Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,273 members • 37,962 posts

All posts for July 2013

Hi. I cut down to 15mg pres 3 weeks ago. All good at first. Now flaring I think. Does anyone have probs with ear/ feet muscle aches.

annihami

•11 years ago

3 Replies

My dexa scan shows evidence of osteoporosis

in spine and femoral neck my consultant has recomended Ibandronate, I have googled it and the side effects look horrendous, I can,t take AA any ideas Wendy

in spine and femoral neck my consultant has recomended Ibandronate, I have googl...

kingharold11

•11 years ago

1 Reply

been on 5mg steroids for PMR for 6 months cut down to 4mg all OK know down to 3mg my neck is getting tight & also my tinnitus has returned!

which I guess is because my neck and head muscles are getting tight - I was really hoping to get off this stuff but feel I am going backwards - any ideas...

which I guess is because my neck and head muscles are getting tight - I was real...

norahmoores

•11 years ago

13 Replies

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Surprising reaction from rheumatologist today!

I was referred back to the rheumatologist by my GP---Cue Dr Jekyll (I saw him as Mr Hyde last time)! Whereas 3 months ago I was dismissed almost summarily...

I was referred back to the rheumatologist by my GP---Cue Dr Jekyll (I saw him a...

violetsnowdrop

•11 years ago

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Angry - if medication requires blood tests, these MUST be done!

Big rant - azathioprine - requires weekly blood tests for a month. This is not my choice to make extra work for the surgery. I've been told that I can have...

Big rant - azathioprine - requires weekly blood tests for a month. This is not ...

missrat

•11 years ago

1 Reply

reading some of the questions I noticed that someone said that omeprazole can cause leg pain is this the case Wendy

kingharold11

•11 years ago

17 Replies

Rheumatologist yesterday

I've written quite a bit in the questions section so won't repeat it here. I have atypical PMR and osteoarthritis in my spine. The clinic at our new hospital...

I've written quite a bit in the questions section so won't repeat it here. I ha...

missrat

•11 years ago

3 Replies

Is anyone else on azathioprine? Also Arcoxia (etorocoxib)?

I have atypical PMR (i.e. with normal blood results) and also degenerative changes in my spine. I saw my rheumatologist yesterday. Because I have diabetes...

I have atypical PMR (i.e. with normal blood results) and also degenerative chang...

missrat

•11 years ago

4 Replies

There is a newsletter with a link to a paper by Prof Dasgupta on how PMR affects other Ailments. I lost it Can someone post it again please?

janimaths

•11 years ago

2 Replies

Back!

I've really missed the site but I hate the new format. Like Facebook, they have taken something which works and made it worse! I hope you are all coping with...

I've really missed the site but I hate the new format. Like Facebook, they have...

missrat

•11 years ago

11 Replies

Pain mainly on one side of the body?

I have been recently been getting pain mainly in my right thigh and left arm, is it common to have for instance, pain in one leg and not the other? I've read...

I have been recently been getting pain mainly in my right thigh and left arm, is...

Loco99

•11 years ago

6 Replies

my CRP level is 17 does anyone know what is normal

kingharold11

•11 years ago

2 Replies

North West Support Group - when is the next meet ?

I read in the last newsletter of a new North West Support Group that met up in Leigh Lancashire on March the 5th, sadly the newsletter was received at the end...

I read in the last newsletter of a new North West Support Group that met up in L...

Manchester32

•11 years ago

3 Replies

tiredness and sweating

I have had PMR for 2 years and while I stay on about 5 mg pred (ignoring doctors who say cut them down) I don't have most of the symptoms namely neck and...

I have had PMR for 2 years and while I stay on about 5 mg pred (ignoring doctors...

kingharold11

•11 years ago

10 Replies

Is new always better

Please put the website back as it was,this new one is hard to understand and navigate,I hate it its awful,don't think I will be visiting it much anymore.I know...

Please put the website back as it was,this new one is hard to understand and nav...

Limoqueen

•11 years ago

4 Replies

Its good to get back into the forum . I have missed being able to read other PMR/GCA sufferers questions.

I have been on holiday for 2 weeks to a Riverside Park in Stratford -on--Avon and the wi/fi was not good and at the same time this site was changed and I...

I have been on holiday for 2 weeks to a Riverside Park in Stratford -on--Avon a...

trish29

•11 years ago

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If you have a flare up how much do you have to increase pred to get back to pain free state?

I have managed to gradually reduce to 10 mg (Started at 20 mg in Dec) - all going well but a week ago I started getting some pains in my right shoulder again....

I have managed to gradually reduce to 10 mg (Started at 20 mg in Dec) - all goin...

suzieh

•11 years ago

1 Reply

Different protocol used by my Rheumitoligist

In april this year I was diagnosed with PMR my rheumy put me on 15 mg of pred for 2 weeks & the reduced it to 10 mg for 1 month.He then reduced it to 7.5 mg...

In april this year I was diagnosed with PMR my rheumy put me on 15 mg of pred fo...

JOHNONE28

•11 years ago

1 Reply

I have WG & one of my conditions & probably the most distressing is the vasculitis has affected the optic nerves of both eyes which has

left me with blind spots. When I read I miss lines & have to keep back tracking. If I am walking I find it difficult to judge steps ,slopes & bang into...

left me with blind spots. When I read I miss lines & have to keep back tracking....

