Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,022 members • 39,679 posts

All posts for September 2024

GCA rheumatologist visit today.....60mg it is~!

I'm just getting to the computer at 5:30 PM CST. After reviewing the information from the neuro-ophthalmologist, the rheumatologist said I would have to stay...

I'm just getting to the computer at 5:30 PM CST. After reviewing the informati...

Grammy80

•2 hours ago

10 Replies

Thank you all.

I want to thank all members who have posted and replied to my posts. I have been reassured and informed about this journey that is PMR. It is no longer a scary...

I want to thank all members who have posted and replied to my posts. I have been...

LittleJane

•7 hours ago

9 Replies

Reducing pred

Hello everyone I was diagnosed with PMR 4 years ago and each time I reduce I get another flare up. I am trying to reduce to zero as advised by my GP. I...

Hello everyone I was diagnosed with PMR 4 years ago and each time I reduce I ge...

Calypsocat

•7 hours ago

6 Replies

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GCA taper

I’m currently on Actemra injection once a week after 1 1/2 years. I haven’t had any flares and my assistance will run out. I would like to get off of it...

I’m currently on Actemra injection once a week after 1 1/2 years. I haven’t had...

LRevell

•7 hours ago

3 Replies

wrist pain flare

I started on 20 mg and had tapered to 9 mg. Right before I was to go to 8mg I started waking up to my wrists being sore as if I’d sprained them. By noon they...

I started on 20 mg and had tapered to 9 mg. Right before I was to go to 8mg I s...

Beinkc

•11 hours ago

7 Replies

Is this the end or …?

I’ve been reducing steroids for many months and am now taking one mg every fifth day. I feel ok. I also had a molar extracted a week ago and despite my fears...

I’ve been reducing steroids for many months and am now taking one mg every fifth...

Ana-16

•11 hours ago

11 Replies

Do I need to retake Prednisone after vomiting?

So about 20 minutes after taking my prednisone with food, I threw up, mainly phlegm and mucus. Do I need to retake the prednisone? Sorry for the gross...

So about 20 minutes after taking my prednisone with food, I threw up, mainly phl...

ILbbHpmr

•11 hours ago

4 Replies

Adrenal fatigue on lower prednisone

Is it ok to take something to try and activate the adrenals . I thought the prednisone was keeping adrenal function lower on purpose? My fatigue sets in around...

Is it ok to take something to try and activate the adrenals . I thought the pred...

Linny3

•11 hours ago

9 Replies

Another question

I have read that Prednisolone should not be taken with laxatives due to effects of lowering potassium levels? I take Movicol for chronic constipation due to...

I have read that Prednisolone should not be taken with laxatives due to effects ...

LittleJane

•12 hours ago

11 Replies

Spoon Theory

I receive the magazine Inspire from Versus Arthritis and there is an article about Spoon Theory in the Autumn issue. When I read it I thought I remembered...

I receive the magazine Inspire from Versus Arthritis and there is an article abo...

Baner

•12 hours ago

5 Replies

blood tests

hi, i have been on prednisolone for just over 3 1/2 months, all going well so far, my GP sends a 6 week prescription for each dose reduction and texts to check...

hi, i have been on prednisolone for just over 3 1/2 months, all going well so fa...

Excelsior80

•13 hours ago

3 Replies

Grip Strength

Hi - started at 20 after diagnosis in January of 24 and my reductions were as follows - each after 4 weeks and a rheumy visit 20 -15 -12.5 -10 - 7.5 -6.25 -5–...

Hi - started at 20 after diagnosis in January of 24 and my reductions were as fo...

NCStateLine

•13 hours ago

4 Replies

PMR, Prednisolone and diet

I have read a bit about the effect of Prednisolone on bone density and also on blood sugar. Can anyone give me a heads up on this as I have a family history of...

I have read a bit about the effect of Prednisolone on bone density and also on b...

LittleJane

•14 hours ago

9 Replies

covid

My Gp doesn’t seem to know the protocol now for testing positive for Covid. Do I up my steroids or do I ask for an anti viral? It seems a bit vague now. Any...

My Gp doesn’t seem to know the protocol now for testing positive for Covid. Do I...

lennysmummy

•14 hours ago

3 Replies

Private message

How do I send a private message please? I want to pass on a contact email address to set up a support group in the East Midlands

How do I send a private message please? I want to pass on a contact email addre...

PMRprincess

•15 hours ago

2 Replies

do you agree with my tapering plan?

As instructed by the rheumatologist, on 15th August I began taking 9 & 10mg pred on alternate days. The frequency of pain in my left ear and the left side of...

As instructed by the rheumatologist, on 15th August I began taking 9 & 10mg pred...

musicalJ

•15 hours ago

8 Replies

Pericarditis and high inflammatory markers

Does anyone have experience of pericarditis and very high inflammatory markers? After having a 'small heart attack' I have now developed pericarditis and am...

