Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,294 members • 38,018 posts

All posts for September 2016

Can you develop PMR months after being diagnosed with GCA

Hi. I was diagnosed with GCA in June 2015. There were no symptoms of PMR. I have been on a 2 year planned steroid reduction programme from 60 to current 6....

Hi. I was diagnosed with GCA in June 2015. There were no symptoms of PMR. I have...

granny-b

•8 years ago

39 Replies

Something New!!!

Hi all.. pic is my cat in her backpack she loves it and even goes driving. she keeps me sane.. 2 days ago I felt a soft bulge on top of my shoulder.. right...

Hi all.. pic is my cat in her backpack she loves it and even goes driving. she ...

Hidden

•8 years ago

8 Replies

THANK YOU!

I have just attended my first support group meeting in Coventry (after 3.5 years with GCA). I would like to thank the whole group for a pleasant & informative...

I have just attended my first support group meeting in Coventry (after 3.5 years...

theresa49

•8 years ago

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New to community--Living with PMR

Hi all...USA resident here, and about a year or so into the PMR life. Feel as though I have gone through the stages of grief...was definitely in denial for a...

Hi all...USA resident here, and about a year or so into the PMR life. Feel as t...

Hidden

•8 years ago

10 Replies

Predisilone at night

Have been getting more and more ill with my slow reduction of Pred - now 25 mg. Spoke to my rheumatologist and he thinks it is the Pred making me ill and that...

Have been getting more and more ill with my slow reduction of Pred - now 25 mg. ...

christine2715

•8 years ago

23 Replies

Help

I have PMR and suffer with Migraine and therefore get very worried about developing GCA and not recognising the difference. Having spoken to my Rheumatologist...

I have PMR and suffer with Migraine and therefore get very worried about develop...

cardboardcutout

•8 years ago

8 Replies

Weigh distribution

To cheer everyone up on a Friday morning......I have finally worked out why, when I bend over forwards, the floor continues to come up to meet me. Previously...

To cheer everyone up on a Friday morning......I have finally worked out why, whe...

Ida-June128

•8 years ago

19 Replies

How long does it take for symptoms to dissipate?

I started on 15mg a week ago, I noticed some improve within a day or two. I am still getting some temporal headache symptoms, which is a worry!!! And soreness...

I started on 15mg a week ago, I noticed some improve within a day or two. I am s...

vsapey

•8 years ago

10 Replies

Sedimentation rate versus CRP count?

Anyone know which is more important sed rate, or CRP? And what should a good CRP reading be?

Anyone know which is more important sed rate, or CRP? And what should a good CRP...

casse

•8 years ago

21 Replies

Omeprazel and side effects

Hi just wondering if anyone else is on omeprazel. Just trying to see if ther is a link to my muscle spasms in the chest / abdominal area and this drug. Could...

Hi just wondering if anyone else is on omeprazel. Just trying to see if ther is ...

9lives

•8 years ago

16 Replies

GCA and odd chest jolts

I wonder if anyone gets odd jolts in their chest/heart area like a hiccup. I am now getting them a number of times a day - perhaps 10-15 - they don't seem...

I wonder if anyone gets odd jolts in their chest/heart area like a hiccup. I am...

christine2715

•8 years ago

9 Replies

Why rheumatologists?

I've been wondering why we see rheumatologists and not endocrinologists. The problem is with our hormones; it's just that the symptoms show up in bones and...

I've been wondering why we see rheumatologists and not endocrinologists. The pr...

queenhermione

•8 years ago

11 Replies

Bizarre VIBRATIONS

Traveled today about 5 hours in car, and another 3 flying... Long long day. Feeling ok, tired... We were sitting in the truck and I asked my husband why he...

Traveled today about 5 hours in car, and another 3 flying... Long long day. Feel...

Zacsmimi

•8 years ago

20 Replies

PMR GONE....!!

I've had PMR since Dec 2013 and have tried tapering many times only to have to go back up. Back in August I had to go back up to 4mg Methyl-prednisolone...

I've had PMR since Dec 2013 and have tried tapering many times only to have to g...

tiasbear

•8 years ago

14 Replies

Invisible Illness Week

Apparently Invisible Illness Week began on 26th September. https://themighty.com/2016/09/what-to-know-during-invisible-illness-awareness-week/

Apparently Invisible Illness Week began on 26th September. https://themighty.com...

HeronNS

•8 years ago

5 Replies

Throat infection

I'm down to 11mg of steroids with gca. I started on 40 in April. Currently have a sore throat for two days and my scalp starting to feel tender. Hope to see gp...

I'm down to 11mg of steroids with gca. I started on 40 in April. Currently have ...

Susanmod

•8 years ago

2 Replies

ESR

What is considered a satisfactory ESR? My neurologist likes it under 25. My GP, who knows very little about GCA, says under 40. I had an ESR last week, as I...