Hidden

•11 years ago

2 Replies

Upgrade to the New HealthUnlocked

Hi Everyone, I thought I would write a post to clarify a few issues that are being brought up with regard to the platform’s upgrade. First, we’re glad you’re...

Hi Everyone, I thought I would write a post to clarify a few issues that are be...

Hidden

•11 years ago

3 Replies

I'm a newbee.

So good to find this site. I'm 52 and was told I'm young to have GCA, but from your polls it seems not so really. I was put on 60mg a day pred for 2 months in...

So good to find this site. I'm 52 and was told I'm young to have GCA, but from y...

FranTodd

•11 years ago

4 Replies

TAPERING OF STEROID (a new way)

....when getting down from 8 to 7, will have a week with six days on 8 and one on 7,. Then next week, five days on 8 and two on 7 (not together, say, Sunday...

....when getting down from 8 to 7, will have a week with six days on 8 and one o...

JANNYROSE

•11 years ago

3 Replies

Coated tongue and mouth ulcers

Good morning everybody! I was diagnosed with PMR December 2012. I started on 20mg Prednisolone and am currently reducing down by 1mg a month, currently on...

Good morning everybody! I was diagnosed with PMR December 2012. I started on 20...

pjsmum

•11 years ago

15 Replies

Any ideas on preventing or lessening dizzy turns when dropping the dose?

On almost every drop since 5mg I have suffered dizzy turns about 4 days after dropping and also feel faint when picking things off the floor especially in the...

On almost every drop since 5mg I have suffered dizzy turns about 4 days after dr...

Hidden

•11 years ago

14 Replies

New

Hello everyone, am new here, so I guess many of you know lots that I am just learning, only found out a couple of months ago that I have PMG so still on early...

Hello everyone, am new here, so I guess many of you know lots that I am just lea...

Hidden

•11 years ago

8 Replies

Nurse led apts...what do they mean

After being in excruciating pain in my legs hips and shoulders for months I was finally diagnosed as having PMR, fibromyalgia and osteroarthritis in February...

After being in excruciating pain in my legs hips and shoulders for months I was ...

worriedaboutPMR

•11 years ago

2 Replies

does anyone have any side effects from alendronic acid

i have had pmr since beginning of 2011, was prescribed steroids etc along with alendronic acid. I stopped taking the alendronic acid because it made me dizzy.I...

i have had pmr since beginning of 2011, was prescribed steroids etc along with a...

kingharold11

•11 years ago

10 Replies

deleted post to get rid of photo blood tests back

hello ,sorry I had to delete post,I wasnt comfortable with photo of my veins popping out,tried to delete it,only way I could was to delete post. phoned...

hello ,sorry I had to delete post,I wasnt comfortable with photo of my veins po...

Hidden

•11 years ago

1 Reply

Is it old age or is it PMR?

I know that there's a tendency to attribute all aches and pains to PMR, and I certainly had a few before its onset, but I never had this tendonitis. My...

I know that there's a tendency to attribute all aches and pains to PMR, and I ce...

Annodomini

•11 years ago

5 Replies

My PMR story to date . . .

I was diagnosed with PMR in Feb 2012 after weeks of stubbornly believing that it was normal ageing process to be so limited with mobility. But 30mgs of Pred...

I was diagnosed with PMR in Feb 2012 after weeks of stubbornly believing that it...

wendyanne49

•11 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2013

Hi. I cut down to 15mg pres 3 weeks ago. All good at first. Now flaring I think. Does anyone have probs with ear/ feet muscle aches.

My dexa scan shows evidence of osteoporosis

been on 5mg steroids for PMR for 6 months cut down to 4mg all OK know down to 3mg my neck is getting tight & also my tinnitus has returned!

Surprising reaction from rheumatologist today!

Angry - if medication requires blood tests, these MUST be done!

reading some of the questions I noticed that someone said that omeprazole can cause leg pain is this the case Wendy

Rheumatologist yesterday

Is anyone else on azathioprine? Also Arcoxia (etorocoxib)?

There is a newsletter with a link to a paper by Prof Dasgupta on how PMR affects other Ailments. I lost it Can someone post it again please?

Back!

Pain mainly on one side of the body?

my CRP level is 17 does anyone know what is normal

North West Support Group - when is the next meet ?

tiredness and sweating

Is new always better

Its good to get back into the forum . I have missed being able to read other PMR/GCA sufferers questions.

If you have a flare up how much do you have to increase pred to get back to pain free state?

Different protocol used by my Rheumitoligist

I have WG & one of my conditions & probably the most distressing is the vasculitis has affected the optic nerves of both eyes which has

Upgrade to the New HealthUnlocked

I'm a newbee.

TAPERING OF STEROID (a new way)

Coated tongue and mouth ulcers

Any ideas on preventing or lessening dizzy turns when dropping the dose?

New

Nurse led apts...what do they mean

does anyone have any side effects from alendronic acid

deleted post to get rid of photo blood tests back

Is it old age or is it PMR?

My PMR story to date . . .

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