the same Pred I am on for my PMR?It says in the leaflet that it can increase the effects of methylprednisolone? I...

Feel like my whole body is attacking itself

Now been on 20 mg of prednisolone for five weeks to try and calm down my GCA and PMR symptoms but if anything it's getting worse. As well as feeling completely...Now been on 20 mg of prednisolone for five weeks to try and calm down my GCA and...

Lower prednisolene

I am on 15mg pred and should be for the next 3 weeks. Having heavy after effects, kind of spaced out, but all the pain has gone. Only have 5mg tablets and...I am on 15mg pred and should be for the next 3 weeks. Having heavy after effects...

Doublebase cream

I have been looking on line for doublebase cream, and come across doublebase gell, is this as good ? My skin is getting so bad it's become paper thin, and I'm...I have been looking on line for doublebase cream, and come across doublebase gel...

Prednisolene alcohol

Can you drink alcohol with pred. Do fancy a pint!Can you drink alcohol with pred. Do fancy a pint!

Happy Easter/Happy Passover, Surviving the holiday !

Hi Everyone, wanted to say Happy Easter, Happy Passover to all of us. Hope everyone had a good day and felt ok. Mine was good. feeling a little dizzy, small...Hi Everyone, wanted to say Happy Easter, Happy Passover to all of us. Hope every...

Has anyone had a persistent cough with PMR?

I have had a persistent cough and bring up phlegm, I have to keep clearing my throat, have had chest X-rays and nothing shows upI have had a persistent cough and bring up phlegm, I have to keep clearing my th...

learning to live with pmr

hi everyone, I am newly diagnosed pmr age 56. is fatigue normal once commenced on prednisolone, I started 20mg, dropped to-day to 15mg. will this fatigue ease...hi everyone, I am newly diagnosed pmr age 56. is fatigue normal once commenced o...

Taking Preds & Aspirin together.

At the moment I am taking 5mg of Preds. Due to a Branch Retinal vein occlusion my G P has recently prescribed me with 75mg of aspirin,stating that I should be...At the moment I am taking 5mg of Preds. Due to a Branch Retinal vein occlusion m...

Prednisolene mouth infection

Does pred cause some tooth infection/ pain?Does pred cause some tooth infection/ pain?

Reducing tip to try?

Was feeling quite lacking in energy and not great first thing in the morning.... Had to take my dose of pred and then stay in bed laying down for at least 45...Was feeling quite lacking in energy and not great first thing in the morning.......