What is considered a satisfactory ESR? My neurologist likes it under 25. My GP, ...

karools16

•8 years ago

21 Replies

Rituximab

Diagnosed pmr officially 3yrs,previously provisionally 2yrs.Was on pred till june2015. but then taken off pred. Dec. 2015 had bad flare-up,lost 2 stone in 3...

Diagnosed pmr officially 3yrs,previously provisionally 2yrs.Was on pred till jun...

paisleyman74

•8 years ago

5 Replies

Informal Support Group, Norwich.

A small group of us with PMR/GCA have been meeting for coffee and chat at Notcutts Garden Nursery over the last year or so. We are a friendly group and would...

A small group of us with PMR/GCA have been meeting for coffee and chat at Notcut...

Hidden

•8 years ago

9 Replies

FLU JAB

Hello I m due to have a flu jab at the weekend. I have been on a dose of steroids for PMR 15mg a day for 3 weeks to see if it helps symptoms and oh yes it...

Hello I m due to have a flu jab at the weekend. I have been on a dose of steroi...

vsapey

•8 years ago

6 Replies

Newbie

Hi just joined I was diagnosed in March this year with pmr never heard of it until then.I am pleased I've found this community to share with people who too...

Hi just joined I was diagnosed in March this year with pmr never heard of it un...

Lynylou57

•8 years ago

16 Replies

Still sore on side were biopsy was done

Hi, I has been now 10 days and I still can not touch the side of my head where the biopsy was done. My temples are still tender, and still feeling quite...

Hi, I has been now 10 days and I still can not touch the side of my head where t...

misaryk

•8 years ago

12 Replies

What should we expect?

Hello again I have posted a couple of times and have had lots of good advice from you all. Its 7 months since my wife lost her sight to GCA. She is finding it...

Hello again I have posted a couple of times and have had lots of good advice fro...

mac66

•8 years ago

6 Replies

Frustrated

Hello all. I haven't been on for a while, the only reason being that I keep forgetting. My short term memory is useless these days. I have eventually...

Hello all. I haven't been on for a while, the only reason being that I keep forg...

Chihuahua1

•8 years ago

7 Replies

PMR-GCA Support East Anglia get-together

The next informal get-together at the Osier Cafe, Museum of East Anglian Life, Stowmarket is on the 6th October at 10.30 Come and have a chat, but let me know...

The next informal get-together at the Osier Cafe, Museum of East Anglian Life, S...

Vanner460

•8 years ago

3 Replies

Getting Worse not Better

This is my first post on this forum so I am hoping some support will help me feel a bit happier with my current health situation.I was diagnosed with PMR in...

This is my first post on this forum so I am hoping some support will help me fee...

Hidden

•8 years ago

15 Replies

STIFFNESS IN FINGERS

Does anyone else get pain, stiffness and numbness in their fingers? Its on my left hand and I cant do much with that hand at all. I have PMR but not seen a...

Does anyone else get pain, stiffness and numbness in their fingers? Its on my le...

CarrieP

•8 years ago

16 Replies

Scalp tenderness

I have had PMR for one year now and have quite a stressful few months. I had a total hip replacement seven weeks ago and am recovering well. But my PMR has...

I have had PMR for one year now and have quite a stressful few months. I had a ...

Jeanjean16

•8 years ago

5 Replies

PMR,prednisolon and where to get small dosage tablets

Hi,I am Toenti, I was diagnosed with PMR in january 2016 after a horrible period of increasing debilitating pain. Prednisolon worked within days which was a...

Hi,I am Toenti, I was diagnosed with PMR in january 2016 after a horrible perio...

Toenti

•8 years ago

7 Replies

Bloods

Hi everyone, I just wanted to know what HD1 is. I just had my results from dr and she said that HD1 had to be repeated in twelve months. Anyone know what it...

Hi everyone, I just wanted to know what HD1 is. I just had my results from dr an...

JJackdaw

•8 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2016

Can you develop PMR months after being diagnosed with GCA

Something New!!!

THANK YOU!

New to community--Living with PMR

Predisilone at night

Help

Weigh distribution

How long does it take for symptoms to dissipate?

Sedimentation rate versus CRP count?

Omeprazel and side effects

GCA and odd chest jolts

Why rheumatologists?

Bizarre VIBRATIONS

PMR GONE....!!

Invisible Illness Week

Throat infection

ESR

Rituximab

Informal Support Group, Norwich.

FLU JAB

Newbie

Still sore on side were biopsy was done

What should we expect?

Frustrated

PMR-GCA Support East Anglia get-together

Getting Worse not Better

STIFFNESS IN FINGERS

Scalp tenderness

PMR,prednisolon and where to get small dosage tablets

Bloods

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