Does anyone have experience of pericarditis and very high inflammatory markers? ...

Odosmum

•17 hours ago

3 Replies

Irritable Bowel

Is IBS a common side effect of Prednisolone? I am really struggling to control bowel movements. I have also had three or four really unpleasant bouts of...

Is IBS a common side effect of Prednisolone? I am really struggling to control ...

ChrisBeeLoop

•18 hours ago

2 Replies

How many of us support PMRGCAuk with $$ as Members, I wondered....?

Heaven knows I have been all over this forum, through good times and bad, offering comfort and support. This is also where we can all gather and gain knowledge...

Heaven knows I have been all over this forum, through good times and bad, offeri...

Grammy80

•18 hours ago

15 Replies

No reaction

Had my pneumonia and shingles jabs last Tuesday and so far no reaction, only a sore arm for a day. Covid and flu jabs in a couple of weeks time, hope for the...

Had my pneumonia and shingles jabs last Tuesday and so far no reaction, only a s...

camshall

•18 hours ago

2 Replies

Vomorolone vs Prednisone

Vomorolone is not currently approved for use in treatment of PMR. I'm just posting this so everyone is aware of its existence. There are also currently no...

Vomorolone is not currently approved for use in treatment of PMR. I'm just post...

Ackgolfer63

•1 day ago

5 Replies

Hello everyone

I have posted a bit in my profile and in a few posts but this page came up asking me to tell about myself so here goes:I am 67, a wife, mother and grandmother....

I have posted a bit in my profile and in a few posts but this page came up askin...

LittleJane

•1 day ago

23 Replies

irritable and achy reducing from 6 to 5.5 pred

Dear fellow travellers, I have been reading all the recent posts and responses about reducing from 6mg to 5.5mg. I got down to 6mg 11 months ago but had...

Dear fellow travellers, I have been reading all the recent posts and responses a...

Bobbiegirl

•1 day ago

14 Replies

Myositis or something else?

I am now down to half mg pred for PMR and GCA. I get a bit of stiffness in my hips and shoulders, also my ankles. Nothing debilitating though. However I keep...

I am now down to half mg pred for PMR and GCA. I get a bit of stiffness in my hi...

Broseley

•2 days ago

6 Replies

sad times

I lost my sister over the BH she was only 63.. and have noticed that my headaches are stronger again. I'm on 15mg injection of methotrexate and now on 9 mg of...

I lost my sister over the BH she was only 63.. and have noticed that my headache...

Alliekat65

•2 days ago

20 Replies

FROZEN SHOULDER?

Hi. Reducing pred only 5mg a day. But lots of pain. Now right shoulder is soooo painful. Can hardly lift my arm. Wondering if it could be a frozen shoulder? At...

Hi. Reducing pred only 5mg a day. But lots of pain. Now right shoulder is soooo ...

Richmond162

•2 days ago

12 Replies

Daily Slump on Pred 6 / 5.5 mg

Hi wonderful PMR/GCAers! I’m successfully tapering g down using the DSNS schedule. What I am experiencing is a strange slump in energy/go pale/feel...

Hi wonderful PMR/GCAers! I’m successfully tapering g down using the DSNS sche...

Leafsong66

•2 days ago

17 Replies

GCA and what I learned today.....

First, I feel the hugs from around the world. xo I also learned that this wonderful forum is a safe place to unload my fears and experience what it was like to...

First, I feel the hugs from around the world. xo I also learned that this wonder...

Grammy80

•2 days ago

35 Replies

resistant to Prednisone

hello all, I saw rhematologist on friday after a hellish pain filled week. He thought that he better try giving me an injection of Pred to see if was an...

hello all, I saw rhematologist on friday after a hellish pain filled week. He t...

JessJess21

•2 days ago

13 Replies

update on update of aneurysm

Well the doctor finally called me. Yes, I talked to the actual man himself! We discussed my options and came up with monitoring it every three months, which...

Well the doctor finally called me. Yes, I talked to the actual man himself! We...

luv2read

•2 days ago

21 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2024

GCA rheumatologist visit today.....60mg it is~!

Thank you all.

Reducing pred

GCA taper

wrist pain flare

Is this the end or …?

Do I need to retake Prednisone after vomiting?

Adrenal fatigue on lower prednisone

Another question

Spoon Theory

blood tests

Grip Strength

PMR, Prednisolone and diet

covid

Private message

do you agree with my tapering plan?

Pericarditis and high inflammatory markers

Irritable Bowel

How many of us support PMRGCAuk with $$ as Members, I wondered....?

No reaction

Vomorolone vs Prednisone

Hello everyone

irritable and achy reducing from 6 to 5.5 pred

Myositis or something else?

sad times

FROZEN SHOULDER?

Daily Slump on Pred 6 / 5.5 mg

GCA and what I learned today.....

resistant to Prednisone

update on update of aneurysm

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