Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk
10,433 members18,964 posts

All posts for July 2013

Hi. I cut down to 15mg pres 3 weeks ago. All good at first. Now flaring I think. Does anyone have probs with ear/ feet muscle aches.

My dexa scan shows evidence of osteoporosis

in spine and femoral neck my consultant has recomended Ibandronate, I have googl...

been on 5mg steroids for PMR for 6 months cut down to 4mg all OK know down to 3mg my neck is getting tight & also my tinnitus has returned!

which I guess is because my neck and head muscles are getting tight - I was real...
Want to take advantage of all our features? Just log in!
or

Surprising reaction from rheumatologist today!

I was referred back to the rheumatologist by my GP---Cue Dr Jekyll (I saw him a...

Angry - if medication requires blood tests, these MUST be done!

Big rant - azathioprine - requires weekly blood tests for a month. This is not ...

reading some of the questions I noticed that someone said that omeprazole can cause leg pain is this the case Wendy

Rheumatologist yesterday

I've written quite a bit in the questions section so won't repeat it here. I ha...

Is anyone else on azathioprine? Also Arcoxia (etorocoxib)?

I have atypical PMR (i.e. with normal blood results) and also degenerative chang...

There is a newsletter with a link to a paper by Prof Dasgupta on how PMR affects other Ailments. I lost it Can someone post it again please?

Back!

I've really missed the site but I hate the new format. Like Facebook, they have...

Pain mainly on one side of the body?

I have been recently been getting pain mainly in my right thigh and left arm, is...

my CRP level is 17 does anyone know what is normal

North West Support Group - when is the next meet ?

I read in the last newsletter of a new North West Support Group that met up in L...

tiredness and sweating

I have had PMR for 2 years and while I stay on about 5 mg pred (ignoring doctors...

Is new always better

Please put the website back as it was,this new one is hard to understand and nav...

Its good to get back into the forum . I have missed being able to read other PMR/GCA sufferers questions.

I have been on holiday for 2 weeks to a Riverside Park in Stratford -on--Avon a...

If you have a flare up how much do you have to increase pred to get back to pain free state?

I have managed to gradually reduce to 10 mg (Started at 20 mg in Dec) - all goin...

Different protocol used by my Rheumitoligist

In april this year I was diagnosed with PMR my rheumy put me on 15 mg of pred fo...

I have WG & one of my conditions & probably the most distressing is the vasculitis has affected the optic nerves of both eyes which has

left me with blind spots. When I read I miss lines & have to keep back tracking....

Upgrade to the New HealthUnlocked

Hi Everyone, I thought I would write a post to clarify a few issues that are be...

I'm a newbee.

So good to find this site. I'm 52 and was told I'm young to have GCA, but from y...

TAPERING OF STEROID (a new way)

....when getting down from 8 to 7, will have a week with six days on 8 and one o...

Coated tongue and mouth ulcers

Good morning everybody! I was diagnosed with PMR December 2012. I started on 20...

Any ideas on preventing or lessening dizzy turns when dropping the dose?

On almost every drop since 5mg I have suffered dizzy turns about 4 days after dr...

New

Hello everyone, am new here, so I guess many of you know lots that I am just lea...

Nurse led apts...what do they mean

After being in excruciating pain in my legs hips and shoulders for months I was ...

does anyone have any side effects from alendronic acid

i have had pmr since beginning of 2011, was prescribed steroids etc along with a...

deleted post to get rid of photo blood tests back

hello ,sorry I had to delete post,I wasnt comfortable with photo of my veins po...

Is it old age or is it PMR?

I know that there's a tendency to attribute all aches and pains to PMR, and I ce...

My PMR story to date . . .

I was diagnosed with PMR in Feb 2012 after weeks of stubbornly believing that it...